I booked a vacc appointment. Got there, got AZ offered. Almost everywhere in EU IBD patients are advised or can only get mRNA vacc due to 2 reasons:
- immune compromised ppl tend to have a lower efficacy as their immune system is already not working properly
- there have been reports (but not studies :( ) that virus vectors can cause flareups.
I presented these 2 facts to the nurse, who was interested as haven't heard it before. I told her the sources (eu ibd org, ema, canadians,,..)
She said fair enough, and told me Wembley are administering Moderna. Also called them up to defer me. But they are only giving it to under 30s. no exceptions.
She then advised me to go to the GP, get an official recommendation letter for Wembley that I should get the M. one.
GP - they will not give any such letter, regardless of any scientific facts or personal beliefs as they have been extra strongly advised to follow the gov guidance to the letter.
and the non plus ultra of the story:
- the vacc nurse -on a personal note- said that I can best get a letter citing psychological distress and mh issues, rather than to try with scientific facts.
The nurse was the most helpful person I have met in a very long time, she truly turned every stone to help me out. But the system is so inflexible that it hurts. and irrational. and narrow focused.
On the other hand I might get the P. or M. in another country, if I'm willing to risk a 2.5 hr flight on a plane where neg pcr is not mandatory for boarding. And I can't go by car (con't driving almost) because in that country appointments are same/next day usually. And even the it might be Sputnik or Sinovac.
Or I might wait for the GP here to get P. or M. in about 1-2 months time and see if I can get it then. Or not. who knows....
I don't think I'll ever be vaccinated.
My H. will be as of tomorrow (AZ). He, who doesn't go anywhere apart from taking the car for a 2 hr drive every month for battery health.
I am beyond frustrated. And before anyone starts saying how ungrateful I am and I should take the AZ - what's the point: risk 10 years of remission (and effing diets and restrictions) for a "maybe 50%" chance of the vaccine working. And I won't know what response it triggers because as a "normal" person (not in trial or anything) it's not monitored and the GP already said they won't do it.
And even if it was done - there is no checkpoint in the system to have boosters if the immune reaction is weak. tough luck.