TTC or pregnancy on prednisolone or similar part 10

[roseandroli]

We are now on part 10 of this thread! I hope you can all find this. This is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Links to earlier threads:

Part 9: www.mumsnet.com/Talk/conception/a1552980-TTC-or-pregnancy-on-prednisolone-or-similar-part-9

Part 8: www.mumsnet.com/Talk/conception/a1492407-TTC-Pregnancy-on-Prednisolone-or-similar-part-8#33842381

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

Woooo to the two new thread babies! So happy for you both. Although sorry to hear you had a stressful start Sarah but had it is all ok now. Must arrange a meet up when you out and about. Fancy baby cinema?

Lots of love to all. How many babies have been born since the thread started? And does that mean kittens is next?

olives HUGE congratulations on the safe birth of your whopping DS2!! So very pleased to hear your news :)

And to sarah too, big congrats for the safe arrival of your bundle of joy :)

lovely news of babies arriving! just had my scan and am currently plugged into my drip. scan perfect again! although I couldn't see much didn't think it was very clear today. although it was moving a lot and seems to be in a completely different position to last time.
I'm finding now I'm weaning off the pred that my moods are very up and down and I'm quite tearful. anyone else found this?

Ahh, congratulations to you as well Sarah! Glad to hear all is now well after a stressful start.

Good to hear of the positive scans and lovely that we now have a few of you in the first trimester.

Cartoon, I can't remember what my moods were like weaning off the Pred as it was an emotional time for me anyway so hard to determine which is which. I had some pretty stonking headaches though which were quite unpleasant. If that happens to you, consider weaning off even more slowly than originally recommended. Mr S told me that would've been a good idea when I told him about the headaches after the event. Ooops!

I think Jemimapuddleduck is next, then me (because babies always stick to schedule don't they?). Still breech at 34+2 and feels quite wedged considering the pressure under my right ribcage and in my crotch so may end up having an ELCS. We'll see. Anyway, less than 6 weeks now. Can hardly believe it!

Great news about the scan cartoon! How surreal it is being wired up to the untralipids isn't it. Weaning off the Pred gsve me all sorts of symptoms and I slowed down a bit too - I hovered for an extra week at 25mg down from 40. No reason really except being used to having the medication as a mental crutch.

Lovely news all round.

Bfn's for me this month though no surprise. Also no AF which should be here today. And a bit emotional and tired from not sleeping properly with the Pred. All in all I'm a bit grumpy!!

So - if the lady who's here at NLC right now with her gorgeous baby is reading this I am truly sorry if I seemed a bit off when faced with a baby (here of all places!) as I came through to reception for acupuncture.. Bad timing.

Congratulations olives and sarah on the arrival of your pred babies! So wonderful to hear all this positive news!

Cartoon great to hear your scan went well. I just took my last dose of pred todayhoorah!and I'm hoping this means I will sleep better and lose the chipmunk cheeks (wishful thinking...).

Lawlee I know your post was a few days ago, but just to reassure you--if you don't have shoulder tip pain or watery brown cm, I wouldn't worry about an ectopic!

Good morning everyone

Olives and Sarah a very big congratulations on the birth of your boys. I am sure it gives everyone else hope that they will get there in the end. Havingkittens looking forward to hearing your news. I am 4 weeks behind you so not long.

Well done with all of the 1st trimestors. I have been keeping up to date with this thread and keeping up with the news. Keeping my fingers crossed for further BFP?s on this thread.

Accidental a while back you asked if I had VHKC when I said that pred on it?s own had failed on 4 occassions. Well the strange thing is before DS1 I had 6 mc (1 molar, 1 chromosone and 4 straight mc?s) and I was not diagnosed with any NKC issues but DR S gave me a low dose steriod just in case. After DS and after 2 mc I was retested and told that I had VHKC so the pred was upped but I had a further 2 mc's. The strange thng is that the first time I had pred it appeared to work and then the 2nd time i.e. this time (29 wks pg)intralipids and hydroxy were thrown in. Also I know it is a boy. What is a bit suspicious is that both times new treatment was added it appears to have been a success. Could this just be a coincidence? Also it has been raised before about the number of boys being born. This is also a bit strange.

Ari in answer to your question this pg was the first on hydroxy and intralipds. I was on hydroxy for over 4 months before BFP. Still thinking of you and keeping my fingers cross for you.

Hi all, I posted on here a couple of months ago after I'd just had my 4th MC. I very rudely didn't post again but wanted to say a belated thank you for everyone's kind and encouraging comments. We reluctantly waited one cycle (on the advice of Louise) and I am now very nervously 4 + 5 weeks preg. Argh! Cue daily panics and negativity! I can't even bring myself to book my 7 week scan - way too early... Anyway, it's so lovely to read of so many successes on this thread. It's really keeping me going.

Morning,

Congratulations Sarah that's fab news! So pleased for you. Congrats also to teaandchoc on your bfp, you are only a little behind me I'm 5+4 today.

