Immune /natural killer cell treatment when ttc or pregnant (aka the 16th pred thread!)

[sunnyday01]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

[Seekingmiracles]

10 is good Trying! Glad it went well!! You totally deserve some tasty treats!

This weather is amazing! Had a nice long walk this morning with my mums dog, was beautiful! Can't wait to have my own dog! We've just arranged to go pick our puppy on 28th.I can't wait! Then we'll bring it home at the end of July.

[Seekingmiracles]

Oh... I'm always kept waiting with DrS Sunny, not that long but he does seem to run late mostly. Only had one appointment when he's been on time (early actually!)

[Tryingno1]

Thanks guys
So bad news. Does it ever stop? My DH sperm has nose dived AGAIN. It was 4.8 million 2 months ago and today more like 0.3. He doesn't drink or smoke eats healthy and has normal bmi.
He's had some bloods done today including hormones and for and a y chromosome deletion. But it's making sense why we had 3 quick pregnancies and then started struggling and again count has taken a dive. Sup the y deletion does this...it starts tailing off and then u are left with no sperm.

There were more than enough soerm for the Isci I was told. We only need 10! And they didn't want a second sample from him so the embryologist was fine about that

If it's hormonal it can be tx with meds. If it's chromosomal we need to start freezing sperm as his count can continue to drop to nothing.

I'm devastated. I thought I could do 10 ivf goes and one would work and not miscarry. And now we might only have a few chances as long as he has some Sperm. I feel like I need to imagine my life with no children now and prepare myself for it.

Sorry, this has been a happy thread this last few weeks.

Not feeling hopeful this cycle will work now, and not feeling hopeful this will ever work out for us

Xx

[Snoopysimaginaryfriend]

Oh trying I'm so sorry. I was just about to say well done getting ten little eggs and then I saw your most recent post. I know it feels like the bad news keeps coming but your doctor sounds like he's on top of the situation and he's right, you only need ten. At least you're finding out now so if you need to start freezing you can and I am sure you will be a mum. You've helped me through the dark days so I'm sending some of those positive thoughts back to you x

seeking I know it's cheeky but you could always tell the nhs you lost some of your cyclogest (left in hotel room etc). I've done that when I'm about to run out of thyroxine before but now my chemist always gives me some early I demand to see puppy pictures as well! We've decided on a border terrier (when I say we that's dh, my mum who will help with dog sitting, and my brother who wants to be a dog uncle again) We won't be getting one until late September though because we're going away for two weeks for my birthday and it wouldn't be fair on the little puppy.

sunny try not to worry, I know easier said than done, but you've had good scans and I'm sure it will be ok.

rosa and hula I think I'm going to give acupuncture I try. I've found someone with good reviews in my area.

[Seekingmiracles]

Oh Trying I am sorry you been dealt another cruel blow but dont start thinking your journey is over. It's not. ICSI doesn't need millions of sperm, just a few good ones! You may end up with good quality embies. And you only need one of those to work. You e caught this early enough that you can get freezing if need be. Do not give up Hun. Your journey is very far from over!! You need to keep positive, calm and relaxed over the next few days and just keep thinking of your eggs and dh's sperm coming together and creating your perfect little baby. Positive visualisation. I'm sending you lots of positivity. Try to erase this recent news from your mind for the time being. At least until you know how the next few days go. Big hugs Hun

[Tryingno1]

Thanks guys. I almost want to ring my ivf place up and tell them not to tell me my DH results as I only want to think postive (after today!). If it's a y deletion it means all our sons would have it :(

They Bascially said u need one sperm per egg with ISCI so it didn't matter. And that the whole pt of isci was that it's for people with little sperm. The fact it has taken such a huge nose dive scares me...it's going down so quickly. What is by next week there are zero???
the talk of freezing sperm and all that has terrified the hell out of me. To be honest if we hadn't have questioned why his sperm had dropped again and how we got preg after trying for One month twice he wouldn't have had this chat with us. It's always perplexed us. Makes u realise how much u have to question everything.

I don't even know wot to think anymore. I'll pull myself together by tmre ( I hope).

[Tryingno1]

Seeking lots of happy positive vibes for ur scan later!

[Seekingmiracles]

Bad news here afraid. Baby died at 8+6. I'm absolutely heartbroken and shocked. I felt so confident after the last scan.

