Immune/NK cells pred thread #32

[VenusStarr]

Hi everyone. The last thread is filling up. Have tried to tag everyone who posted on the last few pages, but feel free to join / tag anyone I missed.

@Gizmo1983
@fleur89
@Sunflower360
@MotherOfShihTzus
@lozzmax
@HopefulH
@kea1990
@Sprinkleofbabydust
@Newbeginnings22023
@star2022
@RumandSpinach
@Ems123456789
@MamaW05

Love to all ❤️

@v60 im sorry you had such a bad night, sometimes i would get such bad gas cramps in early pregnancy - your body is so heighten to every sensation esp after going through loss. Hope all goes ok tomorrow - try and distract today. I enjoy crap TV - celebs go dating or Mafs atm lols.
@Gizmo1983 - good luck in intralipds today - you poor thing having to drive down and stay overnight - adding more of a cost. It's annoying there isn't a somewhere closer to you - even just to get the intralipids. I count myself lucky all the time that i am only 30 mins away.

Sorry, I also meant to ask if anyone had been to the ARGC and had any views. They are a bit easier to get to. Thank youb

Hi ladies just to give you a little chuckle for my intralipids and a months worth of injections and meds from mr shehata. Thought may as well do something before we come home so got tickets to Windsor castle then saw all the scanners and security and I was like to hubby I can’t take all that through security they will think I’m insane so have come out 😂😂😂

@Carportforme hi sweet I see mr shehata. I’ve seen a few people have tested negative for nk issues. We tested hubby as well and everything was fine except the nk. When despite still trying g with treatment for this a year later still wasn’t pregnant so had my tubes checked with them and one was blocked. I think with the CRP clinic they are very good but for me there was the price for testing which was 3.5k for me and 500 for hubby then there’s the treatment intralipids are 350 and then my meds every month on top are another 350 so at the minute just over £700 a month. I’m 4 weeks and praying this one makes it as this is on top of ivf. I had 15000 in an account purely for this ans that does not count ivf and now I’m down to about 4000 😢😢😢if it works I won’t care if it doesn’t I will xxx
@v60 how you you doing sweet?
@HopefulH defo going to try the ice
love to all xxx

@Gizmo1983 don't blame you. 😃

Thank you so much for your reply. Pretty pricey isn’t it!! I think I am going to have to keep going with the low dose aspirin and see what comes next. For some reason, because I have celiac disease (fully under control) and am allergic to a few other things, including all nuts, I sort of assumed that my MMC last year and my one Chemical so far this year must be related to my allergies. However, I obviously don’t know this for certain so I think I will have to give it one more go and then decide.
Huge congratulations on your pregnancy. I am really hoping it sticks for you and you get your tiny person x

@v60 gpod luck today xxx thinking of you xxx

@v60 what time is your appointment? Are you at CRP clinic? I'm just on my way there now for 16 week scan and intralipids

I've just been for our 16 week scan and we found out we are having a little girl. We're not telling anyone else yet until we can confirm it at 20 weeks but the sonographer was pretty certain. I had to tell someone!

I hope all of your scans go okay today at CRP 🤞🤞

@lozzmax and @Gizmo1983 thanks for thinking of me! I’m not actually with CRP because I’m overseas. Today was my follow up with the government recurrent pregnancy loss clinic - I was going to a private fertility clinic in the interim because of the RPL waiting list, but now the RPL want to monitor the pregnancy so I’ll stick with them. The RPL clinic doctor is taking me off the tacrolimus as she feels it’s a bit heavy handed for first medicated pregnancy and switched to oral only progesterone. Hurrah - no more mess. I was a bit surprised to discover I also have a genetic clotting disorder, that hadn’t been picked up in previous testing, so I’m glad I’m already on the clexane and aspirin. She would’ve preferred me to have started the intralipids prior to implantation, she says it has better outcomes, but we are where we are. I did have a scan and everything looks ok for the number of weeks, maybe a little small but at this stage its so tiny that measurements aren’t all that reliable so I’m not going to stress. I’m back again in 2 weeks, intralipids again next week

@HopefulH lovely lovely lovely news on your little girl

Oh no @lozzmax and @HopefulH i missed you guys by a day 🤦‍♀️@HopefulH thats wonderful a girl how gorgeous 🩷.
@v60 its amazing the government will do that for you I don’t believe there’s anywhere nhs that will provide that level of immune stuff defo not intralipids as far as im aware. So good that the scan has gone well. I’m very jealous you got oral progesterone I asked at the CRP clinic about it yesterday but they said stick to what the ivf clinic has said.
no news here which is good news got 1st scan booked 15 oct that will be 7 weeks and 2 days if I get that far xxx just taking day by day that’s all I can manage mentally. Love to all xxx

Hi everyone, sorry I've been off the radar. My dad has received a cancer diagnosis. I'm just trying to process what it means for him.

Got a banging head today, not sure if its to do with restarting hydroxy. I'm cd4 so got to track ovulation then I'll start estrogen to prime. Got my nurses appt in a couple of weeks, so it'll be tight but hopefully can get my meds in time.

Glad to see some good news on the thread ❤️💕 xx

@VenusStarr I’m so sorry to hear about your dad - I hope the diagnosis can open up some treatment or a plan for the way forward. We also have recently diagnosed cancer in the family and it’s been tough to process everything.

@Gizmo1983 yes, it sounds good doesn’t it. In reality, the testing is slow (almost one by one!) with very long waits for appointments in between, unless you go privately and present them with the results, then it seems they’ll monitor the pregnancy and provide the drugs at a lower cost. I still have to go privately for the intralipids because they aren’t strictly approved.

