TTC or pregnancy on prednisolone or similar part 13

[VillageMum]

This is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Ladies, I can honestly say your response actually means more than you could possibly know. X just seeing your positive responses have actually made me feel slightly better.
Trying: I've had 6 mcs over a 9 year period. My last was nov 13. I had all the usual tests offered on the nhs and they all came back negative I was sent away and told it was just bad luck! And to keep on trying. That's when I done some research and found out about dr s. So my journey begins.... Your right! Positive thinking x

Don't just look at me for success stories - there have been scores and scores of them on here! It just so happens that once people have a baby they often disappear...too busy for some reason :) we used to have a list that gave great encouragement but as everyone else disappeared I was the only one who updated it and I couldn't keep up. Unfortunately it's the difficult stories that are always going to prevail on here as they are the ones that still need advice and support. But even the long timers have started to see successes. And we are the people who have found the thread! There are countless people out there being treated successfully without finding us :) So do take heart in that, newbies!

Waves to Brown and Duggs. Duggs, can't wait for an update on you next week xx

Hi tmgs - hope you find having people in the same situation as you a help, like you a lot of my friends have children or are pregnant at the minute and it has been easy for most of them and I think they struggle to truly understand what's us like that's why I love this thread as everyone knows what it's like and the highs and lows of the treatment.

I'm 32 have no DC and started trying in jan 2013. Had a mc in feb 2013 at 7 weeks and another miscarriage in October 2013. Was referred to local nhs cobsultant who was rubbish and basically said it was because I was overweight and to go away and keep trying. After some research found out about dr s and went to see him back in July. I have high nk cells so I am on pred at ovulation fir 10 days and then intralipids drip once I get pregnant.

I'm also on the super ovulation programme to see if that will help speed things up!

I'm currently on round 2 of the ovulation programme and it hasn't worked this month so just waiting for my AF to arrive to get going with round 3!

Morning all. Had my usual 2 glasses of wine when af arrived yest!
Tmgs-sorry to hear about ur miscarriages...it's great u found mr a now fingers crossed he is the man with the answers for u! I've had 3 last one was in may. Entering cycle 4 of ttc and hoping this is my
Month! Are u having any help with ttc or just old fashioned way?! I'm not having any help but some girls are on the super ovulation prog.
Sunnyday-hopefully next time u will be fine. I'm sure u know but after 2
Miscarriages ur chance of a 3rd is not increased at all. Most women go on to be fine for no 3. So hopefully with mr s and stats on your side you will be ok next time!
Hi to the others

Hi sunny,
Sorry about your losses. It seems that we have/are going through the same issues. I sometimes feel that Although I have a great support network behind me no one knows what your actually going through. Do you mind if I ask you a few questions? I know is is going to sound really naive but what is the super ovulation plan? Have you had any side effects on the medication? And what does af mean? X x

No ask away - it's a massive learning curve and a lot to get your head round!!

Super ovulation is sort of 'boosting' ovulation by increasing the number of eggs (not sure if that is the technical term!) I have to take medication on days 2-6 of my cycle and than have a scan with dr s so he can see how many eggs I'm developing (both times I have had 2 eggs which is about right - he likes 2-3 eggs each month) I then have to inject myself a couple of days later to trigger ovulation. The reason I am doing it is because I wasn't convinced I was ovulationg every month so I wanted to make sure I was if using the pred etc.

I've had no side effects from the letrozole (super ovulation) or the pred, except I get really thirsty but I can deal with that. I think I have been quite lucky as I know other people have really not had a good time on it. I also get a bit if a bloated tummy towards the end of the 10 days but nothing significant.

AF is 'aunt flow' or your period.

Before seeing dr s I felt at a loss, that no one was concerned about me and I sort if dreaded getting pregnant again as no one would be looking after me. Now I have a plan I feel so much better about it - just got to get that positive. I think my weight is having an effect - I'm probably about 4-5 stone overweight so I am really focusing on that at the moment get get it down and hopefully that will help me.

