Immune/NK cells pred thread #32

[VenusStarr]

Hi everyone. The last thread is filling up. Have tried to tag everyone who posted on the last few pages, but feel free to join / tag anyone I missed.

@Gizmo1983
@fleur89
@Sunflower360
@MotherOfShihTzus
@lozzmax
@HopefulH
@kea1990
@Sprinkleofbabydust
@Newbeginnings22023
@star2022
@RumandSpinach
@Ems123456789
@MamaW05

Love to all ❤️

@HopefulH thank you they did try but it was too destroyed in the surgery. I was just soooo pleased I d didn’t have to go through giving birth and seeing the baby as she had been gone a good while that I snapped their hand off when they said they could do it I also had to have the surgery to remove my stitch so they did it all in one. Xxx

Hi everyone. Hope you're all OK. Sorry I've been off radar again. I've started estrogen priming, so am on countdown to af. Got my nurse consult this afternoon so hoping I can get my meds ordered for delivery on Friday.
I saw Dr S yesterday on zoom, so he's updated my plan. I'd already started hydroxy but he's put me on aspirin again.. interestingly, he's saud to start the clexane from stims this time - which actually what my ivf clinic said anyway and I was just going to do that.
Think we might put 2 embryos back, if we have them. The plan is to defrost the day 3 anyway, then I might get one fresh, so he said just put both in as the odds are so tiny for us.

Hope you're all OK. Lots of love xx 💕

Hi everyone good news and bad news from my end. Bad news started spotting/ bleeding brown pink tiny bits of tissue reckon I’ve had every colour of the red pink brown spectrum, my last pregnancy I had a cervical polyp which I had removed and I have a lot of scar tissue in my cervix from cervical stitches but no one wants to look in case they disturb things more had a scan today and the probe came out bright red and lots of blood so have been told to stop the fragmin and aspirin 🤦‍♀️ and been put in bed rest no one knows about this pregnancy and it’s so early so going to have to come up with god know what excuse why I’m stuck in bed any ideas graciously accepted. I’m honestly not feeling too optimistic.
good news we have a heart beat and it’s the right speed and size and everything looks great apart from the blood. I bled so much more last pregnancy but I had a polyp and it never stopped till the polyp dropped off and the same say found out the heart had stopped at 15 weeks.
should have been a very happy day but o think the bleeding and the 15 week loss make me realise we have such a long long way to go I just feel totally numb and realistic I suppose.
Hope everyone is doing well xxx love to all xxx

Oh @Gizmo1983 I am so sorry to hear this. Good news about the heartbeat and try and hold onto that, but any bleeding is such a traumatic sight esp after what you have been through. Is it a good that the bleeding didn't come out properly until it was probed - so might be another polyp that was disturbed. How long have they recommended bed rest?

I got my AF end of september after first month on pred, was quite sad about it, but hopeful for this time. Quite amazing how your hormones can make you feel positive.

I was just in the clinic yesterday getting my intralipids and its always so strange as no1 talks in the room - was wondering if anyone from this group was sitting there next to me.

x

Oh @Gizmo1983 🩷💕 we posted at the same time.
Im really sorry to hear this. Could they see no cause for the bleeding, like a haematoma or anything? I know they're more common with ivf. Glad you're on bed rest.
I know it's personal but I've always told my manager about the pregnancies, so that I'm covered for sickness. But understand if you prefer not to.
I'm sorry you've had a bittersweet day, good news is your little one has a strong heartbeat. Keeping everything crossed that all is well 🙏🩷

@Jecca88 I'm sorry af arrived. It's really disheartening but I'm glad you're feeling optimistic. Hope intralipids went OK, it is strange in that room. I always seem to have an awkward smile at others! I'll be down I a couple of weeks, so might post in here to see if anyone else is there at the same time. Xx

