Hi everybody, haven’t been on for a week or so, been trying to really relax (literally resting and lying around all day) and recover from this thing. Sorry to hear so many of you are still having flare ups and relapses, sending you happy thoughts 🌺🌸🌼
I’m 12 weeks today. I trying to be positive and think I might be finally on the very slow road to recovery? (famous last words?!)
The last couple of weeks, things have changed? My chest pains/stiffness, SOB and hoarse voice have finally improved a lot, though are still there on exertion. This left me with horrible abdominal pains and bloating, which I have had all along but were masked a bit by the major breathing/chest problems. I have stopped being brave and gone back on full 24-hour doses of ibuprofen and paracetamol. The painkillers help but still don’t give complete relief.
But yesterday was a major breakthrough, I went out! 🎉🎉🎉
I drove to the local garden centre and pottered around there for a good 20 minutes. It was so lovely to be out! The SOB came back a little but I kept stopping and doing controlled breathing and didn’t collapse this time! By the time I drove home (luckily it’s only five minutes away) I did collapse through the front door and had to lie on the floor for five minutes before I could move. Then I had to sit on the sofa, downing drinks of water, for a few hours to recover. But I went out! Hooray!!
😳😳😬 I came on here this morning to let you know how much better I’m feeling but realised, reading it all back, that my ‘better’ is actually still pretty awful. Sorry, I think after 12 weeks of being horribly ill, I have just come to cherish any moment when I’m not in pain and can see any chink of light at the end of this long, long tunnel.