TTC or pregnancy on prednisolone or similar part 10

[roseandroli]

We are now on part 10 of this thread! I hope you can all find this. This is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Links to earlier threads:

Part 9: www.mumsnet.com/Talk/conception/a1552980-TTC-or-pregnancy-on-prednisolone-or-similar-part-9

Part 8: www.mumsnet.com/Talk/conception/a1492407-TTC-Pregnancy-on-Prednisolone-or-similar-part-8#33842381

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

Hi all, glad it was interesting, you never know right, it's worth trying these things.

Kittens ooh I hope baby has turned, will have my fingers crossed for you. Funny you should say that about rennovation, I know several of my friends seemed to manage to time theirs with the birth of their baby, either that or actually moving house!

Clabbage thinking of you, absolutely sounds like time to be kind to yourself for a bit! I will be interested to hear your thoughts on diet.

BellyD glad you feel better on gluten free although sorry it wasn't a fix for you. I am so surprised by how strictly some people have to take it, and did not know for example that even crumbs in the butter or off the kitchen side-board can be enough to trigger a response! I had just assumed that since I was relatively healthy it couldn't be having that much impact. I'm still not sure if it is helping or not but figure it doesn't hurt to try! Although its been really tough cutting it out, gluten seems to be in absolutely everything! Got caught out yesterday by supposedly corn nachos that turned out to be made of wheat tortillas. But even soup and crazy things like soy sauce have it in!

Choccy sorry to hear about your lactose troubles but glad that you feel better cutting it out. I wonder if it is somehow linked to the immune/nk issues, they do seem to say that many coeliacs develop lactose intolerance as well so I wonder if there is something immune there. Hope you are doing ok anyway and thinking of you as well.

Sorry this is a bit of a flying reply, on the packed commute home! Xx

Oops sorry Accidental, crossed posts! Wow that sounds like hard work, but well done for persevering and for some success today. It's tough cutting out carbs, they are my favourite food type too so I've found gluten free really difficult, thank goodness for potatoes and gluten free bread, haha. Although saying that I have been quite nauseous on and off recently so it's been a bit of a struggle to force much of anything down myself lol! Hope it helps you anyway, I think you can have a wheat or gluten allergy without being a full blown coeliac, so perhaps that is coming into play here, certainly my symptoms have always been what I would class as relatively mild anyway. Fingers crossed for you anyway xx

Hi to choccy...really hope to see you on the 'list' soon. Thanks for the hug, gratefully received.
On the diet front. I have been on a no carb diet, since nov. I did it to lose a few pounds. I wasn't really overweight, just a bit of control freak, needing to get a grip of something in my life post mc no 7. Anyway, I suffer with both chronic allergies and a touch of fybromyalgia (auto immune of course), both of which have all but disappeared. I have eaten a few more carbs since mc8 (comfort eating) and sure enough both have flared.
In terms of how this impacts on my mc's, I don't know but if not eating carbs improves my body's auto immune responses, that has to be good. I suspect that my most recent mc will prove to be chromosomal so no among of diet changes would have helped but it really is food for thought.

Definitely worth considering I think Clabbage at least I figure it can't hurt as long as I'm still eating a healthy and balanced diet. If you suspect gluten allergy though, it might be worth watching out for ingredients because it is in literally everything, and it's the non-obvious non-wheat things (like soy sauce, salad dressing, tomato soup, lots of things with flavourings some cereals even though they aren't wheat based and ordinary crisps) that have caught me out! Hard to say whether its had any impact or not I know, I have no idea if it will help me, but I'm grateful for a relief of some of the ibs symptoms anyway even if there is no other result. Hope that you are doing ok anyway, thinking of you xx

I wonder if there's a relationship between gluten allergies/frequent UTI's/NK cells, and recurrent MC's? It seems like many of us have similar health issues, whether it's stomach or kidney related. Makes me wish I was a medic so I could do a long-term study.

Hellos to everyone, and hope your baby has turned, kittens!

Hello pred threaders! It's been a while since I logged onto MN. Never thought I'd be able to break my addiction, but time has flown. Tenth thread!

Can believe Kittens is so close now! Must be very excited and nesting like crazy.

Nice to see other graduates lurking still, being supportive during what is a bloody difficult time. This thread was a lifeline for me. I feel slightly ashamed that I fell out of habit with checking in. It's amazing how quickly you can put the past behind you when you finally get to hold your baby.

DS2 is 11 months today. Crawling, feeding himself, desperate to catch up with his big brother. Even though I'm still breastfeeding, my cycles have settled down and I'm beginning to notice the run up to ovulation. After spending so long ttc, being pregnant, waiting to ttc and ttc again I am finding it difficult to ignore the maternal clang in my ovaries. It's been nearly two years since my last miscarriage so I guess time has healed some of the hurt and the idea of trying the get pregnant seems like a simple one. Even though it isn't. And we absolutely can't afford it. But I can't seem to close the book on it yet. So for now our little family is complete.