@Jecca88 the Intralipid room is really weird isn’t it I always find I make one friend and all is lovely then another stranger comes in the room and it all goes deathly quiet lol. I’m down there in a couple of weeks if all is still going ok it’s a 12 hour round trip for me which I hate but if it keeps me going I’m not complaining lol. I always come out the room quite emotional as we normally end up sharing our history and the last time I was there there was the sweetest lady she’d had cancer as a child so no eggs of her own tried with donor eggs many times given up but gone for one last shot and she was 12 weeks. I’d always been unsure of donor eggs until I met her and it totally changed my perspective I think about her lots she was just so glowy and happy and I just hope so much it all works out for her.
its funny isn’t it when my period started I’d have a few hours of total depression then be totally optimistic and fine very positive, it was always the few days before ovulation when I was desperate for it to happen I’d be a total mess it was like mental torture. IVF was the best thing that ever happened to my sex life my poor husband was just traumatised my the whole timing thing bless him.
I just so wish someone had looked at my cervix I really don’t think it would have made it bleed any more but understand why they didn’t there’s no sign of a mini bleed in the womb which they said is great. I get scanned again in a week. I’m hoping there’s a scar where they removed the rest of my polyp honestly the polyp I’ve never known anything like it for bleeding it would literally pour red blood out like a tap I would get a funny pressure feeling and I’d know it was getting ready to bleed and then as soon as I sat on the toilet it was like a tap of bright red blood it mentally was horrific, then one day I woke up and there it was it had literally dropped off and my bleeding just stopped it was like a miracle I was soooooooo happy, later that afternoon I had a 15 week scan as id had my stitch for incompetent cervix done at 12 weeks and that same bloody day found out the heart has stopped it just seemed so cruel to have that joy/relief and then find it didn’t matter anyway. I’m so sorry if you’ve found this upsetting I do apologise if you have it’s just part of my story. It was concluded that the polyp nor the stitch was anything to do with the late loss, the only thing that was unusual was they found a cystic hygroma on her at 11 weeks but a week later it had resolved but they still said the nucal thickness was thicker than they would like but was back in normal parameters all genetics came back normal but we will never know I guess. I was hoping I wouldn’t bleed this time as it’s very triggering 🤦‍♀️🤦‍♀️🤦‍♀️ please if this post has upset anyone please just tell me and I’ll get rid of it as I really don’t want to upset/distress anyone xxx

@Gizmo1983 hope you're OK ❤️ I had some spotting yesterday morning so went to epau, had an internal and my cervix was closed, long and looked healthy. There was some blood on the swab, but couldn't see anymore. Said it was coming from the vagina, which I don't understand, said it might be a etropcian. Have a scan there on Fri, feeling quite anxious. I told them I'd had s scan and saw a heartbeat and she said that was good. Xx

Thanks @VenusStarr - it is so disheartening, totally know what you mean about the awkward smile and I always chat to the nurses in there as they are all really sweet.

@Gizmo1983 thanks for sharing, not too much for me, so sorry you had to go through that. i honestly just can't believe there are so many things that i don't know about that can go wrong. Lets hope its just the scaring that is irriated that cause the blood today. That honestly sounds so cruel, to have the relief and the heartbreak on that same day and 15 weeks too :(. My first MMC was at 12 weeks and had absolutely no signs whatsoever until i got to the 12 week scan after seeing a great heartbeat at 8 :(, just puts so much mistrust in your body.
Did you have the scan today at CRP? any chance you can go EPU nearer to you to check cervix?

I know what you mean about feeling emotional, as everyones in that clinic has had a really tough journey and its always emotional. I remember meeting a similar lady who was in her early 40's and had given up and it was by chance she got pregnant. I really hope it worked out for her too.
My Friend at work used a donar egg and has a beautiful 4 year old now - she has changed my mind on donar eggs too. I don't think I am there yet, but its good to know there are options i would be ok with.

