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TTC with PCOS (Lucky Thread 5)

545 replies

Shellbell0403 · 01/05/2016 10:02

Hey everyone,
If you would to chat, rant or discuss TTC with PCOS with a lovely group of people going through the same thing and with some wonderful knowledge and experience then please join us ☺

Will post the links for stats etc shortly ☺

OP posts:
Thread gallery
12
Dunlin1987 · 04/05/2016 15:24

Thanks Frazzle I am trying to stay as positive as I can but it is bloody hard!! Just keep thinking at least I know I can get pregnant. Just need closure now. Going to the EPU tomorrow to get my options. What did you do?

FrazzleRock · 04/05/2016 15:49

I had the surgical management 4 days later. It was the most heartbreaking thing I have ever done. I just sobbed as I went in and kept sobbing until I was put to sleep. The medical staff were very sweet, though I do remember one nurse said to me "awww, it's not the end of the world" Hmm.
Afterwards, I had a few sessions of private counselling, but most of all talking to my friends and my DP got me through it (and still is getting me through it). Like I said in my previous post, we found out we were expecting again just over a week ago after two weeks of just knowing I was pregnant again. But I started bleeding only 5 hours later Sad

Yes it is good to know we can get pregnant, and it is of some comfort. I'm lucky enough to already have two older DC both conceived with my previous partner but back then I was with him for ten years and only fell pregnant twice, so a completey different struggle.

My body seems to have gone into overdrive with my DP, kicking out dud eggs it seems Sad

What are you thinking? Wait it out, or go for surgery? I'm pleased I had the surgery. Leaving nature to take it's course can be very painful and unpleasant I've heard. With surgery, I only bled heavily the first night and following day. I then bled very lightly for about a week and a half.
Surprisingly, I bled ridiculously heavily with the most recent MC, pouring blood every day for about 5/6 days. I had to be scanned as it was so unusual to bleed so heavily for such an early preg. All was fine though.

Dunlin1987 · 04/05/2016 16:55

Oh that sounds awful! Can't believe the nurse! She obviously has never been through it. That is what I am going to opt for. Don't think I could pass it naturally it would kill me. Sorry I can't remember your back story. Are you on any medications?

FrazzleRock · 04/05/2016 17:27

Good plan.

I'm on 1500mg Metformin, plus thyroxine for my underactive thyroid.
We've actually not been TTC very long. Our MMC was actually a surprise pregnancy. We'd only been together 7 months. Because of previous TTC struggles I assumed I couldn't get preg by accident so we were not always very careful.
We were very excited after the initial shock of our BFP and immediately put both our flats on the market and put an offer on a house (which we're moving into in about 2/3 weeks). Then we got the awful news that our baby had died. This spurred us on to start TTC properly. But since then DP has been very up and down about it. He's worried we can't afford it. But our second positive result last weekend proved he would be over the moon, so I live in hope.
I just wish I knew what the hell my body is doing! For the past 8 months I've had extremely short cycles after 20 years of 100+ day cycles. And two very close together lost pregnancies.
Gynae has no idea. Just said its "PCOS doing something different"

Anyway, I'm just so sorry you're also going through the utter hell of a MC. How's your DH coping?

Dunlin1987 · 04/05/2016 18:07

Bet you are looking forward to the big move. Not long to go! Did they not doing any tests with the tissue after you had the procedure? Surely there are tests they could do to see why it is happening?

My DH is not coping well at all. I think part of me knew it was not meant to be as I said a week ago I just didn't think we would have good news. I think I just worried too much and though how it was too good to be true getting pregnant so quickly on the clomid. It was an utter shock to my husband and he had been so excited. We are supporting each other though.

Shellbell0403 · 04/05/2016 19:08

cwtchy nice to see you back!! Fab news 😁 is the status sheet up to date with your Meds? Well check..

dunlin nice to see you back also but so so sorry for your loss! Sending hugs!

