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Advice for Women That Have Come off the Pill - Share your Experience :)

971 replies

MintGreenLife · 16/06/2020 09:51

Hi all,

I came off the pill two months ago, and after having a completely haywire 2nd post-pill cycle, I've been doing a lot of research to try and understand what's going on.

I thought it would be nice to share my research and what I believe is happening to me, in hope it might help others. I also thought you might like to share your experience and how you found/are finding coming off the pill, as being able to read that other people experience similar can be really comforting. So here's me...

I'm 31 and TTC DC1.
I came off the pill early April, had my withdrawal bleed a few days later, then first natural AF came 30 days later, so a 30 day cycle. First AF was very light and started and finished with brown spotting. Only lasted 4 days.

I'm now in cycle2 currently on CD37. I didn't ovulate until CD33! The day after ovulation, my boobs and nipples were agony. I'm now 3DPO and the pain is worse.

I recalled this pain the last cycle too, which I wasn't tracking. I assumed it was a sign AF was coming, as it arrived 5 days later. But from this cycle I now know it's actually a sign I've ovulated, so this would mean an extremely short luteal phase on that first cycle.

My research has included reading 'Taking Charge of your Fertility'.
I also found this article extremely helpful in understanding what goes on in your body when you stop the pill, as well as learning things you can do to take charge of your cycle again: avivaromm.com/post-pill-reset/

My sore boobs and possible short luteal phase points to an oestrogen dominance, which causes low progesterone.

This sums up why this happens:

'While not a symptom in itself, nutritional deficiencies can cause a host of symptoms – including hormonal imbalances. They are also a problem for women who come off the pill hoping to get pregnant right away because low nutrient status has been associated with fertility problems, and low nutrients in mom can also mean low nutrients in baby. The pill has been associated with robbing a number of nutrients including B vitamins and magnesium.

Hormonal birth control pills can deplete the body’s stores of certain nutrients, including vitamins B2, B6, and B12; vitamins C and E; magnesium, selenium, zinc, and folate. Vitamin D levels may also drop after coming off the pill.'

Understanding what is going on with my body right now has made me feel so much better. If I were to have a normal luteal phase this cycle, I'd be on track to have a 48 day cycle! The sore boobs tell me I'm probably going to have a short luteal phase though.

I've also learnt how hormones control the whole cycle. With oestrogen being the important hormone during the first half. It builds up and when it reaches a certain threshold it triggers the LH surge. Once you've ovulated, then progesterone kicks in. This cycle I had three LH surges in total spaced 12 days apart until I finally ovulated. Oestrogen and Progesterone have to be perfectly balanced, and so I think the three LH surges could indicate that my oestrogen kept building up over and over until my body finally managed to ovulate, causing an oestrogen dominance. I finally confirmed ovulation after three high temps.

As of a few days ago, I'm following some of the steps in the article I linked, by taking a prenatal multivitamin to replace depleted nutrients. I already take probiotics, vitamin D and folic acid, so will continue with those and will add in vitamin C too. I've cut out low fat dairy instead choosing full fat, and am trying to focus on eating at least 2 pieces of fruit a day and extra veg with my lunch and dinner. I may also look into including a b6 supplement for my luteal phase next cycle if it does turn out to be short again this cycle, as this helps with progesterone and during the luteal phase progesterone spikes to dry up cervical fluid, change the cervix position, stop anymore eggs from being released and build up the lining, so is really crucial.

Hopefully this will help someone :) would love to hear how others are finding coming off the pill x

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MintGreenLife · 22/07/2020 14:25

@Juno231 p.s I too had really heavy periods before the pill, but I don't recal if they were irregular, to be honest I'm not sure I paid much attention! I'm now 3.5 months off the pill and skin has just started to break out - I seem to have lots of little bumps around my temples and on my forehead, and I remember last time I had a short break from the pill about 10 years ago I got spots on my forehead x

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Juno231 · 22/07/2020 15:36

@MintGreenLife yes that's the thread!
GP sort of dismissed my period comment and hasn't spoken to me about the blood test really. I only know they were irregular back then cause I never got the hang of when it was meant to show up and was always petrified of coming on whilst at school or something.

I didn't actually break out into spots until maybe April this year? I found it weird that there was a delay like that. But now I get them around ovulation all the way through to AF - along my jawline, mouth/chin but also forehead and temples like you. I'm at the stage where I use cetaphil twice a day to cleanse as I can feel the sebum building up quickly. I never used to have spots so this is all new to me!

