PCOS, Periods, Provera & Pals. Plus All The Bits In between.

[AmyC86]

Welcome to our third thread on PCOS. What we don't know isn't really worth knowing. We're a friendly bunch of women who have a few things in common. We all have either PCOS or unexplained infertility and we're all on a mission for a BFP!!!!

For new members, and old alike here are the links to our 1st and 2nd threads:

www.mumsnet.com/Talk/conception/2481523-when-to-expect-period-provera

www.mumsnet.com/Talk/conception/2685865-pcos-periods-or-lack-of-and-a-lovely-bunch-of-ladies?pg=1&order=

Now without further ado, let's continue on our journey.......

Still waiting for AF to show. I'm tempted to request some Provera as I was due on 3rd December & I'm still waiting!

Defo get some provera amy, that's nearly 2 months of waiting xxx

Fingers crossed for you Boggle. Defo sounds like there is a chance that it could be implantation bleeding to me.

Amy: sounds like time to ask for some provera. I would have asked for it by CD35.

Thanks sat. It's a small possibility that it is IB but previous experience has taught me that it is very likely to be AF.

Fingers crossed for you boggle. You are much more patient than me Amy, don't think I'd have been able to wait that long before getting some provera!

Just wanted to say thank you to you all for all your support. This has been the hardest 2 and a half years and you've made it easier and given so much support. You are wonderful women xxx

Aw that's lovely. As awful as it is (and I wouldn't wish this on anyone) it's nice to know that there are others in the same position so we can offload, overshare and just generally let it all out without any judgement.

Yes offloading and oversharing have been so important for my sanity! Haha xxx

I'll try and get some Provera!!! Xx it's sent off for a fostering information pack today...... don't know why, just had this 'calling' to look into it xx

How are you doing Boggle? I've been thinking of you.

Did they say when you should have ovulated and how many follicles you have to work with at your scan?

Not doing great satsooma but thanks for thinking of me.
I had two follicles at 11 and 12mm. They predicted I would ovulated Sunday 15th Jan, cd17. I am cd29 today and 12dpo. The clinic don't have my progesterone blood test results so it seems they're lost. Waiting for a call back from the clinic. I'm still spotting. But I intend on taking a break from clomid in February as my mental health is really suffering at the minute. I'm not coping.

How are you doing this evening boggle?
I had the worlds worst first fertility appointment. The nurse was lovely but said with all my medical history I need referring to a specialist clinic where they will do IVF.... I asked about metformin, clomid etc and she said there's no point. I feel so shit. I can't understand why they're not even trying it...am i that much of a hopeless case

Did they give a rationale for 'not even trying' elly seems strange xx hope your okay boggle how annoying that your blood work has gone missing xx how do you feel? Xx do you have any tell tail signs?

Sorry elly. You're not hopeless. When you say your medical history? Is this something you can share? Did they give you a timeline on the IVF? Talk us through your thoughts/feelings.

The clinic don't have them and nor does the hospital I had the bloods done at. There's a chance they're still in transit and if they come in on Monday, she'll call me.

I had a chat with her on the phone as she as worried about and she thinks taking a breaking is a good idea. I will do my last round of clomid in march and then it's IVF.

Still spotting and I have shit skin but other than that. Xx

I Have kidney issues that I've had since I was little so medication such as metformin wouldn't work for me as they would be bad for my kidneys. Plus they said that combined with pcos and husbands low count would make natural conception very very unlikely. I was just shocked that they didn't say 'let's try this first...' . I feel gutted that I feel like I have no other options? X

Sorry elly. That sucks. Can you go back and see another person for a second opinion? Xx

Hi Elly,
So sorry to hear your news, its gutting when you have set your heart on something. Do you get free ivf on NHS in your area? Do you know what the waiting lists are like? It took them four months for me to get Clomid on the NHS and during the same period my friend had ivf so looking on the bright side hopefully you won't be waiting for that long?
Boggle I'm so sorry that it is getting to you so badly, it's just so cruel sometimes. Thinking of you.

It's always cruel. For all of us. Even on a good day, it still isn't fair. Sending you many hugs elly. Xxx

So I'm on my 3rd cycle of TTC... I know it's not long but I have PCOS and endometriosis. The first month after having my IUD removed I went 39 days with no AF. Last cycle no peak fertility days and a suspect period. This month CD 21 and I've finally got a peak. I have a long road ahead but it's a posative step in the right direction.

Odd question - the last few days I've had EWCM, really noticeably as I've basically not h hint of any for weeks and months but the last few days it has come on all of a sudden. I also had some stabbing pains on one side last night.
Can you get the EWCM and still not ovulate? I'm not going to do an OPK as consultant basically told me not to with PCOS as it is so often wrong.
It's been so long I don't really know what I'm looking for.

Thanks ladies. I've spent the evening sulking, and googling. I guess my hope is that when my appointment comes through for the specialist ivf appointment they might be happier to try other routes first than ivf and that maybe this specialist nurse has just panicked and passed me on because of my complicated history??

Yeah it's free IvF in our area - 2 cycles, but I have no idea about wait times and I've been told they will want to repeat bloods, ultrasound and husbands SA before they even do anything so it will be a while yet.

Hi everyone. I'm 32 (33 in July) and have a BMI in the slightly overweight category with about 20lbs to lose and work full time in a stressful job.

My OH and I are getting married in early May and rather selfishly I wanted to wait until after the wedding to TTC so I could drink (I know, silly, but I wanted to enjoy the party) but I have since suffered a complete lack of periods since early September.

I've usually had pretty regular 5 week cycles, and when I had a scan abot 4-5 years ago I was definitely ovulating, but I know exactly why it's disappeared.

I asked to try metformin to help with the PCOS spots and facial hair back in August-Sept, took it for a month and then decided to stop as I was feeling bad about also being on this and antidepressants - I just felt over medicated and like I was taking lots of stuff, IYKWIM? Anyway, I wish I hadn't as it's screwed up my system so much, but what's done is done.

Anyway, I came off my antidepressants in early Dec with no problems and have been looking forward to TTC, but since stopping the metformin in early sept, nothing no periods at all! Just horrific facial hair, greasy hair and cystic acne.

I am making a GP appointment but I am not sure that they can/will do anything as we're not actively trying yet - but I really wanted to use this time to get myself into the best possible health, but now I'm just scared. I've never missed periods for so long before, that's really not good, is it?

So probably panicking a bit, but now I'm wondering if we should we start TTC before the wedding. I'd like two children and am conscious of fertility declining and even if all went like clockwork after I get my periods back (not that I'm banking on it) I'd be at least 34 TTC number 2.

Sorry, that was really long! I'm going to make an appointment with the doctor for this coming week - will they take me seriously at all or just tell me to go away, lose weight and try for a year and then come back? I'm just struggling to work out possible outcomes so if you know what might happen that'd be great.

Can't believe they lost your bloods Boggle. Have you heard back about that yet?

This whole thing is just shit isn't it. Sorry to hear that you are struggling. I feel similarly at the moment. Sounds like a break might be a good idea. Can you get some counselling. I think we are supposed to be eligible for counselling through the fertility clinic.

Welcome panda. I could have written your exact post a year ago. Like, every single point :)

My advice: go to the GP and get things rolling ASAP. Sounds like step 1 would be a prescription for provera (it is just a 7 day course, so not too much medication) to get your periods started. Step 2 would likely involve getting the tests necessary before a fertility clinic referral. Obviously it is different for everyone, but you will probably be married before you get through that whole process.

Thanks satsoooma. How are you now?

Eek, I'll bite the bullet and make the appointment for this week. Do you think they'll refer me for tests, even though we've not been TTC?