Hey @Rainbowsunshine81 juat think it’s better being from the vagina than it is from the uterus. No matter what anyone says seeing that blood just puts the fear of God into you doesn’t it. Hopefully it is an ectropion as they are annoying but harmless. They all seemed over the moon today that there was a heartbeat and not that fussed with the bleeding just that my fragmin should have been stopped as soon as I bled but they didn’t tell me to 🤦‍♀️. The poor dr I saw him hide the blood on the tissue and the probe i thought that was quite sweet of him.
why can’t things just be nice and not stressful and just feel like everything is going to be ok for once wouldn’t that be lovely xxx

Hey @VenusStarr we posted at the same time lol, how are you sweet and how is your dad doing? They said there was no sign of a haematoma, but couldn’t give anymore insight. I’m back in a week to see what’s what I think I’m ok hoping for the best preparing for the worst. How are you getting along with all your meds etc? Have u had any scans yet?
oh and for irony my new car is due to be delivered and I’m stuck on bedrest what are the chances 😂😂😂 guess I will just have to look at it via the ring doorbell 😂😂😂
@Jecca88 my scan was at my ivf clinic I really should contact my bereavement midwife and tell her my situation she is lovely, think I’m just in denial a bit if u tell people it makes it more real doesn’t it 😬😬😬but I really should probably tell her xxx i am 41 and 3 months shhhh don’t tell anyone lol my 46 year old friend just had her perfect baby naturally pregnant 1st try. My neighbour did years of ivf never took then pregnant naturally 42 and she is perfect too. In my defence I did start trying at 38 just things are taking a bit longer than I thought lol xxx

@Gizmo1983 just don't understand why it's there, I got myself in a right state yesterday and couldn't eat much, the same today. I wish things weren't so stressful, I just want everything to be ok. The nurse showed me what was on the swap, id rather have not seen that. Just concerned about the scan on Friday. Xxx

I thought you lot had been quiet but somehow the thread fell off my list!

@Gizmo1983 sorry to hear about the latest development. I think when you’ve been through what we’ve been through, your mind just jumps to the worst because it’s what we know, it’s a fine balance between protecting yourself and being real. Clexane and aspirin make me bleed so much that when I get blood taken or my intralipids the nurses panic a bit until I remind them. Hopefully the bleeding will settle now you’ve stopped those. Crossing everything for you. Were you given any idea how long for bed rest?

My intralipid room is the weirdest place too, it’s quite small but all the beds are surrounded by curtains so you can’t see but obviously you can still hear, feels like some weird cocoon with a weighty atmosphere. Speaking of intralipids…how many you guys are being recommended?

@Hhdxx sorry to hear about your losses. It’s intense to juggle all the subtle differences in various doctors’ perspectives and protocols, so hard to trust when so much is at stake.

News my end is that there’s a heartbeat. I can safely confess here that I really didn’t find it the positive milestone that the sonographer did - my losses have been after seeing strong heartbeats. You’d think there’d be a little more awareness and sensitivity in a recurrent loss clinic. Now I feel like I’m in some kind of danger zone until viability. It’s measuring a little smaller than my dates but at this stage it’s so miniscule that measurements could be out slightly. I’m getting quite bad sickness and nausea, the pred is holding back the worst of it but I had hyperemesis gravidarium with my DC and the miscarriages so I think my body just hates being pregnant. I have meds but they’re not very effective, the doctor wants me to work through the gentler options before the one that actually works because of the risk of birth defects.

@Rainbowsunshine81 i feel exactly the same as you just why did it have to be there just wish it hadn’t happened want to go to sleep for 8 months and wake up at the end of only. It’s going to feel like a life time till Friday but it’s only 2 full days till u get there. I know how you’re feeling though I’m the same been eating super Healthy but when I got the blood ate a pop tart a tube of Pringles and a couple of sips of cola and I didn’t drink my prune juice that day either just looked at it and thought nope not today.
@v60 congrats on your heartbeat it is definitely a milestone and a very positive thing but I totally sympathise and know what u mean today hubby and drs were all cooing and woopeee ing at the heart beat and how good and strong it was and I’m lay there like a total misery like yup been here before, its really sad but I’d rather be realistic. My hubby kept saying to me who’s a clever girl and I’m so proud of you and I’m like please don’t get too excited think he must have blanked out the last year and a half. I’m going to take this scan by scan and bleed by bleed I think. Here’s hoping these meds do the something that we need.