Hey digital! Some of us old timers started a spin off super ovulation thread but that doesn't seem to have proven itself for many of us ( perhaps only kittens who would prob have fallen naturally anyway) so most of us on there are now considering or in amongst IVF first or second rounds. We really don't know what treatment if any will work for us as immunes is probably only one part of the puzzle. Would be very interesting to follow how you successful ladies get on second time around as we still wonder if it is just that good egg, timing and luck that matters or if in fact there is more to it than that. Glad to hear news from you!

Hi all, sorry I haven't posted for ages, have been lurking and trying to keep up with everyone's news.
Happy Mother's Day to the pred mummies. Not such an easy day for others, thinking of you all and in particular sue.
I am due to be induced on my due date (a week on Tuesday) but have a sweep and induction acupuncture scheduled in next week. Will keep you posted. Still can't actually believe that a baby is imminent (have had 3 years to get my head round this but still don't feel mentally prepared!).
X

Hey digi! Great to hear from you. So good to hear ds2 is doing so well. Ooo to the clanging of ovaries! You never know... I would love a period just to feel that everything was working again. Ds will be 8 months in a week. He wants to chew everything but no teeth yet. Well done on giving up the mn habit. I think if I'd stop lurking on lots of sections as i do, I'd have so much more time :)

I always thought that too duggs after I has that one further miscarriage on the treatment - wondering if it was just a case of that one good egg for other people and why did everyone else seem to take the meds and stay pregnant first time and I didn't, but since that time weve obviously had more losses on the treatment here. Sorry you long timers are still struggling.

Jemima - woo! Here you go! I've forgotten - is this your first child? If so I expect you to disappear shortly into the feeding and sleeping threads in shell shock for a few weeks soon! Do come and tell us and keep us updated. It's a crazy, wonderful, emotional time.

Thanks free. Yes this will be a long awaited first. Still can't believe it! Will keep you posted. Good luck to any others with due dates coming up and even more so to those still going through the process.

So excited for you. Enjoy every minute. Yes even those ones when you're up all night thinking what on earth do I DO with this baby now?! :)

Good to hear from you Digi. Well, I'm not the most domestic type you could hope to meet so my nesting is mostly consisting of me looking round the flat thinking "Oh my god, where the f* am I going to put all this stuff to make space for the baby?" As you can probably imagine, I have boxes and boxes worth of make up, beauty products etc. All the admin stuff that goes with being self employed, stacks of fashion mags that I'm trying to cull. My OH has ripped up half the downstairs carpet and we're having a new floor put down so he is well into the nesting frenzy! I am knackered and uncomfortable with the worst heartburn in the world so I'm making much slower progress than he is. I'm also, suddenly, very hormonal and keep bursting into tears which is good fun.

How's your nesting going Jemima? I can relate very well to your comment about having 3 years to prepare and still not feeling ready. I started TTC almost 6 years ago and I have to admit I'm crapping myself a bit about the HUGE change in my life and how I'm going to deal with a baby. Best of luck on Tuesday. You never know, you could go into labour naturally before then! I will have a scheduled induction on my due date too if nothing happens before. They seem to do that as a matter of course for the over 40s now.

I'm pleased to say that the baby has decided to turn around so that's good news. It's now happily kicking me in the ribs all day and night .

Lawlee, good to hear of your nausea. I hope you're not suffering too badly but I'm guessing it's strangely reassuring! I found sour things helped quite a lot. Tangerines and that sort of thing. Oh, and Extra Strong Mints. I didn't have it this time but have in most of my other pregnancies.

Hello to everyone else. I hope you're all doing OK. I know yesterday must've been hard on a lot of you. It was a struggle for me too, for different reasons. The hormones didn't help, but I got very overwhelmed by the fact that I was finally going to become a mother and that my own mum is now not here to support me or share the experience.

Sorry for the fleeting visit and lack of personals. So much to do here!

Hi kittens, how much longer for you now? Will let you know how induction gos unless it kicks off naturally before then! I was quite nervous about the whole process but have heard lots of positive induction stories on here and from friends. Brill news that your baby has turned.
I havn't really had crazy nesting instincts yet- I was expecting to be frantically cleaning and tidying but quite content with being a lazy beached whale and scoffing cake.
Hello to everyone else.

Yep, lazy beached whale scoffing cakes is pretty much where I'm at too!

