TTC with PCOS (Thread lucky #4!)

[RoseBud2016]

If you have been diagnosed with PCOS and would like a small group of very friendly ladies in the same position as you to talk to, then this is the thread for you!

You can find our first thread >>>>>>>> HERE

You can find our second thread >>>>>>>>> HERE

You can find our third thread >>>>>>>>>HERE

And you can find our stats >>>>>> HERE

Banana I am so so sorry. It is so shit. There are no words to say to you right now but you are not alone

banana absolutely gutted to read this. I am so, so sorry. You are firmly in my thoughts.

The frustrations I had today seem v insignificant now. Hope everyone else is okay. Great to see you back on here rosebud, really hope you're well.

Villagefete to be honest I have no idea! Haha...

They have said my lining needs to be 6/7 and its 4.1 today.. Follicles need to be 1.8-2 she said to be big enough to release an egg? So back on wed to see if any progress!!last cycle when I got measured my lining was 3.2 so Atleast it's slightly better this first scan on this cycle...
Gets so confusing!! If you do clomid you will have all this too!!

So glad to have everyone on here to talk to and who understands!

Bananafish you have been in my thoughts all day!! Sending love

Xxx

shell it means your lining is 4.1mm thick. You may have seen it on the ultrasound. It really needs to be more than 7mm (and preferably over 8mm) to allow any embryo to snuggle down into it. Hormones plump it up so it should keep growing, it can grow up to 1mm per day so you are on the thin side but not out yet. (village one possible side effect of clomid is that it can thin your lining to the point that you can't sustain a pregnancy so it's really important to be scanned like shell is if you're planning to take clomid).

Your follicle measurements are diameters - in each of those follicles there are some cells trying to turn themselves into an egg (possibly one egg in each follicle but not necessarily). Usually when follicles get above 18-20mm (or 1.8-2cm) it means the egg inside them is mature and you are ready to ovulate. Is there a reason they couldn't see one ovary?

So you are on track but not ready yet - thus the scan!

Thanks stealth!!

Glad you have explained it all to me... I kind of don't understand it all and when I have asked them they hit out with it makes you ovulate quicker 😳

I get scanned every two days from cd11 until ovulate. So that was the first set. Last cycle I didn't measure 4.1 until the 3rd scan and then the 4th went down to 3.4!! Back to get scanned again on wed!

I am on Letrozole because they are trying to avoid multiples!
I'm trying not to be concerned about not being able to find my left ovary!! She said it may just be hiding?!

Yes it sounds like your follicles are growing too slowly and this means you are not ovulating properly. Plus if your lining is too thin (like last time when it went back to 3.4mm) you will not get pregnant no matter how "well" you ovulate.

Ovaries do go hiding sometimes - if your sonographer isn't concerned you'll be fine!

So no hope for me?

Not at all - it sounds like you are growing nicely. Will depend on how things go! But with lining of 3.4mm last cycle it was never going to happen for you. (There are drugs you can take to help your lining out so don't stress about it!)

Thank you so much Stealth!!

I know, last month I had a semi mini breakdown! Think it all go to much so trying not to let it all get on top of me this month! She has mentioned metformin soon also!

Thank you so much again!! How are you doing tonight?

Villagefete how are you now?

It's really hard to deal with the highs and lows. But you will get there!

I am ok. Like a beached whale on the sofa. The ultimate irony - I'm definitely not pregnant but I sure look it!

Shell I also have a hiding left ovary. I've had a couple of scans where they just can't find it but I'm pretty sure it's there as I had a laparoscopy years ago and I remember them talking about my ovaries!

It was the clear as day last month! Haha and has pain on the left side last night and a bit today, hopefully they find it on wed! Lol...

Aww stealth I'm sure that's not true! Bet your looking gorgeous! Your right highs and lows and people saying 'don't think about it' blah blah!

Aww magpie glad to have a hiden ovary buddy! Haha... How's you?

Came across this tonight... Picture of a thousand meanings

Delurking to say Banana I'm so so sorry, that's the most heartbreaking news. and unmumsnetty hugs for you and your DH. This TTC journey is a fucking awful one, and you really deserved some good luck.

Rose fantastic to have you back and to hear you being so positive. You're an amazing, inspirational woman.

Stealth hurray for your uber ovaries!

