TTC or pregnancy on prednisolone or similar part 9

[sarahs999]

Oh dear - we reached 1000 posts on thread 8 without noticing! I hope you can all find this. THis is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Links to earlier threads:

Part 8: www.mumsnet.com/Talk/conception/a1492407-TTC-Pregnancy-on-Prednisolone-or-similar-part-8#33842381

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

Feck Duggs!! Neck them there drugs quickly!! Wow. I have everything crossed for you. Hope you had a fabulous holiday - sounds like it was long and lovely. Keep us updated!

Welcome teaandchoc. Am so pleased to see this thread having newbies and BFPs flooding in. Yes I had one mc on the treatment before having my little boy. It was a sac that just didn't grow and had an ERPC at 8 weeks. Mr S told me to wait two cycles before trying again, so I did, and also added in Hydroxychloroquine. Haven't heard about that drugs on here for a while - is anyone else on it and is it something he is still doing?

Good luck with the scans and early pregnancies everyone. Will be lurking to see how it all goes.

Forgot to say hello to Buster before and wow to 26 (although am guessing that is 27 now) weeks!! It will fly by. Glad you are getting regular scans too. Do update us! And others too we haven't heard from for a while

if I had time I'd be itching to get my hands on that list again, you damn list refusers

Ha ha Free, we are crap with the list, tis true. I have the Virgoan urge to do it all the time but don't want to be the only one who updates it so have resisted!

Hello to all new faces, congrats Duggs - you must be head-spinning right now. Sorry not to name check - at work and doing this surreptitiously! - but fingers crossed to all of you. These drugs are damn miracle workers.

I'm 33 weeks tomorrow. CAn't quite believe it - nor the fact that in exactly five weeks I will have my little boy in my arms. Panic! We have got most of the stuff ready though I am very aware that there is a box of stuff somewhere in the loft we've missed as I keep remembering things DS1 had that haven't resurfaced yet... most stuff has come up well in the wash, including the playmat, so pleased with that. Saved us a fortune - well worth the 7 years' loft space!

Free, did you want to interview me again before I deliver? I have a rather magnificent basketball belly! You've got five weeks and counting if so!

free I'm still taking the hydroxy, though goodness knows why as I don't think it's doing anything for me if my psoriasis-and-eczema-weathervane is telling me right. Not sure if he's still prescribing it for new people?

Very quickly as at work:

I'm still taking hydroxy. Did someone have a question about it?

We saw Mr G. Good chat about strategy etc. Not doing ivf next time. Maybe if the next pg fails.

I've got to have a hysteroscopy though. Anyone got any experience?? No idea when as feck alone knows when af will turn up and it has to be done between end of af and ovulation so you're definitely not upduffed. Which means STILL no s w/o i seeing as I get pg at the drop of the proverbial and there's only one 100% guaranteed form of contraception....

Hi everyone! Welcome duggs and teaandchoc! Congrats on your bfp, duggs, what a happy surprise for you. All toes and fingers crossed.

I want to second what everyone is saying about spotting and scans. Spotting doesn't tell us anything, and scans can often cause more worry/obsessive googling than anything else. I've been spotting brown the whole time since I got my bfp. I actually forgot to take cyclogest today, and I had no brown spotting, so I'm wondering if it's irritating me down there. Oh well, all we can do is take the drugs we're given and hope for the best!

So happy to have all you wonderful people to hold hands with.

I'm on hydroxy too, been taking it for the past couple of months x

Hi all, just popping in to say whispered congrats to Duggs perhaps being upside down in Oz did the trick . Will be keeping everything crossed for you.

Hello teaandchoc you are in good company here for the whole bloomin' rollercoaster that we are all permenantly riding.

choccy I had an hysteroscopy with Mr S a few months ago ( 4? I've lost track). What would you like to know?

Choccy I had a hysteroscopy last jan at st Mary's. was fine. They found nothing wrong. Anything specific u need to know. How did u feel talking to dr G? He will look wider even at DH. I don't think I'm going to see dr s with this as he still refuses to acknowledge high DNA fragmentation in sperm as an issue and my NK cell count was normal last time so think I will stick with dr G as he seems to be much broader with his treatment. Line today on first response much fainter. Feeks sake . . Why do we bother. Don't feel pg at all and only took first pred 10mg last night just to be safe. I'm just repeating what everyone on here says... Pebbles r u about lurking?

duggs congrats on the BFP. Now step away from the pee sticks. Lots of things affect the line. Remember a line is a line you are PUPO.

Yes lemon thanks. The word tests r better. Remind me if you have seen dr G yet?

Oooh, Duggs, fingers, toes, arms, legs etc. crossed for you. x

I updated the list last time but it was so quiet on here for weeks and weeks that I didn't see the point in doing it again! Seems to be a bit busier this week but not sure if my poor tired, addled brain is up to the maths at the moment.

I just wanted to post quickly.
It's great to see all the BFPs - good luck it is really stressful going through this with our histories.

I am now 12+6 and had my nuchal yesterday at FMC. All looks good. Weaning pred now which is great. Still can't quite believe I'm pregnant after 5 mc's.