SJ789 · 22/07/2020 15:39

Hi everyone 👋🏻

Sorry to barge in! I'm very new to all this and found this thread very interesting. It's rubbish so many of us have trouble coming off the pill but I have to say I'm feeling slightly better that I'm not alone in this!

I stopped taking my pill to TTC in April, and since my withdrawal bleed I've had absolutely nothing, I'm on day 103 (I think I've calculated that right!) now. For a few weeks after the withdrawal bleed I would get a cramping pain in what I think was my ovaries (one week it would hurt more on the left side and then more on the right side), but I haven't felt anything like that for about a month or so now. My skin is also terrible, spots all over my chin and side of my face which appeared a few weeks after coming off the pill.

I never knew there was so much detail to go into when TTC! Really wish I'd known all about the things the pill could do to you when I was younger. I started taking it when I was 17 and I'm now 29, I had a couple of breaks in the middle but no longer than 3 months at a time, and I really don't remember ever having a "regular" cycle when I was a teenager.

I'm getting no obvious signs that AF is due, I really just want to get into a regular cycle so I know things are working as they should be and I might find it easier to track the best time to TTC. I don't know whether my Dr would consider giving me any blood tests at this stage to check hormone levels? I've read some people having to wait 6 months or so before getting referred for help?

Hope you don't mind me following along in your journeys and maybe occasionally asking a daft question! I think I've worked out what most of the abbreviations mean but struggling with a few!

Hope you're all having a good day 😊 x

Flowerkm · 22/07/2020 16:30

@MintGreenLife Oh no, headaches suck! I do tend to get them but they would be over my withdrawal bleed or then if I get random headaches I can usually put it down to not drinking enough or tried etc. Seems ok today so maybe it was just an off day yesterday. Aww, a lunch time bath sounds really relaxing, I’ve never done that actually, I might treat myself and give that a go one day 😊

Welcome @Juno231 Can I also add about the spots around the jawline and chins, I got them this month too over ovulating, they seem to be easing up now but apparently spots around the jawline/chin is all related to hormones so that would make sense if you broke out around there. That’s good to know you’re ovulating so I’m sure you’ll get your BFP soon. I’m still waiting for my first AF since coming off the pill and that’s due around the 2nd August so will see if that’s on time or if I’m going to start a long cycle.

Hey @SJ789 nice to have you join. Sorry to hear about your long cycle, it really is a mystery to why some woman go back right away and some have really long cycles. No such thing as a daft question, I’m super new to this as well. I have learnt more in the past month than I think I ever have about my own body! Have you tried tracking ovulation to see if you are or are? xx

SJ789 · 22/07/2020 17:02

@Flowerkm yes I can already see I'm going to learn so much about myself from here than in the past 29 years 😂 I was thinking about getting some ovulation sticks to try and start tracking, does anyone have any recommendations on brands or are they all much the same!? (Soooo much to learn!) I've ordered some pregnacare vitamins from H&B but they are taking forever to arrive! X

MintGreenLife · 22/07/2020 18:20

@Juno231 I have read that bad skin/other post-pill symptoms don't usually appear until 4-6 months after stopping, but then I've also read that they should peak around 6 months and then get better. I'm only just coming up to 4 months 😕 I did read something about sebum though - apparently the pill suppresses sebum and so your body goes into overdrive producing it, and you just go round and round with your body trying to produce more and the pill suppressing it, but then when you come off your body carries on over producing it. I have found my skin and hair oily than I'm used to, I've been experiencing hair loss too...all not ideal right before getting marri e 🙈

Sorry to hear your GP was less than useful. Do you think you'll go back once you get past the 12 month mark? X

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MintGreenLife · 22/07/2020 18:22

@Flowerkm I don't know what's going on with me today - lay down for 10 mins because of my head hurting and woke up an hour and a half later! I'm not a napper and if I ever do take a quick nap it's like 30 mins so I woke up very confused. I don't think it's this detox as I felt completely exhausted over the weekend before I started it. Just going to put it down to hormones. Hoping it might be an indicator that AF may be on the way! I would highly recommend a lunch time bath, especially when feeling a bit crappy x

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MintGreenLife · 22/07/2020 18:26

Hey @SJ789 lovely to have you join ☺️ Sounds like you're going through something similar to @TheDaydreamBelievers

I'm on CD36 at the mo of my third cycle off the pill. Interesting like you I felt all sorts of twinges and cramps last cycle right through but not much this time round. I've come to the conclusion that although I'm getting AF I don't think I'm ovulating.

