TTC: Pregnancy on Prednisolone or similar part 7

[ChoccyPud]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

snoopy My mum has started on the new trial drug - it's an anti-inflammatory, but I don't know the name. Mum is on holiday at the minute but I will ask her when she gets back. She has been told that it might be she is taking the placebo - but she won't know. She is also on Tamoxifen. My mums cancer was picked up on a routine mammogram. She is large breasted so would never have felt a lump as it was well burried. To give you an idea how well these procedures can go - she had her surgery at the end of January and is now off on holiday swimming etc. Just to show you that these things can be dealt with quickly and well. I am sure this willbe the same for you. xx I think about you a lot xxx
coconut Exciting week for you! I can't wait to hear about your impending arrival....good luck!
duggs Good for you for getting back on the treatment. Your determination is amazing. I fully believe your baby is coming - no matter how it gets here, and what a lucky little thing it will be. Imagine what stories you will be able to tell him/her about how you wanted them so much and the struggles you went through xxx

Well all ok here - had my 25 week appointment last thursday. Not really impressed by the midwife. I asked if I could be weighed - she wouldn't let me, and I didn't take a wee with me (no pot) so she said to do it next time - even though I wanted it checked as I have had glucose in it twice now. I have my glucose tolerance test booked for the 23rd so will have to wait until then. I wanted to be weighed as I am doing really well with walking and diet and wanted to make sure I was not piling on weight:( - I have no scales in my house as they are evil :)

I hope everyone is ok ....... May will be bringing some bfp's I am sure of it.

FWIW - when I was TTC,if I hadn't conceived when I did I was planning to take the pred from BFP not OV. Just because I thought for me it was stopping me getting pregnant as quickly. Just my thoughts:) xxx

Snoopy - Good to hear from you! It does sound like they're rallying round and you're getting good care. Will they be able to let you know the results of the MRI straight away, or do you have to go back to discuss results at your appointment in two weeks? I really hope it goes well. We're all thinking of you and sending you positive thoughts.

Battery Your midwife sounds crap. Is she someone who you will keep seeing and who will be with you for the birth or just a random person you happened to see this time (as is the case here - you never see the same midwife twice)?

Thanks for the good wishes everyone. I keep thinking things are kicking off but when it just turns out to be braxton hicks, I can't decide whether I'm relieved or disappointed.

So, it's a week after the spotting and bleeding stopped, and I've just started bleeding again, not very much so far. Feels like day one of a period, I'm a bit crampy, but no other signs and certainly no warning of what I was going to see when I wiped. Another pair of pants ruined, on only the second day I have felt brave enough to go without a pant liner. :( and

Normally I reboot without problems after a mc, ovulating a couple of weeks or so after I stop bleeding. This time it seems not - I've obviously had no ovulation signs in the last week. No signs of infection, just fecking confusing and upsetting. The only other times I've had spotting or bleeding at weird times it's been a sign of a chem pg and I can guarantee you I am not pg!!

Anyone else had this sort of thing before? Any thoughts or ideas?

Thinking of snoopy - do keep coming here to talk if you want to, we are all hoping for you and as I've found myself, no one here thinks we have to stick resolutely to the mc/NKCs subject alone.

Ugh you poor thing Choccy. Could it actually be your period? Possibly an anovulatory cycle if you had no signs? Another possibility is that everything didn't get cleared out first time. I had retained products after my ERPC and had some quite heavy bleeds until it finally all cleared a couple of months later. I was still getting positive pregnancy tests though, which is why I knew things weren't right.

It's really not what you need though.

Thanks coconut I bled for just over three weeks until last weekend, stopped, then this new lot today. My hcg was over 100 until around two weeks ago but I kept bleeding for another week so I'd assumed the hcg had fallen off completely and it was all done by the time I'd stopped last weekend. You've made me wonder whether my levels hadn't fallen and maybe its much more recently that my hcg has dropped below "pg" hence the bleeding has kicked off again and that this is in fact the final clearout.

I don't think it's an annovulatory cycle there simply hasn't been time, plus there's the hcg thing, in that surely I can't have ov'd so quickly after having 100+ hcg two weeks ago?

Oh it's all just bloody (!) guesswork isn't it. I'm seeing Mr S on Thursday so if I'll ask him to scan me to see what's going on. Don't like the thought of anything still being left in there, but saying that, I'd either passed or absorbed sac etc so all that will be left will be cyclogest enhanced lining. Hopefully.

Having decided we need to take a break from ttc to process everything, and having had a great night out last night (as in proper drinking and cab home), I was so happy today that I'd actually enjoyed myself. Then this. Bastard life grr!

Good to hear from you snoopy - will be thinking of you this week.

choccy I would usually get some spotting around the time my period would normally be due if counting first day of mc bleeding as cd1. Then would ovulate a few days later. Hopefully it's not too long till your body resets itself.

coconut we're minutes away from your due date! Cmon cocobaby!!

I'm glad to hear you had a good "proper" night out choocy. Just what you neede, I bet! Sorry to hear you are bleeding again. When this happened to me it was also a case of not everything having been cleared out. This has happened to me twice for different reasons.

Could be an idea to get a scan at EPU if you can bear it. They may well be able to get things moving with a course of strong antibiotics if there's anything left behind. I went to my GP when I had continued bleeding and cramping and they referred me to the EPU the following morning.

Thanks guys. Digi good thinking, that might be what I've got going on... It's four weeks today since my big crampy scary day of the mc. God time has flown in retrospect. Feeling very period-y this morning certainly.

Hope you and F are doing ok.

