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When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

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Immune /natural killer cell treatment when ttc or pregnant (aka the 16th pred thread!)

992 replies

sunnyday01 · 05/06/2015 19:22

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

OP posts:
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5
Hula2 · 06/08/2015 08:58

As expected bfn this morning, really don t know how much more of this i can take...i m gonna stop early testing, af i can cope with but bfn bfn then af is just drawing out the monthly failure agony. I ll just have to risk taking meds a few days late in the unlikely event i get preg.

Sorry for the downer.

Snoopy sorry work is added extra stress, i hope you get something concrete soon.

Tryingno1 · 06/08/2015 09:37

Oh hula im so sorry :(
Sending u lots of hugs.
Xxx

swlondonnanny · 06/08/2015 10:22

So sorry Hula

Rosa27 · 06/08/2015 12:05

Hula I'm sorry too.. Logged on hoping for good news from you.. Please hang on as you've come this far, and I remember being told most people are successful on 5th cycle.
I can imagine how you feel.. I know how lucky I will be if all goes well and I have my DS... It's still unbelievable to me that it's finally on the right path.. But I'm 39 and could be trying for a sibling at 40+ and it's no harder to know when to stop than first time round.. It's such a personal decision to how much you can take and if you're managing to balance the emotional challenges enough. I know IF all goes well for me with having my DS in Dec and IF we decide to try for one more it would be pred from BFP at most- may even consider cyclogest only. I've read of so many people 'giving up' second time and getting there anyway with no/less treatment. The mind is a strange thing.. Influences the body in ways we can't fully understand. Chilling out and hypnotherapy are v powerful and if nothing else make all the time we don't need to be consumed with all this so much easier.. I woke at 3 and started stressing I should be feeling movement etc and then got convinced it's all over and feel awful today. So away to take my own advice and listen to R&R app by Maggie Howell.. Can recommend it.. There's one for everything. And then get back to work! Lucky in wfh today. Lots of love to everyone - think of you all everyday even when not online x

Hula2 · 06/08/2015 12:55

Thanks everyone. This journey is just so hard and i just think something must be seriously wrong to be just be not get pregnant month after month for so long. I often feel bad even mentioning it as many of you have not even had one and i am so so grateful for ds . If it was just about me i d happily accept my blessing and not want for more but once you have a child that fierce maternal instinct means you d do anything for them and its this that keeps me trying....

Oh well i ll be better once af comes and i can more onto next cycle.

Rosa - sorry you re worrying today. I often found lying down and chilling out got ds moving (or a glass of cold water) so i hope your ds starts prodding u in the ribs again soon. I ll def look at that app you suggested.

Hope everyone else is having a good day.

Rosa27 · 06/08/2015 19:10

Hula .. I know, I was such a long time after my 3rd miscarriage I felt the same way... How long has it been this time again? I feel sure you must be lucky soon.. It's so crap not having a crystal ball ... Hugs x

Tryingno1 · 06/08/2015 19:13

sorry hula :( it is just so hard and shitty.

don't feel guilty for one second to talk about how u feel on here!!! u musnt and thats wot we are all here for....i totally can understand your desire for another child and i don't think it matters how many u have or want, if u want another and its not happening its just shit......so please share ur worries and feelings on here...(that my feeling anyway and I'm sure the others wold say the same)

have a glass of over priced wine on me xxx

Tryingno1 · 06/08/2015 19:14

rosa sorry for ur concerns, it just be TERRIFYING to worry about it at your stage, i don't know how i would cope! hope ur feeling calmer
x

Tryingno1 · 06/08/2015 19:56

Rosa tell me about it taking ages - it was 14 months from my last BFP to this one as we didn't know about DH sperm till 10 months and we took 2 off and had 2 month wait for ivf...it's such a hard slog...(then I lost it anyways).
This journey is enough to drive us all INSANE

Hula2 · 06/08/2015 19:57

Rosa its been 16mns since my mc and no hint of bfp, but ds took nearly 2yrs and i m 4 yrs older so i guess its no surprise. Hope your LO has been moving and you re feeling ok.

Thanks Trying thats very kind of you to say, and definetly a good idea on the vino ! Hope you re feeling ok too.

Hula2 · 06/08/2015 20:17

Oh Trying i can t imagine how hard it was to miscarry after ivf and to then pick yourself up and carry on. You have got to get your baby someday, you just have.

And I think without this forum i would already be insane !

Tryingno1 · 06/08/2015 20:27

I think I am insane already!!

I'm not gonna lie, I'm dreading the whole process! I'm hoping I'll have some frozen ones again (famous last words) and I won't have to keep going through the whole process again as a frozen cycle is easier so I hear. I have 3 up here, if I get another 2 frozen at argc I'll have 5 goes plus the fresh at argc-taking me to God knows how many miscarriages if no sucess as I work trough them.... I'll be well and truely battered and done by then and will give up. So I'm hoping this is my last cycle (although ive realised nothing in life goes to plan and u can't count on anythung, I'll end up with nothing to even transfer this time knowing my luck!)