Morning trying.

I'm also sorry about your losses. However there is one thing I do know and that's we are young and we have time on out side. We will have a baby it's just going to take a bit of time and lots of positive thinking. I was really down in the dumps this weekend but I've picked myself up and dusted myself off and I'm looking forward.
I'm not having any help ttc and I have no idea what the super ovulation programme is! If I'm honest, I've tried to do some research online and got some overwhelmed that I gave up! So I'm just going to follow what dr s advises me to do and go from there. I'm new to to here so I'm not upto date with the lingo. Do you mind telling me what af stands for? X

Sunny - your a star! Thank you. It's amazing that I learn something new everyday. God I fill really stupid not know what af stood for! But on a lighter note it actually made me giggle!
Can I ask another question? Was you ttc naturally before you started the super ovulation plan? I'm about a stone overweight but I'm not in the right frame of mind to actually do something about it. Xxx

Yes trying to conceive naturally before and if super ovulation doesn't work (can only do it in 6 month bursts) I will go back to trying without it again.

I try not to research too much or read too much as you can end up getting confused as too many people saying different things. I've put my trust in dr s approach as so sticking with that for the foreseeable future.

Tmgs - i have bad and good days too. I turn from despair I won't ever have a baby to being postive and thinking it will happen in the future. And yes we are lucky to have age on our side. It's really helpful on these forums as we are all going through similar journeys and know how it feels...only my 2 closest friends know about what I've been through but they are nowhere near ttc and so don't understand fully the emotions I'm going through...

Weight is such a crap issue. There is def evidence being overweight increases ur risk. But obv loads of overweight people who are just fine! it's such hard work! I'm back on my calorie controlled diet today to try loose my holiday weight and more (which I was meant to do last week!). Sunnyday hope your weight loss goes well! you def have to be in the right frame of mind
And after each miscarriage I put on weight as I ate and ate to feel better i think! Viscious cycle.
Keep on with the positive thinking!

I'm mainly doing it to feel healthier etc as primary reason with secondary reason that it will hopefully help!

Tryingno1 and Brownstag :I saw a doctor abroad as I live oversees. She is a specialist in fertility and autoimmune issues and quite an expert in the field apparently. She does uterine biopsies rather than blood tests to evaluate NK cells. (And testing for hidden infections, clotting issues, hormonal issues via blood tests and biopsies). She is also a staunch advocate of using the 'scratch' technique before drug based fertility aids. It's was a very slow process between the first appointment and the treatment (6 months with 3 cycles of antibiotics) then she recommends no more than 3 months on prednisone and suggests a low salt diet to reduced the side effects (which I followed). I had a month break from pred while awaiting the scratch and then went back on from CD1 of the cycle after the scratch.

Tryingno1 and Village, as for the aspirin, it wasn't in my drs protocol as I tested negative for clotting issues but I took it anyway just in case (from CD1). I had to stop taking it at 17 weeks due to cervical bleeding. I have no idea if it helped implantation/mc issues or had any affect at all. I had also taken it for pregnancy no. 4 which ended at 8 weeks.

Also I did acupuncture for several months whilst TTC. I have no idea if that helped physically either, however it certainly boosted me psychologically.

The waiting from month to month and pregnancy to pregnancy really eats away at your life in a way that people can't understand. The years I spent wondering whether I'd ever have a successful pregnancy were the worst. But I'm so glad I didn't lose faith and stop trying. I really hope that my story will give a little light at the end of the tunnel for those still trying.

Hugs to all!

Thanks so much for coming back and answering our questions! Your so right about the month to month worries..completely sums out how I feel...and sure the other girls too. I'm hoping I have the strength to keep going too...

Well done for preserving and enjoy ur little one!

Ps duggs are u there?! Any news?!