It helps so much to have others in the same boat to chat to though! Sure I've asked all sorts of silly questions since I've joined here 😂 It's so strange learning so much about our bodies at this age! Like you say I wish I was much better informed about the pill, otherwise I would have come off a while ago to allow things to settle down before TTC, yet here we all are 🙄 Xx

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Juno231 · 22/07/2020 18:31

@MintGreenLife that's one heck of an afternoon nap! Hope it's a good sign cycle. wise. I've read the same about when the post pill acne should taper off but I'm still here 10 months in 😁. And yes I've been losing so much hair!! Never considered it might be pill related - aaaand it's super greasy all the time. Man alive I'm never going on the pill again!

TheDaydreamBelievers · 22/07/2020 18:32

Hey @SJ789 - join my club! I'm CD126 post pill. Like you, I had one time around cd60 of ovary type pains and sore boobs and since... nothing. I did manage to get hormone and androgen blood tests from the GP (nhs scotland) and they have now referred to gynaecology (although they did say they might reject it as less than 6mnths). No harm in asking for some, I'd ask for the numbers when you get them as my gp said "all normal" but the numbers dont 100% agree with that statement! I am also temping and getting zero variations. Fingers crossed for us both working things out!

MintGreenLife · 22/07/2020 18:45

@Juno231 oh gosh I know 😂 I never nap like that! To be honest all I feel like doing is going back to bed now too, surely this has got to be hormonal! I was like this on the weekend too and isn't normal for me, plus for a couple of days before I felt this way on the weekend I was really energised and the same thing happened Monday/Tuesday this week. Makes me feel like I'm crashing.

Really hope it clears up soon for you. Has it got better at all, or just worse? When I was debating when to come off the pill I based the fact that I didn't get spots as a teenager on whether I felt like I would get them now or not and end up with them right before our wedding, and decided I would probably be OK. My situation isn't terrible so far, but it's a lot more than I am used to! Xx

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MintGreenLife · 22/07/2020 18:46

@Juno231 oh and I'm totally with you, I'm steering clear of the pill from now on! I told OH the other night I would be going back on it 😂

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MintGreenLife · 22/07/2020 19:05

@Juno231 meant wouldn't be going back on it!

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Flowerkm · 22/07/2020 19:07

@SJ789 Id say they’re all pretty much the same, it just depends which ones you prefer. Ive got the clear blue digital ones that show 4 or more fertile days but they’re quite pricey so I what i do in-between while learning my cycle, i use the Femometer strips from Amazon, you get 50 in a pack and then you compare your test line to the control line and it goes darker the closer you get to ovulation then when it gets darker i just used the clear blue to confirm it. Others may be able to advise what they use but they seem to work for me. You can also download the Femometer app and it calculates the % of the test line for you to show how fertile you are. Sounds like you’re all ready though with the vitamins, just hope they turn up soon :)

@MintGreenLife aww bless you, waking up from long naps is so disorientating sometimes. I always feel worse but it sounded like your body needed that rest though. Hope its a sign AF is coming though and hope you have a better sleep tonight xx

AnonymousXXIX · 22/07/2020 19:30

So I came off the pill in February and straight away had two near-perfect 28-day cycles. However, since April they have been getting shorter (27 days, then 26, 25 and last month 23), particularly the luteal phase, so this month I called my GP to ask about it. She suspects I have PCO (ovarian cysts; not PCOS! Which makes it a lot harder to Google and find info on...). I have to go get blood tests and then possibly a scan the coming month.

I have never experienced anything like this before and to me it feels like it must be caused by my hormones going crazy after coming off the pill (was on it for 15 years). My GP says it is coincidence though. has anyone else experienced anything PCO related only after coming off the pill?

MintGreenLife · 22/07/2020 19:51

@AnonymousXXIX sorry to hear that. Unfortunately not, at least not so far! I'm on my third cycle off the pill and so far mine have been getting longer after a 30 day first cycle, although I suspect I'm not actually ovulating. Best of luck with your tests, and hope you can find someone that might be able to offer advice x

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SJ789 · 22/07/2020 19:55

@TheDaydreamBelievers I have got a telephone appointment with gp tomorrow about something completely unrelated, I might try and ask about blood tests if there is time and see what he says! Fingers crossed for us both! X

@Flowerkm ahh thank you, I will have a look for the femometer ones on amazon and give your method a go, thank you for the info! X

Juno231 · 22/07/2020 20:25

@AnonymousXXIX from what I gather a lot of women only realise they have pcos when they come off the pill as the pill has been masking it all those years. I imagine that applies to pco as well?

