Phew, found you! Thanks Sarah for starting the new thread. I just noticed this morning that the old one was full and I have no idea how to make a new thread so I came searching hoping that someone had done it already 
Hope the weaning is going ok for you. I am impatiently awaiting the arrival of the doppler I ordered on Tues. I had a sudden wobble as I have no scan until 20 weeks now and that seems like such a long time! Just hope I can find the HB ok 
Waves to everyone.
Hooray olives you found it! I did wonder if I was going to have a lonely six months with a thread to myself 
.
It must be really anxiety inducing when the scans start to dry up but at least you should feel some movements soon. That's always fun.
The weaning is going ok though I've only done three days on 20mg so far. Today's the first day on 15mg. I had a mild headache last night but nothing too terrible. Must admit to stressing slightly about why it's now ok not to be on prednisolone - I know that the placenta is now developed etc but what stops the nkcs attacking everything again? Anyone who can eighteen me, id be very grateful!
Hi Mollie, good to hear from you. Sorry you were in the wrong spot - they were rejigged a little while ago and I think a few people may have got into the wrong spot.
I've charted for years - can thoroughly reccomend fertility friend (fertilityfriend.com) to keep a track of it all. I now have my charts going back five years (with the odd break where I was pregnant) and it's an amazingly useful resource to point things out to disbelieving doctors and consultants. Aftrer a while it predicts when you will ovulate based on your earlier charts, which is useful. I basically took my temp every morning and immediately updated on my laptop before i forgot - all before getting out of bed! And I used the ov sticks too, and CM. Obsessive, moi?
It took me four goes to get pg this time so fingers crossed for you on your next cycle.
Thanks Jemima - I've taken it to be on the safe side and I'll wait till Monday for Cyclogest
Hello all!! Thanks sarah for setting up new thread. I posted earlier on the other thread not realising it was full...doh!!
Are you with Mr S sarah Why are you not weaning till 12 weeks? Is that because you are on the lower dose? Lovely news on the nuchal too
Duggs Im like kittens fell relatively easily before steroids. Started steroids October.....nothing! Had a few months break then BFP just before starting ivf. Definately feel they affected my cycles.
rainbow I'd definately crack on with the steroids
Well done with the weaning megmum and your sound words of advice
battery if your there, you maybe busy changing nappies How long did you stay on clexane and aspirin for?
Well had my first scan today and the local hospital. Measuring 6 weeks with a flicker of a heartbeat Tried not to get too excited, been here 4 times before!! Im sure with the others ive bled before now so trying to see that as positive. I wish I could fast forward 6 weeks!! Ive never got past 9 weeks, so roll on 3 weeks. Seeing Mr S in 2 weeks for next scan and lipids.
Feeling a little sick although trying not to go too mental thinking about my symptoms or lack of them. Still knicker checking and nipple flicking
Could someone move me onto the 1st trimester please? Havent a clue how to do it!!?
Buster - 4 mc. VHKC (pred 40mg, lipids, clexane, cyclogest,aspirin) 6wks
Anyone recommend a hotel in Epsom? or nearby?
xxxx D
Bookmarking
Hello!!
Thanks battery will maybe have a chat with Mr S when I see him for my next scan. I have factor V like you but on my treatment plan it says clexane till 12 weeks and aspirin till 20 weeks
Nice to hear from you battery and free - good to hear the boys are keeping you busy.
My hair kittens looks terrible!!
Congratulations abney - I would think you should be able to get the lipids tomorrow. Especially if you live close enough to get there.
I had a bit of a wobble today, feeling tired and scared!! Had some discharge (sorry tmi - I hate the word discharge!) today. It looked like it was the pessary but more creamy/beige!! Anyone else had this? Inspected it for a while - didnt look like blood but definately not white! 
Ive been trying to alternate between front and back 
but my bum is getting sore!! Oh dear, things we have to do!!
Hope everyone has had a good weekend.
xxxx D
Hi Buster thanks for the info. I do live near. I think I will go to work but be prepared to drop everything and get a train from London to Epsom. It should only take an hour to get there. Re those pessaries they are a nightmare. I found half of one came out one day and I thought it was something else until I remembered. Everything is frightening so try not to worry. The best thing to do is not look. I got out the shower and saw browny water on the floor and then after studying it on my hands and knees I realised it was tea bag juice 
Just a quickie to say congratulations to Abney - fabulous news! Hope you get the lipids sorted today.
And another very quickie from Crete over a rubbish network to say a massive congrats to abney, I'm so pleased for you
my faint bfp must have been an evap . A turned up in full force yesterday. Back on the letrozole 
xx
chasinrainbows welcome, and so sorry that AF has turned up.
Abney great news on your bfp. Wonderful news. Did you manage to get your intralipids today?
Nice one kittens
Enjoy the lipids
xxxx
Kittens - that is great news!
PQ - well done for keeping your legs crossed and holding tight, my friend is still holding onto her little one too, I am amazed at how well babies can hold on in your situations, but every day counts big time.
I am not sure whether to take my name off the list or not. I have basically brought a halt to ttc at the moment, I am trying to get fit and lose a couple of pounds of extra weight that I have gained over the on/off pregnancies. I am starting a new course (well I actually have two to chose from and struggling to decide which is right for me) having finished working away from home. I have not got to the point of saying never and no more babies, but as I am approaching 45 the chances are reducing dramatically anyway. I will continue lurking here for a bit to follow how you are all doing, if that is ok with you all.
Great news Kittens!
Yay kittens!! Delighted
PQ hope you're doing ok there?
Hi clabbage welcome. AF turned up this morning - just in time for the dr s anniversairy !! Can't believe how impossible it is to get pregnant these days- considering getting drunk and hanging out in sleeZy bar for 25 yr old in vain hope I can become impregnated just because I've been on here sooo long !! Yawn
Big hug to you duggs. To try to entertain you, imagine me sat at work having suddenly developed a rash on my upper arms that right now is doing that horrible tingly-itchy thing such that I want to SQUEAL!! Side effects eh?!
Welcome clabbage. Sorry to see you here. Am v impressed you've read through all the threads!
And another big hug from me too duggs, I rather know how you feel, just hit my one year Mr S anniversary a couple of weeks ago and thought, bugger this, I had more success getting pregnant before I started seeing him! LOL to your 25 year old comment ... I have to say that similar thoughts fleetingly and irreverently crossed my mind on occasion too
clabbage Welcome to the thread, so very sorry for your devastating losses. Like iggi said, it's not until you finally do feel "that's enough" that you really can give up, I think - otherwise I'd have given this all up about 6 months ago, with my 45th birthday looming ever larger in 4 months time. Until that point, I guess you throw your all at it, and try to take heart from the wonderful success stories on here.
A fellow geek! I was given hydroxy after one mc on the pred, but it was still a 'new' thing then, think only free had had it before I did (and choccy at the same time as me, I think). Been on it almost 9 months now, no side effects that I know of at all. Don't know if it's doing anything to quell my NK cells either, mind you, but hoping! Fingers firmly crossed that this scan will put the shadow of your last mc to rest, that it's a good one!
Oh Mollieboo, - I wonder if someone took her 3 children away would she be "counting her blessings" that she has a nice house and a husband?
She may have been trying to encourage you, but it didn't exactly work.
Oh cornflakes, I'm so sorry . x
duggs has been to the Zita West clinic. They do sound very thorough. Why don't you PM her? She's a mine of information and always very helpful in sharing her findings.
cornflakes So very sorry for your sad news I think it's duggs who has also been to Dr G, she's definitely the mine of information that kittens says she is!
Cornflakes xx I went to St Marys and found them to be really thorough x don't forget you can go on the NHS to St Marys which is what I did. I think ( not sure) that you can self refer? Give them a ring when you feel up to it xx much love to you xx
sue so sorry to hear what's being going on. I do know of people who have had kidney problems picked up at 20 weeks and the pregnancy has gone on with a minor op to sort things out when the baby arrived. I think the fmc is the place to be so I will be thinking of you and hoping that you get some positive news this week.
I had a scan at fmc last Monday as my hospital wasn't offering me a growth scan (not indicated apparently...) and it was fine save for the fact that the Dr freaked us out a bit by saying I should be an inpatient and being monitored with daily scans . He was Greek and said that is the policy for PPROM in Greece - he then realised he'd upset us and said brightly that he was sure I'd be fine. I just have to accept that this is the policy in the uk and stick with the outpatient monitoring but it is doing my head in (and blood tests 4x week are doing my veins in...)
clabbage - thinking of you
kittens I am v nervous for you about your nuchal <helpful> . Am sure you'll work out the best dates to do things. It's just me but if dates were tricky I would be happy with any of the drs there doing the nt - if it was in any way borderline you could always ask prof nicolades to review the scans at his convenience? They take a million shots and store it on cd.
Hello!
