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Novavax trial thread number 3

997 replies

Frazzled2207 · 20/05/2021 21:22

Yet more chat about novavax, (un)blinding, general vaccine passport stress, approval (please please please) and more.
Those involved in other vaccine trials also welcome.

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45
Vargas · 30/07/2021 23:05

@MMAMPWGHAP Of course, I was part of St George's trial in London.

MMAMPWGHAP · 30/07/2021 23:16

That’s great to know. I was too, though not actually at St. George’s. Here‘s hoping I get mine soon too.

PleaseReferToMeAsBritneySpears · 31/07/2021 07:29

My travel pass is on the NHS app. I'm still blind and was in the crossover. As per the email, they took the second set of dates and the batch number is 12345! I'm Leeds but it says midlands. Pity I've got nowhere to go!

MMAMPWGHAP · 31/07/2021 07:43

Mine’s appeared this morning. My concern now is whether other countries will accept it because it says Novavax. Batch also 12345. Shows my April/May doses.

ItsSnowJokes · 31/07/2021 08:01

I still have bugger all on my app! Our trial site do not seem to care!

Cookerhood · 31/07/2021 08:36

Anyone else on ComCov2? Nothing on my app, either domestic or for travel. I emailed the site on Thursday & said that if there was nothing on there by mid August I would get another vaccine. No reply yet.

MrsHamlet · 31/07/2021 09:01

Still nothing for me.

andadietcoke · 31/07/2021 12:40

Nothing from Novavax on my app, and nothing in domestic, but I do have an actual QR code under travel with Moderna.

Rough night and morning but am starting to feel human again. Around 8.30 this morning I was 100% regretting voluntarily putting myself through this, I felt absolutely dreadful.

Frazzled2207 · 31/07/2021 13:09

@andadietcoke
Sorry to hear but pleased you are coming the other side

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Monkeygirl68 · 02/08/2021 15:42

I’ve just had a phone call from my centre to ask for my NHS number, as they put all of the details onto a spreadsheet which then gets uploaded at the end of the day via the NHS onto the app for the Covid passport. Fingers crossed this is the way forward and it will be on there tomorrow!

MrsHamlet · 02/08/2021 15:53

I had that call last Wednesday. Still notjinb

werekitty · 02/08/2021 16:27

I also had that call last Thursday, nothing so far in the app

Cookerhood · 02/08/2021 16:56

I've had a reply from the ComCov2 people as follows:
*Thank you for your email. This issue is being reported by a number of participants, but unfortunately it is beyond the control of individual study sites such as ourselves. We are waiting in anticipation for any further information that we can provide to you.

We now have details of the contact point for individual queries regarding COVID Passes on the NHS App: www.nhs.uk/contact-us/nhs-app-contact-us/. Please do make use of this service.

The latest NIHR update and positioning on COVID vaccine status can be found on the Be Part of Research FAQs page, with links to the most current government guidance.

In view of the rapidly changing landscape of rules affecting national and international travel, we have liaised with the Com-COV2 Trial Steering Committee and decided to take a pragmatic approach to participants remaining blinded in this study. This means that, for the moment, most participants will remain blinded to the vaccines they have received. However, should it become apparent that an individual is being significantly disadvantaged by remaining blinded (which includes a need to travel internationally), then they can contact their study site to discuss the advantages and disadvantages of being unblinded.

If you were to be unblinded, and found that you had received a licenced vaccine, we would be able to add this to the national database such that it would appear in the NHS app and give you a second QR code. However, one third of participants in this study received the Novavax vaccine, which is currently unlicenced in the UK. This means that if you were unblinded and found to have received the Novavax vaccine, we would not be able to add this to the NHS app. Unfortunately, there is no way around this until the vaccine is licenced. We would only be able to provide an unblinding letter confirming that you received this vaccine.*
I plan to ask for unblinding in time to have another vaccine 2 weeks before my holiday. I liked their underlining emphasis Grin

Cookerhood · 02/08/2021 16:57

Oh, the underlining didn't copy across. They underlined "which includes a need to travel internationally"

Frazzled2207 · 02/08/2021 20:25

@Cookerhood
Are they at least sorting the domestic part of the nhs app for you? I don’t see why they can’t.

The being able to avoid self isolation after the 16th if vaccinated is a biggy for me. We have been assured that we will be ok for this, though how it will work practically (for anyone, not just trial participants) remains unclear

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Cookerhood · 02/08/2021 20:30

@Frazzled2207 no they aren't. They seem to think it's nothing to do with them.
I contacted the help desk listed & got a generic answer as if I had had my vaccine at a vaccination centre rather than in a trail. I can see that I will be getting unblinded soon!

Frazzled2207 · 02/08/2021 20:34

Wow they’re a bit behind the times.
If you can’t get any status at all on the nhs app then you’re effectively disadvantaged now regardless of foreign travel. At least with novavax there is clear intent to get us all working on both sides of the app, even though the fact that novavax is not approved is clearly outside their control.

In your shoes I’d be messaging the nihr. They have got back to me quite quickly before.

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Cookerhood · 02/08/2021 20:43

Thank you @Frazzled2207, I'll do that tomorrow

Torvean · 03/08/2021 16:00

Hey @CardinalCat. I got an email saying we will have our vaccine on the website this week.
Mine's not there yet but I'm keeping my fingers crossed.

CardinalCat · 03/08/2021 21:57

Ohh @Torvean thanks so much for letting me know! I've heard nothing from my trial team (who promised me a call with a trial doctor weeks ago) and no response from my useless msp.

This is very exciting and gives me some hope- thanks! X

werekitty · 04/08/2021 09:49

Just checked and I now have a domestic pass in the NHS app

MrsHamlet · 04/08/2021 10:09

I've got both now. Phew!

Lwoj · 04/08/2021 15:15

Still no travel pass for me on the app. 😡

Frazzled2207 · 04/08/2021 22:48

@Lwoj

Still no travel pass for me on the app. 😡
Oh no what does your trial centre say? From the Facebook page the vast majority of people seem to have something now unless they’ve asked them not to upload their data to jt
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Torvean · 05/08/2021 03:33

@CardinalCat forgot to say. Don't go to nhs inform to check . Go to vacs.nhs.scot/csp