COVID lungs 7 weeks plus/ 49 days plus plus

[pinkoneblueone]

New thread,

I won't be a very good host as I tend to dip in and out of these things but have filled up the last thread. (Sorry)

@egghead68 I am 41, pretty active with no known underlying conditions.

Hi @Norugratsatall that was me! It's all so strange. I'm speaking with a chiropractor Tuesday and will bring it up then. I'm really sorry that you've had another relapse, and hoping it will be a short one. Keep posting.

@Valsemove thank you for the article - very grounding and interesting. Thank you also @Egghead68 for the FT article - I've not read it yet as I'm trying to stagger the news I read until I'm in the right frame of mind.

@pinkoneblueone sorry you're still having so many horrible symptoms. I hope at least the hospital test results were reassuring. I thought about possible infection/reinfection when I was admitted, but personally I feel so strongly that I have/had covid this stopped me from worrying too much.

Today has started okay despite very little sleep last night. I've had a bath and made myself a cup of tea (decaf ) and now back in bed. I'm waiting to see what the afternoon brings...

Oh and thank you for the cod liver oil suggestion @powkin I will add it to my list!

Thank you everyone they were very reassuring but I was scared half to death of being reinfected so it hasn't helped today as I Have felt very anxious.

@fedupofbed. Yes do. He/she might be able to suggest exercises to fire up parts of the brain that do not seem to be working properly. I suggested to my physio that this could be a Neuro related symptom of the virus and had she had any other patients ringing in to complain of similar. She didn't dismiss my concerns which was refreshing and no she hadn't had anyone else complain of similar but then, as she said herself, I'm somewhat 'ahead of the curve' particularly in this sleep little backwater!

I hope it rectifies itself soon fedupofbed as these Neuro symptoms are most discombobulating!

@pinkoneblueone. Be very gentle to yourself today - lots of rest in the sunshine if you can and lots of water. 💐💐

@fedupofbed when was it you were re-admitted if you don't mind me asking? How many weeks or days? I worry that at 10weeks in I may be susceptible again though I have no clue really.

@pinkoneblueone I went in 27th April. I was mainly in a cubicle in A&E and then my own room with en-suite within a larger covid unit overnight.

My symptoms are still quite debilitating and nothing has dramatically changed over the last couple of weeks. I think my heart rate is gradually improving but still feel pretty ill in myself.

There is a great report on the virus' effect on the immune system here. It seems that people who have been infected produce a robust immune response. So while it completely sucks for us to be sick for so long, any of us who are sick due to Covid have really good immunity right now. We obviously can't tell just how long it will last for but it is looking very positive. Both for our immunity and for an effective vaccine being produced in the near future. (If we have immunity for as long as it takes for a vaccine to be rolled out, we're in a really great position!)

It also seems that people who recently had a cold caused by one of the 4 cold causing coronaviruses have a really good immune response to Sars-Cov-2. This could go toward explaining why so many people have had asymptomatic infections and why some people in intimate contact with an infected person don't seem to get infected. It could also be extremely helpful in terms of producing a vaccine!

And helpfully, here's the article!!!!
www.news-medical.net/news/20200515/To-develop-a-vaccine-to-protect-against-COVID-19-infection.aspx

Sorry just read your question again @pinkoneblueone . I first showed symptoms 28 February so went to hospital roughly 8 weeks in, and now on week 11. GP sent me a referral letter to take to A&E as I wasn't improving and she wanted me to have more tests rather than any particular crisis. Mainly I think to rule out blood clots.

@pinkoneblueone Sorry to hear you’ve been to A&E, you’ve really been through it and I hope your body gives you a break!

Ds’s rash came out exactly one week after the fever and cough started. He had red/bloodshot eyes at the same time.

His gp diagnosed him with a “Kawasaki type illness” but thankfully I think he’s had a relatively mild version.

He’s exactly 8 weeks on from first symptoms today.

Did they say when you were likely to get your results? Sending and for when you’re well enough!

www.news-medical.net/news/20200505/Israeli-scientists-discover-monoclonal-antibody-that-neutralizes-SARS-CoV-2.aspx

That looks very promising- Israelis have created a lab made antibody that targets c19

Why are these things not being publicised? Or are they?

Hi all. I was on some of the early threads. I don't know how many days I'm on now, but my symptoms started in mid March. I haven't been tested.

Symptoms improved after 7 days, then fatigue returned with a vengeance. This has always been my worst symptom. After about 4 weeks my symptoms were definitely improving and the cough went.

However I'm still fatigued and can't do too much physical activity without becoming dizzy, getting a mild headache, hot flushes, and muscle aches.

I'm concerned it could become / has become CFS/ME. I developed coeliac a couple of years ago btw.

Has anyone else with a similar presentation noticed that their fatigue is much much worse in the days leading up to and during their period?

I've had two periods since contracting suspected covid and both times I've been overwhelmed by fatigue and had to rest much more than normal. Just looked up relationship between menstrual cycle, CFS/ME and immunity and seems there is an established but as yet poorly understood relationship there.

@TiddleTaddleTat I have had worse fatigue before period, I have CFS and horrible periods anyway but I’ve been watching this aspect in myself. I took it a bit easier this week as I’m due on.
You won’t be in a position to have got CFS until 6 months or more, so no point worrying about it yet. We’re still finding out about COVID. CFS (or any long term illness) pacing strategies and pain management are helpful. Using them doesn’t mean you have CFS

I just keep getting the weird icy burn sensations all over. Anyone else recognise this particularly hideous experience?

@LetsBeSensible thanks for that, can you point me in the direction of where I'll find out more about moving strategies ?

Pacing strategies

Week 8/10
After an OK but sleepy day yesterday, I'm having a lie down to keep your pulse below 100 with trembling day today.
Every time I think I'm progressing, I'm actually not.
I'm telling myself every day was like this a few weeks ago. Every single day. It's been about four days or so since I last had a crazy heart day.
So I guess it's still progress.

Anyone still with breathing issues? Mine seem to be back, like someone is holding my throat when I’m breathing in.

I don't want to get too optimistic but I'm looking at the research and it seems there are a few antibody treatments out there looking very promising

Yes @godhelpusall lots of fluttery weird burn sensations have just started again this afternoon - I feel like I'm entering another phase. It's particularly affecting my bladder and I feel like I need to pee all the time. Think I'll be annoying my GP again tomorrow.

@fedupofbed what do you think it is? Is it paresthesia?

@TiddleTaddleTat . I'm too old for periods but my fatigue is far far worse now than it was at onset of this illness (I'm day 57 now). It's really quite debilitating and I can do very little. This is having a massive impact on my mood and mental health as is to be expected.