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Conception

TTC or pregnancy on prednisolone or similar part 10

999 replies

roseandroli · 14/02/2013 10:17

We are now on part 10 of this thread! I hope you can all find this. This is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Links to earlier threads:

Part 9: www.mumsnet.com/Talk/conception/a1552980-TTC-or-pregnancy-on-prednisolone-or-similar-part-9

Part 8: www.mumsnet.com/Talk/conception/a1492407-TTC-Pregnancy-on-Prednisolone-or-similar-part-8#33842381

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

OP posts:
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TheAccidentalExhibitionist · 26/02/2013 18:55

Getting on fine thanks cartoontrickster just trying to cope with my son in the half term. He's a moody 9 year old with ASD, trying to peel him off the computer and get him out for exercise everyday is a frustrating challenge. We live close to the Pyrenees, all our friends are skiing at the moment but my son can't cope with the snow touching his skin. Such a shame.

Oh Lawlee I completely understand your dread about scans and daydreaming for a heartbeat. It's hard to believe its possible for us recurrent MC.

Just ordered a bunch of early pregnancy tests from eBay. Haven't received the Pred from the UK yet.
I'm really really nervous about taking it. Mr S tried to put me off having the Pred as I said I was sensitive to stimulants. I don't drink caffeine and have suffered a little from anxiety in the distant past. I think he's convinced I'll flip out on it.
How has everyone else been with it?

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cartoontrickster · 26/02/2013 19:01

oh bless him what a shame. did you have him before your miscarriages? I found the pred ok actually, just found I was hungry but other than that I've been lucky and not been effected by it. I'm part way through weening off it at the moment.

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Lawlee · 26/02/2013 20:29

Thanks Cartoon and Accidental, yes impossible not to obsess haha, but as you say taking it one day at a time.

Aw Accidental that sounds like hard work but he is so lucky to have a mum like you who is willing and able to put the extra effort and support i to make all the difference. Bless him. With the pred, so far I have found the biggest side effect is insomnia, although I have had trouble sleeping in the past, so I'm not surprised about that when you combine it with all the natural worry as well. I'm a born worrier, in case you hadn't noticed! I take it with my breakfast as early as possible so as to limit the impact and I have totally cut out all caffeine. I also found the pred made my heartburn much worse until I got them to prescribe me some Omeprazole which fixed me right up even better than I was before! It doesn't seem to impact my mood any though I think it's natural to be a bit anxious on the journey we're on from time to time. Hope that helps xx

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TheAccidentalExhibitionist · 27/02/2013 08:18

Yes I had my DS then 5 MC.

One of the reasons we moved to France was that it would allow me and my DH to work much less (because of DHs job) and support my DS more. It's really tough though, France is 30 years behind in understanding Autism but that's a whole new thread!

Thanks for the reassurance about the Pred both of you. It really helps, I don't want to wind myself up about taking them then find its a self fulfilling prophesy. I'm not really a worrier but Mr S really put the fear into me about Pred. I think he painted it in its worst possible light in order to persuade me to have the Hydroxy instead.

Did you know you can ask for enteric coated Pred Lawlee. It should alleviate lots of the heartburn. Saying that though, heartburn is really common in pregnancy so you may have it regardless.

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mollieboo · 27/02/2013 17:11

cartoon congrats on your scan, great news.

Hello to everyone else too, only a fleeting visit xx

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Lawlee · 27/02/2013 18:09

Thanks Accidental I didn't know that, but actually the Omeprazole has fixed me right up anyway, and not getting any heartburn as a result anymore, yay! Good luck with the pred when it arrives, I'm sure you will be fine on it but perhaps you could ask your DH to keep a general eye on you while you are taking it, if that might give you a bit of reassurance?

Not much news from me except that today I have been getting a bit of mild nausea, which I am strangely relieved to have, so long as it doesn't get too bad! 5+1 from lmp today, so here's hoping it stays mild as the next two weeks go on Smile Oh and I got my 3+ on a randomly leftover CB digi that I had, so that was nice! Incidentally, I've been booked in for a scan at 7+1 but that is from lmp not ovulation, so I'm now hoping that's not too early! When did you all have your first scans?