Sorry to hear your news cornflakes and clabbage
sue I hope you get some reassurance from your scan today. Its really not fair to get this far and have that thrown at you. Like others have said you can manage perfectly well with only 1 kidney, I hope the other kidney is a healthy one. I have everything crossed for you.
kittens glad you got your scans sorted. These decisions are so tough especially after what you have been through before.
sarah thanks for doing the list, makes me feel a bit more positive seeing my name up there. Totally agree with you too about the NHS and NKC. I havent quite got there yet but when I do have this baby (!!) I was going to write to the consultants I have seen. The whole process is scary and I have felt quite alone. In the fact of having to research, organise and pay of all your own treatment.
I had some pinky discharge yesterday Really hope its not the start of the end! Rang Louise today, she said to double up on progesterone and stop aspirin. Got scan and lipids Friday. Having scan locally Thursday to see if alls ok. It really doesnt get any easier!!
I was sooo constipated Saturday....I was late for work! Had to say my car wouldnt start, how embarassing?!
xxxx
Hello - hanging my head in shame here as I lost my place on a previous thread and then didn't mark it in the next one, so basically dropped out of touch. Sorry
I just wanted to let you know that baby James was born on the 29th August, weighing 6lb and 6oz at 36+5. I developed sudden severe pre-eclampsia so they induced me; a brilliant med-free birth which made up for feeling pretty dire for the last few weeks of the pregnancy. Sending sticky thoughts for those still in the scary, scary early days of pregnancy and congratulations to those whose babies have arrived! x x x x
cornflakes and clabbage I hope you are both doing as well as you can be in the circumstances.
frozen congratulations 
lovely news!
buster hope spotting has stopped.
Sarah Yay for being pred free!
Sorry for not name checking everyone, am on phone and can't check back <have memory like a sieve at moment!> but love& luck to all. X
Sue, what dreadful news. I too will pray for a miracle. I can't believe this is happening to you much love and hugs xxx
Pq congratulations, hope the days pass quickly till you get to take him home.
And just seen FrozenNorthPole, how lovely
Massive congratulations PQ Lovely news. I hope Jonty goes from strength to strength so that he is ready for home in a few weeks x
Clabbage what you're describing we know on here as Roid Rage
Talking of Pred helping with allergies/hayfever etc, I'm rather ironically now on 25 mg Pred to relieve my bad allergic reaction to Humira. Talk about going round in circles!! Will be interesting to see if just one dose has made any difference to my TNF alpha.
sue thinking of you today - wish there was something I could say to make it easier but just know you're very much in my thoughts.
Abney I shan't tell you not to worry but it could be implantation or cyclogest.... Fingers crossed and feel free to mental on here, we have indeed all been there with good and bad results.
sue I'm so very sorry that's awful horrible news.
Ari nope. He won't risk it as another dose would likely give me an even worse reaction. Anaphylaxis is not somewhere I want to go...! The blood test is more just out of interest therefore. I'll have a chat with him tmrw and put a plan together to get started again. Back in the saddle soon either way and <shitscared emoticon>
Abney, I had a gush of watery pinkish blood quite soon after my BFP and was convinced it must've been a chemical. I hope all is ok for you.
Sue, I'm so so sorry. I will PM you in case you are not really looking in on the thread. I know this can be a difficult place to check in to with what you are going through. I just wanted you to know that I got an immense amount of support and empathy from the support threads on the Antenatal Test/Choices boards here. They really have been a lifesaver for me in the last few years. I'm sure you are absolutely reeling trying to get your head around what life has just thrown at you.
Thanks for the replied about the pred. A lovely "benefactor" has offered to send me some that she is not using .
Choccy, that really is ironic. Sorry to hear you've reacted badly to the Humira. I hope you're OK. Sounds like a nasty drug!
Ah yes, I'm very familiar with Roid Rage! Raaaarrrrghhhh! I'm pleased to say that I only have a very gentle case of moonface which probably came on about 8+5 and I am in the process of weaning off so hopefully that will deflate soon.
Sue No words really but know that we are all thinking of you at this awful time
Abney I really hope that the bleeding stops and all is fine. I would definitely start using the Cyclogest in the other entrance in case that is the problem. I had a little bit of bleeding from the back entrance due to the cyclogest but thats far less scarier than from the front!
Clabbage All my miscarriages have been natural so I can't really advise on the ERPC option, it's a difficult one. Still hoping for a miracle for you. x
Hello ladies just updating with a bit of what may be useful info for some struggling to get a bfp. After testing DNA fragmentation with dr gorgy back in may and my DH having 33% which put us with a 1% chance of a live birth poor fertility potential he was tested and treated for a minor infection ( asymptomatic) and cleared. Re test is supposed to be 3 mths after hardcore anti b finished as sperm reproduced every 90 days. Decided to do a mid way 1 and half month test just to see if any change and he got a 22% result which puts him in the good category. Anything under 15% fragmentation is excellent but generally not seen in top many 41 yr olds. so we r happy to have this news and gives us some hope that we might get a bfp one of these days. Test costs £250 wish we'd done it a year ago!
Hi to all.
No miracle from me, started to bleed last night and no HB at scan today. Am guessing I will have little choice but to mc naturally as I am unlikely to get through to Monday. . utterly gutted even though I expected it.
Sorry for no personals, but hoping that Mercator is keeping the flag flying with a new pred baby in her arms x
Congratulations merc some lovely news. Well done honey. Do let us know her name when she has one won't you?!
sue the curse of all this information that we have access to these days. Sometimes I sit and think about how life would be if we knew less about what could be or happen to us and it just happened and as humans we would deal with whatever it was as best we knew how. It is the weak position such strong ladies like us are put in because we've been battling for so long getting to this stage you must have nothing left inside you to fight back with ?? Obviously we are all unique people, but the empathy that runs through this thread at times can send a shiver down any one as we read of an unbelievable heart wrenching stories. It doesn't seem real because I guess, the parental deaths, cancer, miscarriages, infertility and stories like yours - although part of life - are not usually witnessed so close up. The thoughts and feelings we share on here make this a unique place to be able to share and empathise but does all feel magnified and intensified and pretty bewildered at times. It is like you briefly jump into the place of the person at the time in your head and quickly jump back because it is too horrific to be there? All that we do know is the human mind and soul seems to have some innate capacity to keep going, some survival mechanism. Like a marathon runner. You will keep going and at some point the place you get to will be a little less dark a place than you are now. Kind of like doing time. We all have our versions of it. . . So we are sending you encouragement to just push on and what ever path you end up down you will have made the best decision you could at the time. Huge hug to you sue you will get through -this we are designed to somehow. X
Congratulations merc and mr merc wonderful news. A little girl to balance out the boys! Hope you are both getting on well. x
Hello lovely ladies - thank you for thinking of me.
Oh my where do I begin........
Sue I am so very sorry you are having to endure this. for the first time in a couple of months I popped in to see the news last week and was so happy for you. And now this. I cannot imagine how your feeling, numb no doubt and on the floor with worry. I am thinking of you and hope with all my heart that things will be clearer on Tuesday and that you can make a decision based on what's best for you and your family.
I put a post on a BC website yesterday and this is how I feel at the moment after FINISHING CHEMO!!!!!!!!!!!!!!!!!
"Wow don't know how or if I can express what I feel tonight. My words may be inadequate but all I know is tonight I just have tears rolling down my face with relief.
Relief chemo is over. I had my last Chemo (3 fec/3tax) last Thursday and I am a week on. I thought the emotions might spill over as I've been quite together for the duration of the chemo. The first time I have spoken with BC nurse was the other day.I didnt' think I needed her, I thought I was tough. Whereas actually it was quite nice to hear her soothing tones over the phone, sympathising with my stupid worries over surgery to come and radiotherapy. Saying that it's taken a week to get hold of her.
What i'm trying to say is I feel free. Free of drugs. Free of injections (last one last night). Free of picc lines. Free of being wiped out. Free of painkillers. Free of being bound to my bed. I never want to feel vunerable again. Ever. It's felt like being imprisoned since May.
I went out on my own this afternoon, no chaperone in case I felt unwell. Just me in my car with music really loud. Do you know how normal I felt? I think only those that have been through this will. it was like a revelation, kind of rejoining the human race!
All the cliches are true:
I will slow down, live for the moment, appreciate what I've got and take time to enjoy it.
I will never take my health forgranted again.
I will be forever thankful to my Mum and Stepfather whom have done everything I have needed and been there there without question.
I will cherish my darling boy who has just taken all this in his stride.
I will hold dear my husband and friends who have just kept things normal for me.
And thanks to my gorgeous kittycat whom seems to have a sixth sense of when i'm down and has kept me amused through all this. He is now a leggy rascal who has grown up whilst I've been in bed the last few months. I never knew pets could be so comforting and perceptive!
This is starting to sound like an Oscars acceptance speech so i'll wrap it up!
I know I am not out of the woods yet. I still have to wait for the final results after surgery but I feel the debilitating bit is over and i can only feel physically better day by day from now on.
