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When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

TTC with PCOS (Thread #3)

999 replies

RoseBud2015 · 02/09/2015 19:04

If you have been diagnosed with PCOS and would like a small group of very friendly ladies in the same position as you to talk to, then this is the thread for you!

You can find our first thread >>>>>>>> HERE

You can find our second thread >>>>>>>>> HERE

You can find the stats >>>>>HERE

Smile
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9
stealthbanana · 15/12/2015 02:52

Yep Sophie, I'm the same as rosebud - I have LH 5.8 and FSH 5.7 so good ratio, but my ovaries are "grossly polycystic" (doctors words!). Keep pushing for diagnosis!

No side effects or indications that the clomid is working for me, I think this cycle is another busy. But I don't care...I'm on my way to my holidays!!! Eeee! I have a scan booked on weds so we'll see but tbh I'm more focused on the wine and cheese I'm going to tuck into on Thursday. Hurrah for Christmas hols!

stealthbanana · 15/12/2015 03:28
  • bust
Dollface136 · 15/12/2015 15:10

Hi ladies, I have been gone since Sept but hoping stealthbanana and rosebud amongst others may remember me?!

I have PCOS and managed thanks to a lot of supplements and shagging to get a BFP but unfortunately this ended in a TFMR. I was so heartbroken I dropped off mn for a bit but was hoping, if you'll have me, I can rejoin my old thread on my new journey to ttc?

It's been two cycles (CD1 today) since the darkest day of my life, so I am feeling like I want/need to give it another shot.

Sorry to have dropped off the chart for so long ladies and I hope my old friends are doing well/making positive steps?!

x

bananafish81 · 15/12/2015 16:32

Lovely to see you again Dollface, have been thinking about you often, you've been much missed xx

RoseBud2015 · 15/12/2015 20:21

Dollface So good to 'see' you. Was only thinking of you and Chandelier the other day, and wondering how you were both getting in. Glad to hear you're feeling up to ttc again. What would you like me to do about your stats? Didn't want to touch them and upset anyone so I'm completely guided by you x

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Freddiesmother · 16/12/2015 09:23

Welcome back dollface it's been a while but been thinking of you. Smile

Dollface136 · 16/12/2015 10:14

Thanks guys Smile.

Rosebud am happy for you to update my stats too. I am currently on CD2, taking Fertilaid 3 tablets a day and 6mg folic acid. Am also going to take SI again as it worked last time on CD 2-6.

How have you guys all been? xx

Nurse15 · 16/12/2015 15:26

Hi doll face! I'm also taking si on this cycle and plan next one too :)

stealthbanana · 17/12/2015 04:03

Welcome back dollface. Really sorry to hear you've had such troubles. Am sure 2016 will be a better year for you! Flowers

I just had my scan and as predicted absolutely zippo response from clomid - loads of follies, none over 6mm. Lining ok at 6mm with a triple stripe. The doctor I saw for my scan here has said that I need to start 150mg straight away for 5 days and he'll look at me again post that, and that if that doesn't work then to give up on clomid. So I have more clomid but very little hope! Am not disappointed as had resigned myself to being clomid resistant. Of course this wasn't going to be fixable easily!

So - January looks like it will be drilling, injectables or IVF. Which one shall I go for?! Has anyone read anything which compares them? How am I going to decide?

Freddiesmother · 17/12/2015 12:18

stealth I was super sceptical about injections but actually have had a good experience. Responded to a much lower dosage than the clomid (I was on 150 which did work) but much less side effects for me and somehow injection felt less invasive than taking three clomid tablets. Time will tell how successful they are for me but from the one cycle I have done would say they are worth a try.

RoseBud2015 · 17/12/2015 15:21

I've updated your stats Dollface- Fingers crossed you wont be back for too long Smile

Sorry to hear that Stealth Flowers Clomid really does suck! Cannot believe I've agreed to go back on it in Jan as part of my IVF stimms..... I must be mad! If my DH had as good little swimmers as your DH, I would be trying injectables next like Freddie suggests!

AFM- Work has agreed by 8 paid days off in the new year for IVF abroad- really pleased with how understanding they are being; its making it feel so much less stressful. Just a HyCoSy to get through on 23rd Dec. And drugs to arrive in the post. Time is flying by now! Smile

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Nurse15 · 17/12/2015 17:45

Dare I even ask the delightful side effects you have all suffered with clomid? Not sure I want to know!! Lol! Grin

stealthbanana · 17/12/2015 18:29

Thanks Freddie. Yes I think injectables is probably the next sensible step, probs with an IUI just to see what's going on with DHs swimmers (rosebud we've got a high count low morphology issue, so am not sure there!). Good to hear you've had a positive experience.

Rosebud, what a relief to get the time off from work. That will make the whole process so much less stressful plus help pay for it. Fx for your hycosy. If it makes you feel any better I am having my last scan NYE - way to start a party!!

My only other news is that I took my first dose of clomid...and then realised that the fuckwit pharmacist only put 2 blister packs of 5 tabs in rather than 3 - so I only have 3.5 days worth of clomid. I am in the middle of nowhere so am going to have to get the pharmacy to fax a script down to somewhere nearish to me and hope they've got clomid in stock. Unbelievable!!

