Immune /natural killer cell treatment when ttc or pregnant (aka the 16th pred thread!)

[sunnyday01]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

Puppy is sooo cute Drttc, so happy we got him. He's really taken my mind off everything. It's amazing how animals can help mend a breaking heart.
Fingers crossed for two bfps next week girls!

Yep Dr will prob test 10dpo (hate early testing but would kick myself if l was late starting meds). Its a pain when test day falls on a day something else is going on as i find that bfn can really put a downer on things and takes 24hrs to pick urself up again so i d try 9dpo.

Glad the puppy is helping Seeking, sounds just what u need.

That's so wonderful Seeking! What's his name?

Indeed Hula!

Remember all that Pred side effect talk? I've now got the classic Pred insomnia! Woke up at 2:30 and still can't get back to sleep.... Boo! Walked 9 miles today so should be sleeping no problem. Anything for baby though!

dr sorry u were up! its very annoying isn't it, but like u say anything for a baby! are u testing tmrw or was it this am? good luck for wedding too and try stay away from the lady!

hula, hope ur staying calm in the 2ww and ur little one is recovered

seeking yay! I'm glad for u, enjoy taking him for walks and cuddles

don't have too much to report, still having some bad days where I'm all doom and gloom and never think this is going to work out. then have some days where I'm totally fine. i find it VERY difficult to switch off from this stuff...i don't know how to just STOP worrying and thinking. i didn't think about it all on holiday, but i can't always be away!!! are any of u like this? when I'm out and with friends I'm fine but at home relaxing and watching TV its all i can think off... on a happier note my diet is going well and I've lost 4 pounds yay. only another 10 to go?! its not very fun! but have 2 months to do it in (by argc appt i will be BMI to under 24!)

He's called Loki Drttc. He's sooo gorgeous!
Good luck for testing tomorrow and for the wedding... Hope bitch face keeps her distance.

I find when I'm doing massages and facials at work are the times when I think about it all the most. I can't get over how much has happened in the last 2 years! It's crazy that one person can go through so much in such a short amount of time.
What are you doing to lose weight Trying?? Well done so far!! I seriously need to get a grip of my diet! Been running quite a lot just need to concentrate on what i put in my mouth!

Thanks Trying! Reckon I got about 3 hours of sleep last night. Argh! I'm testing tomorrow which would be 9dpo... Hoping to see something there! Tummy has felt dodgy all day. Doubt a looming test will help me sleep tonight either! We leave tomorrow morning and come back on Monday... Hoping for a good weekend! Can totally relate to going in and out of obsessing. During the 2ww is all I can think of, and outside that it can all feel so out of reach :( But we know it just takes that one healthy BFP to change everything and make it all worth it. Well done on the weightloss! It can be so hard, but when you're on a roll it's great.

Aww Seeking that is such a cute name :) I've been eating for 2 full grown women these last few months while staying somewhat active. Good diet is so important- which is why I've put on so much weight! Slowing getting back to normal though so maybe we'll all be healthier AND preggo in the next few months ;)

great to hear u feeling positive drtcc. maybe u will get a bfp tmrw - please come on st away and let us know!! i hope so :)

seeking i know its crazy isn't it. it shocking when u think about everything us guys have been through...and to the outside world they would have NO IDEA. I'm just calorie counting using my fitness app...loads of water, loads of salads chicken salmon prawns and some avocado nuts and olives for good fats! i find the first 7 pounds easy to loose, and the its SLOWSSS down. so not feeling too happy about it yet!

glad to know its not just me who has this on their mind 90% of the time! the move to london is getting more daunting and my DH work have been shitty since he resigned....hes really struggling right now so I'm trying to keep my brave happy face on to try get him through it...we have a fun day planned on sat so I'm hoping that helps him out of his sadness and he starts feeling more hopeful again. then i can go back to being the worrier! (although i am worrying - just secretly for a bit !)

my co10 came! hope it helps my eggs, I'm just taking 200mg....i hope thats enough? some sites say 600-800 but that feels like a lot?!

I wish I could just lose 7-10lbs. I find it so hard!! Prob because I'm not really 'overweight' just not where I feel comfortable. Hope you have a lovely weekend and DH perks up a bit.
The 'it starts with an egg' book recommends 300mg CoQ10 for recurrent miscarriage x

oh ok thanks for that seeking - ill take 2 then! 400? what does are u taking?
i am about 7 pounds overweight, thats why when i get to that weight it STOPS! its so hard then! i did it 5 years ago for my wedding so i can do it! I'm hoping with the gym this time ill do it

ps how many of u are doing gluten free? if u r, is it imp to do it just while ttc/preg? so for me when i start ivf? not sure i can do it for months and months unless I'm preg and having ivf IE NOW! I've read its helpful to people even if not coeliac?