I've got just over 4 weeks to go. 10th April is my due date.

sorry if i repeat my self or anything in this post.we have had some bad news today, our baby didnt make it past 12 and a half(ish) weeks. we had 2 early missed miscarriages last year. we saw mr shehata privately for tests and was told i had very high natural killer cells. i was on his treatment plan for this pregnancy. it got us further than ever before. we had several early scans and things seemed to be going well. i was just starting to relax and have faith that our baby was finally coming. at our nhs dating scan on wed we were told the baby had a raised nuchal measurement and there was other excess fluid. our nt results came back very quickly with a 1:40 risk. we had an appointment today with a fetal medicine consultant to find our more info and have a more detailed scan to start looking into what problems baby may have. but sometime over those last few days pebbles heart stopped beating. they found that there was no nasal bone and there was also a lump like a hernia in the stomach.
they have took bloods from us both for testing and will do testing on pebble. we have requested (hoping) that they will be able to tell us the sex.
i am booked in for an erpc first thing tommorrow. part of me is grateful i am still at a stage where they can do this. i am also grateful for the fact that nature decided this and it wasnt a decision we had to make, if you see what i mean.

cartoon, I am so sorry to hear your news. What an awful shock after getting to the 12 week stage and understandably starting to relax a bit.
I hope the Erpc go's as well as it can tomorrow (i have had 2 under local anaesthetic and didn't find recovery too bad physically). I also hope you get some answers from the testing that they will carry out.
Take care of yourself

Cartoon
I will say what I always say - this is just not bloody fair. Wishing you strength for the erpc and the days to come.

Oh cartoon, I am ever so sorry to hear this news. How awful to get such news at this stage, and just as you were about to start enjoying your pregnancy. It seems so terribly unfair.

I hope the erpc goes smoothly tomorrow, and that, when you are ready, you can get some answers from Dr. Shehata and others as to why this happened.

I send you much affection. I will be thinking of you tomorrow morning and in the days to come.

Oh Cartoon I'm so so sorry to hear your sad news. I hope the ERPC goes as well as these things can, and that you get some answers in due course. It's always heartbreaking when we get bad news on here, life is so cruel sometimes. Look after yourself, take whatever time you need to heal. We're here whenever you want to talk.

I'm so sorry to hear of what you're going through cartoon, that truly is shitty . If it helps at all, I don't think there is anything you could've done to prevent what's happened, regardless of your NK Cell levels.

It sounds like you had a lot of markers for Downs Syndrome which often just happens as a random reaction of that one particular sperm and egg meeting and then the reaction that happens when the two fuse. Were you being seen at an NHS hospital yet or just under Mr Shehata's care? You should get a referral to the genetic counsellor at your local hospital so they can do a karyotype screening on the baby to check its chromosomal make up. That way they can tell you, definitively, whether it was a random occurrence or whether you and your partner need further investigations. If they are testing the chromosomes then they should be able to tell you the sex. We decided we didn't want to know when we had the tests, but it's a very personal choice.

The first thing you should do is to get your GP to prescribe you 5mg of Folic Acid and start taking that ASAP as it can help to prevent chromosome problems and birth defects. I had been taking it every day for about the last 4 years whilst TTC!

Shitty as it feels now, the one positive thing is that you didn't have to make a decision to end the pregnancy yourself due to conditions incompatible with life. I don't mean this in a nasty or dismissive way. I've experienced both situations. Although I was unfortunate enough to have two Downs Syndrome pregnancies, hopefully I can at least be proof that there is still hope.

Cartoon, I'm so so sorry to hear that. I have no personal experience or knowledge on the subject but I hope kittens' advice on testing etc helps and that it turns out it was just one of those awful but one off things. My thoughts are with you and I hope the ERPC goes as snootily as possible.

Cartoon that's such tragic news. I had the baby tested on my fourth miscarriage and they do tell you the sex. I wasn't expecting them to but it was just there on the notes they posted to me. I'm so sorry you've had to go through this again.

Cartoon, mirror what kittens and the others have said about feeling for you. My second mc got 12 wks 4 days and was all ok then 1 hr later heartbeat had gone when I went back for final nuchal measurement. A more experienced sonographer would have seen the excess fluid etc. my local epu sent off for karyotyping and as kittens said it was patu syndrome and a girl. DH and I were automatically tested to check it was a random and not carriers ( I doubt u would be or else you'd have probably had more of these by now?). I did take comfort in knowing I had got at least 1 baby past 12 wk mark and my body could at least do that. When I saw dr s after my following mc ( blighted ovum) he said " well u dont know if NK cells would have killed that baby anyway despite trisomy- I now question this 18 mths on as over 12 wks is supposed to be safe zone) cartoon life is unfair but pls remember you've got this far once, you can and will do it again and keep going. I think if we didn't believe this not many of us would still be on these boards. Keep strong.

I think untreated nkc are thought by Mr S to be able to cause losses later than 12 weeks Duggs but not treated ones. Who knows though. Like a lot of medicine it's all unfortunately trial and error. I remember you saying about that scan before - what an awful awful experience.

Oh no Cartoon I'm so so sorry to read this. Haven't been online for a few days as I was feeling a bit rough and just been focusing on getting through the days, so I'm sorry not to have posted sooner. It's so unfair and cruel and what a terrible shock it must have been. I'm so sorry. I hope all goes as well as possible at the hospital and they are able to give you some answers afterwards. I wish I could be there to give you a massive hug Thinking of you xx