RoseBud2015 · 17/12/2015 23:13

I have spare tablets that I can send you if it's easier stealth? Just PM me x

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stealthbanana · 18/12/2015 04:42

Aww thanks Rose but I am many thousands of miles away from the uk. I have rung the pharmacy and thrown a paddy and they are couriering me the extra tabs down at vast expense Smile

stealthbanana · 18/12/2015 05:38

Sorry my post cut off - meant to say THANKYOU, it is incredibly kind of you to offer xx

bananafish81 · 18/12/2015 09:28

Lovely to have you back dollface. I'm also on the prescription strength folic acid because my epilepsy drugs increase the risk of neural tube defects, my neurologist and gynae both say it's essentially a wonder pill

I'm not sure where along the saga of my twisty turny infertility journey I was when you were last with us, but I'm currently on my second IVF cycle, after having to freeze all last time. I'm currently on a different protocol, possibly the longest long protocol known to man, as I started injecting to down regulate myself and put myself into temporary menopause in mid Nov and I'm down regging for another 3 weeks before I can even start the cycle properly. The irony that I have to take the contraceptive pill for 5 weeks as a part of fertility treatment to try to get me pregnant is not lost on me.

stealth injectables plus IUI sounds like a very positive step. So much of treatment is as much of a diagnostic exercise as anything, but I'm so hoping it does the trick and you don't have to come down the IVF route.

Rose brilliant news about work! How does it work with your tracking scans BTW? Are you having them at home until you fly out to Brno? Keeping everything crossed for you!

Freddie hope you're hanging on in there in your 2ww

AFM I'm just plodding on. Still emotionally, er, volatile from all the down regging. Down to about two cry breaks in the loos at work! Chatting to various friends of mine who've had extensive infertility woes possibly wasn't the most helpful thing I could have done in my current state - consistent theme amongst the friend who finally had success on her 4th cycle, the friend who had 5 failed cycles and the friend who has had her 3rd miscarriage in 11 months obviously shit me up beyond belief (conveniently forgetting the friends who did have success with fertility treatment amidst my hormonal madness) was that they wish they'd had certain tests done earlier.

So I ended up self prescribing various diagnostic blood tests that obv if my Dr thought were worthwhile at this stage, he would have recommended I have them. Yet hormonal me decided I clearly know better than my top consultant and paid for full thrombophilia and autoimmune blood panels even though I haven't had failed implantation or RPL (and we know the reason I haven't had a chance of conceiving when I've ovulated is because of my lining issues). So obviously now my fantastically rational decision making will mean I'll prob end up getting results back that will massively shit me up over Xmas!!

Although one benefit to not drinking is that the morning after the Xmas party at work I have no hangover!! Given I haven't had a drink since July I'd prob be hanging out of my arse after just a couple so probably just as well....!!

Nurse15 · 18/12/2015 09:31

Sorry banana but your post made me laugh!! You just said everything how it was and hence why it's exceptionally funny!! Obviously I am totally emotionally supportive of you while laughing Xmas Blush

sophied1983 · 19/12/2015 08:29

So I made the mistake of telling my half-sis about PCOS tests and with no mention of weight from me, she said:

I have a few clients with that and it is unfortunately linked with being overweight as the hormones go all up the wall with too much body fat.

So hopefully if you keep working hard at reducing your body fat levels you may get away with minimal damage?

sophied1983 · 19/12/2015 08:31

Meant I spent my work Xmas do in tears and drank way more than I should. As if you need people to point out you are fat! I was so mad afterwards. She has clearly graduated from personal trainer to gynaecologist overnight. Some people are so insensitive.

stealthbanana · 19/12/2015 10:40

Sophia you can also tell her that there are loads of thin people with pcos - my BMI is just under 20 (and am working hard to keep it up that high!) and my ovaries are grossly polycystic. So tell her to shove it up her fundament!

RoseBud2015 · 19/12/2015 11:00

Yep same as Stealth here Sophie- BMI of 18 and severe PCOS. I know she's your half sister but, in all honesty, she sounds like a a bit of a clueless (and very insensitive) knob.

It's comments like that, that make so many people who are struggling with infertility, feel like they cant talk about it for fear of judgement. Shame on her!

Take care of yourself xxx

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IsItIorAreTheOthersCrazy · 19/12/2015 13:32

Hi :)
I haven't disappeared again, my access to mumsnet has been a bit mad - I can't log on with my phone as usual or iPad so can only view through the app.
I'm reading everyone's updates though and will post a proper reply this evening.

Just wanted to update that consultant has told me she can't give any more clomid and that IVF is next. Apparently ovarian drilling is an option for people who dot respond to clomid but as I have half the time I do not count.
She also said icsi (?) is an option as I can of with help but not on NHS so will have to pay for that.
She is referring me to IVF clinic but told me they won't accept me with BMI over 30 so really need to shift some weight which I'll get right onto after Christmas and new year
For now though, we are having a break until February as DH is away in January. We're using the gap to push diet etc and try and relax ha, relax, what is that?
Should also say that as I have reduced my clomid dose myself I now have enough tablets lets for 4 cycles, not the 2 the specialist thinks so that's something.

Also, not sure if anyone remembers my friend I mentioned ages ago - been trying for almost 5 years, gets publicly upset every time a pregnancy is announced? She had her initial appointment with the IVF clinic in October, was meant to start treatment in January but found out she was pregnant a few weeks ago and announced today. So I've been baby bombed again but it's ok, I just feel glad for her after all this time.

I'll be back later, work is calling

peardrop2 · 19/12/2015 19:13

Sophie - ouch, some people are just thoughtless even when they don't mean it AngryBiscuitBiscuitSad Poor you!

peardrop2 · 19/12/2015 19:21

Isitlor - good luck with the relaxed Jan.. It's damn hard isn't it! Sounds like your DH being away will force you to relax though which is probably a good thing!

Doll face - welcome back. Sounds like you're a lady with a plan Wink

AFM: I had 21 day bloods done yesterday. AF is due sometime next week and I'm bracing myself for her because I've got my normal chin spots before she arrives boo hoo! I've also got a cold brewing just to top me over the edge! Looks like I'll be indulging in cheese & wine again this year Sad