I feel so happy to have got through it and proud of myself and can't wait to restart my life (Someone warn me if this is some kinda post chemo euphoric afterglow!)
thanks for reading hope I haven't bored everyone stupid."
Cxx^
Sorry about the massive post but this describes how I am feeling now. I now have surgery on Oct 4th which I am lucky at the moment to be getting away with a Lumpectomy as the chemo has shrunk the lump by under half and surgeon said I was in the 1/3 of women who respond that well. But I am not ruling out a Mastectomy yet as it depends on the testing of products afterwards. but nothing nasty showing on the MRI I had last week so hopefully be ok. Then it's onto Radiotherapy everyday for 3-4 weeks. But this is all going to be a breeze compared to chemo. I've done the worst bit. It's been gruelling and the most frightening experience I have ever had.....but I've done it!!
anyway enough about me how are you all???
Free,PQ,Merc Congratulations!! I know I've missed a couple of babies in there forgive me. You did it and I hope it gives hope to the others ladies who are still trying.
Hey until the miscarriage thing I had never posted online about anything. But one thing is for sure there are some amazingly strong, articulate and sassy women out there and that includes all of you and I feel honoured to have got to know you.
Jeez just off for another blub!!
Where do I start?!
sue Life is so very very cruel sometimes Like others have said hopefully the experts in Oxford can supply you with more information. How the hell can anyone make that decision?! Feeling and seeing him move and looking so perfect. There must be something they can do!!! Thinking of you x
clabbage sorry to hear your news keep strong x
merc congratulatioons!!! She sounds perfik!!
xx
Hi everyone,
Wow, this thread is some emotional reading! The care you all have for each other really shines through. What a wonderful example of how online forums can really work to be supportive and a mine of information. I would like to add my thoughts to those going through difficult times and decisions and congratulations to those with recent happy news.
I am 7 and a bit weeks pregnant at the moment after having had 6 miscarriages since my daughter was born in May 2008. All of these were very early, missed miscarriages (no fetal pole seen on scans) except for the first one which got a little further.
I am seeing Mr Shehata at New Life in Epsom. We have had 2 scans so far which show a heartbeat so we are really hoping that the natural killer cell route is working. Mine were diagnosed very high so I am taking 40 mg prednisolone and will be having second intralipid transfusion next week - if a scan shows that all is still progressing.
Although I am feeling so much more positive than I have before, it is still a difficult road to tread, especially since I am 41 now so all the extra risks that brings, so would really like to join this thread
Cate
Sue It is such an awful position to be in and it must be so hard when DH has very clear ideas about what he thinks is the best option. As others have said you just need to be armed with as much information as possible before you reach any conclusions about the way forward. I hope tomorrow's appt helps. Thinking of you. X
Snoopy Your post moved me to tears too - you are an amazing woman and Im so glad the chemotherapy is over. In my job (A&E nurse) I am constantly reminded
how precious life is and how we should all embrace our blessings. It sounds like you and your family (inc kitty Snoopy!) have pulled together through this awful time and I have no doubt this will continue through the rest of your treatment. I wish you all the love and luck in the world, please do drop in from time to time and let us know how you're doing.X
Things appear to be going well here. I have been listening with a doppler every few days and baby's HB always puts a big grin on my face! Still suffering with sickness but hoping that is going to fade away soon! Have quite a sizeable bump already 
so have given in to the mat clothes - anything to be comfortable!
sue My heart really goes out to you, it's such an awful situation you're facing. I understand what your DH is saying but at the same time, I so totally understand your thoughts around what if your baby actually ends up ok with the one kidney. After all, we only need one kidney to live perfectly happily and normally, so it really depends on how much damage is done to the other kidney and how much perhaps it will repair/sort itself out between now and when it's born. I have read so many stories of people being given impossible odds on the BC nuchal/other tests board but then ending up with perfectly healthy babies that I honestly believe anything is possible. I so hope the guys at the John Radcliffe can give you some hope, and please do come here to rant/vent/share, we're all here for you. Huge hugs for you and your wee babe.
snoopy So very happy to hear from you, and what excellent news too, I'm so pleased for you! Now take it easy, one day at a time, look after yourself and please don't be a stranger, I'm certain we'd all like to keep right on hearing from you!
cate A big welcome to you, so sorry for your losses and fingers crossed for the health of your new pregnancy. Successes on Mr S's plan are right here to be seen, let's hope you're one of them!
cartoon I have to say if it were my own wedding I wouldn't stop trying for a baby, but then you have to understand that I have an age factor to take into account. I understand the need for a baby, but if time is thankfully on your side, then as kittens says both weddings and TTC (especially on this treatment) can take it out of you emotionally. Ultimately it's down to what you feel you can handle, best of luck in whatever you choose!
Olives your comment about your doppler also brought a smile to my face. So pleased things are going well for you!
/waves to everyone else, supposed to be working but having a quick read of MN, of course
Clabbage So sorry to hear that
Abney Great to hear that it has settled, sounds like implantation to me.
Kittens Fabulous news!
Mollie My BFP wasn't until 12 dpo, you've got plenty of time yet! I never went back to Mr S at all after getting my treatment plan - NHS have sorted me ever since!
youve made me smile about mr s's weight he does have a bit of a belly doesnt he!
Ah yes indeed, we're all happily contributing to Mr S's holiday fund
Great news kittens
mollie fingers crossed for a bfp - why has he prescribed you lipids till 32 weeks? I have vhkc, he said I'll have my last one at 16 weeks.
He definately has lost weight! I saw him Friday.....maybe he's lost weight for a holiday
Im having another scan locally on Thursday, if thats good that will be the furthest I have got to. Mr S measured me at 8+4 on Friday, heartbeat 182bpm.
Im feeling very bloated, my jeans are soooooo tight!!
Find it so hard to positive sometimes, maybe trying to protect myself. When talking about future events or the coming months I cant help but say "if I am still pregnant then". Its been very hard keeping it from friends, dont want to jinx myself!! Have you told anyone kittens, abney?
Counting down the days.
Hello to all xxx
Great to see some positive scan news from Kittens and Buster
And really glad to hear about Jonty, moving in the right direction.
Hope you're ok Clabbage, and of course hoping for better news from Suemays.
Wonder if his doctor told him to lose weight ..
Excellent scan news sarah and buster for last Friday's scan, always great to see positive news, and good luck for your scan tomorrow buster.
And iggi loving the new nickname
Great scan news Buster and sarah!
Mollie I didn't need intralipids as only have high NKC as opposed to very high. So my NHS consultant just prescribed the meds and gave me lots of scans in the early days - poor Dr S would just be going to Butlins on my contribution to his holiday fund
Sue Hope the appt yesterday has helped with the difficult decision ahead.
Clabbage Hope you are recovering as well as can be expected.
So sorry Sue Words are all inadequate.
Sue what a dreadful time you are having. I can't imagine what you are going through . I hope the next few days go as well as they can for you. Much love to you and your family xx
So sorry things have not progressed a bit faster Sue. How awful for you
Hi free, I don't know if you saw my post last week but I have been in touch with PQ. J is doing well, breathing on his own but still at the hospital until he is strong enough to breast feed rather than being fed through his tube. PQ can't post from the unit as she's not able to use her phone.
My scan is tomorrow. I'm in a bit of a state. I'm so anxious and in the meantime I have so much family stuff going on too that my head is fit to explode what with all that's going on. My grandmother on my dad's side died yesterday and there's a lot of family politics and people not speaking to one another so it's all a massive headf* and the last thing I need this week, as I seem to have ended up the go between. I have a constant cracking headache coming off the pred too which isn't helping matters. Totally overwhelmed, hormonal, scared and missing my mum like mad .
Good for you kittens those figures sound promising. Big milestone you've reached. Enjoy the peace of mind honey x
sue my heart goes out to you, I'm just sorry I don't have the words to express exactly how I feel. Scarlet is a beautiful name. Look after yourself and take the time you need. Thinking of you.
Kittens fingers crossed its all confirmed as ok on Friday. I'm sorry I don't understand all the odds, never having got that far, but it certainly sounds good to me. Fab news after the time you've had. Hope you're managing ok with all the family politics...
BellyD please please don't not have humira because of the reaction I had!! Allergies are essentially your immune system overreacting to something. I have no idea if you'd be more likely to be allergic to humira with your history than otherwise. Google it and you'll find rashes are common. Whether as all over as I had it I don't know. Talk it through with Mr S, but assuming you go ahead, just keep an eye on your body and how you feel. Happy to describe things more on PM if you like.
Waves to all
Sue you have been through such an awful time. Scarlett is a beautiful name. I wish I could just wrap you up in a warm protective bubble. It's so awful that you are going through this xxx
Kittens...
I have just posted this on the Super Ovulation (upgrade Dr S to first class cabin) thread..
