Page 38 | Immune/natural killer cell treatment when TTC or pregnant (aka the 14th pred thread)

dildoos · 02/02/2015 16:53

Very emotional at the moment so can't talk over phone I have emailed but not heard back just yet. Thank you trying what a roller coaster and was doing so well xx

Original poster

sunnyday01 · 02/02/2015 16:59

oh no dildoos, i'm so sorry to hear that. Take care of yourself and we are here if you need us.

We haven't had much luck on here recently have we? we must be due some good news/good luck soon

OP posts:

Tryingno1 · 02/02/2015 17:11

I know I was thinking the same. It's been a while.

Thinking of u dildoos I'm so so

dildoos · 02/02/2015 17:45

Thank you all. I won't lie I am devastated . Fx for one of you ladies to give us all the positive news soon xx

Tryingno1 · 02/02/2015 18:02

Hula2 · 02/02/2015 18:55

Oh Dildoos - so very sorry. Just so unfair. i m gutted for u. Hugs xx

Determined123 · 02/02/2015 18:56

Dildoos I am so so sorry. I wrote a big post earlier on the train and lost it. I know there aren't really any words but I am thinking of you, dp and your girl

Am so sad for you. Hugs.

?Xxxx

Rosa27 · 02/02/2015 19:55

So sorry Dildoos.. Gutted to hear your news. You know we all know exactly how you feel- it should be helpful to know how the emotions pan out, but it gets exhausting I know. But please remember 3 things
1- though none of us/most of us have never met we're all hear for you and genuinely care
2- you are statistically just as likely to be next with BFP that turns into a beautiful baby as any of us
3- a month is only 4 weeks so focus on a month of being really kind to yourself and don't forget there is no sense in this cruel situation we're in.. But if you believe in karma we all deserve very, very happy futures.
Take care x

Rosa27 · 02/02/2015 19:56

*here

Hopender · 02/02/2015 20:28

So sorry Dildoos. I'm not sure how it is possible to keep bearing the unbearable but we are all here for you and sending you so much love. Life is crap sometimes but there will definitely be brighter times ahead. Sending you huge hugs, xxxxxx

Tryingno1 · 03/02/2015 11:09

Hi dildoos? How r u doing? Thinking of u

Waves to others x

Original poster

sunnyday01 · 03/02/2015 14:52

thinking of you dildoos x

I have my appt tomorrow which I am quite looking forward to - i have quite a lot of questions to ask too. One thing i have been pondering on is thyroid - he didn't mention anything at my consultation where we discussed my results, but i wonder if my diffiuclty loosing weight is linked to it?

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Tryingno1 · 03/02/2015 15:22

Have u got thyroid problems sunny? Good luck for appt. hope he helps u feel postive!

Dildoos, I hope ur doing ok xxx

Determined123 · 03/02/2015 16:03

Yes hope you are ok Dildoos?

Ah yes you have your appointment tomorrow. I hope it goes well! Didn't Mr S test your thyroid anti bodies and function Sunny? When did you last have your tests?

Original poster

sunnyday01 · 03/02/2015 16:18

I don't have a thyroid problem diagnosed but over the past year i seem to have issues loosing weight - i thought it may be due to PCOS but i have been checked for that and nothing was found.

My tests were done in july last year and i think the thyroid test was done but all he focussed on was nk cells - i guess if he had found anything else he would have said.

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Determined123 · 03/02/2015 16:33

Yeah I think if there was an issue he would have gone through it. That said, when I had mine he did say I needed my thyroid checked annually as with hashimotos your thyroid gets destroyed slowly by the antibodies and eventually function gets reduced (could end up with it not working at all one day). A lot can happen in 6 months/a year so its always worth asking the question.

Also Hashi/Hypo/PCOS seem to have a lot of similarities so would certainly get it checked!

Hope that helps x

dildoos · 03/02/2015 18:29

Hi all, thankyou so much for all your lovely wishes and thoughts. I had to work as short staffed but did shout at practice manager as no thoughts were given to how I would be feeling so they asked me to go in as short staffed and could've done with day off! I am quite tearful this time which has amazed me but think it must be the disappointment as first mc on the programme of drugs xx

Original poster

sunnyday01 · 04/02/2015 11:08

can't believe you had to work dildoos - i can't believe how insensitive some people can be - i actually think its because they don't know how to deal with it themselves so sought of ignore it!

I can understand you are tearful, and can sympathsise about having a mc on the treatment - thats exactly how i felt - although now i have moved on to being fustrated as i thought we had the 'answer' but obviously its not going to be that easy for us x I guess we have to also remember that mc happen for all kinds of reasons and it may not be nkcell related. so fustrating all of this, and so hard too.

I am getting ready for my appointment today - a bit strange as this was originally going to be my first scan appt but instead we will be talking about my mc - oh well hopefully we get a few answers!

