Hi, I also get out of breath and my chest pain flares up if I talk very much TiddleTaddleTat - I have had two phone calls in the last ten weeks because I simply cannot do them. If I laugh, which I do like to do, it is even worse, and triggers a massive coughing fit.
Millstone I don’t know about a pattern, I somewhat stupidly have not been keeping a note of symptoms. But broadly speaking, my relapses seem to go in cycles and possibly are triggered by physical exertion, although my current one went
Physical exertion >>> aching all over and fatigue >>> some shortness of breath, palpitations and heart racing, back to the chest pain and cough.
I say physical exertion, what I did was cut the grass with a strimmer at the side of the driveway. I did it over two days, half an hour each day. And maybe I am over-estimating that I was okay before than, because when I did walks with DS, I was really struggling to get round our short route.
As regards working, I am finding I can do a couple of hours before my chest and back get unbearable and my concentration goes; then I need to rest to the extent I literally cannot move for half an hour or so. I am going through this cycle morning and afternoon - which maybe I should not be but have two deadlines for next week (and no-one can step in). I do not think I will be doing that today as everything has flared up quite badly again.
I think I am sort of at the point where I think either it is going to take the same time again to recover (I am at 11 weeks now) or this is simply how it will be - a chronic illness and I need to adapt and cope. I do think I am going to press for some tests when I speak with my GP next week, though.