Hi all, just a quick update from me. I did the HPT this morning on day 12 and it is another BFN. I thought it would be but still makes you feel rubbish. I am finding the pred really hard to take so pretty unsure what to do next month. Probably just really crap because of the BFN though! I know I will feel better in a few days. I am going to leave the super ovulation until after Christmas I think and if I am still not pregnant then will give it a go. Due to see Dr S this week so maybe he will have some suggestions. Hope all well with all of you.

Sorry to hear that hopender ;(
It's upsetting every month isn't it? Even when u know u hope there's a tiny chance it's gonna come back postive. Good you have an appt to see him-let us know wot he says. What se are u having with the pred? Def talk to him abou it...hope he's helpful when u see him.

Have some choc to try cheer urself up!? So pants. Hopefully next month is both our months! And all our months?!

I've found ( so far) that after a d and c it takes me longer to get preg. The first 2 preg were mega quick (1/2 months) but last time after my d and c and this time it's taking its time to happen...I'd rather not go down the SO route but going to keep trying till I've tried for 6/7 months and then go see him if no luck then..but hopefully I'll have some news before!

Sorry to hear that hopender, lets hope we are all getting our BFPs soon. I think I have been really lucky with the pred, hardly any side effects at all.

I tried to book a scan appointment with Mr shehata today but he is on leave for the next two weeks -arrrrrrrggggghhhhhhhh so need to find somewhere else that I can do it. Bit worried about someone else doing it - worried thay might not pick up all the information! Found somewhere quite local to me that can do it or alternatively there is a ultrasound clinic on harley street that do it too.

Hi all, wondering if I could rejoin thread I asked many months ago but with one MC after another I had finally stopped trying booked to see Dr s ( 3 months wait and dragged.) seen Dr s yesterday for my first appointment so back on the ball (not TTC at present as he has advised to wait until he tells us all is set to go go go)
Anyway thought would be great if I could just join you all x

Welcome back dildoos - hope you felt your appt went ok. Paid you have lots of blood tests?

Hi dildoos! Did u book ur train tickets? Def come join us

I've also been fine with the pred-hope think u asked about cramps? Mine were fine the 2 months I've been on them. Af ending now...it's gone quickly. Think time next week will be ovulation....at least time isn't dragging! Got my acu tmrw too...hopefully will help with my postive thinking!

Yes thank you trying played safe and allowed 3 hours
1 hour for over run 30 mins for appointment and a possible 90 mins for a romantic lunch ? Especially as day before my birthday
Thank you sunny- yes had the blood tests yesterday I think about 15 tubes were taken for various hormones and NK cells.
I am fortunate that I have DD6 however Dr s feels my body may have had this one pregnancy and then almost having an allergic reaction to further pregnancies (7 MC in total since).
Mentally I am getting along with the no trying as played safe past 3 months as desperately wanted appointment and then won't try until we get the nod!
Something struck me about the Harley street clinic, you pay a lot of money to drink out of a polystyrene cup and this made me lol

Ha. Ha yes that's true - Harley street isn't 'his' office though, he just rents it from someone else fir the day! The Epsom office - currently the clock house is very nice!

I had lots if blood taken too. It's worth waiting for the results appt, is it a a couple of weeks? When your waiting reeks like ages but I went back in July which seems ages now we are in the treatment programme!

Hey there.. Just quickly popping into say baby Ethan was born last night by emergency C section after an exhausting 72hour labour. He was back to back so no wonder I wasn't dilating despite being induced after natural labour started on Saturday. Anyway old timers that still pop in - he is here ! Best of luck to the rest of you on your journeys x

Duggs - congratulations, fantastic to hear of the safe arrival of Ethan. Enjoy every snuggle and moment.

Hi Duggs! Huge congratulations! That is such fantastic news. Hope you recover from the C-sect nice and quickly. You must be absolutely knackered. xx

Duggs...I am so so pleased for you. You deserve this so much. Wonderful, fabulous news. Hope your recovery is swift x