30+

[stayathomegardener]

@Babdoc @baroqueandblue @Casino218 @ChippedPotatoesLloyd @DandyPeguin @EMichel102 @JackJackIncredible @KatySun @kevintheorangecarrot @littleblackdress04 @Littleninja1*@longshot @Lovelesslily* @ofwarren @onlinelinda @Porcupineinwaiting @SchrodingersKitty @ScrimpshawTheSecond @Spacecadetagain @Tangledyarn @TheDrsWife46 @TheDrsWife46 @TheWooisStrong

Welcome to a group none of us want to be in.

Apologies to anyone missing or added that didn't want to be.

Please do add more, don't feel pre day 30 is a barrier.

Get well soon to you all, 30 days is a long time

Thank you so much, we are a surprisingly cheerful bunch despite everything. Never been on such a supportive thread.

Can I join? Merely on day 28 and back in bed with nausea and dizziness!

Yes this thread/group has been a lifeline. So thanks to everyone who has been posting!!

Thank you for the thread. Checking in on day 27. Still got my original sore throat, chest pains and tiredness. The jitteryness has subsided for the time being. Had a reasonable 4-5 days but can’t help feeling I’m not done with it yet.

@mumlurker sorry I didn't tag you!
I'm only day 29 myself.

It's so frustrating isn't it, seems like we all dip around this time.

Thanks @stayathomegardener

I’ve just cried on the phone to my GP, not my finest moment!!! She called asking why I am asking for a referral for a private blood test (I’m not my mum is on my behalf) and I sobbed on the phone! This is so unlike me. I had to get off the phone as my chest felt so bad with the stress. I’m back in bed. I don’t think anyone understands just how bad having this illness actually is!

Found you.

Thank you for starting the thread, SAHG.

Day 26 here.

Temperature low-ish but near normal this morning (36.1), unlike the rest of this week.

My temperature has been really up and down, and I have been incapacitated by no messing chills at various times since last week. I have actually started to wonder if Coronavirus has broken my internal thermostat.

Morning, all! I got out of hospital last night and managed 10 hours sleep in my own bed, after some of my friend’s wonderful home made chicken soup.
It’s a bit scary being home alone again after all the safety and back up of hospital, but the sleep was desperately needed. I’d been averaging 2 hours a night for the last 17 nights, and was nearly wiped out.
I’m just posting to say hang on in there. This bastard virus does eventually come to an end, and you will get your life back. I felt so terrified struggling to breathe alone at night before being admitted to the Covid unit, so I understand what so many of you are going through.
Don’t be afraid to ask for NHS help, or at least a triage review, if you are a) not improving after several days, or b) have new or worsening symptoms. They are not yet swamped, and now think there will be sufficient ITU capacity on present trends.

My own hospital has cleared ten entire wards for covid cases and I was the first patient into the second ward of those ten, so still plenty of room.

I think it’s been mentioned on previous threads, but as long as you are not seriously obese, you may well find it easier to breathe lying almost on your front - (proning is what we do to ITU patients with covid) it improves your ventilation/perfusion and lung mechanics. Just make sure that you are not squashing your diaphragm, and your nose and mouth are free at the side.
I am including all of you in my prayers, and sending you love and strength. Hang on to the comforting statistics - you have a 96% chance of beating the bastard virus. If you’re under 40 and previously well, that’s 99.8%. God bless.

Checking in at Day 23.

@Longshot how awful. Do you remember need a referral? I think there are plenty of places that should just do a blood test - as long as you know what you want tested. Did the GP give you the referral?

Hello new thread, day 26 for me.

Just braved the big bad world and walked to local shops. All fine except local post-office, where a woman wearing the mask stood almost right behind me. Wish I wasn’t so British Stiff-Upper-Lip and said something, but i was internally fuming so it probably would have come out quite rude.

Anyone, apart from that, survived being out and don’t feel too tired.

@Babdoc @standrewsschool you both give me hope! Day 24 here and after a rough night of only a few hours sleep (muscle twinges and heart beating kept me awake), I’m quite shaky and low energy today but trying to stay grounded. Heartburn not too too bad yet - let’s see what the day brings. Bit nauseous today but forcing food. Hoping I’ll sleep tonight!!

Checking in. Day 34 here. Still feeling awful but dont have energy at the moment to even write much.. so ill do a symptom update later on. Hope you all have a better day

Hi I’m here, day 31 for me!
Thank you for starting the thread stayathomegardener.

