TTC for 10 months or more, and now we're moving onto thread 4! Ten plussers welcome!

[MPP81]

Thread for anyone TTC for over ten months. Please feel free to join us!

Took the liberty of starting a new thread (with what is obviously a brilliant piece of rhyme!) as I assume everyone else is sleeping peacefully right now :)

Love the socks

Here's hoping you are upduffed Sammy.

First RMC appointment this morning. Wibble.

Only a day or two, and my pos opk was later than expected. I'm fairly certain I'm not pg. I'm terrified that AF won't arrive by tomorrow and that when I tell the clinic they'll change all the dates Again.

Brenna good luck for your appointment! X

Good luck today Brenna x

Good luck Brenna!

Sammy hoping for a bfp for you mostly but if not, AF to come so your dates don't change!

To you very wise and knowledgeable ladies! I had some of my test results in a letter the consultant sent to my doctor about me starting IUI - any idea if these are "normal" / what they mean?! It says:

Antral follicle count: 17
AMH: 15
Baseline FSH 4.3, LH 3.4, E2 92

No idea what E2 is and doesn't mention progesterone anywhere! I called the fertility nurse today and left a message to chase up my appointment letter to get started with IUI.

maple that all looks very decent! Progesterone is taken on a different day so won't be on the same labs. You don't take progesterone on day 3, it's done day 21 (shorthand for 7 dpo) to check if you're ovulating

E2 is estradiol

AMH and antral follicle count are measures of ovarian reserve. You want these to be relatively high. There should be reference ranges for your age on the AMH labs

You want FSH and estradiol to be low on day 3 - as yours are

You want FSH and LH to be roughly level - as yours are

All looking good!

Thanks banana!

Yes I had progesterone done on day 25 (have an average 33 day cycle) - will ask what the result was when I get a call back from the nurse. Will also ask about AMH range! I'm 30.. tried to Google and I think it's normal.

I guess progesterone is the one I mainly want to know about as I think this is what causes spotting if it's low? This month was the worst month for spotting - for 8 days before AF!

That sounds pretty good Maple. Everything crossed for you.

Sammy hoping for a BFP or AF with a big emhasis on the first option.

Copied and pasted from elsewhere as I can't be bothered typing it out again:

The appointment went well, I think. It is too soon after my last miscarriage to do any blood tests as my consulatant wants a minimum of 6 weeks, preferably 2 months after the last pregnancy to make sure any changes in the blood as a result of a pregnancy are not obscuring anything. That is ok as I am not expecting things to go too quickly. She has told us a list of the tests they will do as first and second line tests, all of them quite reasonable from what I have read. Should nothing turn up she says she has treated empirically with aspirin and/or progesterone just on the off chance they make a difference, even the the big study that finished last year showed no evidence of progesterone making a difference, she says she will try it in case we are one of a few that it does work for and it is masked in the statistics. She did mention uterine NK cells. Emphasised that she wasn't allowed to refer on the NHS but gave us information about it and told us we were welcome to self refer. So, no quick results but I feel like she listened and is open to trying things if there aren't any obvious issues.

We will get a letter outlining what we talked about but basically in the first instance I will get tested for clotting ability and mutations in Factor V Leiden and pro-thrombin. Also anti-phospholipid syndrome and anti-cardiolipin antibody. They will test my thyroid. If that comes up with nothing they will test both of us for chromosomal abnormalities. Any pregnancy before we get results will be treated with at least aspirin, possibly progesterone too and they will start scanning at 6-7 weeks.

And there are options for going private for other tests such as the uNK cells in coventry if we come up with nothing and are still miscarrying.

The bottom line is that I have come away feeling supported and listened to and like she is willing to think outside the box/take into considration things that aren't in NICE guidelines and that we are not going to ahve to fight to have a chance. I can't ask for fairer than that. They can't work miracles but if there is a chance we will get it.

Sammy!! can't believe you are in AF limbo also, keeping everything crossed.

How are you doing today Itsme?

Brenna, I'm glad your appt went well and you feel supported and there are positive steps forward in future.

Sammy, so sorry you are stuck waiting. Hope af turns up soon.