Good news on the good scan Cartoon glad you had another good one

Rose good to hear from you and thanks for easing my worries, no none of those symptoms thank goodness, just horrible nausea, some vomiting and daily paranoia! Hoping it doesn't get any worse else I'm going to be laid up for the next few weeks!

Did AF turn up Choccy? Hoping you are doing ok?

Hi to everyone else, hope you are all doing well and sorry this is a bit of a flying post! Xx

just a quick one from me. rose are you in maternity clothes yet? well jeans?

Hi teaandchoc whispered congratulations. I'll be keeping my fingers crossed for you.

So wonderful to hear about all the gorgeous Pred baby boys being born. Wonder if Pred has anything to do with them being boys or if that is even possible?

Abney thanks for the reassurance about Hydoxy. I stopped taking it in the end as it made my eyes so sore. Interesting to hear about your successes with new tx.

Great news cartoontrickster I'm so so pleased for you. It must be incredibly reassuring to see your baby wiggling around happily.

HavingKittens ohh I hope your baby moves into a better position soon. It sounds very uncomfortable at the moment. You must be very excited, you are so close now.

Hiya cartoon--nope not in maternity clothes yet, but wearing a belly band, which means I can unbutton my jeans and cover the top of the zip. Also I like the way the belly band keeps me warm, I always get so cold in the gap between jumper and jeans!

Whispered congrats tea and choc! And kittens best of luck as you enter the final lap...

choccy, sorry to hear you're feeling so fed up. Totally understandable and coming face to face with a baby at Mr S's clinic, so no what you needed .

Great to hear the first trimesters are all making good progress. I remember all too well what a nerve wracking time that was! Congratulations to teaandchocolate, and welcome back to the thread. Plenty of hands to hold here!

I have managed to avoid buying much in the way of maternity clothes, I'm pleased to say! I had a few jersey dresses which seem to have stretched with me (and will hopefully not end up being baggy and misshapen after pregnancy). I bought maternity skinny black under bump jeans quite early on but found I hated the feel of the waistband under my bump once I got to a certain size. Uniqulo heat tech long sleeved tops have been a godsend. They are really stretchy and meant I could wear a lot of baggy T shirts or short sleeved jersey dresses through the winter. Also the Top Shop maternity black jersey pencil skirt has proved extremely useful at only £25. I actually think it's going to be hard for me to stop wearing head to toe jersey once I'm not pregnant. It's like wearing pyjamas all day, but not as sad looking! Anyone who has a moulting pet, avoid buying Noppies black jeans from Pretty Pregnant. My cat is 50% white and I could only put them on if I was literally just about to leave the house. They are an absolute cat hair magnet!

Abney, time feels like it's suddenly spiralling! We have so much to do in the flat still, and I am not quite as agile as I used to be! So, your time will also come before you know it. I still can't believe it's really happening. Even with all the kicks and the huffing and puffing and the appointments, I still can't totally equate it with having an actual baby!

I've grown out of my last pair of jeans now and seem to live in leggins. I'm considering a pair of maternity jeans but feel its probably a bit early though! I can't wait for the warmer weather finding things to wear will be so much easier. I'm always cold at the moment. I don't have much in the way of warm stuff that fits. diesnt help that I'm so far behind with my washing!
congrats tea
rose do you still spot? I do. Mr s was rather blunt on Friday and said that the blood was obviously coming from me or the baby would be dead by now.

Massive congrats to sarah and greenolives and so pleased that both kittens and abney are both so near to the goalpost.
I am so very very pleased for you. As is the way, it is difficult to not reflect on my own history as I would have been due between the two of you. I know that you have been in my shoes before, such is the nature of the board. I have so many 'lost' edd's (I try not to focus on a due date when I fall pg but the many scans usually produce a date) it's a bit pitiful.
I'm still not sure where I am going after my last miscarriage. My head repeatedly tells me to count my blessings and focus on what I have. My heart is a traitor though and refuses to listen
Loads of luck to those of you with scans coming up and congrats to those of you who have passed some crucial dates xx
mollie hope you are ok, think of you quite a bit, actually xx

Hi Clabbage, thanks for your words of encouragement. I'm sorry though that these approaching due dates are a reminder of where you should be right now. I know that feeling oh so well, and like you, try not to take in or think about due dates in the early stages. When my GP got his due date calculating wheel out this time I told him I didn't want to know.

I so hope this year brings good things to all of you "long termers", I was very much in your shoes and almost gave up hope on quite a few occasions. I know how hopeless and despondent you can end up feeling. I am always worried about sounding so trite and patronising posting this sort of thing now, but I hope you know it comes from the heart. x

What a lovely message, Kittens. The brilliant/tragic thing about this thread is that we all have something hideous in common and also a shared dream. For those of us still struggling with the nightmare, without sounding too cheesy, it is inspiring to see others, like you, persevere and now be so close to meeting your lo. It keeps the hope and belief alive.

Sorry for the late congrats to Sarah and Greenolives wonderful news and 'ouch', Green! Glad your lo is all ok now Sarah, it must have been a worry.