[Tryingno1]

Oh Seeking. I'm so so so sorry.
After a good scan, a loss is such a huge shock. I've been there before.
I'm sorry, thinking of u and ur DH
Xxxxxx

[Hula2]

Trying - so sorry you got this news. Life is a b*tch and its just not fair you ve got this to contend with too but please don t give up hope. You ve got 10 eggs which is great and enough sperm to fertilise them so hopefully you ll get some great embryos and maybe even some to freeze. I know one couple who now have 2 kids 9mns apart and all from their first ivf round so it can happen. Good idea to ask not to deal with the results till after the tww so you can try to just focus your positive thoughts on those little embies. Hugs

[Hula2]

Oh god seeking, so so sorry. There s no words to ease the awful pain you must be feeling. I m so sorry.

[Snoopysimaginaryfriend]

seeking I'm so sorry. I don't know what to say because nothing will make it better. I'm so heartbroken for you. I hope you have support around you and I will be thinking of you x

Hello sasha, you're welcome here anytime. I don't know if the ivig is available on the nhs. Did the lister give you a copy of your results? If not I would definitely bring a copy of them to your appointment with Dr s . Sorry I can't be more help.

[Rosa27]

Seeking - I was in your boat with cyclogest. I upped to twice when spotted though at 5 weeks and got cyclogest on nhs. I get via Boots and just told them and my GP reception I needed to 16 weeks and they sorted it. I think I picked up 8 boxes last week and after this week only have 2 weeks left so should have spare if you want me to post? Should have said they gave me enough for 2 a day up to 16 weeks but I switched back to 1 a day at 12 weeks.
Sunny - try not to worry as others say. You might be advised to get GP to test for infection but I've had 'tinted discharge' or watery with white flecks (sorry all tmi) and each time I google and stress but think (hope) am ok.
Trying - great news that big hurdle is over, well done! Enjoy the celebratory cuisine :)
Hi everyone else x

[Rosa27]

Seeking - so, so sorry. I hadn't seen the last page when I wrote my last one .. Absolutely gutted for you :(
I'm so sad you will be sad - I hope you can get through this with lots of love and support. Xxx

[Rosa27]

Trying .. Also sorry for your added challenge and stress. But confident you're the most informed of the lot of us and feel sure you'll get there. Xx

[Snoopysimaginaryfriend]

seeking I know that the grief and pain is still very raw but in my more optimistic moments I try to say to myself that I got pregnant this third time and didn't start my medication until after bfp so maybe it didn't have a chance to work as well and my NK cells were still too high. I think you were in a similar position. I know you won't have had time to fully take in everything but that has been my tiny glimmer of hope for the future.

[sunnyday01]

Oh seeking, I'm so sorry - nothing I can say but I'm thinking of you x

Trying, sorry to hear your news too but it only takes 10 or 1 - keep thinking positive thoughts and it sounds like your cobsultant is on it.

[Drttc]

Seeking, there are no words. I'm so f sorry because this is nothing short of a nightmare. I wish we could do something. At the very least give you a massive hug. Please know that we all truly & deeply feel your pain.

[Drttc]

Trying, that is really crappy news today. That said, it doesn't seem like it is going to change your ivf chances. I actually had a thought as you were explaining your history... Couldn't you still be hyper fertile? As in, sometimes DH has low count, but when he doesn't, you conceive because your hyper fertile? If so, then ivf should work really well for you...

[Hula2]

Seeking thinking of you and hope you re ok xx

[Tryingno1]

Thanks drttc. To be honest I don't know wot to think anymore. I'm sad terrified and wondering what my future holds. I just have to hope this works out before DH sperm dissapears...dunno...booking a urology appt for him today..yet another hosp appt!

Seeking - Been thinking of u. Wish I could say something to make it better. It's so sad and utterly shit. Snoopy is right though re the tx timings maybe.....Xxxxx

[sunnyday01]

Just to let you know I'm off on holiday for the next week so will catch up once I'm home again. Really worried about going on holiday and seeking' news has really thrown me so going to try and have a break from all social media whilst there!

[Seekingmiracles]

Thank you ladies.
DrS was very shocked that it has ended like this. He seems to think it's likely to be chromosomal over anything treatment related. I just (weirdly) hope it is. We made way beyond where we've been before.
I feel so numb, the tears won't stop. I'm in shock. I have to keep taking my meds until I have the procedure to remove it, which I'm hopefully going to get done by DrS on Tuesday.
Everything seems pointless. I can't see an end to all this crap. I've now got to go back to the drawing board and start the whole shitty process of ttc again. When I thought that this was finally going to be my time, my miracle. Life is so unfair at times.
Thank you all for your kind words x

[Tryingno1]

Oh seeking. I'm so sorry. :( so so sad.
I hope Mr s manages to send it off for analysis so if it is chromosomal at least u have faith in the tx working next time.
the next few weeks will feel unbearable but u will slowly rise out of it...
We are all here for u and I hope we can help even if it's in a tiny tiny way xxx