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Anyone taking part in the Response Medical Trial or any other medical trial?

999 replies

sizethree · 17/01/2015 17:00

Hi, I'm taking part in the Response medical trial and wondering if anyone else on here is too?
It's been a very difficult year and a half and I have had three consecutive miscarriages, 1st in Nov 2013 at 12 weeks, 2nd in July 2014 at 7 weeks, 3rd in Nov 2014 at 9 weeks. It's a 4 month waiting list for my Recurrent Miscarriage Clinic so I'm taking part in the trial as want to keep things moving as worried I'm running out of time (I'm 36 this year - although I was 33 when first started TTC) but I'm in the 2WW and feeling terrified.
There's a lot of extra support offered as part of the trial but I'm feeling a bit lonely and out on a limb about it.
Anyone else on the same boat or had medical trial experience?

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clairemorgan81 · 04/03/2015 14:23

I had no sickness or symptoms with any of my pregnancies so try not to think about it..... your scan will seem a lifetime away but will soon come round and you have your app tomorrow.

haha Im laughing at the way you say things - about unfriending anyone recently married etc, I know exactly how you feel. it's not so much the individuals getting pregnant its more that everyone seems to get pregnant and it all be fine that gets me!! when I think about the amount of people who sale through it bugs the life out of me.....sounds like I'm full of self pity (maybe I am)
Oh and I hope you dont think for a minute I mean you both as if anyone deserves a baby its you both with what you have been through xx

Choccywoccydodah · 04/03/2015 16:28

Claire I did actually wonder earlier if us talking about being preg is annoying you tbh. Please don't think we are 'showing off' or anything like that, far from it. It's just nice to go through this and support ladies going through the same. I'm so excited for the next few weeks for you :)

Hopefully you'll get some more symptoms soon sizethree, however I didn't have a lot with ds, just what I'm feeling now really.
I just feel sick all day. I would rather be sick and get it over with. Dh made me eat earlier so I've had a big burger which was great for 10 mins but I just feel sick again.
My mum said earlier lucozade helped her, just sipping it though as its packed with sugar and has caffeine. I've got a couple of bottles and it seems to have done the trick :)
They were thrilled with the scan, she said 'I knew something wasn't right when you rang to come over yesterday but couldn't put my finger on it' She knows me too well lol.

clairemorgan81 · 04/03/2015 16:42

omg please don't ever think I'm meaning you ladies, I feel bad now, sorry I didn't mean you at all.
aww your parents will be over the moon.......I think ginger biscuits or rich tea type biscuits apparently help with nausea its worth a try and you can snack on them without having to eat something big xx

sizethree · 04/03/2015 17:28

I'm still not counting myself as a pregnant lady, just yet. If the scan next week goes ok, I may allow myself to relax a touch and entertain the possibility. But for now I'm on self protection mode not thinking about it. And Choccy you are the only pregnant lady on the planet that I like. All the other ones are smug and annoying.
What I get most surprised about is that knowing the statistics of miscarriages, it seems like that is not reflected in real life. I know that social media is by no means a good indicator of real life, but I have friends who have suffered at least one loss but are so fast to brush it aside like it never happened and jump swiftly over the other side of the fence to smugsville waving scan pictures and bump progress every 5 mins.
Although I'd never use social media to voice my feelings of what i've suffered, I will definitely at least nod to the fact it had been far from an easy journey. If I eventually do get to hold my healthy newborn, the photo I post will be alongside a gently worded post about being blessed after pervious struggles. I can never imagine behaving like none of my losses happened when I have a new baby. I find it weird that some people can. And a bit disrespectful to the little lives lost.
Didn't mean to get so deep there and up on my soapbox there, but I get sad a lot about feeling like a social outcast as I can't churn out baby's as soon as I get some jizz near me. Some women have no idea just how lucky they are.

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Choccywoccydodah · 04/03/2015 17:48

No I didn't think you did mean us Claire, but just in case, please don't think it of us xxx

I bought some ginger nuts the other stay actually........forgot lol!

Choccywoccydodah · 04/03/2015 17:50

Here here sizethree. Never born, but never forgotten xx

Choccywoccydodah · 05/03/2015 07:54

Hope all goes well today sizethree :)

clairemorgan81 · 05/03/2015 11:14

Good luck for your app sizethree xx

sizethree · 05/03/2015 14:32

Thanks Choccy. Just bloods, blood pressure and new set of injections today.
Going back next thurs at 8.10 for scan. Glad it's early morning as I won't be getting much sleep that night before anyway.
How are you getting on?

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Choccywoccydodah · 05/03/2015 16:59

Eeeek how exciting!! I bet you ant wait now! I just hope the next week doesn't drag too much for you.
Glad appt went well.

All good here. I know it's a bit Blush but I took a test earlier as I've never had a dark test due to all my mc being early losses and the test never getting dark. Anyway it was super super dark (obviously lol!) amazing!!
Got a quiet weekend coming up but next weekend have some friends here Friday to Sunday so at least next weekend will go quickly.
Out for dinner with DH tonight (going in a min, he's just waiting for me to get ready Grin) However I just have no appetite at all! I went to our little Sainsburys earlier to see if anything took my fancy and I got a steak pie and pickled onion monster much, they were goooooood! Felt better after I'd eaten so hopefully the same tonight.

