TTC or pregnancy on prednisolone or similar part 13

[VillageMum]

This is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

MrsPixie - after all we've been through to "get" the baby, it can seem like you're not allowed to have all the usual stresses and problems any mother of a new baby faces - of course that's not the case! Hope your days (and nights!) are as easy as possible.
Lovely to hear your news Mattsmama
and great to be on the final countdown for you Tum!

Iggi you're right. I've been so up and down and it doesn't feel right to be sad after the roller coaster journey here.

..I had counselling when ds2 was a few months old to help me sort through the mess of emotions all this left. Felt much better for that,though time on its own might have been enough I suppose.

Thanks for saying that. I often feel so alone with the sadness. I've cried a lot for the babies we lost and have wondered what they would be like. It's as if we just keep going through all the losses without stopping and then it catches up with us.

Morning ladies! Thank you for your congratulations x

Rb30 - ive been following dr s' nkc programme however for past few months i decided i would take the pred if and when i got a bfp. I just had visions of me taking the pred on and off indefinitely and it unnerved me plus i am sure it was affecting my ovulation. I have continued taking all the usual vit d, omega, folic acid, aspirin, and multi vit all the time. Now back on the steroids and cyclogest too now. Well today is af due day and as usual i am symptom spotting and generally being anxious! Im sure my boobs dont feel as sore one minute then after prodding them i think yes they are - so up amd down.

I did a clearblue digi yesterday morning and got the pregnant 1 - 2 weeks which reaasured me but stupidly did anither frer this am (why?!!) and it looked somewhat lighter to me so that got me all upset. Having looked at it against the others it looks more or less the same now but i cant help worrying now. Knicker checking and boob prodding. - the positive test is a whole new ball game of anxiety inducing up an down moments. Miscarriage sure does leave its mark in more ways than one and it helps coming on here with ladies who know exactly what i mean. Sorry if sounding a bit negative but although i am happy to have finally got that elusive positive test i cant help but have this nagging little feeling something is not right : (

Pixie - congratulations on the birth of your little girl x

you are so right in what you say though about feeling guilty for feeling somewhat sad when you finally have that precious bundle in our arms. We go through so much - i think we are so focused on our "target" even we ourselves dont realise just what we do go through until yes it does finally catch up with us at some point - it just has to. At three weeks your hormones are still all over the place for a start. You are most certainly not alone in your sadness - i remember after the birth of my first and second sons feeling elated followed by sessions of me bawling my eyes out in the bath - its normal and our emotions can be overwhelming xx

Thank you Mattsmama. Thinking of you symptom checking. It seems so recently that I was doing that and we've all been there. So unsettling isn't it? Wishing you all the luck in the world for a continuous and strong BFP and healthy pregnancy.

Thank you MrsPixie xx

Hi everyone

Just popping in to say hi!
MrsP congratulations in the arrival of your little girl! What is her name?
Your feelings are totally normal, I felt much of the same! Including guilt! Loneliness is the latest one for me! (DH works away a lot) never had issued like that before as I enjoy my own company.

I hope she is settling in with you. As you cnd tell it's clearly feeding time here lol!

Free congrats in the good scan news (belated congrats). So pleased for you!

Tum not long now! Hope you are relaxing these last few days!

Mat huge congrats on the BFP! I never did PT with lines etc I always went digital! More expensive I know but it's in black and white then! Try not to worry!

Village how are you? And everyone else I have missed!

A quick update from us: Esmé came home 3 weeks ago after four weeks in SCBU. Last weigh in at 37 weeks was 5lb12oZ next weigh jn is today so we shall see. She is doing well, we are still on 3 hourly feeds which is a killer! But otherwise all is well!

To all the people that have not long been on here I was treated by Mr S (after 1 late mc and 5 early mc) for v high NK cells and ended up having IVIG as well as all the rest!

I wish everyone still on this journey all the best, it will happen!

Sorry to all that I have missed!
Xxx

It's all such a mix of emotions isn't it and I agree with all that's been said. I guess the journey doesn't stop even when you get your rainbow. all the time, energy, money, stress we all go through to get there it's bound to all take it's toll.
Great news on the bfps you all deserve it it's such a long road for us all.
Lovely news on esme. I will be having ivig too if I ever conceive :( feeling so down at the moment. A lady at work is preg after trying a month I'm finding it so hard x

Team - thank you and belated congratulations on the birth of your daughter - I love the name you have chosen - beautiful x

I think you are right about the tests - I will stiick with digital. I did one this am and I was quite terrified waiting for the result but it seemed to come up quite quickly with the pregnant 1 - 2 weeks again which after yesterdays episode with the frer I was relieved. However time will tell a f I suspect the next week or or so will play havoc with my head!

Mel - you are so right x. It is so very hard to remain positive all the time and when your feeling down as you are now nothing really helps. All I can say having known so many times how you are feeling is hang in there. It is a long road but you will get there x

Hello everyone else : )

Haven't posted for a while as we've been on hols but I just wanted to say huge congratulations to Mattsmamma on your BFP - absolutely brilliant!! I am soooo jealous! (Still ttc after my April mc and currently on yet another 2ww). Just hang in there and try to get through the next week without testing, if you can - the fact that the Digi is giving the right reading for dates is a great sign. I'd wait at least a week before testing again... Lots of strength to you.