Was thinking about the central London meet up we are planning for Sat 27 October? 1pm for a spot of lunch. Perhaps Southbank as pretty central for everyone who can/wants to attend. It is sometimes a good opportunity to those of us facing these challenges to get together... whether it be struggling to even get pregnant now, or the more complex issues and diagnosis we've discovered from further testing, the new drugs and treatment that some of us are trying out etc.
Crikey it was almost a year ago I joined here and we had few meet up's last Autumn/Winter.. unfortunately there are a few ladies who were also there with me, troopers that we are.
Those who have shown an interest will chose a location and then we all rock on up. It's like an internet date..the rest of us sit looking for lost looking women of "child bearing" age sipping caffine free, non alcoholic drinks like that is actually going to help. A few bottles of red have been known to flow as the conversation gets started..
That's fantastic Kittens!
Sending lots of PMA your way Abney Xx
Hi Coopde welcome to the thread! Well done for knowing the lingo already with PUPO I don't post as often as previously as I have a little Pred Baby tugging at me much of the day but I started the thread way back (maybe a year ago?) and there are now, well, loads of us! And yes good that you took it into your own hands and found Dr Beer/Mr S.
WOuld love to chat more but gotta go! Am lurking though xx
Hello!!
Great news kittens - is this where the relaxing starts?!
Hope alls ok Tues abney - totally with you on the symptom checking! But they really do come and go.
Welcome Emma - fingers crossed for a lovely BFP!!!!
Thinking of sue and scarlet xxx
All ok......I think!! Not had a scan for nearly 2 WHOLE weeks!! Got my nuchal on Wednesday, feeling very nervous! How long do the blood results take to come back? Do they tell you on the day about scan results?
Now on 25mg on Pred, weaning going ok - I think my stomach is strinking?! Worried as I dont feel constipated anymore!! Still waking up at stupid o'clock!
Hi to everyone!
xxx
Congrats hopeful !!! xx
Mercator Glad to hear all is going well
Hopeful Lovely news, congratulations!
Buster Good luck for Weds! I know exactly where you're coming from on the gap between scans - its my 20 week one on Fri and it will have been a massive 12 weeks since my nuchal one! Thank god for the doppler which has kept me sane(ish) in between
Waves at Comedy, thanks for your good wishes.
abney Said it on the SO thread but I'm so very pleased for you, a great relief, and crossing fingers all continues to go ok. When's your next scan? And thanks for asking .. I'm trying really hard to stay away from the tests as they'll only drive me mental, but as you know I'm not too hopeful, and I will probably test again on Saturday which is one week past when AF was due. If the FRER is still faint by then - well, I know the answer. I have seen all this before, this is almost identical to what happened in Dec last year, but of course as I said I'm not above praying for a miracle
sue It's good to feel you can be doing something positive, and as duggs so rightly says, you have proved you have good eggs and Scarlet won't be the last, I'm sure of that. Sadly sometimes an otherwise beautifully-developing baby can have something wrong with it, and no amount of effort on your part can do anything to influence that. That does not mean it will happen again - and well done to your GP for referring you to John Radcliffe for a future pregnancy, as frequent reassurance scans can make all the difference to your peace of mind. 40 is definitely not old to be having a baby (just look at abney and kittens for their successes, if not others!) and your chance will come again. I'm mad for still trying at 44, but even I still hope that there's at least one good egg still in there - it's just having the persistence to keep going until you get to it.
Not been to look on SO thread but, err, Ari BFP???
But I know what you mean about faint lines... Hcg test??
Hey choccy, good to hear from you! It's a bit of a saga (isn't it always?) and I don't like to bore people, but it seems a repeat of what you and I both went through last Nov/Dec. What I call a medium-faint FRER BFP at 12dpo last Thu, exact same strength 3 days later at 15dpo, and again at 16dpo. No lighter, no darker; clearly visible but not strong. Louise suggested to have b-hCGs done when I was supposed to be having ILs yesterday but after speaking with Mr S yesterday morning, Louise said that he'd said no, don't bother with the b-hCG tests but just go for ILs and still have a 6/7 week scan. shrug I did what I was told, I had the ILs (along with having a huge sense of deja-vu), but I am of course almost certain I just threw away £350 . Faint FRERs repeated over 4 days cannot be a good thing.
Not meaning to be pessimistic, just taking my own personal experience into account and trying to look at it realistically. Dec's MC started 2 weeks after I go the first faint BFP, so I guess I have to wait probably another 2 weeks yet to find out for definite.
I have started weaning off steroids (from 9 weeks) with great relief as per Mr S's instructions but having done a little reading about weaning off, I noticed that most people start the weaning process at 12 weeks not 9. I should finish weaning at 12 weeks. I am just wondering why this is. Did anyone else start at 9 weeks? Not that it would stop me at this point anyway as my face is so large it can be seen from the moon, never mind moon face
Oh lord, it gets worse. I misread our LAD results, it seems our LAD results are very bad too - seems I have virtually no 'blocking' antibodies against OH and as such my body doesn't recognise any embryo with him as 'foreign but ok' - and as such, goes all out to kill it off (again).
<quote>
As half the embryo’s DNA comes from the mother, the theory is that if the body cannot recognise the father’s DNA, it will treat the embryonic cells as ‘altered self’ and trigger an aggressive NK response which will increase NK numbers, NK activity and/or TNFalpha levels. High levels of anti-paternal antibodies should mean that the body recognises embryonic cells as ‘foreign’ but ‘benign’. Low levels of anti-paternal antibodies are associated with repeat miscarriages (which are believed to be the result of NK and TNFalpha responses to embryonic cells), and are also thought to be associated with repeated failed implantations.
</quote>
Bl**dy hell, just as I thought things couldn't get any worse
Ari that's really saddening to read. So much for the benefits of being soul mates/ very similar to one's OH eh?! Also for the bfn this morning. I know you'll say you were expecting it but still...
I also take on board what Duggs says about other experts going deeper with their standard tests. From my perspective I'm prepared to give it another go with Mr S now I'm on the cusp of That Time again. Also I don't want to waste the half dose of Humira! But if the same thing happens again then time is marching ever onwards and I owe it to myself to explore other options. Saying that I'm not sure I'll be able to bring myself to do some of the more aggressive things. DH and I would have to decide how much we want to put ourselves and my body through...
So much to think about. So unfair! Big hugs to you Ati. It really sucks. Take some time to consider your options xx
Hi everyone, thanks for the welcome
So sorry to hear your news mollie and Ari. I second the wine theory. After my 5th I think I drank solidly for a fortnight. Pretty unhealthy but whatever it takes to get through in my opinion. Sue I've been reading back through the thread and was in tears reading your posts, I am so sorry for your loss. I'll be thinking of you on the 16th.
Duggs thanks, I will pm you. I agree with what you said about Mr. S. I was quite disappointed with his approach and thought he was full of bluster and didn't really know what to do next. Seemed to be grasping at straws which doesn't fill me with confidence in the treatment. However, because I'm about to ovulate and my clock is ticking loudly I think I'll defo try the steroids for the next 2 months and hopefully get one in the oven before xmas (famous last words). In the meantime I'll have a look at Dr Gorgy info....
Hi kittens and anyone else I've missed!
Just very quickly to say mollie I'm so sorry to hear your news. I did same as you a year or so ago - had a chem pg without realising I'd conceived. Don't feel silly. It taught me to do tests from about 12dpo and keep testing until ~15 dpo or so when you'll probably have at least a faint bfp if you're pg but if you haven't done more than 14 days on Pred you can stop without weaning. It's juggling the testing and Pred basically! And keeping FRER et al in business. Btw clearblue digi are notoriously unreliable IMO.
Hope that makes sense.
Thanks Ari
kittens I'm sure all is well though I'm afraid I cant help with the pains... Speak to someone at your local epu? Or NHS direct? Or pm free, or one of the others who've had babies and may not look on here much any more. I'm sure they'll be able to help.
sue I'll be thinking of you on Tuesday. And agree re the red wine drinking! Xx
Hello ladies, sorry to read all the bad news over the last few days, indulgent weekends definitely sound like a good plan to drown sorrows and treat yourselves
Kittens sounds like round ligaments pain to me so please try not to worry. I bought an Angel sounds doppler from ebay (was about 20 quid) I have been using it successfully since 13 weeks. Took me about 20 mins to find it the first time but since then (and knowing roughly where to try) I've always found it almost immediately. Its been very reassuring. And I discovered today I have an anterior placenta which means doppler is usually more difficult.
Had my 20 week scan earlier - all looks perfect. To say Im relieved is an understatement
I hope that this thread sees another run of good luck soon - its overdue. Xx
Hello all!!
Sorry about your bfn ari and your results - why does everything have to be so complicated and unfair!!
Sad for mollie too
Congrats to greenolives - it must be such a relief to get to 20 weeks!!
emma - it is so very tempting!! I'm like you I could never wait, like a child at christmas!!
kittens thanks for thinking of me! It does sound like your uterus is stretching, which you can kind of understand when you think how much room that little baby is going to need. Although I know its all still such a worry, you just want someone to tell you its going to be ok.
