Immune /natural killer cell treatment when ttc or pregnant (aka the 17th pred thread!)

[Hula2]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

No I'm not doing dairy free! And I'm also only doing gluten free 5/7 days
How r u snoopy?? Hope ur holding up ok x

Ah that's sounds like a good balance. Well done on the weight loss, it sounds like you're doing really well.

I'm good. Still super paranoid there's not going to be anything in there, but puppy is arriving on Wednesday so he's a welcome distraction. I was a sick brushing my teeth today, just a little bit, I think it's probably more psychosomatic than actual morning sickness.

U sound like ur being really strong snoopy. Glad u felt a bit sick too! I really hope this is ur bean!!

Hmmm I don't know about being strong. I'm wearing black underwear all the time to prevent any knicker checking but the cheapo toilet paper at work has tiny little red and brown flecks, I get so paranoid! And my latest paranoia has been (tmi) cervical position because of the bloody cyclogest.

In my heart I still don't think this will be the one but all I can do is try.

I want to go to Italy again! Is this your first visit?

I wonder how sw is getting on, hope she's ok

I heard that there are a high number of people with celiac disease in Italy and lots of gluten free pasta and bread... Wonder if it's as yummy as the real thing!

Snoopy we all know that fear :( But this is your time!! When is your scan again?

October 12th. But I think it will be quite hectic until then with little puppy. Now I'm getting paranoid I'll be a bad dog mum haha

I guess we put a lot of emphasis on the pasta dishes when Italian cuisine is actually quite diverse isn't it, so long as you're not vegetarian with celiac.

How are you drttc

Haha awwww you won't be a bad puppy mum!!

Yes very true! I've found so many yummy GF options I rarely feel the change tbh. Even found GF pies (steak and chicken versions) and they taste better than many regular pies I've had!

I'm well thanks :) We've bought a house we love and are hopefully getting close to completion... Excited and nervous! Day 10 of my cycle and got a + on the clearblue ovulation... After two days of blank (not fertile) signals! But so many lovely things are going on I'm keeping it positive!

We'll be here for you at every milestone :)

Hey guys,
Louise has asked drS for a prescription for me so hopefully no need to face battle with my GP.

Got very confused with the weightless chat! Well done trying! Can I have some of your will power please. I'm currently sat with a spoon in a tub of Ben and Jerry's!

Glad you're hanging in there Snoopy, this IS your time. Stay strong! And you're going to be an awesome puppy mum!! What a great distraction!!

Yay for the positive opk Drttc! And for the house!!

Morning!

There is an article in today's daily mail about the documentary on next week

www.dailymail.co.uk/health/article-3260641/Mother-Lisa-Nand-filmed-miscarriages-National-Baby-Loss-Awareness-Day.html

Thanks Sunny! Good read!

Hi ladies,
Free's articles always bring loads of tears into my eyes but will try to watch the documentary.
Snoopy everything crossed for you, really hope this is the one which will bring your take home baby . And great news about the new job
I don't remember who asked about intralipids - my gynecologist abroad (in EU) gives me prescription and then I go to independent nursing services ( where it only costs £120 so much cheaper than anywhere else)
Trying looks like ARGC identified what your problem is, really hope humira will bring the cytokines down for you. What is their view on hydroxy? Will you have it as a part of your treatment plan? Oh yes Italy is lovely, and loads of glutenfree food there.
AFM I am freaking out, 10dpo and very very feint BFP. With cheap sainburys test. Will test tomorrow with FRER. At the moment I am looking at it as a faulty test. Should have intralipids asap but can't fit them in till fri. Part of me thinks it is a waste of money anyway, as it is never going to work. Part of me is saying - what if? Anyway if there is still any sort of line on Fri I will have them....

Hi sw!
Wow I know your prob v hesitant but a potential positive on a cheaply is always a good sign....are u on the pred already? Keep us posted and I hope it really is a bfp you deserve it so so much and I hope this time it stays as I know your bfp disappear quickly.... Stay strong and hopeful.

Well my tnf was 23 when I had t tested last year! For some reason it's shot up, prob with the last mc? Anyways annoyingly it's delaying things but also glad they found something?! No hydroxy isn't something they use. They use ivig and il when you start your cycle depending on how high your levels are, they retest tnf and nk every few weeks of pregnancy and doing ivf cycle . So v exp.

Will be keeping my fingers crossed for u x

SW tentative congrats to you. I really hope this is it for you! I know how scary it can be but try to stay strong and keep positive. We're all willing this little one to stick. Fingers and toes crossed.

DH and I have decided that if we have no luck by September next year we're going to just jump straight in and go for ivf privately. I can't just keep waiting around. I know it may not come to that but i need to have a plan. I never dreamed that 2 years after our wedding we'd still be trying!!

Hey seeking. Great to have a plan! Although saying that Ivf doesn't seem to speed anything up and pgd has so many issues and problems surrounding when to take biopsy/fresh or frozen transfer etc. I've prob slowed it down by changing clinic but I had no faith in them anymore!! And then humira slowing it down even more. Argc does some bizzare things which is taking forever , but I'm jumping in feet first!

Out of interest they will see u if u get a natural bfp...incase anyone interested. But seeking u got to 9 weeks and it was chromosomal so prob not needed!

It's so hard to keep going, next May will be 3 years since I got my coil out and I bet I'll have just started my cycle no 2!! I'm sure u won't have to wait till next sept, u will get ur sticky bfp before that. Xxx just keep going, it will happen for all of us I'm sure (?!) / I hope! Dh says he's going slowly mental so mine better work out soon!

His job ends next week as we were hoping to be in London and he has to give 3 months notice. Now we are still here and he's jobless and frantically looking for one!

SW keeping my fingers crossed for you x

Sunny thanks for the link had a read
The comments at the bottom made me mad some people r so flipping stupid!!!

Yes u read some of the comments too, these people have no idea!

Are u finding out if it's a boy or girl sunny I can't rem?
I hope rosa is well!!

BFN today with FRER, must have been a faulty test yesterday.... upset but relieved at the same time. Have a massive cold sore on my lip instead... Oh well... hopefully better luck next month

Oh no SW - are you going to test again tomorrow or later this week?

No we haven't found out yet but I have another scan at 28 weeks so I think we may do then! The worry never stops I'm finding, now I've started to feel movement I find I'm obsessing about how much it moves and when. Yesterday afternoon/evening it hardly moved so have got myself in to a panic and had a meltdown!

Are you going to be moving to London when you start the treatment at agrc? Will you stay in London after that or is it just temporary? Hope DH manages to find a job soon too

I can imagine sunny it must be so hard. Ur nearly there though keep going! I think after our exp pregnancy is never the same sadly and no one can understand it....are u feeling calmer now? U must have a proper bump now!
Yeah it's just temp will stay there for my Ivf cycle and then for as long as the preg lasts in first trimester. But yep staying there as they do daily bloods and even twice daily whilst doing the Ivf and alt day when pregnant in first week of pregnancy and then weekly scans....so no way I could not move there for a while!

Sw just missed ur message. Sorry to hear that. Are u ok?

Wow a lot of monitoring! You definitely need to be near by!

Yes I think I'll always be a bit worried although I have relaxed a bit since 20 week scan. Felt some movement this morning so feeling happier. Got a it if a bump - I think as jaws bigge to start with I haven't got an obvious bump but my stomach is hard rather than wobbly! 16 weeks to go!