So fingers crossed for everyone and lots of luck

Congratulations, holldollso inspiring to hear you have reached the magical 12 week markhope for the rest of us!

Anyone else having heart racing/palpitations? I am hoping it's all the extra blood and not some kind of weird blood pressure issue.

Still no nausea here--anyone else?

no sickness yet for me either rose
still spotting a but here though

Rose I started feeling sick at around 13 weeks, once weaned off the pred.

does pred tend to stop any morning sickness?

Absolutely. Had terrible ms with preg with ds1 (no pred) and then none when pg with ds2. Thought might just have escaped it but sure enough it was there once I was off the steroids!
So try not to worry if you're not feeling sick.

thanks lggis its reassuring to hear from someone that's been there. these drugs really do mess with us.

Morning ladies, is it ok if I join you too?

I've been referred to Mr. S's clinic on the NHS and got my results this Friday, very high NK cells. The printer wasn't working working while there so i scribbled down the numbers, but now i'm not sure what they mean apart from being high, lol. Apparently NK is 412.7 and 18.8% when normal should be 200 and 12% and NK69, whatever that is, is 1.39. Not sure if I wrote down the right things!

Anyway since my results I've been googling everything I could find about it and came across Free's first thread and read the entire thing avidly. I then found it had carried on to 9 parts, wow!, so i've jumped ahead and everyone seems so lovely supportive and kind I'm hoping you don't mind me joining! I am so pleased to hear about Free and all the others that have since had their take home babies, it gives me such hope! Congrats to all the recent BFP's and i'm so so sorry to everyone that's been through such tough times recently, especially Sue hope you are feeling somewhat on the mend and that the cocoon house is still available and making you feel better!

By the way I hope this post comes out ok, I've never posted on MN before so please bear with me if not.

Take care everyone x

Hey lawlee welcome to the thread! And great news on your diagnosis as hopefully it will be the magic combination you're after. Well done for reading the thread! I would have done too - I gave myself bloody RSI doing so much research on this when in the midst of miscarriages. I can't remember exact figures and what they meant but mine were very high too - mr s said in the top 5% of people he sees. I was worried it would never happen for me but after one further mc on the treatment it did.

Am so pleased new people are joining! And there are new bfps. Hope this thread continues to be supportive to more of us to come.

Thanks Free this seems like such a lovely and supportive thread I'm sure it will be a great help to lots of people in the future and for me was just such a relief to find that I wasn't alone in this, there are other people out there going through the exact same thing! I'm SO so happy for you that it was such a success. For me, with three mc since only July last year (1 mmc, 2 early mc) I was starting to think it would never happen for us, that I would never be able to have a child but now I've found my hope again!

Oh, while I think about it, does anyone know what we are supposed to do when ovulation isn't clear? When should we start taking the pred in that case? My cycle is usually quite regular but all my ov kits are coming back negative this month and I'm on cd 19, usually i'm positive cd 12 and been testing since cd 5! Am planning to just start taking it from next cycle but wondering what will happen if I have another strange cycle like this one.....

Hi everyone

sarah how lovely to hear of you being 5 weeks away from meeting your litte boy, exciting stuff!

choccypud I know what you mean, I'm too scared to do anything when not trying to get pregnant, it seems like an endless round of either totally abstaining or going at it like rabbits, never just doing it when we feel like it! Being pregnant at the moment, I'm feeling really horny (not sure if that's normal as most women seem to say they go off it) but I'm too scared to do anything at all.

duggs I can't help doing pregnancy tests either and then analysing the lines or wasting money on expensive digital tests. Louise at the clinic said to stop doing them, you know you're pregnant and it just causes anxiety. Easier said than done to stop testing though I know when we're all so worried.

holldoll lovely to hear more good news, congrats on passing the scary 12 week mark.

rose and cartoon I did feel a little nauseous yesterday but it went away again when I ate. I think I eat too often for much nausea to build up! But yes most people seem to say the pred masks symptoms, its hard not to look for symptoms though and then worry when they're not there isn't it. I'm constantly prodding my boobs and wondering if they're as sore as yesterday! Hope you're both feeling ok, nervewracking times.

I can update the list in a week's time, I'm too scared to at the moment but will wait and see what happens at my next scan.

lawlee welcome to the thread. Sorry that you're on here but great news that you've had a diagnosis and can start treatment. At the risk of sounding cheesy, I was at rock bottom joining this thread, feeling like I was the only person in the world going through this and that there was absolutely no hope, and here are people who are going through it and getting babies, so it gives me so much hope. Thanks so much free for setting up the thread! There is so much support on here.

lawlee I was having trouble working out when I ovulated too, it seemed to be getting later and later each month, not sure if it was stress or taking the steroids, bit of a guessing game so I started temping too and trying to notice when I had fertile cm...

x

Thanks mollie I already feel so much better for reading this thread! Yes I will try temping again I think, I sometimes find it goes up and down a bit because I'm a bit of an insomniac (and haven't even started the pred yet!) but it's worth a bit of perseverance I think.

I'm not sure if it makes anyone feel any better but I'm a poas addict too, tested today "just in case" I ovulated really early, but probably haven't even ovulated at all yet this month lol!