TTC or pregnancy on prednisolone or similar part 10

[roseandroli]

We are now on part 10 of this thread! I hope you can all find this. This is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Links to earlier threads:

Part 9: www.mumsnet.com/Talk/conception/a1552980-TTC-or-pregnancy-on-prednisolone-or-similar-part-9

Part 8: www.mumsnet.com/Talk/conception/a1492407-TTC-Pregnancy-on-Prednisolone-or-similar-part-8#33842381

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

[cartoontrickster]

morning all.
hope baby olives makes an appearance soon!
lawlee glad uve got the heartburn sorted. its so hard those first couple of weeks you just have to take a day at a time. my spotting still comes and goes every few days or so its never much nor do I have pains/ cramps with it so no ones too worried. I finally booked in with the NHS midwife on thurs. she booked me a reasurrance scan on tues morning. I also have a scan with Mr s on Fri then my NHS 12wk scan is the Wednesday after. so lots of chances to see my bean coming up! thanks for thinking of me.

[TheAccidentalExhibitionist]

How exciting GreenOlives the very best of luck for an easy delivery.

I'm keeping fingers and toes crossed for you cartoontrickster

I've been mainly hovering around the thread. It's so wonderfully positive to hear good news story.
After trying the Hydroxy prescribed by Mr S and getting light sensitive eyes I've decided to try to the Prednisolone. I'm relieved he agreed eventually to prescribe it to me, even though he said it was my risk to take and he would take no responsibility for it (I have a suspected stomach ulcer, not confirmed though).
Fortunately, after taking the NKC results to my local French GP she is also happy to prescribe Pred. Between us and a sympathetic Gynae I've found down here, I think I'm going to try and get my next pregnancy managed locally. My french GP is amazingly supportive but a little baffled by everything!

In an ideal world I would fly monthly to see Mr S but the cost involved in that would limit us to only one 'try' by managing a pregnancy locally using his treatment plan, if the next pregnancy fails at least we will be able to afford to try again.
Has anyone else done this? I'm sure there are disadvantages..

So, we get to start TTC after the next period eek!
After making a conscious effort to not conceive for a year to let my body and mind rest and recover, I'm looking forward to some intensive SWI

[Wigglewigglewoo]

Hi guys, first post here and wanted some advice. I've stopped seeing mr s for various reasons. Good to see so many BFPs on here. I'm currently 18 weeks with DC2 after 4 MCs. I'm still taking cyclogest as was too scared to stop. Can anyone advise on whether you just stopped at 16 weeks or weaned at 16 weeks?
Many many thanks

[freelancegirl]

Hello all. I saw on FB that all had gone well with Sarah and that her little Pred baby was finally here :) I didn't want to say anything and steal the thunder from any announcements but she hasn't been on as I imagine she is rather busy...so thought I would just say.

Hi Wiggle! Congratulations on the pregnancy and welcome to the thread. I think the advice is that you can just stop the Cyclogest but I think I cut them down (literally) in half for a few days, just being a bit paranoid. You might want to try that if you are also in the paranoid camp - like a lot of us recurrent mc folk tend to be! But essentially I think the extra progesterone is just a back-up and actually is probably only helpful until the placenta has taken over anyway - so 18 weeks is fine to stop.

Nice to hear from Cate, Choccy and others we haven't heard from for a while. Great news about the pregnancy Cate! Really good to hear it is all going well.

Olives due date!! Wooooo! Keep us updated - we will all be looking out for you. Another Pred baby on the way.

Have fun TTC Accidental :) and good luck everyone else too xx

[mollieboo]

Hi all,

free thanks for posting fab news about sarah's baby arriving.

olives keep us posted and look after yourself.

lawlee the pred plays havoc with your sleep doesn't it. Glad the Omaprezole has done you good.

accidental glad you've sorted out pred, must be a weight off your mind now, good luck ttc.

Good luck cartoon with your next scan.

I wondered if anyone has an opinion on the unfussy womb theory? I'm 36 and have had 8 pregnancies over the past 3 years. I conceived 6 of them on first cycle and 2 of them on third cycle. I worry that this isn't normal and my body is wrongly implanting any embryo instead of sorting the good from the bad. Obviously I'm hoping that I'm just lucky to be fertile and that the only problem is high nkc, but I'm not feeling confident in any way about going into another pregnancy. Has anyone else worried about this but then had a successful pregnancy? Thanks all x

[Lawlee]

Gosh it's been busy on here today! Here goes:
Yay for Sarah and the lovely little baba, very exciting!

Ooh keep us posted Olives soo excited for you too :) Bet you can't wait!