Hey Trying, I've been gluten free (with a few blips :-( ) since end of April. Have been pretty strict with it for over 2.5 months... Got the idea from Rosa as I know she tried that before her BFP. I believe it takes a few months to detox gluten, so maybe start now to be confident it's working for you? It's really not been hard at all! So many GF breads, biscuits, cakes, flour (you name it). Loads of GF bakeries, restaurants, and menus at regular restaurants... Especially in London. Went to the Beyond Bread bakery in London this month... Had a mouth orgasm over their GF cupcakes & cheesecake!

Beyond Bread bakery was only about a 15 walk from Dr S office too- so highly recommend it to everyone!

ohhhh ok! ohhhh will start gluten free next week?! going for an italian tmrw!

ohh the menu there does look good, ill have to pop in when next in london for DH appt

If it's a chain Italian they might have a GF option- I have GF pizza and pasta all the time. May be worth giving it a taste to see if you like it :)

While I know GF works for some, I personally don't think it's necessary to cut out whole good groups unless you have a specific need to ie: intolerance/sensitivity.
I need to just lay off the snacking... That's my downfall. As soon as I get in from work I reach for the fridge!

Yes, and it's actually very easy to eat unhealthily when GF! I decided it was a good choice for me because, miscarriages aside, I've had an episode of alopecia one and chronic unexplained hives (both cases of my immune system attacking me) for 3 years. Although I likely don't have an intolerance, gluten is thought to be inflammatory and being GF may help with that! I really felt it was important for me to give it a go otherwise I wouldn't have felt like I've tried everything to calm my crazy immune system down.

Trying - welldone on the diet. I def find it hard not to be thinking about ttc/mc etc unless distracted by work or something else. Since its now 2yrs for this one and plus another 2 years for DS i m actually looking forward to one day when its not constantly at the back of my mind (whether thats because i ve been sucessful or not).

Re the q10 the dose is different depending on which formulation you have. Ubquinol is meant to be better as its easier absorbed than the other type Ubquinone. 100mg ubquinol is equivalent to 200- 300mg ubquionone. I take 200mg ubquinol. Its also recommended to take with a meal early in the day as can boost energy and keep u awake if taken later.

I ve been gluten and dairy free about 2-3 mns now (give or take the odd holiday glitches) as this was recommned but a fertility nutrionist at ZW for immune issues. Its bc these foods are thought to be proinflammatory. She also said limit pork or red meat to once per week and aim for high protein with each meal but just one per day from meat and the rest from veg protein/eggs.

Dr that bakery definitly sounds worth a visit ! Good luck with testing tomorrow. Really hope its a bfp.

Very cute puppy name Seeking.

Happy weekend to everyone else.

BFN this morning! I'll test tomorrow at 10dpo again... Unfortunately I didnt have any FRER's so hoping the clearblue easy plus tests are sensitive enough!

Sorry about the bfn but 9dpo is very early! I hope it changes tmrw. Enjoy the wedding and hope the girl behaves!
Thanks for that info hula really helpful! I don't eat much red meat and I have a lot of eggs and fish so think my diet is pretty good when I'm on a diet! I looked through my log of food and actually when I'm dieting I don't have much gluten as I tend to sta away from carbs and cakes etc. I think this diet is going to be a long one so hopefully I'll continue to be healthy!
Seeking don't worry if u snack! If ur weight is healthy a snack is a small comfort after a hard days work and what we r going through! I have carrots and hummous always in fridge to grab for a snack!
Snoopy I hope work is ok? Has ur AF arrived yet??
Have good weekends everyone xxx

Sorry for the bfn Drttc, hope it's just too early. Enjoy the wedding and unleash your inner bitch if need be. A snide little remark here or there won't hurt her!
I wish the snack were hummus and carrots! Ha ha! Going shopping tonight so will make sure I have loads of healthy stuff and start as I mean took on on Monday!
Have a fab weekend girls, at least the sun is shining! I'm at work til 5 which sucks!

Sorry about the bfn Dr but i d guess the clear blue are less sensitive than a frer as they say u can test 4 days early and frers say 6 so hopefully just too early. Hope the wedding goes ok.

Thanks everyone! BFN today as well. I've been so upset it's actually just boring at this point. And of course, because my husband is in the wedding party, he was asked to be at the venue 6+hrs before the ceremony! So I'm currently stuck with bitchy girl allllllll day. I can hear her banging on about things in another room as I type. She's SO loud! I usually love a good wedding- but being the plus 1 for a wedding party member has got to be one of the worst positions. The only people I know are rude :( And now I feel like an idiot for sounding so negative! I think there's an extra sting to it because for a while I believed I would be 6-7 months pregnant at this wedding. I really expected that would be my life. And instead, I'm 4 miscarriages down, while the girl who publicly said she would never have kids is pregnant. Such an empty feeling. I really hope you are all having a much better Sunday than me!! Forgive my doom and gloom :(

So sorry drtcc...it's really hard :( im sorry u are stuck with the stupud women on top of it all. I would drink a lot to get me through it! I think it's required in this situation and stick by ur DH when u can...just remember your not alone and u will get through this on the other side, Its just not ur time yet but I'm sure it will come.

Ps did you hear about zuchenberg post on facebook?