Had my bloods done today... to phone Friday for results 😐

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Spotsondots · 04/05/2016 19:47

Hi dunlin. I'm very sorry for your loss SadFlowers I have recently been through a MMC after a year of TTC and finding out I have PCOS along the way. I was 13 weeks and went for my dating scan to find that our little one had fallen asleep at about 9 weeks. I miscarried naturally the next day without any major events. I would have opted to do that anyway I think. It felt the right thing for me but everyone is different and it's important to go with what you think is best for you. No one else's opinion is terribly important. It's utterly heartbreaking. I am six weeks on and feeling a lot better emotionally but still have the odd wobble now and again. I am going back to work next week after a period of time off to recuperate. Take plenty of time and be kind to yourself. Your DH too. Look after each other.

Flowers for you too frazzle. Sorry to hear you have also recently lost a baby.

VillageFete · 04/05/2016 20:16

Oh, i'm so very sorry to you frazzle and you too dunlin Just awful news.

What is going on? How are a fair few getting pregnant on this thread and then losing the baby? It's not bloody fair. I may sound very naive, but what do they think causes a miscarriage? Is it a dud egg so to speak? Or could it be the lining isn't prepared? Are us PCOS'ers at higher risk of miscarriage?

I too had my bloods taken today shell Need to see if this clomid worked, although ovulation tests didn't pick up on a surge.

VillageFete · 04/05/2016 20:17

Oh spotsondots how sad, I am so sorry. I really hope all of you get your happy ending sooner than later. x

AmyC86 · 04/05/2016 20:38

frazzle

Thanks for your post re my temping chart. I do have PCOS, but I've just taken my first course of clomid and thought that it would put me on an even keel with the temping as it's supposed to give me a proper cycle. I'm just go to have to see about DTD as much as I can and check C.M every day. Got my cd21 bloods coming up soon so I'll have known after that if it's worked or not

Dunlin1987 · 04/05/2016 20:50

spotsondots so sorry you had to endure a MMC too. It is so unfair. It's horrible that it happens to others but at the same time it is good to have people who have been through it and understand how difficult it is. Having tomorrow off work but will see how I get on. I am a year 2 teacher and SATS are coming up. It might take my mind off things. Sitting around just allows me to think about it and get upset all over again.
Village there are loads of reason for miscarriage. The main one is cell abnormalities which is not our fault. It is usually a one off. There are other reasons but yes women with PCOS are more likely to miscarry for reasons they are unsure of. So basically (don't want to make people feel worse) we have it tougher than most. It does say many women with PCOS go onto have healthy pregnancies.
Apparently 1 in 100 will have repeated miscarriages (at least 3 in a row) but 64% of them women have a baby eventually. Good odds but we are not statistics. It is tough having PCOS.

Shellbell0403 · 04/05/2016 21:59

village did you have any follicle scans? They told me when I went for scan last week I had but had to get bloods to confirm it...
Yeh us ladies with PCOS are slightly higher chance of miscarriage etc.

dunlin sending hugs! You know we're all here for you if want to talk (flowers)

OP posts:
IsItIorAreTheOthersCrazy · 04/05/2016 22:38

Shell I'm from South Wales
Fingers crossed for your tww

Mysterious fingers crossed for AF - you should have said, I would have shared mine, it was 14 days of heavy hell Sad

Amy that is shit. Have some Flowers Is there any chance you can scrape the money together? Can you delay the dogs op?
Also, as pp said, I was told not to bother temping because pcos plaYs tricks on the body so it's not reliable

Oh Frazzle I hope everything turns out ok. And when you have the strength, can you have a chat with your DH and get him on board, with the condition that he's all in and you set a date to re-examine it (maybe in 3 or 6 months)? I feel like you need his continuous support, it's not fair on you to hear him going back and forth Flowers

Cwtchy welcome back. I'm supposed to take metformin, although I have been very lax (see my meltdown at the end of thread 4). When I was on it, my cycles shortened from 70 days to 35 and although I didn't ov it helped shift some weight - I think if I could keep it up, that and the weight loss may have kicked in natural ov. Keep plodding on with it - it's bloody hard to get back into taking it if you stop!

