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Immune/NK issues - aka Pred Thread no.20!

960 replies

harrietm87 · 18/07/2017 11:42

Hi all, thought I'd get the ball rolling on the new thread.

Welcome all with immune/natural killer cell issues.

It's been a while since a new thread so thought it might be helpful if we all added our stats:

I'm harriet, age 30, TTC#1.
3 mcs (2 at 5 weeks, 1 mmc at 9 weeks).
Hypothyroid and high NK cells.
Cycle 2 on pred!

OP posts:
Thread gallery
14
LunaB · 19/08/2017 13:24

Interesting, you think even day after solid smiley Seeking... glad you're feeling much more confident and calm 😁

Sheepy, I still can't get over how many you've lost... 😰

harrietm87 · 19/08/2017 14:23

Just a quick one to say I def agree with seeking - day after solid smiley. The solid smiley means you will ovulate in c.24hrs (could be up to 36hrs later) and you ideally want to start pred after you ovulate, as it can delay ovulation.

OP posts:
Sheepy1980 · 19/08/2017 14:25

Luna, the Drs when I had the d&c were shocked, which is why the one dr wanted to help so much. That he has actually personally written his own letter to Professor Quenby. I have been looking into Mr S as well.
I was asked on return to work interview why I keep on trying so much and surely I should just be content with DD, and adopt but dh and I looked into it and we actually were told we were too large.

Drttc · 19/08/2017 14:55

Hi ladies! Just a quick update - not been able to read everything! Had a scan today and it went perfect! Heartbeat and am caught up with my LMP measuring 6 weeks +4 days. Very happy and very nauseous!

Justla sounds sooooo lovely that you'll be finding out gender with DH for his bday!!

Take4 · 19/08/2017 15:14

Thank you for the warm welcome to the group and all the encouragement - means a lot!

JustLa thanks for the reminder about Gerry, Made me smile. It ain't over till it's over and I am a bit younger than her!!!

My question re ovulation and taking pred has been answered without me asking! This month (first cycle on treatment plan) I took pred on first day of solid face but wondered if it should be the following day and it makes sense that it should be.......next month it should all feel less messy and simpler...!

Hope you're all having good weekends x

LunaB · 19/08/2017 17:20

Yay! Another wee heartbeat!! Did you whip ya knickers off 👉😝❤️❤️❤️

LunaB · 19/08/2017 17:22

I also had someone tell me I should be happy with the child I have, sheepy.... & I should adopt.... I won't write what I told them in response 😝🖕

LunaB · 19/08/2017 17:26

I'm holding my nerve take4... will take at dawn on day after solid face lol 🙌

Tee4me · 19/08/2017 20:51

It's a difficult balance isn't it! It also dawned on me that you wouldn't want to start it too late, as although you'd be further along by testing date (= more chance of a genuine FRER result), that would also mean starting the cyclogest later than potentially possible! So as with everything ttc, feels like we're walking on a razor blade, although the reality is that a day of 2 either side is not going to be the make or break! 🙈🙈🙈

LunaB · 19/08/2017 21:10

Agreed Tee.... ooooof, hectic tho

Seekingmiracles · 19/08/2017 21:21

Fantastic news drttc! ❤️❤️❤️

LunaB · 20/08/2017 15:19

🤔 had flashy face on ovulation test at 6am, and when I retested at 2pm it was solid face...

So when should I take the flipping Pred...?

Tomorrow morning (will be less than 24 after solid face) or Tuesday morning (will be like 40 hours after solid face & could therefore be after ovulation) 😱😱😱😱

Tee4me · 20/08/2017 16:51

If it were me, I'd probably go for Tuesday! I got my positive opk on a Thursday and took my first dose on Saturday morning. I think if you only got the solid face this afternoon, you're most likely due to ovulate later in the day tomorrow? So the following morning sounds spot on? x

harrietm87 · 20/08/2017 16:57

I agree with tee - you want to start it after ovulation so I'd go Tuesday. If you take it tomorrow am you might not have ovulated and it might delay/prevent ovulation. I took it before ovulation on my first cycle because I was confused with my opks, and I ended up ovulating 6 days later, which I think was at least partly due to the pred.

Will do a proper catch up later but so happy for you drttc!