Is anyone else having/had skin issues with pred and progesterone? My skin is so dry around my mouth and eyebrows AND I'm spotty. I've just bought some cicaplast repair cream

@v60 I've noticed my skin feels dry with the progesterone and my lips also feel drier.

@VenusStarr I'm sorry to hear about your dad, I hope you're doing OK as much as you can be. Sending love to you. Xxx

Girls, I have my viability scan on Monday and absolutely bricking it. Been trying not to get anxious, but can't help it. Just want everything to be ok. Will be 7 weeks when I go. So far I've had sore boob's, occasional metallic taste and feeling quite hungry a lot. I know each pregnancy is different, but I haven't felt nausea yet, occasionally gagging when brushing my teeth, some headaches and getting a bit emotional watching don't tell the bride. Xx

@VenusStarr im so sorry about your dads news you and your family are in my thoughts and hope those headaches are getting better.
@v60 defo yes to the dry lips and hair which is weird for me as I have really greasy hair normally so im quite enjoying this 😂.
@Rainbowsunshine81 i wish i could think of something to make you feel better but id be exactly the same just try keep yourself occupied is maybe the best advice i can think of as i know im already a wreck and my scan isn’t for 2 weeks so i can only imagine how u are feeling, symptom wise my symptoms are exactly like yours I gag a little when brushing my teeth. Mr shehata warned me that the meds we take can mask symptoms so that makes me feel a bit better.
talking of stress I was watching tv when a women was in labour and my muscles clamped round where my womb is and were aching I was so cross with myself worried I’ve done some damage have googled it and apparently it won’t do any harm but when you’ve been through what we have u just don’t want to take any risks do you.hubby put me in the car and took me for a drive to calm me down. Does anyone else just feel quite on edge a lot of the time? It’s a lot to deal with isn’t it. My scan is 15th October if I get that far.
lots Of love xxx

@Gizmo1983 I havent been to bad up until this point and now it's getting closer, it's on my mind more. I've been trying to keep occupied and watched some Christmas films, etc. That's interesting to know that some meds we're on can mask symptoms.

Definitely don't want to take any risks, my hubby won't even let me bend down to put my trainers on or let me do anything, he's been really good. I can relate to feeling to feeling on edge at times, think it's totally understandable with everything we have gone through. Been trying to have positive thoughts and not let any negative thoughts in.

Lots of love ❤️ xxx

@Rainbowsunshine81 that’s lovely he’s looking after you so well. Mine is pretty good most the time lol. Yes I keep doing to positive thoughts I keep just saying this one is going to make it. My last one I felt in my bones something wasn’t right even and I was convinced it was going to go wrong which it did but this one I’m not giving it the option ( sounds daft but this is my stance lol ) xxx

@Rainbowsunshine81 I really empathise. My scan is the week after and I’ll hopefully be around 8 weeks. It’s such a challenge when we feel we can’t trust our bodies to do their natural processes. There’s such a disconnect between my mind, body and emotions - when I had scan last week, I was nervous but not excessively, yet my legs just started shaking because my body remembered what’s gone before. I’ve had good therapy and yet still occasionally catches me out and gets the better of me. My head knows that analysing every symptom (or lack of symptom) doesn’t change the future and isn’t very scientific (every pregnancy is different, symptoms come and go etc) but it doesn’t stop my brain going there and it’s such an effort to bring it back to the mindset I want to have - someone on the thread mentioned it before, about the outcome being the outcome no matter what, but I can somewhat control my perspective day to day. The naivety of a straightforward pregnancy journey is such a beautiful thing!

@Gizmo1983 why on earth would you watch something like that and do that to yourself lovely?! Glad your DH is taking good care of you

@v60 i had no idea it was going to happen 🤦‍♀️🤦‍♀️🤦‍♀️. I am very cross with myself and feel so stupid. It was downtown abbey I’ve never seen it and everything is all nice and happy on there then it went very dark in seconds I had no idea I switched it straight off.
can’t believe it’s your 8 week scan next week that’s sharp come round xxx

@Gizmo1983 ha, reminds me of when I was heavily pregnant with my DC - my husband put a film on for one last date night, only to discover the opening scene was not a happy childbirth one. Memorable evening for all the wrong reasons!

Yes, time is passing but it feels very slow to me. It’s the week after next, so still a little wait. Intralipids to do next week…downtown abbey will definitely not be on my watch list!

@Gizmo1983 I'm very lucky, I have my mum just across the road too, so that is nice. If any negative thoughts start to creep in, I say to myself no, not happening, positive thoughts only. It doesn't sound daft at all.xxx

@v60 I wish I didn't feel as anxious, but because of previous experiences it's made me feel this way and I know that it's not good. I try and take some deep breathes and try and think of positive thoughts.
I try and think like you said that each pregnancy is different.

@VenusStarr I'm sorry for what you're going through, feels like you can't get a break at the moment. I really hope you and your family are doing as ok as possible ❤️

@Rainbowsunshine81 I was very similar to you first scan this time - I was actually quite chill up until about three days before and then I started seriously panicking. Had a good session with my therapist (as lots of scan trauma as I imagine we all do here), and she said 'no matter what happens, you will find a way forward' and it really helped me to just try and visualise the future as an unknown entity that could be filled with nice things.

@Gizmo1983 and @v60 hope you're doing ok anxiety wise.

I had my 16 week scan this week which was good, nearly signed off from CRP clinic which will be a relief for our bank account! Since coming off the prednisolone I've had very bad nausea and sickness, Ms. Edge prescribed me some anti nausea pills which have generally been working apart from middle of the night when I tend to be sick, but yesterday I was sick about 10 times throughout the day and couldn't get out of bed - might have been a bug as feel much better today. If it was a bug then I'm panicking about the baby being ok. Hopefully she's ok in there 🤞🏼