Gl for your scan on Tues Cartoon and glad you aren't having troubles with the spotting, yay for lots of chances for piccies!

Accidental very happy for you that you got the outcome you wanted and yay for TTC again, have lots of fun

Hello Wiggle, hope all goes well with coming off the cyclogest, must feel fab to get far enough along to get some of the meds out of your system.

Hiya Free always great to hear from you again and thanks for telling us about Sarah! Hope all is well with you

Mollie thanks for thinking of me, yes it's a nightmare but hoping it will be totally worth it of course. I have often wondered about an unfussy womb myself, out of my four pregnancies (all over the last 8ish months), 3 have been in the first cycle of trying and one in the second. Fingers crossed this one is the good one but if not we will persevere! I hope you get to hear some good news stories too, I would be interested myself.

Phew! Ok i'm sorry to pester you all but quick question, anyone find the pred masks symptoms? I will be 4 + 6 tomorrow and i know its really early still but usually i get nausea pretty quick and really sore boobs straight away. This time though, nada, not even sore nipples, just ever so slightly sensitive and even that might be my imagination! Am maintaining the PMA and assuming all is well unless proven otherwise, but would be good to know if anyone else had the same. Thanks!

Ok, am off to bed now as I'm shattered from my early morning! Night night all x. Zzzzzzzz

[mollieboo]

I forgot to say hello and welcome to wiggle, congrats on your pregnancy.

Also forgot to say 7 out of my 8 pregnancies were early mcs, any views on unfussy womb theory appreciated. But nothing I can do about it anyway but keep trying...

Xx

[ChoccyPud]

Running but just to say, Mollie don't read anything into symptoms or lack of. Or rather try not to! Also each pg on Pred is different again so because you felt something or nothing previously don't expect the same next time. Waste of energy!

I get pg first or second try too, but there is a lot against the unfunny womb theory, eg if a sperm is good enough to fertilise an egg naturally, it's good enough full stop. Who knows. There's no way to find out when you mc very early on so I guess try not to worry about that either.

Right, running late as per usual so better go! Have a good day everyone, great news about Sarah. :)

[cartoontrickster]

thanks lawlee and mollie I'm slightly nervous for tomorrows scan but I think its more the fact that I'm going to my local hospital where I usually get bad news so I have bad memories of being there.
slight winge coming up (its a bit shallow I know) and i sort of wondered how everyone else got along if they didn't mind sharing. I have put on a lot of weight. trouble is I lost weight just dropped off before I got married in December. then I relaxed loads over Xmas (i had been going to the gym) I put on 6lbs, which I was planning on losing. then found out I was pregnant since then I've put on a further 5/6lbs. I think its a mix of the pred and no longer exercising. I'm too scared to go to the gym. but I'm only 10 and a half weeks and worried that this rapid weight gain is unhealthy. I thought you should only gain a couple of pounds in the first trimester?

[TheAccidentalExhibitionist]

That weight gain sounds normal for during the first trimester. It actually slowed down for me during the second. Many women are showing noticeable bumps and weight gain within the first 12 weeks. I guess the Pred doesn't help.
Gentle exercising like a walk would still be fine if you're missing exercise.

[roseandroli]

Good luck with your scan tomorrow, cartoon!

Don't worry about the weight gain. When I was last at Dr. Shehata's office, Louise patted my belly and said, "that's the steroids" (and not the biscuits, cupcakes, late night croissants I've been scoffing...?)

Great news about sarah's new arrival, and welcome wiggle and good luck ttc accidental and waves to everyone else! Lawlee I have no pregnancy symptoms, not a single one, except fierce hunger but I think that is down to pred. I had a dream of getting bigger boobs when I got pregnant, but that hasn't happened yet...

Sorry if I've forgotten anyone--this thread moves so fast!

[cartoontrickster]

thanks rose and accidentle for reassurance over my weight gain! its just I feel podgy and bloated I can't wait for it to look like a bump!
rose how funny Louise did that. not sure if I'd be offended
as for symptoms its funny how different everyone is. I'd read on here most people didn't get any due to the pred. so lawlee I wouldn't worry plus its early for symptoms I know u said u would normally have them but every pregnancy is different.
for me I have nausea most evenings and have done from around 6wks. I have slightly sore nipples but that's it. I have gained a cup size though, badly need to go bra shopping. I didn't have many that fit in the first place now I virtually have none.

[TheAccidentalExhibitionist]

Good luck for tomorrow cartoontrickster

[roseandroli]

Oh cartoon how I wish I had your bra dilemma!

