COVID lungs 7 weeks plus/ 49 days plus plus

[pinkoneblueone]

New thread,

I won't be a very good host as I tend to dip in and out of these things but have filled up the last thread. (Sorry)

@Whatnext2018 No cough or fever for me (I didn’t have a thermometer at the beginning but I think I would have known if I had it. Breathing issues have been the biggest symptom for me.

That’s good to hear porcupine thank you 😊
I hope the improvement continues!

My worst experiences with this virus have coincided with my period - which means I am due more fun next week, yay.

Does anyone feel like they have something in their chest? The burning, crushed glass feeling has been replaced by feeling like there is something stuck at the bottom of my lungs, also stabby and pulling pain now and then - less around the heart area and more where I think my diaphragm is. I feel like I should try doing handstands to see if I can get whatever it is out (only half-joking, I am not capable of doing handstands).

@fedupofbed well I'm going bonkers with you!!

Did everyone read the articles on the slack site earlier? Were there any that you thought were particularly interesting or want to discuss.

Day 62

Still plodding on. I managed 15 minutes of beginners pilates (slow and missed a few bits. )
I know I'm going to feel it tomorrow as I haven't attemped exercise since December,due to a chest infection in January,then this virus with pneumonia.
I have to go carefully with OA in knees,neck,elbows,feet,hips. Basically I'm falling apart.

It has definitely helped with my breathing. I am able to expand my chest a little easier.
I have been exhausted all afternoon. I've taken it easy.
I did make a lasagne/salad with help.

So not too bad for me today. Still wheezy,SOB,chest/back pain(seems worse at night.) The GERD is getting less. (I find green tea makes it worse.)

Hoping everyone else is doing okay.

Yay @Rosesofeyam!

Has anyone had any skin manifestations at all?

I had small blisters on my fingers quite late on. Someone else did too but someone said they might be a general immune response.

@Moodgie I had a rash

I had purple patchy bruises on my feet and brown ones on my arm. My kids had little red raised bumpy dots scattered about.

Me too @Moodgie . Do you have one too? Glad you had a better day @Rosesofeyam and also great to hear you continue to improve @Porcupineinwaiting

I've just been looking at post viral fatigue syndrome and it's very similar to what I have. Maybe I am post viral? 🤔

I’m so glad I looked at this thread, so sorry you’re all going through similar, but it has helped to make me feel less odd at the moment.
It’s interesting what you say about periods as Friday was the first day of this months period and the morning I went to the doctors as I just felt so dizzy, confused and aching in the legs.
My concern with aching legs is blood clots (this whole thing has made me paranoid) my doctor didn’t scan my legs, only did blood tests, so I’m hoping if there was any chance of that, it would show up in the tests.
Do any of you take any calming type tablets? She prescribed me some Xanax type ones, which I haven’t taken yet as am reluctant, but I’m starting to dread bedtime and the palpitations just as I’m dropping off to sleep etc...last night it seemed to last ages and my whole head was tingly and down my body..it’s such a scary thing.
Do you all have/use an oximeter? We just recently got one and I’m guessing if that’s within range and temperature, all should be okay?

With regard to skin issues, around two weeks ago at the same time my legs starting aching, I developed a large boil/spot underneath my skin on my chest (never had one of these before either 🤷‍♀️) it got quite painful, the doctor gave me an antibiotic cream for that.
It just seems the whole body is out of whack really,

Thank you @godhelpusall for letting us know what the covid hub dr said, they sound as if they really know what they are talking about which is encouraging!

I have actually had a couple of days which haven’t been too bad- I’m out of bed! I did need to have a rest a couple times, but I have been up with the family and I even hoovered up today- I felt a bit rubbish afterwards and my heart was acting as though I had just done an intense HIIT session, but it was doable! This is the first time in 58 days that I have been able to do anything!!!

@Egghead68 @fedupofbed @Moominmamma33 @godhelpusall I’ve been having red patches on thighs and knees, and potentially on arms today. They come and go, just reappear somewhere else and go quite quickly. Anyone similar?