Temperature spiked a bit last night and I thought I was going downhill again but think I’m overall improving, though very weak and tired. Hard to tell in the mornings as I always feel better in the mornings once the first hour I’m awake has worn off.

I think I’m day 31 anyway. First time I thought “ohh that’s not right” was walking upstairs on Sunday 8th and thinking my muscles felt weird and weak. But first mild temperature was Tuesday 10th March and that’s when I properly knew I was going down with something. It took until Sunday 15th to start feeling really very shitty indeed but I think that’s a common picture. I tend to count from the Tuesday though in retrospect it was definitely brewing when I thought I was fine.

@Babdoc

Glad you're getting better! It's really cheered me up to real what you had to say.

Did they give you any advice for managing this at home now you're out of the hospital?

Take care!

tangledyarn I’m sorry you’re not feeling better after all this time. It’s just awful, the length of time this drags on.

@Tangledyarn

Sorry you're having a bad day. Hopefully as time goes on there will be more and more good days inbetween until you're back to normal

Just checking in, im only on day 18 so feel a fraud compared to all the other people here. My lovely brother rang me and we had a big chat about people who have not been so supportive, prioritising people going forward and the changes I want to make to my life. Im so tearful and shaky, I truly cant see where illness ends and anxiety or even if I’ve tipped into depression. I just feel shit. I can barely stand up again today just complete lethargy. I WANT to get cracking. I keep telling myself stop wallowing and just get up!!! But I cant. I keep wondering have I really been ill, has my mind gone into overdrive and ive MADE myself ill? Why cant i get on? I want to clean the house, plant my plants, bath the dog. I have every motivation to stay busy and forget the world but Im sat fatigued in a chair and havent even brushed my bloody teeth.

Following x

Thank you for the new thread my whole family and I are around day 31.

I think I'm day 31 now. I'm losing track. Still feeling hungover every morning, still have chest tightness and pains. However just been for another long walk( 1 hr) uphill at end. Sats 95 on return. Slow progress but doing ok.

Love to all x

My children Will be discharged from the children’s Clovid support unit tomorrow at 2pm should they still be well . My 15 year old has had similar but milder version of what we had and my daughter has just had a snotty cold.

My DH and I seem to have taken this the worst though. He has hemochromatossis and epilepsy and I have asthma. Today day 31 we are breathless.
My husband’s chest pain has not eased in the whole time doctors don’t seem very concerned about that but he had been finding It hard to breathe he’s just taken a seizure and fallen off a chair and hurt his neck. Which i have supported with pillows and called 111. He is currently resting will I am on the phone I think he does need seeing but didn’t want to call an ambulance. I am currently on hold sat next to him while he naps. Thankfully he’s been able to sleep well most nights but last night wasn’t one as his oxometer kept dropping down to 90 when he was asleep. I checked it as he kept jolting awake.

This virus sucks!

Day 29 here. Thought I was over it, just tired and asthma wheeze. Lungs have been a bit niggly but 2 min slow jog and back to raw feeling.

I guess this is more like a recovery thread. We should be virus free but still healing damage to lungs etc. I hope it’s not more than another 30 days...

Again, apologies if I’m just repeating previous threads - I didn’t read while I was in hospital, so bit behind with MN - but I wanted to say we are seeing several different patterns of illness with covid.
You (and to a lesser extent I) seem to have the long drawn out, slow version of protracted covid. Don’t be disheartened by that - it doesn’t carry a worse prognosis and outcomes are pretty good.
The pattern you really don’t want is the rapidly downhill and on a ventilator within a week- that is the most severe version and the most risky, although even then people are not doomed, and many will survive ventilation, although it will take that group up to 4 months to get back their strength.
British patients also seem to be different to Italian. Up to 20% of us don’t get any cough at all, “just” the breathing struggle, high temp spikes and loss of taste/weird taste. In Italy, the dreadful persistent dry cough was much more universal.
We are learning more all the time about the best way to manage this, and the whole world is pooling knowledge and resources. If you do need admitted, your docs will have access to the very best data on which treatments or ventilation modes to use.
I think one of the biggest problems is fear, coupled with the depression and exhaustion that any virus inflicts. Don’t get downhearted because your own version of covid is taking so long - be proud of the bloody good fight your body is waging, take it a day at a time, and believe that your recovery will come in its own time. There will be a day when you wake up, probably still feeling like shit, but having had a proper night’s sleep at last. And you will realise that you are on the mend. God bless.

pinkoneblueone what a tough time your family are having. Take care of yourselves and keep us updated on your husband. It does sound as though he should be properly checked in hospital