Meet the Other Phone. Flexible and made to last.

Meet the Other Phone.
Flexible and made to last.

Buy now

Please or to access all these features

Covid

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

COVID lungs 7 weeks plus/ 49 days plus plus

999 replies

pinkoneblueone · 15/05/2020 03:19

New thread,

I won't be a very good host as I tend to dip in and out of these things but have filled up the last thread. (Sorry)

OP posts:
SophieB100 · 16/05/2020 13:19

Hi all, I am posting this link from the Guardian, which might be of interest, apologies if it has already been posted, I haven't had time to catch up on this thread.
I hope you all feel better soon.
www.theguardian.com/world/2020/may/15/weird-hell-professor-advent-calendar-covid-19-symptoms-paul-garner

alittleprivacy · 16/05/2020 13:21

One worrying thing I have read about Dengue fever is that if you get it a second time you are at increased risk of the severe form. Really hope covid isn’t like that.

Covid is nothing like that. There are four types of Dengue fever. If you are infected with one type people with healthy immune systems become immune to that type for life. But they can still be infected by any of the other three. If that happens, they can become sicker because their body in under attack by a very similar virus. It's possible that there is a protective delay because the immune system "thinks" it knows how to respond but the antibodies for the previous infection are not helpful against the different strain. This can lead to that infection of a different Dengue fever making a person more vulnerable than they would otherwise be.

Egghead68 · 16/05/2020 13:41

That’s really good to know @alittleprivacy. Thank you.

15 mins marching on the spot and heel digs put my heart rate up to 148 and felt very strenuous (pre-covid my heart rate would go up to 135 when spinning and 150 running). I think it was probably too much for me. I’ll have to see if I pay the price tomorrow (#whenwillieverlearn).

fedupofbed · 16/05/2020 13:47

Hi everyone, @godhelpusall sorry you're having such a tough time. I find it's a bit of a vicious spiral - the more I worry the more ill I feel. Try not to worry about things like what food your children are eating at the moment, in the long term, it doesn't really matter. I would agree that multivitamins are good though - especially vitamin D. There seems to be growing evidence on how important this is.

Also thank you so much for your posts last night @Meercatmama . I found them so reassuring.

I think it's day 78 for me. SOB has gone today but the funny chest/ cardio symptoms are back. I've generally feeling better in myself though still in bed and taking it very easy.

I'm working really hard on positivity and trying to avoid anything negative as this has such an effect on how I feel physically. I'm avoiding all news. I'm dipping in to Slack, but only victories and sleep channels.

I've become a bit fixated on how all this might relate to the vagus nerve, which I think others have posted on before, and trying exercises and things that I've found online related to that. Whoever did yoga the other day, that is really good for the vagus nerve. I've also booked an online apt with a very good local chiropractor, which I know is a bit kooky, but I feel like I have to try everything. I'll report back. I think we'll have to get a second mortgage to cover how much I've spent on this illness so far!

alittleprivacy · 16/05/2020 13:59

I am significantly better at the moment. I walked over 11,500 steps yesterday and feel mostly fine today. I'm becoming far less aware of my breathing as it's pretty close to normal. I'm not really feeling the chest wall inflammation the majority of the time but I do know that it's there under the surface still. I had to step up on a stool this morning to reach something and I pushed up with my arm on the counter as I stepped up, and I immediately felt a strong flash of pain across my sternum and I have a dull ache there now. So I know that as long as I basically keep my chest completely and utterly clear of stress/pressure that I feel close to normal.

The inflammation seems to be down enough that it's not affecting my heart rate and it's also not being triggered by a slight increase in cardio activity. So my goal at the moment, is to keep as active as I can while letting the inflammation keep receding. Because I triggered pain this morning, I won't do my early walk today. (Which is the one that I do alone with my music and manage a decent pace.) But I will do a gentle stroll this evening. And I'll judge tomorrow's walks on how I feel tomorrow.