I have had a bit of a scary week I was at work last Monday and passed some weird mucous plug Managed to get scanned at my MAU - all fine, got very emotional - the baby was moving all over the place! 11weeks!
Went in for nuchal on the Wednesday, they decided it was actually a bit early so wanted to wait till next week. Anyway went to empty my bladder after they decided this - blood!!!! Not loads but a decent amount mixed in with some pessary! Nice! I was passed myself, I told the midwife, who I think could see i was so worried. The sonographer said they would scan me quickly just to check all was ok - it was thank god!! But now I'm soooo worried that was the beginning of the end!! I have always started off with a bit of bleeding before the baby has died I was hoping it was just the pessaries that have caused some irritation so have been using the back entrance. Ive had no more bleeding but my constipation has gone!! And my nausea has eased off which I know they say they do around this time. I have my nuchal booked in for Tuesday. So very nervous. I thought getting to 11 weeks was such a milestone - I wish I knew what was going on!! The sonographer said as I have a bicornuate uterus the blood may be coming from the horn that isnt been used?
Sorry for long post!!!
D xxxx
coopde a bottle of Rioja sounds more appropriate I know how u feel. Words can't describe the crashing feeling after going through IVF plus all the intrallipids and steroids and clexane injections so you look like a battered woman for it to fail. The fact dr s is soooo confident can be a little misleading - tbh there are other things even in his world of immunology that are wrong and need to be addressed or wrong and can't be - I'm sure not intentionally but sometimes his approach can seem a little cruel. Have you been pregnant naturally or assisted before?
coopde hearing you loud and clear. It might comfort you slightly as it did me when a friend gently reminded me we all have 20 to 25% ( 25% if under 30 and no body is under 30 these days) chance of conceiving naturally each month. It isn't very high as we're not designed to be high multiple reproduces as our survival rates are so high. So 19% isn't too far off a natural cycle. BUT after going through a round I thought I could handle it after all the immunology stuff. I Totally underestimated it and would say is one of the most difficult things to go through. ( grief etc aside) that just comes after when it fails. I would ask again about your NK results what did they come back as? I discovered other issues with dr gorgy as he is much more in depth than dr S and tests other things like hidden infections and sperm DNA fragmentation - all sent off to america.
It's difficult to say really, I can only speak from my own personal viewpoint after having been with Mr S since my third miscarriage July 2011. If I knew then what I know now, after all I've been through since that first appt with Mr S, much as I rate him (and I do), I would have gone to Dr G instead. He believes in, and tests & treats, for so much more than Mr S. I wish I had had all the testing I've subsequently had to research for myself and specifically request or else go off on my own to get done elsewhere .. some of which Mr S still pooh-poohs the results of but Dr G treats for.
Obviously this is only my own personal view, and what is right for me may not be for you - but If I were doing it again, I'd be going straight to Dr G. YMMV
Hey I'm with ari wish I'd gone to dr g a year ago would've saved me about £12k and 12 mths of failed SO, IUI, IVF, FET if it wasn't for sue not sure where I'd be. Best of luck have a think as is v personal.
Happy holidays kittens! Have a fab time. So pleased all going well for you, and you too abney.
sue I have been thinking of you along with everyone - I think you said scarlet's funeral is on 16th? Sending you and your family all my love
Hi to coopde and all the other newbies I haven't said "hello" to before
I have been reading the board a lot but have not had much time to post. Had a horrific shock with little ds last week - we had been discharged from nicu and home for 4 nights when he stopped breathing while I was breastfeeding him. He was blue and floppy and Dh and I thought he was gone. Luckily I had done a resusitation course in nicu so I did mouth to mouth while Dh called 999 and by the time the paramedics arrived ds hard started to breathe again. Another three nights in hospital and the diagnosis seems to be a type of feeding apnea that can affect prem babies with reflux.
I have had a pretty hard time coming to terms with what happened. I was fine for the first couple of days - just adrenaline I guess - then the shock set in this week. I don't mean to upset or scare anyone with this story as it is pretty much your worst nightmare after such a struggle to have a baby - I guess the positive thing is that the CPR video I'd watched had stuck in my mind and if that encourages anyone to do a life support or first aid course then that would be great!
Ds is asleep on my chest now - he hasn't been left alone for a minute since we got back from hospital. Luckily he likes x factor
cartoon bit of advice from one of the 'old timers' if it's not working for you within 6 mths then look for further testing dr gorgy or dr taranissi or dr ndwuke as dr s only does very top line testing ! He won't be upfront about the other options but a few of us on here are learning the hard way am afraid and still learning. Hopefully you fall into lucky quick camp but if not dont hang around he will offer carrots of hope but be strong not long for you now and mini moon conception sounds idyllic !
sue sending you lots of strength for today. Welcome new folk. Not sure i can help re catching up with development tbh? Someone on here may know but don't want to offer false hope. co if there is a bedside manner competition dr S would win hands down. He's very front of house if u know what I mean? Dr G is not. He's also difficult to understand with a thick accent. However he offers more in depth testing so I kept saying that to myself when trying to listen. Best move for me as he discovered new issues that dr s isn't even aware of. If dr G finds nothing don't be too harsh on yourself you r just looking for answers. Meet up in London sat 27 oct south bank exact venue tbc
sue thinking of you and baby Scarlet today xx
PQ Words fail me, thanks to all that's listening that you did the resus training and what a horrible shock you've had! Thank goodness your little boy is ok, and poor you for such a bad time. Big hugs.
euro (with a new name?? love it!) welcome back! So pleased to hear you're feeling relaxed and rejuvenated, and echoing your wish that your baby is waiting for you.
Welcome cartoon and mo - hope the wealth of experience the ladies have on here can help you!
abney So good to hear of your scan, sounds like all is going exactly as it should do. Excellent news!
coop Extra testing can never be a bad thing - remember you don't have to take anyone's advice, but it's good to know what you're playing with, if you know what I mean. I've heard Dr G's 'bedside manner' can leave a lot to be desired, but that doesn't matter - you are just getting tested, so that you can then make informed choices. Hang in there
Nothing exciting to report here, seeing Mr S again tomorrow but doubting he will have anything new to say with my test results and I've no doubt the latest miscarriage will be attributed once again to my age. Ho hum.
/waves to everyone, and kittens hope you're having a fantastic holiday.
Mo welcome to the thread but so sorry you are having this uncertainty with the pregnancy. And I guess there is no way they could get your dates wrong either. I do have a friend who found the medical profession were adamant she was two weeks behind where she should have been, due to the size of the foetus, but she knew for sure she wasn't. The baby was fine and just small all the way through. But I know that you have probably looked into this a lot.
Pregnancy on 40mg of Pred isn't too bad at all. I mean the Pred ain't much fun, and you might get a moon face, but it's nothing to worry about.
Welcome back cartoon and sorry you too are having this stressed. As one of Mr S' success stories I can only vouch for him but it seems, from what we have found out here, that people who fall pregnancy relatively easily have more success on his programme than people who find it difficult or start to find it difficult for other factors like age or similar. Not that any of us are very young! As for worrying about your levels - I was in the top 5% of levels he ever sees in the clinic and I had a successful pregnancy on the second round of treatment (the first was a mc as it just didn't grow - could have been 'one of those things' could have been the NK cells). It was my fifth pregnancy and he was pretty sure I had a very slim chance of having a successful one without treatment. The steroids did not affect my chances of getting pregnant. Oh I also DTD every day (from around day 8-10 until day 20 - exhausting!) for three times of trying and all three times got pregnant straight away. Give up alcohol?! Are you mad? Although I did limit myself to three drinks on a night out just in case and of course stopped when I got a BFP. What stage are you at now?
I always thought I was going to be that one person who it didn't work for too. But it did. But now I am worrying that I will be that person who has a terrible tragedy etc etc so really we just can't win. I know it is easier for me to say now I have a baby. I do hope you all get where you want to go.
As for having another one DH has never been sure about more than one and the treatment worries him. However the treatment really isn't that bad at all, once it works! I have said that if we chose to go down that route I will allow myself three pregnancies before giving up. Having had recurrent miscarriage I feel I could cope with three - weird as that sounds to anyone who hasn't been through it! I know that there are people on here who are trying for number two and more so you never know when I might start to feel that way about a second one too, but at the moment I feel very lucky to have one and I know what it feels like to be that person thinking - will I ever be able to become a mum, so am grateful to be here now.
Thinking of Sue today and love to everyone else xx
bit of a waiting game free i have aprox 2months just over till we will make a start ttc again. Thank you for telling me your story i feel miles better! dp tells me off for being too negetive about things. the questions about future pregnancies come from him more than me (see he's much more positive!). The costs for us would be a big factor in things though. shame since we agree that we would love 2 or 3 kids. oh and thank god you said that about the alcohol i think i will need it to calm my stressing down hehe
Just dropping in to say I've just found out you shouldn't take hydroxy within two hours (before or after) of any indigestion relief drugs. This includes omeprazole. I only found out as I went to a different pharmacy this time. I don't know if its a side effects issue or if one negates the effect of the other. Those who are on hydroxy as well as Pred and who therefore take omeprazole be aware!!
