COVID long-termers 14 weeks+

[isitorisntit]

Welcome all. I'm sad that many of us are still here but at least we have each other. The other thread is full, hence this new one.

Welcome anyone else who is struggling with a long recovery from COVID. They're a supportive lot, here.

Thanks @isitorisntit, placemarking at Day 88.

Hello and thank you for the new thread

Morning and thank you. 4 months for me tomorrow. Sending love and best wishes to everybody.

Hi, thank you for starting the new thread. Just checked and I'm 15 weeks today 😱😱😱😱

Week 15/16 here

15 weeks and 1 day for me.

15 weeks here too, but now getting a little better every day 🤞this rain isn’t helping much today though!

I'm not even 100% sure if I'm getting better or whether I'm just getting used to living like this. Definitely have less chest pain, although it's still there underlying ready to ponce. But breathless when exerting is still there. Finally got a letter through to ring and make an appointment for my first chest xray. Hope everyone has a good weekend.

Hi, hope all doing well this morning and thanks for the new thread.

Thanks for the new thread.

Sore throat is back, following the tight chest, these were my v early symptoms weeks ago 🤷‍♀️Why would they be returning if supposedly post viral? Does anyone know?

Hi @Whatnext2018 sorry you're still having repeat symptoms.

I think this may have been posted before - the latest blog from Paul Garner. He suggests that a relapse can feature a reprint of the original symptoms.

blogs.bmj.com/bmj/2020/05/19/paul-garner-covid-19-and-fatigue-a-game-of-snakes-and-ladders/

Sorry please ignore the link below - it's the wrong one! It's actually his latest June post I was referencing!

@Whatnext2018 so sorry to hear your feeling poorly again. I think it is quite common to have relapsing symptoms after you feel improved. I was feeling almost better a month ago and relapsed. It was weird as it started with my initial symptoms. I joked at the time to my husband that I hoped it wasn't starting again. It was no joke it did, but slightly milder than first time around. Sorry not meaning to depress you we are all different alot of people only relapse for a few days so fingers crossed. Xx

The right link

blogs.bmj.com/bmj/2020/06/23/paul-garner-covid-19-at-14-weeks-phantom-speed-cameras-unknown-limits-and-harsh-penalties/

@fedupofbed @kitcat122 Thanks 🙏 I think it’s a constant relapse..! A merry go round of the same things returning, is bizarre though as depending on when I’ve been sick for (possibly 14 weeks then the main post viral weird bits 8 odd weeks ago 🤷‍♀️) the slightly sore throat was waaaayyy at the very start.

KitKat I think if I were back in day to day life doing my job, I would not be able to do it. I can manage at home (sort of) because I do not have to go anywhere, I can rest when I need to. But like you say, the chest pain is there if I do too much and yesterday, I was hardly able to do anything. It is recovered as in not dead (very important, don’t get me wrong), but not recovered as in back to normal. In fact, the reprint of the original symptoms relapse element in the blog above is exactly it. It is living in a way which avoids that, not being recovered. At least that is how it seems to me.

Hello all (again)

Because of the return of the original symptoms, I’m still paranoid I could infect my parents when they come over in a couple of weeks 😩Eurgh, so hate all this. Life used to be so simple.

@meercatmama Great news, so pleased for you.
I think I have been overdoing it. Since last night feel like someone is holding my throat if that makes sense. Not a nice feeling.

Vertigo has improved but still there....

Hello all. Thanks for the new thread. Glad to hear some people are doing better and sorry for those that arent. I can relate.. still struggling.
Have seen a private ENT for my blocked ears & balance/dizziness issues. He thinks it's may all be caused by inflammation rather than anything else . I've just been for an MRI yest so we'll see.
Gerd and stomach issues still bad. Doctor thinks it's now post viral ibs! Great.
Hang in there eveyone.

Forgot to say, I'm week 15 ish too

'I'm not even 100% sure if I'm getting better or whether I'm just getting used to living like this.'

I can totally relate to this @Kitcat122. I'm not even trying to do the things I used to do for fear of a relapse.

@KatySun thank you. You are probably right. I feel the same as I did a month ago but I am back at work full time so that probably is an improvement. I do feel like I am over doing it sometimes as with work and 4 children I'm on the going for 12 hours a day. School holidays in 3 weeks so maybe I'll see a noticeable improvement then fingers crossed 🤞

Afternoon all, I can relate to a lot of what's been said. I'm similarly unsure whether it is my management of symptoms that is causing them to flare up less often and severely now. It can be very hard to 'pace' effectively - getting or preparing food , for example. I am back working full time but from home and with lots and lots of rest. Trying to carve out several days fully off soon, when DD is at school as otherwise I simply can't rest at all.
Things started to feel a bit easier when I stopped caring what other people thought and attempting to convince them of the legitimacy of me resting.