Wave to everyone else on this crappy journey.

I'll go back to lurking again (btw I was oranges - I namechange about once a year - in case you were wondering who I was).

I also had an ovary that was under another and they wasn't sure they could reach it to get the follicles but they did manage to in the end and I got 26 or 28 retrieved.

This is true too.

Thanks ladies for all your messages of support. It means a lot.

Dr got me booked in as an emergency day case and did the ERPC early evening. Got his anaesthetist in specially. So unbelievably grateful to have been able to get it done quickly as I couldn't bear having to go home and wait, with my dead baby still inside me. It's done. I'm home now. Physically, I'm fine. Mostly I'm just numb. DH is utterly broken - we've sobbed and snotted all over each other.

Having the tissue testing done on the 'products of conception' to see if that will give us any answers, find out results and next steps in a few weeks when I see consultant for follow up.

Thanks again ladies xxx

Sending to all today.

It's been a rubbish few weeks in here - Feels like a lot of us are just treading water and getting nowhere at the minute. Hopefully this means better things are coming - Surely we deserve it now? Lovely to see Rosebud back!!

I am on Cycle day 36 today - didnt get bloods done last week to see if I had ovulated as i was supposed to finish work at 2.30 but a fellow nurse (who is my leadt favourite person EVER!!) phoned in sick at the last minute so I ended up having to stay on so had to cancel my appointment so not sure if i ovulated or not. My 3 month review for metformin should be in April however as I went private for my first appointment I am still awaiting an appointment from the NHS list so not actually sure when I will get seen again - Could be june or july. Not much happening until then. Was offered clomid at my last appointment but said no as I wanted to see how metformin worked out for ne so I didn't take it at that time - Not sure if i should take it at my next appointment. The risk of multiples scares me. Only exciting thing going on is that i've ordered a brand new car! My very first ever new car. Even it's going at snails pace - could be 6 months before its delivered

Hugs to banana again - glad you got your op over and done with

Shell - Sounds hopeful. Fingers crossed for you

Banana - Yay for frosties! fingers crossed for you too

banana life can be so unbearably cruel. I really hope you're resting up and taking it an hour at a time.

AFM - my luteal phase is doing a dance, it's usually 12 days. I'm 14dpo and still nada. Didn't wear my ovusense last night so don't know what my temps are. Have done an Internet cheapie which was a massive BFN (totally expected) yesterday, and so perhaps AF will arrive tomorrow and this cycle will be a 14 day luteal phase.

Just a note on the ovusense - I do think it's great and i'm glad I bought it. One bad reading on FF taken via BBT throws everything off, but this sensor is so accurate.

Hi ladies
I'm way behind - sorry for being AWOL. Going a bit mad in the TWW, but being distracted by work being incredibly busy. (Not sure that's a good thing!)

First off, Bananafish, you know from another message how truly gutted I am for you and your DH. I'm so glad you're under the care of what sounds like a wonderful and caring doctor and that you were seen so quickly. Small comfort in such a shitty situation though, I'm sure. Much love to you as you work through this.

Rosebud, welcome back lovely lady. I'm glad you are in a better place now and have a plan - April is not long away, and you have lots to look forward to in the meantime too. Thanks for the PUPO congrats. I rang the clinic on Friday to find out the definitive answer on how many frosties, but no one rang me back But it seems unlikely it would be anything other than two: the embryologist had said just before ET that there were four grade 2s and two grade 3/4s; they would transfer two grade 2s and freeze the other two, but could only freeze the others if they were looking better than they had in the morning. She didn't come back to see us after ET so I assume there was no change. OTD is next Monday (two weeks post-ET) but I think I will be testing on Friday – my theory is that it’s a way to start breaking bad news to myself gently: if it’s negative, then I can keep some hope that it’s because I’ve tested early, i.e. I definitely won’t be prematurely disappointed, as I’ve heard so many stories of people not testing positive til after their OTD, so can keep some hope, but I can start preparing myself gently for the fact that it may not turn into a BFP. Am symptom spotting but as usual, everything can be laid clearly at the door of the delightful cyclogest – mainly, being about 10’c too hot most of the time, and some tummy twinges. At the moment I still have some hope but know the odds are stacked against us – the poor fertilisation rate suggests my eggs were not great, possibly due to the three-week stims, which will have made my lining suffer too, and the consultant said (after the transfer) that my lining wasn’t great (didn’t get the measurement from him though).