Hope u have something nice planned weekend hula, give ur ds lots of hugs and kisses to make urself feel happier :)

Tryingno1 · 06/08/2015 20:33

I take back my frozen moment as I know it's a luxury to have anything to freeze and I shouldn't expect it just coz I did this time around!

Hula2 · 06/08/2015 20:49

In some ways at least with my age and amh meaning ivf chances would be so low its something we ve just ruled out as i

Tryingno1 · 06/08/2015 20:53

I can understand u not going down that route...iwe all just have to keep going and choose the paths we feel we are able to do...once we reach our personal end of the line the journey stops or changes...

Hula2 · 06/08/2015 21:03

Sorry hit the post button before i d finished ! I was trying to say i m kinda glad that we don t have it as an option because it sounds hardcore to go thru and i m not sure id be strong enough, i really hope next round is the one for you.

Sadly working on call this weekend so nothing nice to soften the impending af blow (and complaining client added to my shitty day today) but ds is a great comfort and still of age to give plenty of cuddles that makes everything better Smile

Tryingno1 · 06/08/2015 21:15

It's weird hula. At the time I didn't find it thatttt bad but I think I blocked it out as was twds something postive. But now Im like aghhhh, not looking fwd to it all again. And was telling my dh yest that although I didn't complain it wasn't nice and I did find it hard (don't think he realised how shit I felt some days as I didn't want to complain too much as it was hopefully going to land me a baby and I just had to get on with it!) Ive def got more fight left in me so I'll grit my teeth and get through it! Argc will be a whole new boot camp though!
But overall it's actually doable, it's really not that bad and it's just for a short amount of time. I just kept thinking of the end! incase u and dH are wavering!

Sorry ur working, hope it's not busy. Wish life would piss off and be easy when we all go through this stuff. But no, shitty clients, preg mad women at weddings and all the rest still haunt us!

Hula2 · 06/08/2015 21:47

Yeah i know, i was actually glad not to be preg today with all the stress it caused.

I have wondered if we should consider it and we were about for ds when i fell preg. I think i could prob manage the actual process but the 90% chance of failure now would be what i d struggled with and dh was a def no last time we discussed it.

Tryingno1 · 06/08/2015 22:02

It's a tough one, to know when to stop.... For now keep on ur SO, and I really really really hope it works out soon for u. And this is just hypothetical talk! U have been waiting long enough. Xxx
A woman on the ivf thread got her bFp on ivf number 10!!!

Hula2 · 06/08/2015 23:36

Thanks Trying. Gosh 10 rounds of ivf, goes to show how determined people can be. We can only try our best and ultimately what will be will be...

Better get some sleep. Night x

Snoopysimaginaryfriend · 08/08/2015 10:08

Bad day today. No period, no anything after 46 days. How have steroids messed everything up so badly in one cycle. Where do I go from here?

Hula2 · 08/08/2015 15:43

Oh Snoopy i m sorry, how frustrating. Acu can be good at bringing on af or maybe ring Louise and see what she suggests.

Many people have sucess just taking from bfp (seems like only dr s uses from ov, unless you re doing ivf) and some places seem to use intralipids pre ov instead. Quite a few of us are in the same boat with steriods messing cycles. I don t know if SO can override the effects as haven t tried steriods with my two SO cycles for same reason but might try again next time if i dare.

Hope af shows up soon.

Drttc · 08/08/2015 21:55

Just saw your post snoopy and wanted to say I'm in a similar position!

AF was due yesterday and for the first time ever instead of a full period I've only have some very light spotting/bleeding. Don't even need anything in! Before Pred I was like clockwork for 17 years. AF on CD26 in the same predictable flow pattern. Now, I have NO idea what's going on this cycle and like you it's upsetting. It makes me question if this actually is treatment that is ever going to work for me :-/ If it stops my cycles/ovulation then how can I get pregnant?!

Snoopysimaginaryfriend · 09/08/2015 10:58

Thanks everyone.

It's so upsetting to see that so many of us are struggling with the same issue but ( I hope this doesn't come across the wrong way because I pains me that any of us have to suffer this) it does comfort me to know I'm not alone and you're always here for me.

hula when you're doing the SO do you take pred from ovulation or bfp?

Hula2 · 09/08/2015 20:20

Sorry Dr this is happening to you too. I get what you re saying Snoopy, its a comfort to know its not just your body playing up and i felt the same.

Re SO i ve only done two cycles and since i had this prob with pred and had recently had four doses of humira the plan was to wait on bfp for pred but normally u do it from ov, which obviously is very accuratley pinpointed because of the scan. I think Rosa and Sunny where fine on pred from ov when doing SO. I don t know if the SO drugs would help override things, i m really in two minds whether to try pred again for my next SO cycle as it did seem to take about three cycles for me to get back to normal but if immune issues are stopping me even get preg then if i don t take pred will i ever get preg, so hard to know !

I hope everyones af start behaving, mines due tomorrow, Determined is yours back yet ?