@Gizmo1983 I've been trying to force myself to eat, bits of fruit, toasted muffin, etc. Been good and avoided chocolate and coke.
Made me go in a complete panic when I saw it yesterday, just threw me and still panicking about the scan. I couldn't really face having my pregnacare vitamins yesterday, but still had a folic acid tablet.

Morning everyone.
@Gizmo1983 how you feeling? I hope you're able to take your mind off things. Do you still have bleeding? Sending love ❤️

@v60 sending you love 💕 I imagine you're holding your breath right now. Zeroing everything crossed all continues to be well.

@Rainbowsunshine81 I'm sorry you're feeling stressed, I'm glad you've been checked out. Thinking of you tomorrow ❤️

Thanks for asking about my dad, he started treatment yesterday and is in good spirits. It's prostate cancer, so I think they are aiming to let him live well rather than aggressively treat.
I'm anxiously waiting for my meds, was supposed to hear from the pharmacy yesterday but nothing. Did our consents for double transfer. Ilthe estrogen priming has made my boob's swell a lot and I feel very low energy. A small part of my brain is saying 'you could be pregnant' 🙄 but it's definitely just the hormones. Af is due in less than I week. So need to chase the clinic today dor my meds.
I do have a little bit of excitement about getting started.
Has anyone used menopur? I've got that this time but gave heard its a bit of a bugger abd stingy xx

@VenusStarr it's been really hard, I'll be honest, I'm really anxious about tomorrow ❤️
Good news that your dad has started treatment, I really hope that it goes well for him. I've had a nafarelin spray which I wasn't keen on, I preferred the injections, I can't remember the name, but there were used for down regulation. Hopefully the pharmacy will be in touch with you today, well they should so you can get your meds and make sure everything is there, ready for when you start xx

hi everyone
@VenusStarr so far so good touch wood more brownish discharge now. I spoke to my bereavement midwife today she said to restart the blood thinners until I can see the consultant which they are trying to sort for me asap. I think I’m going to go with what she said. Still resting best I can not easy when u need to go to the toilet and eat lol.
really good your dad has started treatment I’ve had a couple of distant relatives have it and they do t cure it but they live with it and seem really ok you wouldn’t know they had it if you didn’t know. I hope he responds to treatment well ❤️
I had menopur I honestly don’t notice that much difference from any of the others with me some days they hurt and some they don’t it’s bizarre. I liked the oestrogen priming I looked like I had a boob job 😂😂😂
@Rainbowsunshine81 i know you’ll be terrified about tomorrow and no words are going to change that, has the bleeding settled? Please know I’m thinking of you and got everything crossed. My last pregnancy ( it did end but much lafer after the bleeding had stopped) i lost loads of blood and big chunks of tissue i was so sure nothing could be in there but it was all from my cervix bleeding seems to happen a lot in IVF . You take care of yourself and good luck ❤️
love to all and hope everyone is doing ok xxx

@Gizmo1983 it seemed to be just for that one day. I really appreciate it very much, means a lot ❤️

@Rainbowsunshine81 if it was just that one day chances are everything is going to be fine. Totally get why you are so scared though you take care and good luck thinking of you ❤️

@Gizmo1983 oh I truly hope so ❤️ thank you ❤️

Hi girls, I've been for my scan this morning and little baby was fine with a lovely heartbeat. She told me that being on progesterone can make you spot and also I might have an ectropian which can get irritated. Xx

@Rainbowsunshine81 that's lovely Friday news, so happy for you 🥰🥰🥰 How many weeks now? xx

@lozzmax thank you 😊 ❤️ I'm 8 weeks 5 days today 🥰 xx

@Rainbowsunshine81 thats absolutely wonderful news so happy ❤️❤️❤️ deep breaths and you can relax a lot more now woohoo xxx

@Gizmo1983 I feel like I've been holding my breath for these past few days, was so anxious ❤️ xxx