I think Louise was just reassuring me because I was complaining about weight gain. I am starting to get what sometimes feels like a bump and other times just appears to be the result of a large meal I've consumed in a hurry.

Now that I don't have a scan scheduled till 20 weeks, and still can't feel anything moving down there, I'm just twiddling my thumbs and hoping everything is OK. Had a moment of paranoia over the weekend when I realized I had eaten raw-egg mayonnaise, feta cheese, and smoked salmon all in one go. Cue hours of googling Listeria and freaking myself out.

[Lawlee]

Thanks Choccy Rose and Cartoon you ladies are all so kind and have put my mind at rest, even though I knew I was being paranoid. I had such terrible ms and constant vomiting with my mmc that definitely I won't be sad not to have those symptoms if the pred does mask it!
Cartoon hope all goes well again tomorrow, will be lurking for news. Oh and i'm a bit late to the party but i agree with the others, don't think thats too much weight gain bet it won't take long to become more of a bump either! Hope you manage to get some new bras too lol.
Rose I'm a fine one to talk given my constant paranoia, but I wouldn't worry about listeriosis from just that one meal, I think you would already be feeling really ill by now if you were going to get something from it anyway. Also I think it would probably hit the news if there was an outbreak of listeria poisoning wouldn't it? Just cos I vaguely remember something about it in Canada a few years back?
I would like Cartoon's dilemma too Rose but I do remember my friend complaining about the discomfort and terrible backache she had when she gained a lot of cup sizes after she had her baby, so trying to rationalise that as something I might not want if I had it lol!
Hope everyone is having a good start to the week.
Hugs and waves xx

[cartoontrickster]

rose I've got 3 scans over the next 2wks with NHS and Mr s. I've been wondering how ill cope when they are less frequent I'm such a worry.
I agree I think you would have become ill quite quickly! so don't worry I'm sure I've eaten things I probably shouldn't, runny yolks on my eggs being one of them. its so hard to remember all the rules.
glad I'm not the only one with a 'pred bump' surely it can't really be baby just yet for me but hopefully not too much longer.

[cartoontrickster]

hey scan today was good! my local epu does make me horribly nervous though. but all fine measurements correct, heartbeat still going strong etc etc. we even saw the baby move.

[Lawlee]

Congrats Cartoon that's great news! So pleased for you!

Rose you are not alone as I only this morning realised that I ate a whole load of Brie & crackers on Saturday at the brother in-laws without even thinking about it. I'm normally so good about that sort of thing I don't know why I didn't clock it! Feel like a bit of an idiot for not even realising I'd had it, and now I have to listen to my own sage advice lol! Hope u r ok. Xx

[TheAccidentalExhibitionist]

Brilliant news cartoontrickster I'm so pleased for you.

[roseandroli]

Congratulations, cartoon!! What fantastic news!

Thanks for your advice lawlee. I sort of veer between thinking I should just eat whatever I want (within reason) because the odds of getting anything are so slim, and then scarfing the wrong thing and berating myself endlessly for being a glutton and only thinking about my stomach when I should be thinking about the baby. I'm sure your Brie was fine. I assume French people eat that sort of thing all the time!

[cartoontrickster]

thanks guys!
how are you getting on accidental?
I agree with rose, although I do feel bad if I'm a bit naught with eating something. but surely like you say French woman eat all those cheeses we're not ment to

[Lawlee]

Thanks Rose and Cartoon yes I'm sure you're right! Plus plenty of people must have lots of those things before they know they are pregnant too without any ill effects anyways.

So pleased for you Cartoon hope they gave you a nice pic to take away, how many weeks are you now, I've lost track? Xx

[cartoontrickster]

they didn't actually! I asked but the consultant said no they dont do them at early scans. bit disappointing. but ill get one at my 12wk on the 6th. I'm 10+5 today, they measured the bean to be exactly what I thought date wise.

[Lawlee]

Oh that's annoying! I just assumed you would get one, that seems a bit mean to me, its not like most women wouldn't be willing to pay for it. Oh well anyway, as you say you can get one soon, and massive yay for measuring right on date, that's brill!

I can't stop thinking about my first scan, I have to wait a whole two weeks yet (!) and all I keep doing is daydreaming about seeing a heartbeat - we have never seen one. But i don't want to get my hopes up too much at the same time. Don't think my boss is too impressed with my absentmindedness at the moment either lol.

[cartoontrickster]

its do hard. honestly I really struggled to het through to that first scan. so the best I've got to say is one day at a time and try not to obsess too much. I know you will though because I did. we had never seen a heartbeat before either. so I'm sure now that your on the treatment all will be fine. x