Hope everyone else is ok, any other updates or scans or anything coming up? Xx

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cartoontrickster · 27/02/2013 18:17

accidental have you been managing to keep ds occupied? what's it like in general living in France? how long till your pred arrives.
lawlee I had a scan booked for I think the same dates as u by lmp. anyway I was actually 6+6 and that was fine. I don't think you need to worry that its too early. do you think u ovulated late then? glad you feel sick (in the nicest possible way)
11weeks tomorrow here. getting closer and closer to that magic 12week mark!

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TheAccidentalExhibitionist · 27/02/2013 19:07

Thanks Lawlee I spoke to my French doctor about any anxiety or insomnia and she will prescribe me some homeopathic remedies if I need them. Homeopathy is massive here. I'm a medic so was taught not to believe in it but it's worked really well for me regardless with other things so I'll take anything she gives me Confused
Cartoontrickster DS has been a bit better today, he's either nose down in front of a computer and can't be distracted or he's hyperactive, jumping around the furniture. There is no inbetween, we tried to go swimming today and despite me trailing round after him making sure he had his bag, it still got Left behind. Still, we got out of the house!
We've thought long and hard about whether we can handle a second child with Autism. Strangely enough if we do go on to have a second child the age difference between them will make it easier to cope with. Not what we hoped for but you've got to think positively about things!

Does everyone intend to go public with their pregnancies at the magic 12 week mark?

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cartoontrickster · 27/02/2013 19:33

glad you got out even if it wasn't a particularily successful trip accidental! sounds like you do brilliantly.
at 12weeks we plan to tell dhs brother and fiance and maybe a couple of close friends. other than that I won't be going out of my way to announce it. I don't have facebook, which seems to be what most people use for sharing there news. ill be more as and when I see people I think. I only have a couple of close friends but have a few others I'm just not as close to, its those people who won't be receiving a text from me next week! dh is very cautious so wants to avoid telling people for as long as poss.

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Lawlee · 27/02/2013 21:19

Hiya, Cartoon I'll be 5 weeks +3 from ovulation when I have my scan, but 7+1 from start of my lmp and I was just checking really that I hadn't given her the wrong date when she said my scan should be around 7 weeks IYKWIM. Sounds ok though, hopefully they'll b able to c something!
Accidental glad too that you got out, and I probably will tell people after 12 weeks too, think it would be a struggle to keep it quiet longer than that - am a bit of a talker! Grin

Ok so paranoia of the day is fear of ectopic today after I had twinges in my left side on and off over the last week. No cure for this fear until I get to the scan I'm afraid. It's at least in part psychological I'm sure because a friend of mine had to have surgery for an ectopic recently, but that doesn't seem to stop me being a basket case lol! Honestly I really am normally a sane person haha. I feel like such an idiot for worrying all the time sometimes Blush

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cartoontrickster · 28/02/2013 11:42

lawlee you nutterGrin I think you worry more than me, which is quite an achievement. I'm sure your not having an eptopic. twinges are normal I've had loads. in fact about half the symptoms I've had when Googled could mean some sort of problem. but obviously I'm all fine. its so confusing. please try not too worry.

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freelancegirl · 28/02/2013 12:13

Twinges are probably the corpus luteum cyst (sp?). I had
Loads with DS. Gotta run xx

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mollieboo · 28/02/2013 14:07

Hi girls, lawlee I had lots of twinges when pregnant, I worry when I have them and then I worry when they stop, that's the nature of this crazy game! Hope you're ok.

I've always followed doctors advice re waiting to ttc after an mc. I've waited one cycle or two depending on advice and I've still mc'd. So I'm wondering whether to wait at all this time or just get on with it. Has anyone else tried straight after an mc?

