TTC: Pregnancy on Prednisolone or similar part 7

[ChoccyPud]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

That is unfair to wait. He will suggest ivf kittens I imagine. How would you feel about that?

I am thinking about seeing a psychotherapist or someone. I did last spring with 12 wk mc but he was pretty useless I think. I had a cause and effect and it was only my 2nd. I don't seem to be getting any better but worse. Worse to reactions if other PG news in RL. I seriously wonder who else left I can be around without a struggle. Just my gay friends and older people over 50. Does anyone know of any fertility/mc specialists as I don't want to waste more £ that I haven't got ( because I keep wasting it on failing ivf or treatment) on non specific to how I feel person ?

kittens You're still taking the pred every month, aren't you? Hmm. But "on the low side" doesn't mean it's too bad - at least you didn't get the "you don't stand much chance of getting pregnant naturally, I recommend you do IVF with donor eggs" speech that I got!

Why not email Cheryl back and ask for the numbers? You paid for the test, it's your right to know! Just say you're keeping a record of all tests taken, and you'd like to have your results now please. :)

Duggs I will PM you the details of the person I saw. Really recommend her.

I think I have reached the end of the road with Mr S. Went to see him yesterday for a consultation of all of ten minutes, having waited 25 minutes. Glad I waited a month for that appointment! It was so rushed, he was literally ushering me out of the door before I could ask any questions. He completely contradicted what he had told me before and was again recommending expensive fertility investigations. I have only just been pregnant naturally - why would I need to get my tubes checked?? It is the miscarriages I want to stop. Sorry for rant, he left me feeling totally depressed.

Can anyone recommend other immune specialists that it might be worth seeing or consultants that believe in NK cells and will prescribe pred?

london I'm so sorry you had a bad experience. What fertility investigations did Mr S want you to undergo - and did he say why?

Others will no doubt suggest other consultants to see, but if it were me I think I'd be following duggs and going to Dr Gorgy. In fact I'm thinking of doing exactly that, to be honest, although it's not Mr S's fault I'm having another chemical pregnancy - I guess for me it's to be expected at my age, I'm a much higher risk for CPs than the rest of you ladies I would think. But Dr G I think would be worth seeing, perhaps?

sue Yes, I did take another test this morning just to make certain and it's even fainter still - in fact if you took a quick glance at it, you would think it a complete negative. There's such a ghost of a faint line there, but quite obviously virtually no hCG left. Definitely a chemical then, but my body once again isn't with the plan and still seems to think I'm pregnant (bbs are incredibly sore and swollen, no cramps, no spotting, no pre-AF stuff at all). I'll have the acupuncturist work her magic on me tomorrow evening, but I have no idea what that will do for ovulation next month. I am guessing I won't be oving around normal time, so no idea what I'll do about the Letrozole scan.

Thanks, Ari. I think perhaps I will look at Dr G. He wanted me to have a hysteroscopy and a sperm test for DH, because he said he felt it took a long time for me to fall pregnant last time. Actually, due to taking time not ttc while rmc tests were being carried out, it was only four cycles, which given my age, I don't think is bad. He also kindly pointed out "You are not young any more," and so it was best to do this now rather than later. Well thanks for that Dr Einstein! Like I don't torture myself with that fact every day. Apologies for venting.

duggs did you have to be referred to Dr G or can you make an appt to see him yourself?

london You vent all you like. I'm interested that he's recommending a sperm test for your DH - given that I asked for my OH to be tested right back at the start of my journey with Mr S and he said it wasn't necessary. And how nice of him to comment on your age - you know your age, it doesn't need pointing out to you! Sheesh ...

Sorry, Ari, also should say I am so sorry to hear what you are going through. I had a cp the cycle before pregnancy this time and it is so hard to have your hopes raised and dashed. I hope you are OK xxx

He seems to say different things to all of us. I am no medic, so I guess he must have a reason. Hmm. It is so confusing!

Well, it's my third CP (and 2 'proper' miscarriages) in 18 months now, I suppose I should be used to them :( But thanks .. I just wonder, again, how much longer I carry on doing this before realising that I really don't have much chance at my age with my own eggs. I have no idea.

duggs - I will PM you xx
ari So sorry to hear about another cp for you. I have only ever had one, and it is so confusing and upsetting.
london Sometimes I think you realise you do come to the end of the road - and have to change tack.
kittens Surely they can email you the results? Then at least you have a head start so you can prepare any questions you want to ask. xx

Nothing going on here, I am just :( that some of you are feeling so crap right now. TTC is one of the hardest things emotionally I have ever done, people who have no problems just churning out kids really have no idea what the rest of us go through xx

Hugs to those who need them xxx

Having kittens, thanks for the link (and no I wouldn't have found that!) that's very interesting to see what results other people got. I second Ari, I would email back and ask for a copy of the results, that's too long to wait and you can ask the lovely ladies on here for an interpretation of them anyway!

Sue, Pebbles and Helter its all sounding very positive, good news.

Ari aaargh thats so hard I really feel for you, hope you're ok. Whilst it hurt like hell to get another BFN on sunday at least its over and am now thinking about next month already. I find the whole not knowing part the hardest, its mental torture.

Thanks Free, no that's it for me this month - something about negative tests send me into a spin so i avoid them wherever possible, I'm expecting AF tomorrow or Thurs.

London i think i would move on after that experience too - its my plan to go to Dr G too if this doesn't work in a few months. For the amount of money we're paying you would expect a lot more than that. I'll be very interested in what results Duggs gets out of it, keep us posted.