Flowerkm · 23/07/2020 08:11

@AnonymousXXIX Hey :) Sorry to hear your cycles are getting shorter. I can't advise on this personally as I have only just come off the pill myself. I've read online that what @Juno231has said is quite common, unfortunately the pill can mask a lot of symptoms that won't show until you come off the pill.
It's good news your GP is acting quickly though and is talking about the blood tests and scans. I hope it all goes well for you and keep us updated.

@MintGreenLife How did you sleep last night? Hope you're feeling better today xx

MintGreenLife · 23/07/2020 08:27

@Juno231 so you may have been right! My temp shot up today from 36.12 yesterday to 36.6. That's the highest temp I've had all cycle by quite a bit! Really hope I carry on getting high temps, going to feel slightly anxious about doing my BBT for the next few days now 🙈 X

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MintGreenLife · 23/07/2020 08:30

@Flowerkm morning ☺️ Still not great actually. I'm just having really vivid dreams and feel like I'm half awake half asleep if that makes sense. Find my mind is running at 100 miles an hour, about nothing in particular, and that I'm struggling to slow it down, even though I'm knackered and can barely think in the day 🙄 Going to go a workout now before work in hope that tiring out my body as well as my mind might help. Think I best skip the detox again today too just in case that's what's caused it.

In other news my temp went up from 36.13 to 36.6 this morn! That's the bigest temp rise and highest temp I've had all cycle, really hoping it stays high now at least for a few days.

How are you today? X

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Juno231 · 23/07/2020 08:55

@MintGreenLife woop for ovulation! Fingers crossed your LP is a decent length this time.

Saturday (CD16) would be the latest my ovulation has been so far the last 6 months so I'm hoping I'll ovulate by then this week too. So far my temps are telling me nothing and my OPKs have been pretty much blank.

MintGreenLife · 23/07/2020 09:40

@Juno231 I'm trying not to get too excited as should probably wait for 3 high temps to confirm it, although when I did think I might be ovulating in my previous cycles (later decided I probably wasn't) I had a very slight temp increase and extremely sensitive nipples, which I read can be due to low progesterone, whereas today's temp is the highest rise I've had and no sore nipples, so hoping those are good signs! Only thing that makes me feel uncertain is I still have a tiny bit of EWCM today, which I know can be caused by low progesterone after ovulation, but I'm not convinced I've definitely ovulated yet. Hopefully the next few days temps will look good, and then like you say fingers crossed I go on to have a decent luteal phase!

That's great that you've been ovulating by CD16, I'm CD37 now eek! Which OPKs do you use? I guess I would assume I was in my fertile window now if you always ovulate by CD16 :)

I've been seed cycling, so have finally (and optimistically) moved myself on to sunflower seeds after almost 40 days of pumpkin seeds! x

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Juno231 · 23/07/2020 09:56

@MintGreenLife ah that's good news about the temps going higher than in previous cycles! I'd trust BBT over EWCM tbh as I'm sure some could lurk high up there a day or two past ovulation.

I use femometer OPKs - have since cycle 2 I think so am fairly comfortable with their results and how to interpret them. Definitely going off the assumption that I'm in my FW as sometimes I ovulate on CD11-12 so we've been DTD every other day since Friday last week! Once I get my peak I'll go 3 days in a row and then that's OH free for another cycle lol.

Seed cycling is something I haven't tried yet!

MintGreenLife · 23/07/2020 10:01

@Juno231 well that's true, although have just remembered that when I checked my cervix the last couple of days it was quite low, which wouldn't suggest ovulation. I never know what the hell is going on with my body ha. I guess i'll just have to wait and see if I get more high temps over the next few days.

Haha ahh that's a good strategy! We generally just DTD every other day throughout. In our first cycle I tried to get OH to do it every day when I thought I was possibly leading up to ovulation, but that happened three times during a 37 day cycle and it just got a bit too much for him ha, so sticking with every other day for now. Which means if I did ovulate yesterday we DTD the day before and three days before, so not bad.

I find seed cycling pretty easy, and just thought if it can help support the different phases of my cycle (only had the one so far ha) then why not. I just add the seeds to my breakfast x

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