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cartoontrickster · 28/02/2013 14:38

mollie my gp told me after my first mc. to go right on ahead and try and that they only say to wait to make dating easier. he even said that your odds should be better getting pregnant again quicker. I got preg 2nd cycle after 1st mc and had a blighted ovum. so who knows maybe bad luck maybe my gp wad wrong.
this time we waited not on anyones advice just because we were getting married. I had a 5month break. who knows whether that helped or wouldn't have made a difference. sorry that's not much help! I guess what I mean is I've heard lots of theorys but I just think what will be will be. what has Mr s said? how to you feel about TTC again? I think your feelings of being ready or not count for a lot to.

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mollieboo · 28/02/2013 16:05

Thanks cartoon, seems every doctor's opinion is different. Mr S said to wait a cycle as I'm at more risk of mc if I don't wait. I agree with you though, if it's meant to be it'll work out. I always want to try asap, just the way I am, feel so desperate to be pregnant all of the time!

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cartoontrickster · 28/02/2013 16:07

I understand. but I would try and follow Mr s's advice.

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Lawlee · 28/02/2013 17:20

Hi ladies,

Yep, nutter and I know it Cartoon haha, I like that I can take it as a personal achievement though lol Grin thanks for the advice tho. You too Free, makes me feel loads better!

Mollie we have tried both ways, the mmc took a while to get over so we had a break of a couple of cycles after that but one of my mc was really early so we felt ready to TTC straight away after. Only thing was I didn't actually ovulate the cycle right after as far as I could tell, so obvs my body wasn't really ready. After that we waited one cycle before trying but then we mc again. This time because I was waiting for results it was actually 4 cycles before we tried and it did feel nice in a way to be able to relax and not think about it for a bit. Don't know if that has made a difference. Different people recover at different rates I think tho so it's got to be what's right for you. Did Mr S say why he thought the risk was higher?Have you had your nk cells re-tested i can't remember? It's so hard I know, that desperate urge to be pregnant again is pretty hard to ignore. Hope you come to a decision that works for you xx

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GreenOlives · 28/02/2013 17:25

Hello all.
Just popping in to say that my lovely pred baby arrived on 26.2.13. It turns out he is a DS2 so I am blessed with 2 lovely boys after a lot of heartache! We have called him Thomas Edward and he weighed in at a whopping 10lbs 15oz! Shock Managed a normal delivery just with gas & air although I did need an episiotomy to fit his head out! Shock It is knackering but we are all elated that finally we are a family of 4! Grin Grin Grin
Good luck to each and every one of you - miracles really do happen Smile

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Lawlee · 28/02/2013 17:52

Olives congratulations sooooo pleased for you !!! Hurrah! What a lovely name too Smile

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13Iggis · 28/02/2013 18:13

Olives, congratulations, so happy for you Grin
And I take my hat off to you for delivering him, he is a lovely healthy size!

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TheAccidentalExhibitionist · 28/02/2013 19:00

Huge congratulations greenolives it gives us all hope.

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mollieboo · 28/02/2013 20:12

Huge congrats olives, wonderful news, yet another boy on the thread. Lovely name, what a healthy weight, and gas and air only, what a woman! Yes it does give us all hope x

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Havingkittens · 28/02/2013 23:40

Oh my, Olives, well done on coping with just gas and air! Congratulations, that's wonderful news. x

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sarahs999 · 01/03/2013 08:15

Olives, congrats! I too have good news - pred baby Inigo Henry smith was born on 21 feb weighing 6lb 4oz. We've had a rough start as he was readmitted to hospital after discharge, with jaundice and dehydration, but we are now back home and settling into family life as a group of four. Cannot believe we finally got here. Hoping this gives hope to those of you still waiting for your miracles, just as I had hope when racing this thread for the first time a little over a year ago.

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GreenOlives · 01/03/2013 09:10

Massive congrats Sarah! Grin Glad all is well now and he is back at home Thanks

Just have to say that the gas & air only was purely because DS2 decided to make a fairly quick arrival - after a slow start to labour when I was seriously considering an epidural I suddenly went from 4cm to pushing in about 1.5 hours - no time for any serious painkillers!! Smile

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