Sorry for lack of personals I'm not up to date on the thread so hope all is well
sue Big hugs, you're an amazing woman. As olives says, do give yourself time to heal and be gentle on yourself, you've been through hell. We're here when you feel you are ready to try again, some of us seem to be here for the long haul! Sending you lots of healing thoughts xx
Great news from Cate and Sarah!
PQ Im not surprised that you're nervous about going out and about but good on you for biting the bullet! Lovely to hear that Jonty is doing well
All's well here - im getting quite a sizeable bump and baby is squirming around lots which is lovely and reassuring! I have a bit of SPD but its manageable at the mo.
Big waves to all.
Sarah that's such brilliant news about the scan - hurrah! I hope you're managing to feel positive in a 'I'm having a baby way. Such a great milestone. And so good to hear things are going way for you olives! So, so good to hear.
I echo what Delta and others have said Cate in that FMC are really thorough and very reassuring. I hope you get good scan news.
PQ don't blame you for being very nervous! I will come drag you out and we can have a walk in the park or stay in and drink wine now we are able to
My little Pred Baby is 14 weeks today, can you believe it! We've just come back from him having his second lot of injections and he's just over 15.4lbs. They say he's very long! Although I have nothing to compare it to of course being my first
Love to all and hope we continue to get good news xx
I had a scan at the FMC today and they put my risk at 1 in 1159. My bloods were better today (hCG was 1.8 instead of 2.38 anad the PappA was up to 1.3 from 0.89) and everything looked normal on the scan, heart ok and nasal bone present. Factoring in the fact that my background (walking in the door risk) was 1 in 58 according to them, I feel quite reassured and probably won't have any more testing. Amazing how much difference a week can make! The nuchal measurement was 2.4mm so it has doubled since last week but apparently that was ok as the baby has grown too. Thanks for the advice on here. I am really glad I went to the FMC even though I waited around at least 3 hours It is a shame really that the NHS don't offer more comprehensive scanning as it can cause unnecessary worry.
Hey there brown, good to see you again! Very interesting to hear of your experiences on DHEA, since mine seem to have been completely different. I took it for 5 months, had no effect on CM (but then I don't have a problem with that), no effect on sex drive, no effect on ovulation (always day 14 anyway except after a miscarriage, as now), and made absolutely no difference to AFs, which have been much much lighter since miscarriage last December. It did however make me sweat like I never have before, made my skin WAY greasier, I had a lot more hair loss than usual, and I started getting noticeable amounts of facial hair where I didn't before (fortunately being blonde it was only really noticeable to me!). Didn't seem to make any difference to my follies, either. I stopped taking it in the end as the side effects I was getting made me wonder increasingly whether my own natural levels of DHEA-S were already fairly high (remember that the supplement only really works well for those whose DHEA-S levels are lower than optimal) and perhaps my natural levels of testosterone also. I'm glad I tried it out, but I don't think it had the good effect I was hoping for, and hopefully is having for you!
I do have lots of spare DHEA (50mg and 25mg capsules) which I'd be happy to give you but unfortunately I can't make the meet-up so I don't think I can help as I'm at work at the mo so can't get some in the post to get to you by tomorrow. Unless you live within easy reach of Woking, in which case we could work something out!
Cate fantastic nuchal results! I know if I am ever lucky enough to get that far I'd forgo the standard NHS nuchal scan and would go straight to the FMC, they're so good. What a relief for you
/waves to everyone
Hello, not been around much as I've been away but dipping in and out of the thread.
PQ, gosh, you poor thing! How traumatic and scary to have that experience, after everything else you've been through. So glad all is well with Jonty now. You have inspired myself and OH to do a first aid course too.
Sorry for lack of personals, bloody knackered after getting up at 6 to make my appointment at NLC! Mean to have a snooze this afternoon but various phone calls and surprise visit from MIL have put pay to that and now I'm getting ready to go out! Just wanted to report that I had my final appointment with Mr S today and he happily discharged me from his care into the hands of the NHS after a good scan measuring 16+3 . Blimey! My stomach is slowly expanding and it's all starting to sink in.
Ladies I can't seem to find mas on Internet so shall we stick with strada on south bank for 12.30. Unless anyone finds it.
Have a lovely time girls. I remember our first Pred Thread meet up around December last year - involved lots of wine for those who indulged! But that was an evening gathering of course. It is so good to be able to meet up with people who are going through the same thing.
Welcome SWLdn too and any other newbies I have missed. Am the thread founder, for those who are wondering who I am, started last year after several mcs and going on Mr S' treatment. Lovely to see other people joining and things going well for people too. Hurrah to the expanding waist line Kittens!
Lots of positive vibes from me (not baby dust of course, but you know what I mean xxnow, if just ONE of you could do the feckin' list
oh sorryabney congratulations on scan news
Morning all. Well I'm having the wierdest month on prednisolone. Got a very very feint bfp on first response a few days ago and have since tested negative on clear blues including today. I've had light spotting for the last few days (pinky brown which I thought might be implantation) then a very light red bleed yesterday which has stopped. Feel very periody. Does this sound like a chemical pg? Strange that this has happened during my first month of steriods or just bad luck? Has anyone had anything similar?
Hope everyone is doing ok. Happy Halloween 
It is a bit tumbleweed-y round here isn't it? I'm afraid the lack of people ttc or even in the first trimester dissuades me from posting. No offence to those further along obv (I know you've all been there!) but when you're back at the starting line for the umpteenth time, its nice to know there's a good few others at that stage too. Hope that doesn't read like I'm having a go... Its lovely so many have been successful in getting past that 9-12 week point
Feck knows what's up with me this month. No smiley ov stick so not sure if I've ov'd at all or just I didn't start ov testing early enough. I'll test at the weekend for entertainment and am doing 25 Pred as usual just in case.
All I can say Coney is to keep testing and maybe get your hcg tested to get an accurate picture? Some ladies have had lighter periods on Pred too. Someone even had a bfn that's now a bouncing baby so anything can happen!
Waves to any other ttc lurkers.
Unenthusiastic wave from me too. . Nothing much to say. Can't seem to get pregnant anymore over a year since last natural one and since dr S so hoping something happens soon ( been saying that for 3 years) yawn. Still a lurker though!
Another feint positive this morning. Don't know why I bought first response, wish I'd just got a digi one with a yes or no! Don't know whether I'm coming or going. Will test again Sunday (with a digital!) when officially a week late, then call Louise at the clinic for advice. Limp wave to all you ttc'ers
I've added myself to the list:
The babies are arriving!
Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 – 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs
Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle), Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 - Baby boy Sebastian (ELCS) at 39 weeks 17/07/12 8.11 lbs.
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 40+1 wks EDD 24/07/12 Baby boy born 26th July, 7lbs 5. EMCS
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 38+4
coleyoz - V High NKC. DC#2, BFP cycle2, 41+1 - Baby born??!
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin. Baby boy James born 29/08/12, 6lb and 6oz at 36+5
PQ77 - DC#2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) Jonty (Jonathan) Edward arrived by c section 10/09/12 4lb 15 / 2.23 kg 33+1 wks
Mercator - DC#2 V High NKC, (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks) DD arrived by ELCS 14/09/12 7lb 2oz
Hopefulfor2nd - High NKC - TTC#2. – baby here name?
Dunnit - V High NKC - , IVIG, Cyclogest and Clexane. baby here name?
3rd Trimester
HelterSkelter (IVF and immune therapy) 29+6
2nd trimester
Bertha337 - High NKC, 1 ectopic, 2 mcs, est 23+2
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. 23+1
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc. Est 23+1
sarahs999 - DC1 followed by 5 mcs, high NKC (Pred), plus clexane twice daily for Factor V Leiden and Prothrombin, aspirin, cyclogest, intralipids. 21+2 wks
Jemimapuddleduk (33). 3 prev mc's over last 2.5 years between 7-11. Not tested for NK but prescribed 20mg pred, fragmin, asprin and cyclogest on NHS. 19+5 wks
HavingKittens, 4mcs, 2 TOP TS21, 7th pg, 5th SO Cycle, VHNKC, 40mg Pred, Hydroxy, Intralipids, etc. 16+5,
Buster - 4 mc. VHKC (pred 40mg, lipids, clexane, cyclogest,aspirin) 14+0
Cate - DD followed by 6 mc, VHNKC 40mg pred, intralipids, 13w
1st trimester
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosome, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),- super ov. 11+6
TTC – ASSISTANCE - TTC 2ND or more
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
Arianrhod - TTC#2 DD then 6 mcs 5-9 wks (3 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxy) – super ov
Brownstag - High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, -super ov and DHEA
LJ71 - two older DCs, 7 mcs, 3 on treatment. SO, pred, hydroxy
TTC – UNASSISTED - TTC 2ND or more
Iloveblue - under Prof Quenby for HNKC. 2 healthy boys, followed by 20 week loss, 2 early mcs, 15 week loss.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Mollieboo - 5 mcs, 1 DS (lost my little angel), high NKC - pred, intralipids, aspirin, clexane, cyclogest
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks, one loss @ 22 weeks. V High NKC. (Pred & Hydroxychloroquine)
TTC – ASSISTANCE - TTC 1st
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF - SO
duggs1976 - TTC#1 -4 mcs all 7-12 weeks. - TTC #1 – last chemical on treatment/IVF in April. SO
BellyD - V High NKC, MTHFR homo, TTC#1, 5mcs, SO, hydroxychloroquine
Carebear1 - V high NKC
Coopde -TTC 3 years - thyroid issues, High NKC, ivf #1 Bfp m/c 5 weeks, ivf #2 Bfn. Seeing Dr G for more tests before trying frozen embryo. Meanwhile still 'unexplained' infertility.