Cwtchy, frustrating to have BFN but still be waiting for AF. I'm glad the ovusense has proved worth the price to you though!

Nurse15 - how immensely frustrating that you couldn’t make the blood test appointment! Especially as you work in a medical environment – could someone not have grabbed some blood off you?! Remind me, would they not offer monitoring, to reduce the risk of multiples, if you do go on clomid? Sorry about your BFN. Hopefuly AF will show up soon (or a surprise BFP!?)

Robberbride/ oranges, welcome back! How’s everything going?

Shellbell, sorry to hear about your left ovary going into hiding for the scan. Fingers crossed it’s feeling less coy tomorrow and your lining will have got thicker etc. Try to stay upbeat! And definitely don’t put life on hold. I’m just as guilty of it, not booking holidays, but after OTD we are going to book something, whatever is next.

Stealth, sorry you’re still feeling poorly. It took me about a week to get rid of my aches after EC – probably not what you want to hear especially as you had so many more eggs. They did aspirate 40+ follies though. My newest thing is noticing a small violently dark red bruise in my belly button – not sure what caused that but think it must be EC! Congratulations on your amazing day 5 report.

Villagefete, I second everything the lovely stealth said about not beating yourself up about the past and trying to accept that you are a great mum even if you feel you didn’t have the ‘ideal’ start or that you owe your DC a sibling. Re cost of IVF – not to encourage you to run down that path! But since you asked - I got the impression it is £3-4k for the actual ‘core’ treatment and 1-2k for the drugs, but my current cycle is our NHS round so haven’t got any direct experience of it yet. Also, something doesn’t add up – people seem to end up spending around £7k so there must hidden extras I haven’t accounted for.

DrewOB1, if you’ve been diagnosed with PCOS already I definitely don’t think you need to wait 12 months to get help.

Phew! Think I've largely caught up. to all mentioned and those not.

feefee! PUPOness! So excited for you. Everything crossed. I would defo find out from the clinic. Things can change so fast with embryos. i found out this morning we had another 6 make it to hatching blast overnight. So they've been added to the freezer, 20 in total now I would have thought the laggards were done for but they ended up making beautiful freezeable blasts!

village sorry re the cost - yes it's a real how long is a piece of string. Depends on your meds, what you need procedure wise. I'd say it's between £2-4k IVF, add an extra £1-1.5k if you need icsi, drugs anywhere from £1-2.5k depending on dose & how long, embryo freezing £500-2k depending on for how long, PGS an absolute fucking fortune. Plus of course all the scans and whatever bloods you need. I haven't got to transfer so can't comment on those prices!

So... I caved and tested early (9dp3dt- i.e. 9 days post 3 day transfer). Faint positive. Used three different tests just to be sure. I tested on Monday to make sure the hcg trigger was out of my system. Eek! Though I'm well aware that it could disappear by my official test date on Monday, or something could go wrong afterwards. So I'm trying to stay calm (and I only hope I'll stay as strong as rosebud and bananafish and other lovely ladies on this thread that such a horrible thing has happened to). But I am still quite excited, on the basis that thus is the best result I could hope for at this point in time. Plus, it's my first time getting a positive POAS for anything, which has a nice novelty factor

stealth, thanks, I will try calling them again about the frostie number. Feels like the something I should know!!
village, definitely go with stealth's figures not mine- I'd forgotten about some of those extras!

FeeFee that's fantastic, tentative congratulations to you

Cwtchy it's such a pain when your body messes with you like that isn't if? Fx that AF stays away. The ovusense sounds awesome, is it comfortable to wear?

Nurse I was worried about multiples with Clomid too, luckily I just had DS but it does concern me about taking it again. I might have missed you mentioning it, but have you talked to your consultant about an alternative to Clomid that has a lower risk of multiples?

Banana your dr sounds great, I hope you're recovering well. Take care.

I'm on CD22 and no temp rise (not surprising as I rarely ovulate if at all). I've had PMT symptoms and cramps for the last couple of days so thought I was going to start bleeding again but nothing yet. I'm cross with myself as I forgot to take my metformin last night but hoping one missed dose won't make too much of a difference.