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Tryingno1 · 04/02/2015 13:25

Good luck sunny. Have u got a list of questions written down? Let us know how it goes
Dildoos can't bel u had to go to work. U sound like ur holding it together v well. How r u feeling? Have u got an appt with mr s?

dildoos · 04/02/2015 16:13

Hey sunny hope the appointment went well. Let us all know as eager to hear.
Trying I know I am not holding it together they have had to deal with outbursts of rage followed by tears, short staffed at work. However the pregnant receptionist has been my rock and very very gorgeously sympathetic she has had 2 MC and now about 28 weeks but she is allowed to be in my eyes as she is lovely.
I cancelled my 6 week scan and intralipids have been refunded. I didn't really see the point in going and paying to chat when I don't have any questions and at the moment I don't even have the urge to try again ( new feeling for me here and hoping it's the drugs coming out of my system as was on 800mg cyclogest up until Monday evening ) the bleeding hasn't turned red yet but actually due on af Friday so hoping that will clear everything. I am to do a home pregnancy test in 2 weeks to make sure negative.

How are you all anyways? X

Determined123 · 04/02/2015 17:03

Good luck sunny - let us know how it goes - fingers crossed you get the info you need.

Dildoos I want to give you a big hug! This is all so crap. Even with all the grief and emotional pain you have you are also having to deal with the stopping steroids and hormones which is horrendous in itself. (I still have a headache!).

I know what you mean about not trying again...I feel pretty done with it all right now. I know I left my appointment last week feeling really positive but I am not sure I want anymore tests or anything. I know I won't but I feel like forgetting about it all! So sorry...came on here to offer my support but ended up whining!

xx

dildoos · 04/02/2015 18:28

Determind your allowed to say what ever is on your mind on here! I hug you right back it's so rubbish right now for us all . I think the highs and lows are just so frequent xx

Tryingno1 · 04/02/2015 18:42

Hey girls

Dildoos-u sound like ur doing really well. It's so shit, sending u a cyber hug. Are u taking a break from
Ttc or ploughing ahead? Hope the bleeding starts and u can physically get over that.

Determined-it's natural to feel low and loose hope sometimes. It would be weird if u didn't! U have a good plan for mr s, just keep the faith that its gonna work next time.

Sunny-how did it go?

Rosa-when are u testing?

Hope-u must be like 16 weeks now??!

Hula-is af behaving? U must be half way through ur 2ww?

Ugh I have some bad news too. But not what we would expect in the RM world. I had an uss done a few days ago and my lining is prac non existent :(. I'm having one repeated on Friday but this could be why I've not gotten preg.

2 reasons for it that I can think r likely.

1-scar tissue post my 2 d and c. (Ashermans syndrome). Am
Seeing me lower in London in 2 weeks for a HSG and scan looking to see if I have this (and check my tubes too).

2-some weird hormonal thing that means my lining doesn't develop. Prob low oestrogen.

I've not spoken to mr s yet. Will speak to him when I've seen lower and know exactly wots going on. But, if its option 2-I think it's looking like ivf (it was v thin) with monitoring of my lining. If its no 1 it's major surgery.

Either way I'm feeling devastated. To top of the world of RM I now have some weird infertility problem. Im so worried that now i cant even get preg afer being mega fertile before! I've got secondary infertility but without baby one :(.
I've been goggling ivf clinics like mad for 2 days and looking up rates and its such a scary thought. I've pulled myself together today. And trying to keep things in perspective.

First step repeat scan Friday. Second step see mr lower.
Third step talk to mr s and see what he thinks I do from here.

I knew there was something up, I got preg so quickly before. Cycle 7 and nothing again :(

Sorry to be a moaner! Needed to get it off my chest!

Someone please bring some good news on this thread???

dildoos · 04/02/2015 20:03

Oh trying sorry to hear your news.
What a mind game for you right now!
I think the fact you have your steps on what your going to do is a vey good positive thing.
If a low oestrogen thing is causing it would oestrogen tablet form help?
How did you realise about your lining? Did you just book on for a scan as you had an inclination?
Hug to you what a traumatic time. Hopefully some positive answers will come on Friday . I keep my fx ! Xx

I think I need a little break at the moment but so hard to say as still feel a bit psychotic under influence of pred so I will re assess how I feel in a couple of weeks. Right here right now I don't think I am strong enough for another mc.

Sunny how was your visit?
Determind how you feeling now?

Hey hula, rosa and everyone else x

Tryingno1 · 04/02/2015 20:13

Good idea to give urself a break dildoos. U need to recharge and then evaluate what u want to do. It's such a shitty time. I'm Sorry :(. The cloud post Miscarriage is so so sad.

I did the uss coz I just knew that I wasn't getting preg and there was something wrong. And I did it to try clam Me down! But instead it did the complete opposite. I've always been worried about scarring as both my d and c were done for retained products only a few months apart. Ur right, the oestrogen etc is def something I need to discuss with mr s. however I feel like getting more and more inpatient and can't keep waiting for a bfp to only miscarry again. If its not scarring, then I'll speak to mr s and try oestrogen patches while I look into and wait for ivf as they have months and months long waiting lists. Who knows I may not need it if my Lining behaves! Right now, I don't have any hopes! They are all in the dustbin!