Immune/NK cells pred thread #32

[VenusStarr]

Hi everyone. The last thread is filling up. Have tried to tag everyone who posted on the last few pages, but feel free to join / tag anyone I missed.

@Gizmo1983
@fleur89
@Sunflower360
@MotherOfShihTzus
@lozzmax
@HopefulH
@kea1990
@Sprinkleofbabydust
@Newbeginnings22023
@star2022
@RumandSpinach
@Ems123456789
@MamaW05

Love to all ❤️

@v60 sending you lots of love ❤️ xxxx

@VenusStarr Up to now, I haven't seen anymore, but trying not to check as much as it makes me feel quite anxious. I'm not doing too bad. I left my candle on until I went to bed. Hope you're OK. Xx

@Rainbowsunshine81 how is that bleeding today? At my clinic yesterday the nurse told me she’s seen more ivf women bleed than not bleed.
@VenusStarr i wonder if you’ve dealt with the same one as me lol it’s so stressful and expensive it makes u even more stressed.
ive got to have bloods when im there on Monday lol im hoping they’ll forget i bet they don’t lol.
im having a crap week just everything is stressful I’m terrified of the dentist anyway I have a tiny filling that needs doing and last few days it’s started to ache of course I googled dental treatment in pregnancy and it says ideally not in 1st trimester then others say it’s fine. With us and our nk cells and body being high with inflammation I’m thinking I’m maybe best to get the filling and then it’s done rather than me being g in pain and stressing. What do you think, it’s so typical I haven’t had any dental issues for years 😢😢😢 I did try and get it done before my FET but they couldn’t fit me in and I though well it won’t work anyway so not too much of an issue so now I’m cross with myself. Ugh shall we all just have a joint giant scream ❤️❤️❤️

Probably @Gizmo1983 I find all the others very helpful and amenable. It's just extra stress we don't need!
I'm sorry you've got dental issues. Don't be cross with yourself ❤️ if your dentist is happy to treat you knowing you're pregnant, then I would go ahead. Theres nothing worse than being in pain and then being worried on top. Xx

@Gizmo1983 it's like a light brown, I saw my doctor today to rule out a water infection and I told her, she said it can be quite common in the first trimester. I have heard that when it is a ivf pregnancy, it can be quite common. I just wonder why that is though.
I think it might do us all good to have a big massive scream!

@Rainbowsunshine81 im the same all the drs and nurses have said it’s very common but in my head well it has to be coming from somewhere it shouldn’t and I wish it would just stop.

@VenusStarr I have an appt 10.15 my mam is coming with me.
not sure my mental health is doing very well atm hopefully I’ll be better after the bloody dentist if not think I may ask my bereavement midwife for some help 🤦‍♀️🤦‍♀️🤦‍♀️

Hope today goes well @Gizmo1983 ❤️glad you're not going alone.
Maybe checking in with your bereavement midwife would be a good idea, you don't have to struggle or do this alone xx

@v60 I am so sorry to hear this, sending you all the love and strength, be kind to yourself, its just so unfair :(

@Gizmo1983 good luck today, for some reason whenever I am pregnant i get teeth issues, so its great that denistry is free for pregnant woman, i have only been told it is perfectly safe, just mention to the dentist and they will make sure they don't give you certain meds. Thinking of you.

@VenusStarr good luck on this cycle, i am keeping everything crossed.

I light 7 candles the other night, one for each baby :( i felt bad if i didn't have one for each and it was quite a comfort, but was mad to see them all lit together. You kind of forget what you have been through, but puts it in perspective.

Going to do my first test on Monday - not holding out too much hope this month, i have been under immense amount of stress at work and just don't feel like it has worked :(

@Gizmo1983 that's what my doctor said to me yesterday, sort of reassures you, but not completely. I'm exactly the same as you, where you want it to stop.
I hope your appointment goes OK and good that you have your mum going with you for the support ❤️

hi lovely ladies filling is done he was so lovely I could have slept in the chair lol so glad it’s over. Thank you so much for your support I’m defo going to contact someone and get some help I didn’t realise I was in such a mess but now I do.
im home and going to chill and binge watch some Netflix lol.
how are the meds going @VenusStarr ?
@Jecca88 i think im going to be the same with my teeth ugh i bet you candles looked beautiful it makes it hit home doesn’t it x
@Rainbowsunshine81 maybe have a reassurance scan inbetween now and 12 weeks it may put your mind at ease a little xxx

@Gizmo1983 glad your appointment at the dentist went well today ❤️ I have been toying with the idea about having a scan before the 12 week one, think it might help a little. Xxx