I have learned that any exercise that puts stress on my chestwall is a sure fire way to feel worse. So any form of push-up, even a diagonal push-up off the counter sets me back. Any work with weights, even baby weights. Any planks/downward dogs/cobras/anything that involves taking any of my body weight on my chest is a complete and utter no/no. Because it will 100% set my recovery back. I've also found that pilates/yoga that focus on the legs, but involve pulling my legs up tight to my chest or leaning my chest forward to my legs can cause a relapse too. In addition I won't do any activity that requires balancing because if something happens to make you lose your balance, you will unconsciously engage your chest to keep yourself up and I don't think that's worth the risk. And while I can dance around the kitchen a bit while I clean up/cook, if I try anything like a jump and spin, it also engages my chest muscles too much right now. Heavy sweeping and mopping also causes a set back. Kneading bread dough would cause a set back.

The absolute key right now is to keep on remembering that I have chest wall inflammation, even if I can't actually feel it, it's still there. There are warning signs that I'm inflaming it, like a sore throat/lump in throat, sternum pressure, etc. I have to try act like it hurts even when it doesn't, because doing something unthinking, like pushing off with my arm when I stepped on a stool, sets it back. Many, many, many of the supposed gentle exercises I've tried, have set it back. I also have to accept that unfortunately life means that I will repeatedly set it back and if I do, I need to immediately acknowledge that and revise back whatever activities I had planned. My short term goal is to never, ever, ever trigger the inflammation bad enough to cause breathing difficulties again. My longterm goal is to heal completely and get back to normal. There will be steps back along the way but if I can avoid breathing difficulties, I don't mind days with more pain than others.

I'm finding that I'm coping mentally better by treating this like an injury that needs healing. When I was focussed on the idea of this being a new and terrifying new virus that nobody has ever really fully recovered from, I was freaking out and constantly throwing random solutions at because I was afraid and desperate to recover. But using a diagnosis of chest wall inflammation, because that's what both my pleurisy and costochondritis are, I have a clear treatment plan because millions of people throughout history have recovered from that. And it's helped both mentally and physically. I know what's wrong and I can calmly and steadily improve.

*(An important note on that, is that I have had diagnostic tests that show no bacterial infection/clotting/lung scarring etc. If you haven't had those reassurances and have ongoing symptoms do talk to your doctor/111/go to A&E/etc.)

oldbagface · 16/05/2020 14:07

Can I pick your brains please everyone.

Not sure if I've had it or not (did have some issues with smell) but had a rather severe seizure a few weeks back (never had one before in my life) and have had pain in my lungs for weeks. The pain is in my upper back. I can breathe but I often need to take big gulps of air to feel like I'm getting enough. It hurts my lungs when I do this as does coughing and using my inhaler.

Has anyone experienced this please?

Egghead68 · 16/05/2020 14:22

@oldbagface have you had medical attention?

Moodgie · 16/05/2020 14:25

Please if anyone has it at hand, could you share the link to the breathing exercises that were recommended a while ago, I think it was a YouTube link. Or if you have anything else that has worked for you? Thank you.

ohidontgetit · 16/05/2020 14:25

Just joining in here as DD and DH have symptoms and I have just started in the past few hours...

It’s nothing like I’ve felt before.

The best way I can describe the burning feeling is as if somebody went and rubbed Vicks all over my heart and lungs. And also as if somebody has got my heart held in a tight fist. Become breathless after saying more than a few words. Picked my Shih Tzu up for a cuddle and had to put him down as just the act of picking him up took all of my breath. Also got stomach cramps and am definitely not planning on straying far from the loo...

Nothing like a cold as my nose is all fine and dandy. Got no cough either but a sore throat that comes and goes.

ohidontgetit · 16/05/2020 14:30

Also, palpitations. I put my symptoms into the NHS111 thing and it said to phone an ambulance which seemed very hyperbolic.

Moominmamma33 · 16/05/2020 14:34

@ohidontgetit it sounds like Covid from what you've said, I'd maybe ring 111 for advice as it's the weekend and your breathlessness sounds quite severe. What symptoms do the others have? Take care and let us know how you're all doing.

oldbagface · 16/05/2020 14:41

@Egghead68 No. I told my GP this week. The seizure resulted in me being ambulances to hospital and I was given a blood transfusion for anemia but they didn't think they were connected.