Anyone taking part in the Response Medical Trial or any other medical trial?
Choccywoccydodah · 05/03/2015 17:00

Posted too early!
How you getting on Claire?? Xz

clairemorgan81 · 05/03/2015 18:27

Ahh that's so reassuring for you choccywoccydodah about test.....hope you manage and enjoy your dinner tonight.got my Smile today xx

sizethree · 05/03/2015 19:56

Congrats on your smiley face. Happy-horizontal-no-pants-dance time!
Yes Choccy, must be very reassuring to get such a string line.
Hope you managed to stomach dinner.

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clairemorgan81 · 05/03/2015 20:02

I'm pleased its shown up, I got very excited at Smile. you would think it was a positive pregnancy test lol.
how you feeling sizethree are you okay?x

sizethree · 05/03/2015 22:11

It is such a relief to see that smiley face. I always feel excited when I passed the test!
I'm feeling ok-ish. Still very anxious that the pregnancy isn't developing as it should as I'm lacking symptoms. But it's under a week now until the scan so I just need to hold out til then. But they'll be the longest days of my life. Early pregnancy turns a different timeline on I'm sure. It's cripplingly slow.
Very excited about your impending TWW. You could have a positive test in the next 9+ days!

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clairemorgan81 · 06/03/2015 08:11

please dont worry about your lack of symptoms sizethree. it's still early days.....easy to say I know. how far have you got with your past losses?
do you do opk til you get a positive then stop testing?x

sizethree · 06/03/2015 10:21

I did the OPK til I got my smiley face and one after for luck to check the face had gone.
I've got to 12 weeks before, but it was a MMC and the baby died at 8+5 weeks. My 2nd I got to 7+4 and started bleeding. A heartbeat was seen on the emergency scan but it measured smaller than my dates and then I had a full natural MC within 48 hours. Third I got to 9 weeks. But on the scan it hadn't grown past 5 weeks. So my pregnancies have been getting worse and worse really. And my body still clings onto them even when things aren't hoing as they should.
I had my strongest positive pregnancy test 2 weeks after my 3rd MC, as for this trial I needed to show o had ovulated agin before being allocated my number. So I can't even retest to put my mind at ease!
It's just so nerve wracking as at my scan in Thursday I'll either get the best news ever or the worst news ever. It's so extreme. I just need to feel prepared for either outcome.
Sorry to be so down. I'm just finding this a lot harder than I thought I would.

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Choccywoccydodah · 06/03/2015 10:36

Morning! So glad you got your smiley Claire!! Was it on time? ooooooo so looking forward to your news next Sunday lol! Smile happy shagging!!

Sizethree in so sorry you're feeling like this sweetheart. If it's any consolation, I didn't really start getting any proper symptoms until last weekend (5+4/5) I think I was just ignoring things as I didn't want to believe it. It's only really this week that proper ropiness has kicked in. It may be because I saw the scan and relaxed a bit, who knows?
I know it's worrying, but please just try and keep positive, YOU ARE PREGNANT! It's such a drag waiting so long I know, but it'll be so worth it :)

So I managed steak and chips last night and actually felt better for it. I got the whole 'told you so' off DH lol. Anyway, I'm armed with my monster munch today, seemed to help yesterday. I've TOTALLY and utterly gone off anything sweet except orange juice, which I could drink by the gallon at the moment. I'm not too sure how much you should drink in pregnancy, whether it could be bad for me note to self to google that I've been going through my diary with Ds and I am exactly the same to the week as what I had with him, just hope the proper sickness stays away!

clairemorgan81 · 06/03/2015 10:40

its so sad sizethree I really feel for you. my first one I got to 7.5 weeks and had the teeniest spot of brown which I could have easily missed, but pushed for a scan as I couldn't settle, there was a fetal pole but that indicated I was only 5+4 so they kept on saying my dates could be wrong (I was sure they weren't) I had to wait a week and be rescanned which showed no growth then it was confirmed. Nothing had happened so I opted for medication. i had the most awful day in hospital as the medication failed to work and get everything out so ended up being sent home. I had another scan a week later and it was still there so ended up with d&c so I know what you feel like with regards to your body holding on. next one 5.5 weeks - another d&c as again didn't miscarry myself then I had natural again about 5 weeks. I so get your worry. I really do.
all we can do is hope. big hugs to you.
why can't you retest I'm confused what you mean x

clairemorgan81 · 06/03/2015 10:45

glad you managed dinner choccywoccydodah.....haha good old monster munch!

it's usually around now so yes on time x

clairemorgan81 · 06/03/2015 11:06

once opk negative does that mean ov has usually happened?

Choccywoccydodah · 06/03/2015 12:38

Do you mean you can't retest as you tested + and you'd already mcd so it didn't really show a conclusive result?
Stop worrying my lovely, seriously. You won't do yourself any good. It's really hard not to, but you can't do anything until your scan so please just relax, and enjoy not being sick!!

Claire I didn't test after my smiley so I assume your hormones have gone back down so you've either ov'd or its imminent :)

clairemorgan81 · 08/03/2015 17:37

hi ladies how are you both?
quick question do I have to start preg testing a week after smiley?x

Choccywoccydodah · 08/03/2015 17:57

Hi Claire! Yes, exactly a week later :)
Hope those little spermies are doing their thing!!

clairemorgan81 · 08/03/2015 18:59

thanks choccywoccydodah its so early to be testing isn't it. how soon do tests usually pick it up?

how's the sickness ?x

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