COVID lungs 7 weeks plus/ 49 days plus plus

[pinkoneblueone]

New thread,

I won't be a very good host as I tend to dip in and out of these things but have filled up the last thread. (Sorry)

@Moominmamma33 that's interesting about MCA. Has anyone had any luck with drs with this? It would be useful to talk to immunologists about it and try the medication to prevent it.

@AndsLee Of course, you're very welcome to this club, which we all wish we weren't members of.

Despite wishing I wasn't a member, I've found this thread to be a really great source of mutual support.

The rash sounds unpleasant. I was getting similar sounding rashes before I became ill and the doctor diagnosed it as dermatitis. They're doing video appointments at most surgeries so it would be worth seeing if you can get a diagnosis.

I wonder if it's worth trying antihistamines

Thanks all. My rash is combined with a sort of numbness, so maybe it's circulation?

Has anyone else sort of given up trying to get medical help? I spoke to 111 several times, GP maybe 5 or 6 times (different ones) and paramedics came out after I collapsed one night - but basically every interaction I've had comes with a heavy dose of dismissal or minimisation of my symptoms, e.g. I'm not breathless, I'm 'tired' or a peak flow down from 460 to 300 is a 'slight reduction'. Most symptoms go eventually so I'm just...waiting to see if any of them get significantly worse rather than trying to find the energy to battle with a doctor.

It's been a weird one for me since 7th May. I seem to have experienced my core symptoms in the same sequence order as they came in March, just for decreased time periods and severity... I surely won't have been infected again??

@mumlurker Yes I've given up seeking medical help. All that happens is that I get prescribed another course of antibiotics, none of which do anything for me. Apart from a steroid spray, which did succeed in loosening tbd mucus.

I've had a pin prick rash on my hands,feet and torso on and off for weeks.

I am also sensitive to hot and cold water. It's feels painful. I don't know quite how to explain it.

I also banged(not hard)my toe earlier and the pain made me feel sick.

I think this virus has affected my pain receptors.

Hello @AndsLee and welcome. Sorry you are suffering too with all the random weird symptoms .

Thought I would post this from Dr John Campbell, who's been a very trusted source of information from the start of the pandemic. This isn't directly about people like us with long recovery times, but he gives a detailed explanation of the latest research from Korea showing that people can't be reinfected twice, how the virus cannot break into our cells and stay in the body like some other viruses, and how we're likely to stay immune if we've had the virus. I found it very reassuring. I'm not very good with links so hope it works.

https://m.youtube.com/watch?v=uATMbGK__Tg&t=198s

@mumlurker absolutely. When I am calm enough I'm planning to make an official complaint to my gp practice. They have been utterly shit.

@godhelpusall - popped an antihistamine two days ago. Didn't work... No surprise there huh?

@Porcupineinwaiting @Mittens030869

Yeah, I feel as though I've been very heavily patronised and dismissed through this whole process, treated like a hypochondriac etc. The anger I've felt about it probably isn't helping me recover!

@mumlurker Yes, my doctor just told me ‘All is fine’ last Friday (until we know blood test results at least) I rang up on Tuesday saying I’m still dizzy etc, she said if I’m still feeling ill, to go to the hospital-just that. Makes you feel so vulnerable. Hospital is the last place I want to go unless desperate. Plus this was private care that I was paying a lot for (I’m in another country) it felt like she just really didn’t give a crap!

@fedupofbed - superb! So it's just more random skulduggery instigated by this nasty wee germ! I did have a swab on 1 May - negative. Wondering if I should do another, or is it worth it?

Re: GPs - shocking at initial outset, but luckily one has taken me under their wing... For me, I'd love to know what's going on in my stomach, and in my throat.

Re: SOB... this is a weird one too. I am not entirely sure if I am "short of breath". Feels more like I am hampered in my breathing through the nose. This is sometimes coupled by this... I don't know...inability to inflate the lungs? I don't think, touch wood, my lungs have taken the battering that some of you have experienced (xxxx), but occasionally I feel that the breath wasn't effective...

Day 54, a bit lighter in my chest today at last! I'm so hoping it lasts. For the first time I made it to a small supermarket nearby (in the car). I felt weak but was only in there for ten minutes and now resting. Felt good to be doing something 'normal'. Really hope the breathlessness starts to go soon - the ibuprofen gel is helping with the upper back pain which I'm hoping will open up the tightness.

@AndsLee I've had 2 swabs, both negative! I don't think they're particularly effective after the first few days. I'm just waiting for the results of my antibody test - I've been told they're now back but waiting for a letter. I'll cry if it's negative.

@fedupofbed - I'll cry alongside you...

Ok - one more random question. Does anyone have, or have they had, a black tongue?

@AndsLee ooh that's a new one. Nope, haven't had that. We all ought to play symptom bingo.

@Lightsabre yay glad the chest is getting better. Hope things continue to improve, and you manage to stay resting as much as possible.

Aye... had that twice now. Bit random... I find the loss of taste thing sometimes happens sporadically too. Just for short bursts. Really inclined to think this virus damages nerves and neurological functions moreso than is yet understood...

mumlurker porcupineinwaiting I've had this too. The problem I found was that I'm known to them to have MH issues so they quickly attribute my symptoms to anxiety. And I admit that there is some truth in that, as struggling for breath does tend to be a very scary experience.

@mumlurker @Porcupineinwaiting I have gone in discussions with my GP recently armed with material from medical journals ready to cite to them. I've had the anxiety card played. My point to them was, "when was the last time I was in the surgery before this? Yes, I am anxious... BECAUSE of the symptoms!"

Welcome @AndsLee. It’s really rubbish isn’t it.

Yes, a lot of my symptoms were attributed to anxiety as well, absolutely infuriating, especially the rising heart rate when moving around. It's now become a bit more complex though, because I think I now have anxiety as additional symptom. This has not caused any of my other symptoms but is in addition to them.

@fedupofbed 100% for sure. Because that societal safety net appears to have holes where some could easily slip through, especially since there are so many unknowns.

I get the impression that this virus doesn't play by conventional rules, but how far along is the medical profession in working out the new game play? stroking my chin as I ponder...

@egghead68 - It's beyond rubbish. [Insert sweary words here] Thank you for the welcome.x

I might have posted on here on earlier threads. I am 55 and have a normal BMI 18.5, no pre existing medical conditions.i walk for an hour plus every day and go to the gym regularly. I’m a retired NHS physio

My history-
Woke up feeling unwell on Mother’s Day
Symptoms pain at base of neck and lungs
Headache
Burning sensation similar to heart burn, in my lungs
Breathless when lying flat
Racing heart rate
Twitching muscles
Sore throat
No appetite and 7lb weight loss
Slight cough
Phoned GP and was prescribed Ventolin Inhaler and a course of steroids
Symptoms have fluctuated in last 8 weeks, at times I thought I was imagining it. To cut a long story short I went for an X-ray and bloods this week. I have not had a test.
Results ..
Bilateral pleural effusion ( fluid o lungs) and white “specks” on X-ray
Bloods reveal lymphopenia ( low lymphocytes which are white blood cells).
There are no further test requirements and no further treatment