40 plus plus

[WorriesomeDad]

Thread for continuing long-term Coronavirus support

@Moodgie I haven’t had much shortness of breath recently - only a bit yesterday morning. My chest is fine apart from every so often a bit of muscular pain.

@Tangledyarn thankyou for that. I know I have to keep plodding on, I think everything has just got to me today.

Is a glass of red wine a bad idea later? Does it lower your immune system? Increase viral load?

It will put extra pressure on your liver so not ideal.

Day 35
Yes, I still have that shaky feeling.
It's not as bad as last week, but still there.
I thought I was going to have a good day today.
It was going well until I put the laundry on and had a shower. I feel so tired and I ache all over.
Going to take it easy for the rest of the day.
So frustrated and fed up.

Day 38 for me today. Good night sleep but woke up sore throat( not major but there) and the cough again with a slight headache, The chest is there intermittent. Husband on day 24 is just complaining of his back hurting. I had a good but fairly active day yesterday so I imagine I am paying for it today

Is a glass of red wine a bad idea later? Does it lower your immune system? Increase viral load?

It will put extra pressure on your liver so not ideal.

Might be quite helpful for morale and relaxation though?

Has anyone been trying Metatone currently?

No I haven't tried methadone but I take Alive ultra 50+ brand multi vitamins & a probiotic everyday.

bloody auto correct
Metatone.

Hi everyone, day 48 and I'm definitely seeing a chink of light at the end of a really long and dark tunnel.

Progress is incremental but I find it helpful at this stage to review my progress on a weekly/long term rather than daily basis. I am still in bed for most of the time but for the third day running I've gone for little walks in the garden, enjoyed the sun (and seeing the bluebells) and ventured around the house to get drinks. I'm still exhausted and take ages to move in the morning. I still get a horrible feeling in my chest, which veers from a burning sensation to feelings of breathlessness /jittery palpitation feeling. I also still have mild raised temperature but only sporadically now.

Whilst this is still very unpleasant, I just have to think back to how I've previously felt and realise how much I've improved - there were days on end when I literally couldn't move my head from the pillow. I felt like passing out all the time and had a terrible sense of impending doom. It took me to the darkest places.

I know this isn't the end and there'll be relapses but I don't feel hopeless, desperate and panicky any more. I now have to work on counteracting other emotions that are creeping up - low mood, frustration and impatience. I take these as good signs though!

I hope that those still in the thick of it begin to see improvement soon, however small, as I have done. I feel so hopeful today and wanted to share this. Thank you again to everyone on this thread, particularly the wise stoics who kept me calm on the days when the panic took over.

Great post @fedupofbed, thank you!

Day 23ish
Dd has improved, I checked on her a few times last night, pulse and sats were all fine.
There will be no exercise club next week I think.
I have set up a chair in the garden within wifi range so at least she can get vitamin d whilst minecrafting with her friend. It's all she wants to do, she was so active a few weeks ago.
I had a truly dreadful night. Vivid nightmares, sweats, unbelievable thirst, and the dreaded palpitations with anxiety.
But today I feel a little brighter. Im shaky but my legs aren't made of water. Quite Andrew times I've had horrid nights but followed by not bad days.
Grated fresh ginger with a bit of honey in hot water as a tea really does help my nausea. I thought it would be bollocks as for morning sickness it did fuck all, but it does help.
I can't believe myself in the mirror. I've aged 10 years in three weeks, I don't recognise me at all now. At least I feel better enough to care I suppose.

Hi All - found you!

I have a bit of a lengthy update, mostly about my DH, but some about me and covid(?).

You may remember he has undiagnosed brain lesions, possibly secondary lymphoma, and he fainted and broke his leg last week. We have finally heard back from the haematology consultant and it is looking very bad - she thinks it almost certainly is secondary lymphoma and that chemo would only extend his life by a very short amount, be very tough, mean mostly being in hospital and hugely increase his risk of getting covid, even if he has already had it.