Well I have had some shocking news! The clinic in Czech have only gone ahead and genetically tested my 2 embryos which I had the biopsies taken from without my permission or knowledge!!! They must have done it weeks ago as it takes 2-3 weeks for the results to come through. I had an email from them today asking me to pay to renew the freezing for my frosties and it said I had 3 frozen instead of 4. I really panicked and starting emailing everyone to get answers. The doctor has come back and basically I don't understand his answer but something about them replacing the old test with newer technology and for some reason they had to test some embryos. I am so annoyed by this I think there has been a massive cock up somewhere and they are trying to cover themselves. He has said there is no charge to me but that isn't the point it's so unprofessional to do it without my knowledge. I haven't even been given a copy of the report! Anyway one has come back healthy and one with serious defects which ties in with the 50% stats for my age. I know it's silly and it's good to have one healthy blast but now psychologically I find it hard that we are down to 3 blasts instead of the 4 I hoped to have when beginning transfers. Although as DH says it's saved us time and money going out there only for the bad one to fail. I'm just so shocked though I wasn't expecting that as I was sat at my desk in work and he could easily have told us that neither of them were viable!!!!!

Lucie - that's terrible. How stressful. Very unethical of them. At least you know you have good embryos which should help transfer and implantation but, after all you go trough to produce them, you can mourns the loss of the other one. Were you due to be recharged for freezing them?

Lucie that's outrageous, regardless of this new test / technology they should still be informing you or asking permission to carry it out! What did you say back to the doctor??

Boris, yes I was due to be charged to continue the freezing so that's fine. I'm just so unhappy this was done without our permission and that's what I've emailed back. I just wasn't ready to hear these results whilst in work and he's so blase about it like its perfectly fine to go ahead and test without our knowledge. I'm just furious but I don't know what to do about it other than emailing him back.

Lucie can you escalate it trough the clinic? They should have procedures for testing as they did and for gaining informed consent? There should also be a complaints process which you could ask for... I can totally understand your anger and sadness.

Lucie that's awful!

Jesus lucie that is outrageous. Some serious complaining.

WT actual Fuck?! That's absolutely disgusting. Both what they did and how they rolled it out. You must be knocked for six - big hugs lovely

And Brenna that all sounds very very positive. Your consultant sounds like a gem. Def agree that progesterone won't hurt - my SIL went to see my Dr after a miscarriage and he recommended she take progesterone and aspirin if/when she gets pregnant again, just for belt and braces

The Coventry clinic are amazing - although self referral is private, all the money goes straight back into research, and Prof Quenby and Brosens are at the forefront of recurrent miscarriage research and treatment

Sounds like you are in really excellent hands xx

Yes I am completely knocked for six. I'm just on the way to the hospital for more bloods and can't stop crying now. To them maybe it's just another defective embryo which has been disposed of but I really didn't need to find out about it at this moment in time. We are having a hard enough time dealing with the current miscarriage. I think they see it in a positive light as in we have an acgh normal embryo and yes that's good but I can't get over at the moment the way this has all happened. He has apologised but even had the cheek to say they have not done it without permission as we had previously signed consent forms?! I'm mean wtf?!? Yes we signed the forms which basically meant at some point in the future when we give the go ahead we would be happy for them to be tested but the point is it's for us to decide when that is not for them to do it behind our backs and then not even tell us! He said he understands it's ethically and psychologically upsetting though...yeah no sh*t!

Lucie - I'm so sorry you're upset. That's a horrible way to find out, you have every right to feel sad. And angry.
It has probably saved you some heart ache down the line in that this non viable embryo could have been the one they put back next time, so try to focus on that perhaps?

Brenna - that sounds like a very positive appointment. Great that your doctor will treat empirically.

Maple - glad banana was around to decipher your results with you. Congrats on being 'normal' by the way :)

Still no AF :(. I'm going to make DH dtd tonight to try and bring it on. I wish I'd asked the clinic why they needed to know if AF hadn't arrived by Thursday. I'm driving myself crazy thinking that they're going to say I have to wait another cycle or something.... Gah!!!!!!!!! Xx

Sorry Brenna for missing your post - sounds like you had a good appointment - all sounds great, as does your consultant!

Sammy will you test tomorrow if dtd doesn't bring it on? I guess you have to if you need to let them know.. Have you done anything different that might have caused it to be late? Still hoping for a BFP for you!

So the nurse called me back and seemed like they hadn't seen my referral but then another called me and they said they had my letter and hadn't forgotten about me (mmhmm!) and that they would try and squeeze me in for June but will likely be July because they were looking for a room?! she said she would get back to me by the end of the week. I of course typically forgot to ask about my progesterone results!! I really wanted my appointment for June!

Wow, that's truly awful Lucie!! How dare they!

Fingers crossed maple for a June appt.

I'm doing OK, a bit worried about all the meds but will get there I suppose!