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Immune /natural killer cell treatment when ttc or pregnant (aka the 17th pred thread!)

1001 replies

Hula2 · 27/08/2015 20:55

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

OP posts:
Drttc · 20/11/2015 15:41

Good luck with testing tomorrow (or Sunday) Seeking! The TWW is horribleeeeeee! Over the summer I swear each TWW I had ended on a wedding... So I was extra miserable with a BFN (while everyone kept asking about kids!).

Hubby met up with his mate last night and his missus has been absolutely obsessed with having a baby. They have just started trying. Last time we saw them she was slugging back a bottle of wine wild boasting that her parents have already bought them the picture 'nursing' chair... It has low arms on it so it will be easy for her to breast feed. They just got married (one of the summer weddings) and I don't like seeing them anymore... It's all she talks about and makes it sound SO easy. On her wedding thank you card to us she wrote 'now we'll all have babies!'... Made me cry.

Have a lovely weekend away planned though so will be nice to forget about these kinds of people :) !!

Snoopysimaginaryfriend · 20/11/2015 22:14

Enjoy your weekend away drttc, hope you get some decent weather. I was asked by a few people when I started this new job if I wanted children, eh none of your business!!

seeking good luck when you decide to test. I wouldn't worry too much about symptoms because the pred will mask things anyway.

Max is a very good boy to be fair, although he climbed on the sofa earlier because DH lets him up when I'm not there for a cuddle Shock

Ok, I caved, I paid for another quick scan. The lady was so nice and gave us three pictures and we got to see the jelly fish in 3D.

Drttc · 20/11/2015 22:24

Awww that's wonderful Snoopy :) Does that mean a big announcement is being made soon? Are you 13 weeks now?

dildoos · 21/11/2015 07:37

Morning ladies,
I've been away from sight for 9 months and was wondering if I could come back to join you all? Now going to read back through thread and catch up? !

Tryingno1 · 21/11/2015 07:50

Hi guys

Hcg gone to 40 so no procedure needed. Got a review in 2 weeks to discuss the plan moving fwd but I presume another humira and more immunes during cycle and I'll def do pgd.
Dh has a urology appt on thurs and has done another sperm analysis to see how the hell I got preg naturally again.
We've been discussing surrogacy a lot these last few days, dh is not really keen at all but I've told him to start thinking about it so that if this goes on for another few years we can go for it. I'm already doing Ivf and should have a good few blastocysts saved up in time to come. I think for the first time I've started really thinking this may not actually happen for us. It doesn't work for everyone and maybe I'm that person it won't work for. Argc weren't able to do for me what they do with an Ivf preg I.e control my immunes before i get preg so I suppose I can hope that's wot I need.

Seeking good luck for testing
Dildoos welcome back. U have often crossed my mind what's gone on with u since u left?
Snoopy yay!!! Enjoy telling the world :)

Tryingno1 · 21/11/2015 07:51

Drttcc ur dh mate wife sounds like a right tool!

Seekingmiracles · 21/11/2015 12:42

Hey ladies,
Yay for the scan pic Snoopy 
Sorry you have one of those annoying friends Drttc, I get asked on a daily basis by clients when I'm. Going to have children - such an intrusive question! I don't bloody know!!!!
Welcome back Dildoos

Bfn this morning. Not at all surprised. Fully prepared that this isn't going to be an quick bfp to achieve. Will go to see DrS after 6 cycles to see about SO.

Drttc · 22/11/2015 14:09

Trying- Hope you're both holding up as well as you can :( I think the idea that you'll have embryos which could potentially used with a gestational carrier is a really good fall back plan. I've given that a lot of thought and it would be 2nd best to carrying your own... After the birth it's absolutely no different! I dread to think what cost would be though! I've not looked into that bit.

Seeking- Sorry it's a bfn :( Can you remind me what you're usual ttc time is? How many months has it been this time? So far SO seems fine. I think I may have had a few headaches but who knows could have been caused by something else. Last letrozole tablet was last night and feel fine!

Dildoos- of course you're welcome!

Snoopy, Hula, Rosa, Sunny, and anyone else reading- Hope you're having a good weekend!

Snoopysimaginaryfriend · 22/11/2015 14:55

I keep trying to post messages but anything longer than four lines won't work Angry

Tryingno1 · 22/11/2015 17:32

It's not expensive as in uk u can't pay past essential expenses legally
Am ok, dh got pissed last night and broke down in tears. Literally broke my heart. I think this 5th has really affected us psychologically
Hi to all. Winter is here! Xx

Seekingmiracles · 22/11/2015 18:58

Glad SO seems to be going well so far Drttc, when do you have your scan?

It's taken 4, 3,3 and then 6 cycles each time. This was cycle 4. Don't think we're going to actively try this cycle. We go to Vegas for new year and in a way I want to just enjoy it now. If by some miracle I do fall this cycle then great but if not it won't be the end of the world either. I feel like I need a month off from all the bull shit if of. It's so draining.

Sorry you and DH are struggling trying. It's so hard. Be easy on yourselves.