She is recommending palliative care and we've had to face the strong likelihood that he is dying.

She has referred him also to neurology, which is located in another hospital the other side of the county, just to rule out any possible rare neurological things. The appointment is this afternoon. At first they said they wanted him to go alone because of covid risk. We asked if there was any chance I could go and they said yes if we really insisted. The haematologist thought I should go to be able to explain issues around his confusion. We got increasingly worried about the covid risk and the possibility of me getting it when my immune system is so weak, and not being able to look after DH at home (and, worse case scenario, leaving our DS completely orphaned). So I spoke to the people in the clinic and we have arranged that I will join the consultation on speaker phone. I think it is the right decision but I felt absolutely terrible seeing him off in hospital transport on his crutches.

The haematology consultant arranged for the other hospital to dispense the steroids which are currently his main treatment and which have now run out - this is very dangerous as he's had collapses when he stops them too soon in the past. Of course, they have lost / not got the prescription request. I've been frantically phoning everyone and not managed to make an contact. I hope the neurologist will agree to prescribe them. And that the pharmacy remains open long enough. And that he doesn't have another fall.

I basically want to scream.

About my symptoms - they keep coming back when I am stressed (much of the time now), but more mildly. Day 43 I think. I have at least told work I can't keep going for the moment (I'm an academic, currently teaching online).

@Schroedingerskitty thanks for the update. So sorry to hear your dh prognosis. I am glad you are making progress in your recovery, albeit slowly.

@fedupofbed glad to hear your update too. I think you are right to assess progress in terms of weeks rather than day to day.

Thank you got your reply- it helps to talk! I’ve worked out it’s day 32 from my initial fever. Daytime is almost bearable now though still a long way to go - lacking any energy and feel very fragile. Night time is scary - gastric symptoms start, has, gurgling and rumbling and feeling of heart palpitations, internal butterflies, shakiness, warm, Diarrhea and insomnia. Actually feel quite uneasy now about going to bed and what lies ahead every night? Do others feel this way? Fever, aches, lack of appetite, headache etc all gone after weeks of several crashes and relapses in fever etc. Thankfully only ever have had slightly breathlessness but strange cold feeling on chest and phlegm like feeling in back of throat that still persists. Almost no cough throughout illness. Similar symptoms to many here ?

@SchrodingersKitty I'm so sorry about your DH's news. Hope we can support you on here, if you need to vent, sounds like an extremely tough time.
@Crayfishforyou I'm glad your DD feels better even if she's less active at the moment, it's hard to believe how much rest is needed in recovering from this virus isn't it. @fedupofbed great to hear your positive news, I think you're right, a general upwards recovery trajectory is what we are aiming for, even if there are small plateaus or dips along the way. @Rosesofeyam I feel for you. I had a better day yesterday then so disappointing that this morning I was exhausted just by showering! Trying to stay positive but it's difficult. Keep feeling I'm letting my kids down because I have no energy to play with them properly, and guilty because my husband is doing most of the chores at the moment. Everyone else I'm hoping for good days for you all.

@Schroedingerskitty So sorry to hear about your dh prognosis. My thought are with you Glad to hear that you are feeling a bit better

I'm so sorry to hear your news @SchrodingersKitty I can't even begin to imagine what you're going through. All my thoughts and best wishes to you and your DH.

@SchrodingersKitty, - my heart goes out to you and it puts everything into perspective. I hope you and your dh and family find some solace to take you through this difficult journey.

@SchrodingersKitty Sending best wishes

@SchrodingersKitty

Such sad and worrying news. Thinking of you.

@Countingsheeps I did a home full blood count through medichecks and my bloods show no sign of infection. I am feeling much better but I still don't feel as if it's completely gone. But evidently all is well. Hard to believe after all this time..

@Rhona123 Same with being apprehensive about night time. Breathing is definitely easier when sitting. I have runny tummy first thing in the morning, nothing later. Same about the phlegmy feeling too, worse again today than yesterday and can’t get rid of it. Fatigue comes and goes.