Mrs P so sorry you're feeling down. Getting to the other side of pregnancy successfully doesn't take away the need to mourn all that's gone before, does it? And the hormones don't help. It's a tough time at best. I really hope you find the time and space you need to enjoy your lovely little girl and honour the past in a way that sets you free. It will get better.

team how exciting that you have Esme at home now! Brilliant that she's doing so well! Hope the weigh-in today gives you more good news.

mel many hugs to you. You are young, you have time, you will get there!

free many congrats on your recent 20-week scan!

Waves to all I've missed xx

Ahh Village - thank you so much x. I'm just about hanging in there - manage to be very positive one minute but totally not the next! Keep getting moments of sheer panic followed by excitement etc! Fingers crossed for you on your two week wait ! x

Copied this from the other thread - I have some news - am currently 18 weeks pregnant with a boy! Had an anomaly scan today to primarily check the kidneys but was told everything else was normal too. Have been itching to tell everyone on here but petrified I would have another fatal 20 week scan and have to terminate as I did in 2012. This pregnancy was conceived on the first round of super ovulation at zita west using gonal f plus all the immune treatment. I started pred at bfp and had one intrallipid infusion at ovulation before I got a bfp (which would have been repeated every 3 months until pregnant). It seemed to work for me as taking pred from ovulation messed my cycles up. I then had intrallipids at 4, 8, 12 and 16 weeks plus clexane and calcium tablets until 12 weeks. I would recommend the more holistic and natural approach at zita west as it has worked so far for me.
Still worried something will go wrong but I guess that's normal!

Oh Sue! I don't know what to say, what lovely news!

Wow sue mays that is fantastic news! I'm so happy for you! Congratulations xxx

sue Said it on the other thread but wanted to say it again ... fantastic, marvellous, fabulous news! So very pleased :) :)

Sue that is just incredible news! HUGE congratulations! Of course you will still worry, but all sounds just perfect so far, so enjoy too!

Big congratulations suemays!! So great to get such positive news on this thread. I was wondering if you took pregnacare or zita west's vitamins? I wasn't sure which were best. The Zita West ones are obviously more expensive but nothing compared to all the other expense so really don't mind! But I was a bit worried that they have pomegranate in them and wasn't really sure what was best to do. Any advice would be really appreciated!

I took pregnacare plus, vit d3, high grade fish oil tablets, clexane and pred from bfp until 12 weeks. I also had some hydroxychloroquine left over that I used. I have used the ZW tablets before but stopped due to the cost ! I had intrallipids before a bfp and was to have them repeated every three months around ovulation but conceived on the first month.

Sue that's just amazing news

So happy for you and really pleased to read about the good scan news. Halfway there now. Look after yourself and remember we all stress until we have a baby in our arms and afterwards

Thanks for all your lovely messages. I'm feeling much better and enjoying some baby snuggles.

Wishing you all a peaceful weekend and the healthy, happy DCs you long for.

Hi everyone
I've been to see mr g yesterday. I must admit I felt abit let down, literally £150 for 10 minutes of no advice. He just said due to my age and amh of 1.22 that ivf with Icsi may be best option.
Then I mentioned about the gonal f and ovitrelle I have and he said I could try that maybe combine it with ici?
However I wanted him do explain each option and tell me what's involved but I've just had to go on the website to see what they are!! I go to him for his opinion and didn't really get it..
Anyway I don't know if to waste/spend the money on Ici or just save for serum still.
He said if I have ivf there I could have some bloods and scans here which would mean oh doesn't need much time off but then with train fares and if I feel funny afterwards etc and needing to be at London early (which I assume I would be) I think it may be costly and stressful rather than serum where it's all one place and I'll be there. What do you all reckon??
I was also abit miffed as he wants a lad retest (I thought that lasted 6-9 months?) I only had booster end of feb so if I need more lit I'll go mad!! Then I had a list of bloods needed for the hfea argh but my doc would do that!! I think I may just go with him for immunes. He did say it was prob the hydroxy that caused my high uterine cells which was interesting. Sorry for depressing post!

mel my amh was 0.57 last April when I turned 41 so was told by a fertility doc that i had no hope of trying with my own eggs and would need donor egg ivf. I conceived twice since then so I don't believe what the docs tell me. Dr shehata and dr nudweke always filled me with hope using my own eggs. I would be tempted to try the gonal f with icsi if i was you before ivf as it's less harm on your body than ivf. You have also already paid for the drugs so it's just the consultant fee you would pay.

Congratulations SUE !! Lovely news

Sadly it looks like my pregnancy is failing/failed. Tested yesterday (stupidly as it was my birthday! : ( Was feeling confident I suppose as I had a strong first response on Thursday and a positive digi.

All test are now negative and another test this morning - negative.

Gutted.

Do I just stop taking steroids now and Cyclogest? Or should I check with dr s first. How long should it take for bleeding to start - I think progesterone can delay it as i remember? Took steroids from Bfp just over a week ago so it's ok to just stop as not been takingnfoir 14 days. Stupidly I keep hoping the bloody tests are wrong - in denial more like : (

Sorry for rant / moan just absolutely gutted by this : (

Oh matts mamma I'm so sorry I know the feeling of getting a neg on your birthday :(
I would just email new life first though I suspect they'll ask you to stop if neg tests.
My af arrives about 2 days after I've stopped cyclogest but could be longer for you.
Sending hugs it's just horrid :(

Thanks Mel x