I'm pleased you got sorted @Gizmo1983 and that it was all smooth for you. I think reaching out for support sounds like a good idea ❤️

@Jecca88 ❤️ I have got 6 candles on my hearth but I found it overwhelming to light them this year, so I just had one lit for all of them. It's a hard time of year. I hope you're doing ok.
I'm sorry things are stressful at work, thinking if you for Monday x

I'm doing ok. Had a scan yesterday but it was only day 4. She was reading out the measurements and I was quite hopeful as the follicles were all 7/8s and then one was 13x9 🫠🙄 so it's 11mm already. Ffs. So estrogen priming not done much this time. I started cetrotide today. The Dr said the 8s will catch up, we'll see. I'm back on Monday. I feel ok though, what will be will be.

Hope everyone is doing ok xx ❤️

Hello everyone, I have dipped in and out of this thread over the past few months with various questions and I am back again on what is a very, very sad day for me. Having got another positive HCG test last week, my HCG is now dropping like a stone. My progesterone is still very high, weirdly. The nurse at tge EPU asked if I was on cloud, since she wondered if it was a twin pregnancy. Anyway, I cant take this anymore to be honest. I am going to come off the low dose aspirin because I self prescribed that with my doctor's blessing and it has done xxxxx all.
I now have to make the decision of what to do next, since I still think there may be some sort of antibody issue. I am on the NHS waiting list but my mum is going to use her meagre savings to give us a start privately. She really wants to do this but
I feel really bitter about the fact that I just cant be normal and she feels that this is what she has to do with her money!
I am doubtful that we will have sufficient funds to follow Dr Shehata's protocols I think I am going to make an appointment to see Raj Rai and see whether he can make a diagnosis. He is also very expensive but I get the impression that Dr Shehata is very much about NK cells and has, perhaps, less focus on other aspects.
If anyone has any thoughts do let me know but, like I say, I am certain the Dr Shahata route will be too pricy for us.

Hey @VenusStarr a bit of an idiot here if there is one bigger one is that a bad thing I’m not sure how it works. I ended up like you during the cycling I just held my hands up realised I could do nothing more than I was and what would be would be.
@Carportforme I’m so sorry for what’s happening been there a few times and it is just awful and exhausting. I can only comment on mr shehata and I’ll tell u what I know. It cost us about £3500 for tests that included hubbys fragmentation, the meds aren’t too bad but the intralipids which u are supposed to have every month are £350 I think. What has caught me off guard and it really really has is the soaring cost once you are pregnant intralipids every month plus the meds my bill has been about £650 for intralipids and meds I’m back there Monday and a scan will be added so it will be more and a £250 blood test. My summary is for me if it’s worked I won’t care if it doesn’t I will resent the amount of money and travel it’s taken. Will I be able to do it again if I need to financially and mentally/physically I honestly don’t know xxx

Hi Gizmo and thank you so much for your message. Yes, the cost really worries me to be honest. I think we have enough to cover the consultation and test fees but the rest, doubtful. I also have an issue with where he is based. I know people travel some way to see him but I am a teacher and I cant get time off very easily and I think by the time I get there, have the appointment and get home it will be a whole day. If I worked in a more general role I might be able to put extra time in in the evenings, etc, but... I am wondering two things, if I may ask...
Did he test for everything, ie, histamine intolerance, MTHFR gene mutation, etc. I am wondering if it might be possible to get a diagnosis and then go elsewhere for treatment or at least save up until I have got enough money to pay for it.
Seems so unfair doesnt it when other people get pregnant and stay pregnant so easily!

Hi @Gizmo1983 I've ovulated early twice through the meds when I've had a leading follicle, so I'm a bit iffy about it. I just hope the others catch up and when I go back on Monday I've got 2/3 within a couple of mm of that one and I'll feel better. I looked at my charts from earlier in the year and I've gone 2 days earlier for a scan but I think I'm having a similar response as before.

@Carportforme I'm really sorry to hear this ❤️ I hope you're OK. Shehata is expensive. We've spent over £60k in 4 years but that includes ivf and immune protocols alongside and extras like hysteroscopy, hyfosy, dna frag and endometrio testing on too of the immune tests. But it's a lot and we still don't have any real answers as I've seen women on this thread with similar results to me, with less aggressive protocols, have a baby. But my 2 pregnancies on immunes didn't work out. I hope you find a way forward, when you're ready x