Drttc · 22/11/2015 19:14

Oh Trying :( I'm so sorry. I can imagine it must have been incredibly difficult as you both had such a shock, picked up and went to London (as you should have), just to have it end up as it has. It's incredible the struggles people go through without our peers being aware of it. You're both so inspiringly strong and it's a shame not everyone knows it.

Seeking- so 4, 3,3, and twice at 6 months means the next pregnancy will be number 6? I see what you mean about just wanting to enjoy yourself for a bit. Honestly I don't think 'trying' harder makes it happen faster (if you don't have a problem with conceiving)... It's a bloody mysterious thing that just happens when it wants to!

Tryingno1 · 22/11/2015 19:19

Seeking a holiday is just what u need. Like u said the waiting is the worst. And U haven't reached the 6 month Worry zone for u yet. Go away enjoy vegas gamble away ur money and come back with more! And then hope 2016 is ur year.

Drttcc Hope u had a romantic weekend away ;)

Tryingno1 · 22/11/2015 19:22

Ps if it helps with my dh non existant count we dtd in day 15 and that's the only day we did it that week. If it's going to happen it just will !

Hula2 · 22/11/2015 20:32

Evening ladies,

Trying- i m so sorry you and dh are going thru this crap again, its so truly unfair. Someday you will get your baby. Sending a big hug.

Seeking - sorry for the bfn, its sucks, but at least you ve something fun to look forward to soon.

Drttc - glad the letrozole is going ok, fingers crossed for some juicy follicles.

Dildoos - welcome back, i ve often wondered how you were getting on.

Rosa - sending loads of luck for tomorrow. Hope everything goes smoothly and you soon have your little one in your arms.

Waves to everyone else.

Afm - we ve decided to stop trying.......as expected it was a bfn last cycle and it hit really hard with all the extra effort and the chemical the prev month. Plus coming of pred and progesterone i ve been more of an emotional wreck than usual so its taken a few days to get it together.

I decided against the extra SO cycle, i dont why but it didn t feel like the right decision. It s been a really hard choice to make but its time to give my body, mind and family a break and what will be will be. And actually since dh and i made that decision i feel like a weight has been lifted.

I ll still be checking in to make sure you guys are doing ok. Thank you for all your support.

OP posts:
Drttc · 22/11/2015 20:43

Oh Hula :( I've had a few break downs after coming off the pred/getting a BFN so can relate to those emotional and dark days. So sorry you had to experience that. I understand why you'd feel like you need to take this time for you and your family. Whatever you feel is right at the time, is the right decision. I really hope you do keep in touch with us though!! We still want to hear about you and we do like to share in things outside of ttc :)

Hula2 · 22/11/2015 20:52

Thanks Dr, i ll definetly stay in touch, i want to see you all get the little ones you all so deserve.

OP posts:
Tryingno1 · 22/11/2015 20:53

Hi hula I've been thinking about u. I'm sorry things didn't work for u last cycle....it's so hard to come to the desicion that you have to, I hate it to say it but I hope when ur not trying it works out. U and dh and ur little one sound like a wonderful lovely happy loving family and I wish u all the best for ur futre. Please stay around ur support and kind words are so supportive and maternal :) . Lots of hugs and love xxx

Tryingno1 · 22/11/2015 21:06

I just wanted to whine with an group of people who understood
This journey is so shit and unfair. Ugh.

Drttc · 23/11/2015 15:42

So... Husband's sperm morphology had come back at 4%. Which is the cut off and technically normal... Who the heck wants to be right at the cut off?! Could a high number of abnormal sperm be contributing to our miscarriages :( ?? Ugh I'm so lost...

Drttc · 23/11/2015 15:43

Mind you- for the second time my GP said results were fine. This was only picked up on because I asked to pick up the results and look at them. Never trust what your GP interprets as 'normal' when it comes to this stuff...

Tryingno1 · 23/11/2015 16:44

no its fine drttc

spoke to urologist (he's one of the top ones in the UK who we went to see with DH diagnosis) about morphology once and he said its the least important of all the sperm qualities and its a very subjective measurement and one lab will say 4, one will say 15 and he doesn't pay any attention to it really. so don't worry. its count and motility that matter.

Tryingno1 · 23/11/2015 16:44

oh also there's not much u can do to change morphology anyways with diet etc incase u were planning on force feeding him anything bizzare!

Drttc · 23/11/2015 17:10

What was your DH morphology if you don't mind me asking?

Thanks so much for that explanation Trying. I'm really starting to wonder if we should do IVF... I feel like it would be a more controlled environment and they could at least see that the sperm and egg look normal?

My FSH came back at 9.3... It was taken a bit too late in my cycle (Day 5 instead of Day 3) but it still seems far to high for my age. So I'm back to worrying about my eggs as well! Would regular ivf be able to spot a healthy egg?

Tryingno1 · 23/11/2015 17:23

No Ivf can't spot a healthy egg sadly but it can see how much reserve u have left. Ie lots of eggs collected with low dose meds means u have a good reserve/time to sort out ur issues.
My dh was 7 percent when he had enough sperm in April last year and then they couldn't do it coz there wasn't enough sperm so I don't know wot it is now! He had about 8 tests since then coz of the freezing appts and each time it's not been assessed as he only has a few floating around so it's not accurate....

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