It feels like I'm not getting enough air. Oxymeter on 99.

Doctor was a bit dismissive.

The pain in my lungs in my back is constant

Crayfishforyou · 16/05/2020 14:45

@ohidontgetit I would get checked out to be honest.

alittleprivacy · 16/05/2020 14:48

@Oldbagface. The back pain you describe is very common from covid/post-covid and can be a couple of things. Chestwall inflammation like viral/post-viral pleurisy/bacterial pleurisy/viral lung infiltration/lung damage/or a clot. If you can try and get a blood test and chest x-ray to rule out any of the more serious causes. If serious complications are ruled out it's probably chest inflammation and will reduce (eventually) with rest and anti-inflammatories if they are safe for you. It may or may not be related to Covid, but these symptoms do seem to be on the rise at the moment.

emoojoo · 16/05/2020 14:53

@Moodgie not sure if these were the ones recommended on here (although I must have only found them here or slack) but I've found them helpful https://www.youtube.com/channel/UCUu4aBmbhugws2a2VG4EBYw

oldbagface · 16/05/2020 14:54

Thanks. I've been like this for six weeks. If it were a clot would I know by now? I do get an odd feeling on my skin on my back. Like crawling

SimpleKindofLife · 16/05/2020 14:56

I think we'll have to get a second mortgage to cover how much I've spent on this illness so far!

Same @fedupofbed! But think all of the money we've saved on alcohol! I would've drunk a lot of wine over the past seven weeks...

I love your post @alittleprivacy thank you! And congratulations on feeling so much better. How many days/weeks are you?

Moodgie · 16/05/2020 14:57

Thank you @emoojoo Anyone still feeling like their breathing is not right? I have started my 11th week now and it still comes and goes.

Egghead68 · 16/05/2020 15:02

@oldbagface I don’t know whether what you have got is covid but it sounds unpleasant and concerning. I am shocked that the GP was dismissive Flowers.

godhelpusall · 16/05/2020 15:03

Wow @Crayfishforyou that sounds hideous. Mind you I think I've had gastritis with this thing. Bloated, nauseous and horrid

ohidontgetit · 16/05/2020 15:11

@Moominmamma33 DD same symptoms as me but is a few days ahead, she seems to be getting worse. She wakes up quite bad and then it gets better throughout the day but comes back with a vengeance towards nighttime. She’s getting quite upset now and saying she’s sick of it and wants it to stop. If she continues to deteriorate I may get her to A&E but I know Covid patients are meant to avoid it as much as they possibly can. It was her who mentioned the burning felt like Vicks and I realised that’s exactly how mine feels.

DH symptoms a bit different, he had a bout of diarrhoea but his other symptoms are more typical cold. Snotty nose, cough and headache. He is almost every risk factor going though (60, ex smoker, lung damage from leigonnaires, overweight, high blood pressure) so worried sick about him.

oldbagface · 16/05/2020 15:12

Thanks. I will call again on Monday

SimpleKindofLife · 16/05/2020 15:36

@ohidontgetit if you're worried about your dd, call 111, your GP or go to A&E if she's getting worse. Covid patients are still entitled to medical care too!

I think they were keen to keep people away at the beginning but I think they're realising that there are more cases like ours that are dragging on and they need to keep an eye out for potential complications.

ohidontgetit · 16/05/2020 15:52

@SimpleKindofLife Have just finished filling in DD’s online 111 thing. They said she needs to speak to a nurse from the Covid team and we’re due to get a call from them in the next 6 hours.

Can’t believe this is actually happening. I can only think it’s COVID as it’s nothing like I’ve had before. Me and DD both feel utterly weird.

godhelpusall · 16/05/2020 16:02

Weird is right! 8 weeks in and it still freaks me out. Gets worse at 4 pm every day, the horrible crawling sensation and dizziness.

Please create an account

To comment on this thread you need to create a Mumsnet account.

This thread is closed and is no longer accepting replies. Click here to start a new thread.