@Carportforme when I get home I’ll see if I can find the paper with all the tests and I’ll let you know. It’s absolutely not fair. I’ve been doing ivf as well so that’s extra costs for me. My gran very kindly left me around £13000, hubby wasn’t fully behind the shehata idea so we agreed I’d spend that on him and there’s not much left in that account so that gives u a rough idea as well.
@VenusStarr thanks I understand now, 1st cycle which was the one I messed my meds up ( clinic didn’t give amount of menopur correct so I didn’t take enough) I had one leading then 3 caught up so we got 4. My 2nd cycle one big follicle and 2 tiny ones. The dr said we should have gone ahead and collected the one but we decided against and turned it to iui which didn’t work so from 2 cycles we had one mosaic segmental.
im hoping this one will work but if it doesn’t I think im done I just don’t think i can go through it all again.
waiting to hear back from nhs counselling but hubbys work has counselling through work I phoned them a lovely lady counselled me there and then and then I start my hour long sessions on Wednesday xxx
@VenusStarr when is your next scan xxx

The menopur is weird isn't it @Gizmo1983 I've only got 5 doses 🤷🏻‍♀️ I'm back on Monday, so cd7, hopefully things are a bit more evened out.
I've reached the same stage, I'm so done after this. I don't have the energy or money to keep putting us through it.

I saw this rainbow this evening though behind our house, out of nowhere as it's not been raining. Thought I'd share 💕🌈

Hi VenusStarr, I'm not ok really at the moment. I am feeling like life's just not worth living any more to be honest. That probably sounds excessive but I am just really fed and sad. I am also starting to get really bitter, which is worrying me a bit but I cant help it. Oooh that is a lot of money. I'm scared of starting something I cant afford to finish to be honest. I find it really awful that you have had to spend so much money to try and achieve something that should be relatively simple. That's the kind of thing that I get bitter about really. It's not just about me, it's about all of us being in this boat x

Thank you very much. I think I am probably going to have to find another route anyway, with his costs and the job/time off issues x

@VenusStarr thats a beautiful rainbow I hope it’s a sign for you, got everything crossed those follicles even out yeah the menopur is bizarre. I always think at least the drugs before collection make things go quick and u have a frostie don’t you so defo something to put in there.
@Carportforme its absolutely not fair I’ve come to realise that life just isn’t fair sometimes and that’s that there’s no rhyme or reason. It’s a year and 4 months since my last loss and I’ve calmed down a bit from all those feelings I’m just exhausted from them

You are so right there. Life is so weird and often not at all pleasant!!

I'm sorry @Carportforme ❤️ I was suicidal in March after a terrible ivf cycle and coupled with all we'd been through, I just mentally crashed. I went on citalopram and started psychotherapy weekly and stopped all fertility treatment and ttc and it really helped me. I wasn't sure I'd try again and if we hadn't had a frozen embryo, we definitely wouldn't be doing ivf again. I have finally got to a place where I feel I can make peace with not having a living child. It's not what I would have ever hoped for and I never thought I would feel like this. I'm only sharing this to say that however you feel is completely valid and normal but you won't feel this way forever (even if it seems that way right now) 💕🩷

@Gizmo1983 how are you feeling today?

Did my second cetrotide this morning and must've hit a blood vessel, had a bleed straight after. My tummy is feeling tender and a bit bruised now. Not really feeling much going on inside yet.

Lots of love to everyone xx

hey @VenusStarr i always seem to be hitting blood vessels and have a couple of painful lumps at least they only last a few days and they’re gone just for u to hit another vessel 😂🤦‍♀️. No bikinis for us anytime soon lol.
I never felt too much going on in there can I just say I’m so glad you are in the place you are now I think you almost have to hit that lowest of the low to realise you are going to have a life and still have a good life just not quite the one we chose. I definitely hit that bad bad place. I then went on a cruise and had such a fab time and it lifted me and I’ve been ok since.
im super nervous for CRP clinic tomorrow I know it sounds daft but ill be so pissed off to drive 7 hours for. Scan if there’s no heartbeat, I hate hate hate scans.
on a lighter note to give u a giggle I got my car finally I was sooo excited as in the spec it said it had a heated steering wheel hubby has a heated steering wheel and I really wanted one guess what no heated steering g wheel rang up and they can add one but it will be £4000 yes £4000 🤦‍♀️🤦‍♀️🤦‍♀️🤦‍♀️🤦‍♀️🤦‍♀️. I shall be buying a nice pair of gloves ffs. Leaving for Epsom at 1.30 got a hotel booked scan is at 9am so at least it’s done before I have time to dwell xxx
@Carportforme things will get better no matter what it just takes time xxx defo get help if you need it I’m starting counselling on Wednesday xxx
@Rainbowsunshine81 how are you sweet?

Yes it is a horrible journey, so pleased that you have found some peace with your own situation. I think it all takes a while to work through x