Hi all,

I am so sorry to hear of the difficult time you are going through Clabbage those dates are so hard. I hope you are doing ok.

Apologies in advance if this post is tmi, but I think i might have stumbled onto something and I felt I ought to share it.

Since my 20's I have suffered with what I have always thought was a mild form of ibs. My tummy is usually really dodgy first thing in the morning and then fine later in the day once it's out of my system. In recent years it has gotten a bit worse, and especially exacerbated whenever i was pregnant, but not enough for me to say it was impacting my health as such, I'm a curvy size 12 with a healthy appetite and no special fondness for exercise, not exactly malnourished! However, because I was fed up with it, I started experimenting with cutting out different things to see if I could work out a cause. Lactose made no difference but then I tried going gluten free and oh my what a difference it's made, one minor slip up yesterday and all the symptoms are back today. I've since found out that gluten intolerance is connected with recurrent miscarriage, and now it's set me to wondering, could this be the allergen that has been kicking off my immune system and my nk cells? When i think back to all the crackers, bread and pasta i ate to try and combat the nausea, i wonder about what impact they had on my earlier losses. Since I've been mostly gluten free for the past few weeks, could that be why I have managed to reach 6 weeks today? I don't know the answers to these questions and it may even all just be coincidence, who knows if this pregnancy will work out any better than the others, but it occurs to me that if even for one person out there the answer to avoiding these heartbreaking losses is just to cut out gluten then this might be of help to them!

Anyway hope all are doing ok otherwise. I thought that was a lovely post of yours too Kittens and you must be starting to get so excited!

I am counting down the days now, one week tomorrow to my first scan, I so desperately want this to be our take home baby and some days I wonder if it will ever happen for us! Just got to grit the teeth and get through it.

Hugs to all xx

That's fascinating Lawlee. I too have had IBS since my early 20s (god, that's a loooong time ). I have never been disciplined enough to cut stuff out of my diet though! Definitely food for thought though, if you'll excuse the pun.

Yes, I'm tipping over the cusp of being shit scared to being excited now! I am just waiting for my midwife to get me a scan appointment to see if the baby has turned yet as it's been breech for a while. We have so much to do in the flat still, with time running out rapidly. My OH did say to me some months ago, "Don't leave it 'til the last minute because you won't be very agile", hmmmm, he was right! But also, in true male nesting style he has decided, at the 11th hour, that it's time to rip up all the downstairs carpets and install under floor heating and a wooden floor, and re-plaster the ceiling (from where I flooded the bathroom a few years ago). So I hope that's all finished before the baby makes and appearance. I suspect that anecdotally, a very high percentage babies spend their first weeks in a home which is in the middle of renovation, decoration or just having moved in.

kittens...thank you. I know you understand (read all the threads!!!). You never sound trite and I think it's incredibly important to hear from those enjoying success!! You and abney in particular give me great hope as you are both at the higher end in terms of number of mc's so I feel sure (like many others on here) must have come close to giving up.
I think it's probably a good thing to reflect too. I am relentless as a personality, never give myself any recovery time, physically or emotionally. Much of it is driven by the most primary of my losses, the cot death of my first born. I am very hard on myself! So I celebrate wholeheartedly for you whilst taking a bit of time to be kind to myself..xx

lawlee thank you!
I do have a couple of things to say re diet but I'm at work, I'll try and post tonight x

Lawlee very interesting about going gluten free. I read that it can be a factor in rmc too and so followed a gluten free diet (although not religiously) for 4th and 6th pregnancies which was encouraged by both Prof Regan and Mr S. Although it hasn't worked yet for me I do feel much healthier being gluten free. I have given it up fairly reluctantly as I have a restricted diet due to other allergies. There is quite a lot of info online about it. Whatever it takes, right? Good luck for your scan next week.

Clabbage and Choccy sorry you are having a tough time. X

Just on food intolerance. Very interesting. I have become lactose intolerant since having norovirus in December. Lets just say I too had awful mornings then better afterwards. And have lost LOTS of bloat since changing my diet. Look forward to more from clabbage later! Whether this will have any effect next time I'm pg we shall have to see but unlike Lawlee it wasn't pre-existing, is new since my last mc.

Hugs to clabbage nice to see you back. I'm on 7 mc's now and wondering how many more I can take. But am back on it now. As we do. CD 4 today so thinking I'd better try to remember to buy some ov sticks and do things properly this month!

Interesting about IBS type symptoms. I have had them for many years, even been tested for coeliac s (negative).
I've been gluten free since the new year, mainly because I'm on a low carb diet but it has made me feel better.
Normally we are a carb heavy family. My DS has ASD and struggles to eat anything other than white food. It has meant us eating a lot of pasta and bread. It's taken a determined effort to reduce his carb overloading but he has just polished off some chicken, beans and mash, so it seems to be working!
I'm going to try and stick with the gluten free even if I can't be carb free during pregnancy.
I've just got to get pregnant now!