Duggs sorry you are feeling crap at the mo and totally understand. Over the years I have often found myself keeping away from friends who are pregnant etc. I know how hard it is and it gets you down. I do by know anyone re counselling but sending you a big virtual hug.

I agree with the others kittens surely they can email/send you a copy of the results on the meantime.

Ari sorry it seems to defo be a chemical. I am testing again tomorrow and dreading it being lighter.....

London sorry you had a bad appointment with Mr S, dies seem strange he wants you to have fertility tests when you can get pg naturally!

duggs Absolutely agree with pebbles ... so sorry you're going through what you are, and I agree it's so bldy hard when you see babies all around, I swear there are more round me now than there ever were. I don't know anyone who's a counsellor, but if you feel it would help you then definitely go do it. Anything to help. And another huge hug from me.

pebbles Ah ah, you aren't allowed a fainter line, only one on this thread per week allowed and I've already taken that slot. So yours has to be darker :)

Ari there are defo babies everywhere!! Girl at work had a gorgeous little girl recently and keeps popping into work with her. Keeps asking if i want to hold her and keep making excuses as not sure would give get back!! Also a few of the blokes wives are pregnant and one of them really goes on about it, I really want to say I not the person to talk to about babies!!

sorry lots of people are having a cr*p time at the moment

Duggs I am so sad for you. I really do know what you mean about staying away from pregnant people. Bursting into tears a few months ago when a good friend told me she was pregnant was a particularly low (and embarassing) point (and at that stage I didn't even know it was naturally conceived twins...).

I have been to three diff counsellers in the last 12 months - none could deal with miscarraiges very well, and I think it was MORE annoying dealing with people who didn't understand than having no counselling at all. The miscarriage assocaition just refers you to Relate - and the Relate counsellor I saw was no good on this topic.

But I think Zita West might be a good place for counsellers who deal with mc and sub fertility? My husband saw someone there - he had to as part of his extravaganza of tests - and he said she was amazing. I met one last year, I didn't have a proper session but I was impressed with her approach and manner. If I need to see someone to talk about fertility/loss in the future I think that's where I would start.

ari and others - someone needs to invent a home hcg monitor - like DS's cheap and easy to use blood sugar monitor - to give you accurate and instant hcg readings to save you all this heartache (well, the heartache of dealing with uncertainty at least).

To second PQ77, Zita West Clinic was where I went and can wholeheartedly recommend. Duggs I have already sent you her details. Best money I ever spent.

You could also try this website, which has specialist fertility counsellors all over the UK, many of whom deal with miscarriage: www.bica.net/counsellorbypostcode

Thank you ladies ! I'm on a packed hot paddington train right now but will look properly once home. Where would we be without you guys ?

Good luck Duggs I hope you find a good councellor. In fact might need one myself at this rate, tested first thing this morning and line has not got any darker! Is just as faint as it was on Saturday, ahhh! I am now terrified it will turn out to be a chemical. Will have to test in a couple of days and see what is going on but in the meantime feel sick with worry. Why is it never simple???!!!!

pebbles so llong as it is not lighter don't worry too much. Don't forget that the one you did on Saturday has had time to get darker so it was prob lighter when you first did it. I have just done another test and mine is the same as Monday so I am worrying too! Will do another in a few days. On my two cps the lines had gone much lighter by now so I am trying to stay hopeful as the line is still dark but not as dark as the control line.

duggs I think counselling is a good idea, we might all be joining you there!

Thanks Sue, it took so long to come up so got a bit panicky! I bet normal people just do a test and go yay I am pregnant and that's that!

Ok pebbles I know my official clinic test day was quite a bit later than the day I actually tested. Have u passed your official test day?

london no nothing from my useless GP. In fact I need to move from him he still tells me it is an ACT OF GOD so needless to say I was so godsmacked I nearly hurled the chair at him. After re reading sr beer book i took it in there r 5 areas within the immunology field and dr s only tests level 1. Which does include a few areas I believe. I guess as these are much cheaper to do it is logical to go here first if there is an issue then try and hope it is the answer. But in some cases there are more than just nk cells and u need more/ different treatment and approach which is level 2. This is where the tests get sent to the US and dr gorgy, dr ndwuke, and I think dr taranissi come in. A few more now in 2012 I believe. They r expensive though but I guess if y can stretch to it it is part of the investigative journey for some of us. Dr s clearly is happy with his 80-85% success rate and believes in what he does and we can see that it works for some. It is the ones who r no longer getting PG or repeated chemicals I wish he would be a little more ethical and at least acknowledge there r further investigations to be had- all be it not with him. (his choice). We were not an infertile group when meeting him and age and chromosomes can't be thrown back for all the months of failure. Anyway would have been nice if we'd all gotten pg within 3 cycles - or 6 even and carried on but guess the 15% of us are all hanging out on this thread I may be wasting my time with dr g too afterall we've become desperate but don't have much to lose apart from more £ and I've resigned myself that debt is less miserable that this limbo. Hope sue is ok today. . And ari too x

An act of God! Right, that is reassuring! I can't get over that. Deffo time to change GP, I think.

I have to confess my main reason for choosing Mr S in the first place was the relative cheapness and also less aggressive treatment. Think I need a second opinion now though. But as I am skint it is probably going to have to wait a bit!! Please keep us updated on what Mr G has to say, it is really interesting.