Dunlin I don't know what to say. I am so so sorry FlowersFlowersFlowers

For me, I have very little news. I am on cd 25 I think and have some cramps on my right side. I very much doubt it is ov as I've never managed it on my own but we're dtd anyway, just in case.
I am not back on meds just yet as my latest AF has done mad things to my hormones so I've had migraines every other day of 2 since it finished and I need to get rid of those first.

Very boring update from me but I want to try and stay on this thread a little more than I did on the last one!

LittleAngel8103 · 05/05/2016 00:19

Newbie here, I have pcos and am ttc

Shellbell0403 · 05/05/2016 07:24

isit hey sweetie! Hope you start to feel better soon! Never know, maybe you did ov will keep my fingers crossed!!

Welcome aboard littleangel how long have you been ttc?

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DrewOB1 · 05/05/2016 12:58

Sorry dunlinFlowers
My calendar is telling me completely different results to what I'm feeling. Expecting period end of next week. Let's see how that goes.

FrazzleRock · 05/05/2016 13:43

Village I'm putting it down to 'dud' eggs. Only because until about 8 months ago I was barely ovulating at all - maybe 2/3 times a year. And I'd never ever had a MC before. Now I seem to be ovulating all the time or at least I'm having periods all the time (cycles ranging from 5 days to 20 days), like my body is chucking out loads of eggs but, when we concieve, I lose them. It has only been two MC so far though but they were in quick succession. I just don't understand my body. I wish I knew what it was doing.
Fucking PCOS.

FrazzleRock · 05/05/2016 13:43

Oh I meant to add. I'm from SW London, but we're moving to a village right next to Sevenoaks in about 2 weeks Smile

FrazzleRock · 05/05/2016 13:48

Thank you IsIt Yes it is very upsetting to be all excited then kicked down again. It makes our sex life hard going as he will pull out at crucial time when I want him to stay in, I find it really hard to hide my sadness afterwards, and then he gets upset as he thinks I'm using him as a 'sperm donor' Then a week or so later he'll stay in and everything will be wonderful again.
You're right. I should talk to him. But he knows how I feel, and when we get that positive tests he is really hapoy so I know he wants this. He's just being super practical and sensible, whereas I'm a bit stuck in a dream world.

FrazzleRock · 05/05/2016 13:48

oh hi littleangel!

susurration · 05/05/2016 17:03

dunlin and frazzle sorry you're both having a tough time.

Amy did you get anything sorted?

I've started taking Inositol today, the powdered form and am back on my fasting diet. That's about it really here.

susurration · 05/05/2016 17:03

oh and hello to littleangel Welcome!

Skrinson · 05/05/2016 17:18

Hi ladies, just checking in to keep a place. Dunlin and frazzle I'm really sorry to read your news.

Cwtch, I'm just starting week 3 of metformin, trying to take the three tablets a day when I remember. I've also started taking inositol on the recommendation of some of the girls on here, as well as a magnesium supplement. I've cut our sugar and bread/spud type carbs and have lost some weight, so every cloud eh.

I've got my pre-op consultation re the ovarian drilling and lap & dye procedure next week. I'm pretty sure that no one else had heard of ovarian drilling before, so I'll let you all know what they say next week in case it might be something to ask about if anyone thinks it could be helpful x

Skrinson · 05/05/2016 17:20

Also, with the temping, do you need any particular type of thermometer, or will any one do?

mysteriousbat · 05/05/2016 18:01

susurration yes i saw my doctor about 8 months into having no period and asked the question but she said without a lining growing there is no need to have a period. Told me to wait until my fertility clinic appointment. Which was meant to be march but since they screwed up mine and oh's tests we are still awaiting oh's sa appt before we can go back to clinic. Went to a different doctor at the end of march to ask what i could do and his literal words were "i dont know what youbwant me to do about it". I actually cried, he is the doctor he is meant to tell me what he can do!!!! So it seems my doctors general attitude is not my problem, see the clinic. I dont know what to think really. Pretty shitty here too and had a crappy day with work drama so i can empathise drew
So sorry to hear your sad news frazzle and dunlin