@godhelpusall I had a good read through, the Italian article was interesting as they are two weeks ahead.
The slack group survey was also so interesting- us “long tail” recoveries generally were not hospital admissions. I don’t think we should have been in hospital mind, I just thought it interesting (and annoying- we’re not “that” I’ll as we’re manage at home)
they acknowledge their respondents are disproportionately women. But women are also more likely to have CFS, MS and Lupus....so I think there is a gender thing going on.

Another BMJ blog from Paul Garner
blogs.bmj.com/bmj/2020/05/19/paul-garner-covid-19-and-fatigue-a-game-of-snakes-and-ladders/

@Moodgie no red patches for me (yet)

I might be totally misguided and it’s my DD that is the real member of this group but have any of you had weird blood results? I did a thriva test a week or two ago and it came back with raised testosterone and also raised SHBG, which would not, as I understand it, usually go together (typically raises SHBG = low testosterone)...i wonder if covid has thrown everything out of whack.

Just checking in again as today has, as it turns out, set me right back I'm afraid. The Italian article via the link gave me a start - it's the first time I've actually heard it confirmed in the press that some of us feel like we have broken bones. My thoracic spine today has felt broken again, and since I have actually broken it in the past (T8) I remember only too well the sickening pain. I'm exhausted, shortness of breath, headache, can't think straight at times. No doubt I'll be awake until at least 3 because that's the crazy pattern my sleep is in at the moment, and am even contemplating taking tramadol tonight for the pain.

But have to stay positive despite my anxiety and dark thoughts about what covid is doing to me. That fall yesterday - I just don't fall over, it's not something I've ever had to worry about before and I'm not blaming covid as such but the state it has left me in.

I'm very sorry so many of you lovely people are still needing this group, it's unbelievably unjust, but I'm also glad you're here

Dipping in and out of thread so apologies if I'm note up to date imon3rd week home post intensive care still having bad fatigue and nightmares but ABIT more active and I managed to get in bath and out without feeling as crap...small steps😛

@baroqueandblue I’m sorry you’re still feeling the effects

@Egghead68 thanks for the BMJ link, it’s easy for me to say (as I have CFS/ME) but he’s been bloody well overdoing it! I think we in the CFS community are really hoping there will be more research now. Paul keeps saying it’s not post viral fatigue, but anyone with CFS will tell you that Drs will tell you it’s post viral.and after 6-12months then it’s CFS.

I do feel that there is a problem with society that there is real shame and guilt associated with being ill. It is seen as being lazy, getting something for nothing, not trying hard enough, you need to do more, push yourself, don’t give up. It’s really damaging.

I must admit I still feel viral (albeit mildly) rather that post viral. The way my symptoms shift and flare doesn't feel post viral compared to how I've felt, say, after flu. I mean, right now my left big toe is burning. This will probably last an hour or so, it did last night. But in a few days it'll be fine and some other unlikely part of me will either hurt, or burn, or ache. But with m.e. this apparently what happens, so who knows?

I do feel that there is a problem with society that there is real shame and guilt associated with being ill. It is seen as being lazy, getting something for nothing, not trying hard enough, you need to do more, push yourself, don’t give up. It’s really damaging.

Abolutely @LetsBeSensible, I've thought this for a long time! In psychological terms it's as though chronic illness is the generally denied and unacknowledged 'shadow side' of the capitalist work ethic we're all supposed to base our lives around, and woe betide us if we can't (through no fault of our own ) It was part of Hitler's genocides that sick people were considered 'useless eaters' because they couldn't 'free themselves' through the great improving programme of 'work'

Although society pays lip service to supporting the sick and disabled currently, they're also tightening the screws. I fear for my future if covid after-effects make it even harder to support myself. I've been unable to work full-time for a few years because of other chronic health conditions.

feb 27th for me, was the day that I went downhill rapidly, I'm A&E an rested nefatibe early March.

But I've had every symptom on here, the chest, fatigued, confusion, breathing issues, heart palpitations then the gastric issues, it's been nonstop.

My question is is anyone else having bladder pain UTI without the burning and swollen lymph nodes in their groin?