TTC – UNASSISTED - TTC 1st
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w)eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
London - High NKC, April - mc on treatment.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
Gransol - Seven mcs - all losses between 6 & 7 weeks
SWLondonnanny - 8 early losses hydroxy, thyroid issues, family history of autoimmune disorders
ConeyIslandBaby - 5 mc around 6 weeks, normal NKC but on Pred, progesterone and intralipids on bfp
Hello, just wanted to pop in to say 'hello'!
Not much going on here, got my final intralipids tomorrow, I will then be discharged from Mr S. Been keeping myself busy, still cant quite believe ive actually got this far.
To all the TTC's - keep going!! I really struggled to get pregnant this time, I hadnt been pregnant for over a year and was just about to start ivf when I fell pregnant naturally. I think the steroids affected my cycles so I think it helped that I hadnt been on those for a while.
Waves to everyone!
xx
I fell down the wet and rainy stairs going into Oxford Circus tube this afternoon . Feeling rather bruised and my ligaments feel somewhat tender. Fingers crossed all should be OK as I only went down about 3 and landed on my bum but I'm feeling a bit twingey. I've just ordered some Doppler gel so when that comes I'm going to have a prod around with the doppler Mercator kindly send me as my next scan isn't 'til 23 November.
Thanks kittens and brownstag
Poor you kittens - at least you landed on your bottom!! Its scary though! I fell at work a couple of weeks ago, landed on my knees and put my hands out. You cant help but worry but they are so protected in there - all nice and cosy
On the belly front kittens Im a bit like you, more obvious when I stand up but could just look a bit fat!! It disappears on a morning and gradually gets bigger over the day.
Had a bit of a scare yesterday having my final scan and lipids. Louise was scanning me, I could tell the heart rate looked really low and could see she was worried. I felt soooo sick! Anyway after what felt like hours, was probably seconds, he wriggled and it came back upto normal range. She thinks he was most likely sleeping, she checked with another consultant and he said thats pretty normal. She checked with a doppler later on too. Bloody hell.......just when I thought I could relax! Anyway got my doppler out this morning, all hunky dory! Phew!! Also had midwife appointment today so asked her to check too!! I promised myself I would only use the doppler once a week......I think it may become a daily event!! How many times do you normally use it kittens? Hope the gel turns up soon!!
D xxxx
Glad to hear everything is going well Buster despite a slightly scary start to the scan. Its so encouraging to hear about you ladies that have been through the treatment. I was interested in what you said about the steroids messing with your cycle; I've had the wierdest month, with in-between bleeding (which I never normally have) and the longest cycle ever.
AF arrived this morning, at 38 days! (normally max 35). I'd been getting feint positives on First Response (which I will never use again) but negatives on clear blue digis. What is all that about? Anyway, this will be our 2nd cycle under Mr. S. so need to give it a really good shot this month, my poor DP . We've conceived within 1 or 2 months previously, I hope the pred doesn't change that.
Secretly quite glad to have a period (strange girl), as I get to use my mooncup for the first time. It takes a bit of getting used to I must say! But still, saving the world one sanitary product at a time.
Kittens sorry to hear about your fall, sounds painful. Hope you are feeling ok.
Hi to everyone else!
kittens know what you mean about the chafing! There's a fine line between taking enough off so it doesn't chafe, but leaving enough on to be able to get hold of it when you need to! I'm sure I'll get used to it, not sure I could manage a public loo yet though.
Love a nice bruise on the leg, I always seem to have them (accident prone and clumsy) Hope the tenderness eases, I'm sure that's down to stretching at 18 weeks along. Things must be growing at quite a pace down there!
Hello, where is everybody these days? I have to admit I don't post as much as I used to because I don't see much from any of the others who are pregnant so it doesn't feel like the "community" it used to be. I understand those who are struggling with TTC not wanting to be on this thread for a spell. I went through the same myself, which is sort of another reason I don't post much as I don't want to make people feel either.
Mind you, I do need a bit of a grumble. We've started telling people about the pregnancy over the last couple of weeks. It's starting to show anyway so it's easier to come clean. I've mentioned to a couple of people that it's been a bit of a struggle to get to this point and that I've lost a good few before now and somehow this makes them want to show their empathy and understanding of my losses by telling me that their friend/family member etc had a stillborn. I mean, really? WTF? I've just started to relax about possible miscarriage, got past the CVS etc. just got the anomaly scan to get my knickers in a twist about next week and somehow people think that reminding me that it could all still go horribly wrong is a good idea . That's when they are not somehow compelled to tell me their pregnancy or labour horror stories!
kittens yes people love to share an inappropriate story! People are so keen to show they empathise which is nice but sometimes it means they are not very good at listening - eg people hear that Ds was nearly 5lbs when he was born and then launch into a story about how that is massive compared to xyz's baby and then fail to hear the bit about the steroid injection not working and his lung collapsing (with these people I don't even bother to mention the fact he stopped breathing last month I just smile and say he's perfectly fine).
Managed to burst into tears at a breastfeeding "support" group yesterday as everyone kept on commenting on how small he was and felt so down that he's 9weeks and only 7lb. Slow progress. free just let me know when is good for you - I am usually free mornings. Breastfeeding.
People might not feel like it but there is a lot of empathy here from the pregnant people/ graduates for the ttc struggle (we are good listeners! ) Please do share.
Amongst others I would love to hear from scooter
Thanks PQ that's a very sweet thing to say . I hope there are people lurking though it is awfully quiet here at the moment...
I have no experience but those competitive mothers sound awful. We've talked about useless relatives and lack of thought/empathy before and it's depressing to see it doesn't end when you've got your baby! People are crap sometimes aren't they? Surely as long as DS is doing well against his own starting point that's the main thing?
Anyway, big hugs to you and kittens for being so strong in the face of stupidity
I was thinking we haven't heard from scooter for a while too... If you're out there I hope all is well...?
PQ I'd have been so tempted to retort "why is your baby so big?" Seriously though, why do people think they have a right to make personal comments, I never understand that! Your baby is growing exactly as he is supposed to, as long as he is healthy then everything is as it should be!
thread not thrad!!! Wretched iPad keypad
Good luck Kittens! I am sure it will all go well. Looking forward to hearing about it when you can post.
PQ that woman is a tw@t. Also don't worry about DS' weight, you know premmies catch up eventually. I know it's hard when all they seem to do is measure size at this stage. My friend was just under 3lb and he is now a 6ft2 accountant Did you go to the running thing on Tuesday? A few of my NCT friends are going there now and I really want to go - just have been too busy. Would be a good opportunity for us to finally get together!
We have a baby, all present and correct!
They have changed the antenatal clinic at UCH since all my horrific experiences too so it was like going somewhere new.
I hope your cramp eases up Belly.
Really good news Kittens So happy for you.
And I hope some better luck will start to spread around others on the thread now, it seems to have been a very hard time of late.
That's brilliant news kittens!
Really sorry to hear that choccy I have no clue about IVF im afraid but I hope someone else will come along and point you in the right direction. Xx
Well choccy, you know what, I think if I had the spondoolies that's exactly what I'd be doing right now. I know it's not what any of us had hoped for, especially when, like you, you get pregnant fairly easily, but you know, if it works, what the heck! Your grit and determination is fantastic to see, even in the middle of MC hell, you are yet another inspiration to the rest of us Please do keep us updated with your IVF progress, I for one would be really interested to know how you get on.
On another note entirely, while being completely and painfully relevant to choccy, it struck me that here we are again in the run-up to Christmas and for the last two Christmasses I have been in the stages of a miscarriage. Wondering what, if anything, is going to happen this year, but here we are, third Christmas in a row without any joy. All our determination, researching, religiously being as healthy as possible, taking all the right supplements/medications/whatever, and no better off at the end of it all. Makes you think, really.