OP posts:
LunaB · 20/08/2017 17:17

Thanks girls! 💓 Tuesday it is 🌝
Hope everyone is 👌

Sheepy1980 · 20/08/2017 20:44

Is anyone else constantly hungry on Pred, I am currently watching Miranda in the awning of our camper while Listening to the rain. I am planning a run tomorrow morning and will then see about sorting out the DVD player and some lights.
DD has gone to bed because it is cold

Seekingmiracles · 21/08/2017 07:32

Pred makes me so hungry! That's why I put on so much weight at the start! Then I stop and it calms down! I def have a fat face already!

Tee4me · 21/08/2017 11:12

I haven't noticed feeling hungrier, but it is starting to take me longer to fall asleep at night, not sure if that's the pred or just a coincidence. Also notice my heart thumping quite a lot. Woken up with a banging headache today. How is everybody? Luna are you holding out until tomorrow to bosh the pred? x

LunaB · 21/08/2017 11:30

That's interesting Tee... what time do you take yours?

Yes I'm holding out! Convinced myself I have poor CM as it doesn't seem as good this month... but am trying to decide I'm being an idiot and should shut up! Will bosh at 6am tomorrow 😬🙌

Testing tomorrow aren't you!? How many days are you on the Pred now?

Tee4me · 21/08/2017 11:59

I take my Thyroxine at 7am, then the stomach settler at 8/8.30am, then the Pred after breakfast around 9am.
If I'm unsuccessful this month I'm going to have a switch around to Thyroxine last thing at night so can get on the Pred first thing. I took my 10th dose this morning. Will test with FMU tomorrow so will know if I can keep going or not! My guess is it'll be a BFN but trying not to get too anxious thinking about it today.
Did you manage a decent BF??!!

Tee4me · 21/08/2017 12:00

I think my CM improved since being on the Omega 3. I take a high strength one from Healthspan. Make sure you chug a tonne of water today, that helps with CM x

harrietm87 · 21/08/2017 12:05

Aaah tee exciting that you're testing tomorrow! What dpo will you be and how are you feeling? You're so lucky with the pred - I've been SO hungry on it and am now so fat! (Not objectively- just from what I was. I used to be a 10 and now I'm a fat 12 and none of my jeans fit 😭😭. I know it's the pred not pregnancy as the main thing that's grown is my arse!!)

BUT I'd do it all over in a heartbeat for this. Had my scan with Mr S this morning and everything is perfect. I thought I was 6+5 today but turns out I'd miscalculated and I should be 6+3 from LMP, but was measuring 6+4, heartbeat of 120bpm. I've never seen Mr S smile before but he seemed really happy and said he thought this was the crucial scan for me as I've always lost them by this point. I just feel so lucky right now I almost can't believe it. I know still so far to come but it just feels like a massive hurdle. DH was with me and shed a few tears when he saw it which was lovely!

luna hope your boinkfest went well! And how is everyone else feeling - seeking and drttc and just? just - when do you start weaning off the pred - must be soon?

OP posts:
LunaB · 21/08/2017 12:23

Thanks Tee, yes am on monster dose of Omega too... but I after a weekend chasing toddler and puppy I have been slack with the water, so thanks for the tip - will glug a few gallons ASAP!

Yes maybe a 9am Pred is too late, and causing a bit of insomnia... if you get a negative tomo, will you stop the Pred - or take it until you're 100% you're not preg??? Dilemma...

Excellent news Harriet!! How sweet you make him smile with your immense milestone! I loose them by 5/6 weeks so I would be so happy too! Well done! As for the weight.... don't fret - it's the last thing you should worry about... if you were slim and healthy before you got pregnant you will be afterwards as well - fact! Actually, I went even slimmer and healthier after my baby (it was a tough job, took 1.5 years, but it did happen!). Get some ice cream in you woman; your pregnant ffs 😝🎉

My BF is going well, 3 boinks done, 3 to go 💓

Tee4me · 21/08/2017 12:36

Ah Harriet!! Awesome, I'm smiling from ear to ear from you. How lovely to get a smile from the stern Mr S too 😁
I'm in 2 minds about whether I ovulated last Friday or Saturday so I'll be 10 or 11dpo tomorrow morning. If it's a snowy white BFN I'll stop the Pred and try not to let my mind think about 'what if'. I actually only had enough for 20 doses anyway, so I need to keep 10 for next cycle, I don't expect to be back to the clinic before then.
I have a note on my to-do list for tomorrow to call the clinic to either book an infusion for the end of the week or follow up with Dr S at the end of Sept. FX for a miracle that it'll be the former! x

LunaB · 21/08/2017 12:52

Yes babes, fingers and toes crossed for you 🙏... be good to get us all preggo by Xmas

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