Hello!!
Sooooo sorry to hear your news choccy It must be so frustrating, especially as you get pregnant so easily. I was going to have IVF before this pregnancy as my local consultant thought that would be be our answer. He wasnt a firm believer in the steroids so was just going to give me intralipids. Thankfully I got pregnant naturally and luckily with the steroids and intralipids I still am. A friend of mine who had 4 early miscarriages had IVF and carried a little boy to term!! She was never tested for NKC so didnt have any of the treament but for whatever reason IVF worked for her!!! Hopefully it will for you
xxx D
Great news on your 20 week scan kittens
Thanks ari I have heard about the new vaccine. Ive just had my flu vaccine too! Hope that christmas and the new year brings you something very special!
Hello to everyone else!
xx
choccy I'm so so gutted for you. I'm so sorry that it has happened again. And d&v to boot. I am surrounded by friends who have had successful ivf pregnancies at the moment. I know ivf is tough but you've already been through so much already I know you will get through it.
kittens wow 20 weeks that is fantastic. I know that with your history even with your good amino (or was it cvs?) the 20 week scan must have been incredibly nerve wracking.
merc - poor you. I have been very lucky that with a nearly 4 year gap ds1 does not view ds2 as any kind of competition, just some kind of sad tiny doll that can't do anything useful. I am also lucky that as ds2 is still so little I can walk around breastfeeding him on one arm leaving one hand free to turn pages of book, play Lego, tune tv to Disney channel etc for ds1...
Just to echo what olives said...this time last year I was at home refusing to go to Christmas parties and turned off the lights and hid in the basement when the neighbourhood carol singers came around. I was so low and couldn't see the light at the end of the tunnel. So much can change in 12 months. i really wish everyone on the thread the very best of luck for 2013 xxx
Hi rainbow So sorry to read of your loss but congratulations on your pregnancy. I've got no experience of taking Prednisolone at your stage of pregnancy but I was on 25mg from my BFP until 14 weeks gone. I had some issues with insomnia and I got a bit more hairy, I think they were probably the worst effects of it for me! I would imagine that the side effects would be much less on a 10mg dose so you may not notice too much hopefully. Good luck with whatever you decide 
Xx
Hello rainbow, welcome to the thread! So sorry to hear about your dd1. How wonderful to be 26 weeks pregnant although I am sure you're very nervous. It sounds like the consultant is quite forward thinking so you're in the best of hands.
I think all of us here have taken the pred early on, but don't be nervous about it as its really not too hideous. I was on 40mg and the worst of it was hunger and a bit of moon face which soon went once I tapered down. I imagine you won't get many side effects if any. Some people actually feel better than normal on them! And don't worry about any negative effects on the baby, there won't be any.
So happy for you, feel free to come chat ant any time!
duggs What a fantastic place to do a detox retreat, what an excellent idea! Hope you're thoroughly enjoying it - well, as much as you can enjoy starving - and hope it does you good, I'm sure it will do! No good news from me, I'm afraid, but thanks for the thought anyway
Hi rainbow and welcome to the thread. I've not managed to stay pregnant long enough to comment much on the long-term effects of pred, but you're on a very low dose and thanks to this thread there have been several ladies who have successfully taken higher doses than that with their now-successful pregnancies. I wouldn't worry about it, just fingers crossed that all goes well for your baby and you, and so very sorry to hear about DD1.
/waves to everyone
Hi everyone,
I haven't posted much due to being sensitive to those struggling at the moment but wanted to let you all know that after 6 miscarriages since my daughter's birth in 2008, I am now over 20 weeks pregnant with a healthy little boy at 41 and a half . I hope this inspires some people to keep going. I had 40 mg prednisolone from a positive test as well as all the other Mr S things like progesterone. I am off everything now except aspirin which I have been advised to take until 34 weeks. I wholeheartedly believe that this success was down to the steroids and perhaps a bit of luck that a good egg cropped up.
Hope everyone has a lovely holiday season.
Cate
x
Congratulations Cate! I am 23 weeks now too. I don't know about you but every time I see my bump in the mirror I can hardly believe it! (I'm another old bird here! 43 in a few weeks )
I've just gone back on the asprin actually. Strangely, Mr S told me to stop it at 20 weeks but I've been referred to an obstetrician in the recurrent miscarriage dept at UCH, which I was quite impressed with, and he told me that it's recommended to take them until 32 weeks.
It's gone quiet again here. I hope everyone's doing well.
Hi free, ahhh, queasy and bloated, feelings I know oh so well these days!
I do hope for a better birthday this time, but can't be sure. My granny is in a bad way now. Has been for a couple of weeks. She had a couple of bad falls, banging her head both times. Also, I think, has had an infection but not sure because at the time the nurses came to do bloods she was a bit hysterical and freaked out and wouldn't let them near her so we don't know for sure. Last week we reached the point where the District Nurses came to put into place Palliative and End of Life care meds and we really thought we were going to lose her but she seems to have rallied. Still in bed and sleeping a lot of the time but her appetite has come back and she looks brighter. She is talking even more nonsense than ever before, considering she has dementia so I think that's probably got worse. We are having to just go with the flow as we have no idea how this is going to pan out at the moment. My auntie thinks she'll be around for Christmas. The nurses said she may even be holding out to meet the baby, but apart from speculation we have no idea! I'm pretty overwhelmed and emotional at the moment what with that, my hormones and the impending anniversary of losing my Mum. It's all affecting my ability to get work for myself at the moment too which is depressing me. Poor baby is getting a lot of stress in there!
Oh, I was on hydroxy but came off it at 20 weeks.
Come to think of it, I have drugs up for grabs if anyone wants them. Cyclogest, small amount of Progynova, Pred lots of 5mg but out of date, a few 25mg, Tamoxifen (from the Super Ovulation). PM me if anyone wants them, it is Christmas after all 
You've had such a horrible horrible year. Are they checking for a urine infection? I found out last year that it can cause all sorts of mental confusion in the elderly. Please get them to check. I hope she holds out until the baby is born but it is also lovely you've been able to tell her and she seems to have absorbed it.
Loving the Christmas drug sharing
Bonjour Accidental and welcome to the thread. So sorry to hear about your losses but well done you for making that tough decision to keep going and to try the pred. You won't know unless you try and there have been some very good success rates - considering those of us who have found this treatment have had such struggles and aren't what you call 'normal' when it comes to getting pregnant and keeping babies. Fire away if you have any questions and we can be your virtual support. Some of us even have A level practically fluent French
Yes kittens - just think that this time next year when you go through the horrible anniversary and also your birthday you will be doing so with a little pred baby sat on your lap.
Hello ladies and welcome accidental ! I'm in Singapore now waiting for DH to fly in. Is raining so am watching movies and having room service. Had good relaxing, interesting time in Bali. Even went to a medicine man of of the local Balinese girls I befriended. Amongst the pigs and chickens he said my uterus was tipped to the left. Not a huge issue but can make things slower and not good in eastern medicine terms. He moved it with his hands - massaging - ( while whole village watched my fat wobbling about and mouths were wide open). Anyway he said it was now 100 degrees and prefers 180 but I've been reading about this area out of passive interest. I'm drug free now and have been since October so feeling like my old self again. Immunology hasn't been my solution so far but I have made some lovely web friends on here so i am still around. Expecting IVF in spring time again ( a year on since last one).. So really making most of this time. Waves to everyone - sue and choccy and pebbles and ari how r u?
Sue just wanted to say that I feel for you. I can imagine how hard things must be with constant reminders everywhere all the time. I so hope that AF turns up before your due date so that at least you can then be in control of your next move. Will be thinking of you over the coming weeks and hope you find the strength to make the right decision for you and your family.
My mc happened naturally in the end, all pretty painful but so much better than an erpc. Bit awkward when I bumped into someone i knew at the EPU when i went for a follow up scan. We haven't decided on our next move but my sister told me she had secretly been to see the GP about being a surrogate for us. She is 43 and has high blood pressure so the answers was no, but I totally lost the plot to think she would consider doing something as amazing as that for us, especially as she doesn't have children herself. I always knew she was a special person but DH and I were/still are blown away by her kindness.
I hope all those who have had successful journeys this year have a wonderful first Christmas with their little ones
Happy Christmas to those of us still trying to fulfill our dreams. May 2013 be our year
And to those with growing bumps, enjoy your excuse of a growing tummy to indulge over Xmas
HAPPY CHRISTMAS x
Sue I hope AF does turn up soon so you can make a decision about how to proceed now. It must be extraordinarily difficult to even contemplate starting all over again and it's something only you and your DH can decide on. I hope whatever happens that 2013 is good year for you and your family.
Belly What a lovely message, happy Christmas to you too and I hope 2013 is the year for you to have a bump/baby I am glad you managed to avoid an ERPC.
Sarah Glad to hear you are well - it must feel very odd to have a birthday fo