Waves to kittens. How are you doing? I really can't bear the thought of going to the EPU even though I know I'm not expecting to see anything. I know I've got a "thing" about it, but I'm seeing Mr S this week so I'm not going without.

I too am waiting for news of cocobaby!!

On a more general note, I saw a thread last night where someone was asking about counselling after having 7 mcs. I'm going to try to find it again, she didn't mention having been tested, just that she was giving up after 7. I couldn't bear to think that she was being told it was just bad luck, or something, and has decided to give up without investigations for NKCs.

Snoopy Thinking of you and sending lots of positive vibes your way. Please do check in here often and let us know how things are (if you feel like it) You absolutely have the right attitude and determination to beat this thing.

Coconut Not long now! Very exciting Hope you are feeling well and are all prepared.

Battery Sorry that midwife was less than helpful! I'm sure your weight gain is probably less than you think. I agree that scales are evil - I stood on mine yesterday to find I have put on 4lbs during my 2 weeks off work! Cue me frantically cycling on my exercise bike yesterday!

Choccy I'm not sure about the bleeding but I would say if you feel "well" in yourself then it is not likely to infection/retained lining. Hopefully as Digi says it is your body getting back to a normal cycle. Really glad to hear you had a good night out and let your hair down - it's a great tonic sometimes!

I'm need to try and make the most of my penultimate day of sick leave! Weather isn't looking great though I'm really not looking forward to going back to work on Wednesday, I've definitely felt a lot less stressed whilst being off. Still it's only 13 sleeps until my holibobs so I've got something to look forward to!

Snoopy please do come back and chat on here even if your journey is over. Let's face it, none of us know what the future has in store so there are no guarantees for any of us.

Coco will be awaiting news of your little one so the best of luck!

Choccy one of my miscarriages took a while to come out plus on one of my follicle scans there was some old blood that showed up and then came out mid cycle. I wouldnt worry too much about it unless it gets heavier/painful or you get a high temperature. I found that my 2 months off helped me mentally as well as physically so I am now ready to start off again. Its lovely to forget about the whole TTC process for a while and let your hair down. I was supposed to try and lose some weight on my break but ended up putting it on as was drinking too much wine and eating lots of brie and paté!

Duggs glad you are back on SO and giving it another go.

I have been using my clearblue monitor this cycle as not doing superov this month and for the first time since starting the preds I got a peak reading. It was a relief to see as the steroids for some reason stopped the monitor from picking up my changing hormone levels. I am guessing it is all connected to my FSH level going high that my body was not ovulating properly so at least I know I am back to normal. DH came home this morning from the USA - he was in the door for about 5 minutes before I pounced on him! I am hoping I will conceive this month so that the preds dont have time to mess up my cycles again but that would be hoping for too much!

It sounds like a lot of us are not using the steroids from OV but from BFP. I am still unsure what to do seeing as I have very high NKs and dont want to jeopardise anything.

Thanks sue! I can't start the adoption process until October so may as well try a few more super ovulation rounds until then. No pred though for me unless bfp. On hydroxy though. Glad u r back in the saddle so to speak. Best of luck

Hello everyone :)

choccy I was always told with my past mc that the first day of bleeding is cd1- so if you count back - how long ago was it that you first had some bleeding? This could possibly be your first period post mc?
sue glad you seem to have your ovulation back on track, and also pleased that your DH arrived home just in time

The midwife I saw was a random one - I won't be seeing her again as I have moved practice which is good.

I saw the MW at the hospital last time who said to me

'so you had your amnio?'
'Yes'
'and the result was positive?'
'Whaaaat?'
'by positive I mean a good result...'

I nearly fell off my chair, scared me to death!!

Hello all. Choccy hope the bleeding sorts itself out. I've had a slightly different first af each time, it is very irritating. I wouldn't rule out a scan to check there is nothing retained so to speak.

My personal freakery tonight is to think that, rather than the reduced movements I usually stress about, I'm having loads of movements. Super-activity as a sign of a stressed baby? Argh.

Just dropping in mid-move to mark place, have been so quiet when moving have dropped off my 'I'm on' list!

Lurking for news from coconut

Hope all going well free

iggi did you get it checked out?

battery at mw's terminology!

Had F's Tongue tie snipped today.

Hi there - can I please join the list on this thread? I had a diagnosis of very high nk cells at the weekend - starting first pred tablet on thursday.

Oh gosh, I don't know how to catch up. Been so busy with moving and nipping off for two days in Oxford for a chistening in the middle. Now back in London but far too much to do and too little time and energy.

Snoopy first of all thanks for coming back and letting us know how you're getting on. You've been a part of the gang and you're still a part of the gang! I hope the good news stories on here have been reassuring for you. Let us know how the further tests go. We are all watching out for you and waiting for every update so please do come and offload, gripe, whatever you need to do.

Digi poor little F and the tongue tie op. Did it hurt do you think? I guess they do it rather sensitively. It sounds like quite a common thing to happen these days but hope it doesn't make feeding difficult for you both as it heals.

Iggi I am not going to give you a virtual wet haddock slap as I have had the same worries - either too little movement or too much, you can't win! Hopefully it has settled down into a more usual pattern by now.

I am with the others Choccy about retained products causing the occasional bit of bleeding. After my first mc of 2011, the natural one, I bled on and off for 6 weeks or more. It was bloody exhausting. Hopefully it is that weird first period after miscarriage though and you will soon be back in a proper cycle. Were you going to try to track down that girl who had the 7 mcs and suggest she should get tested for NKC? I always found the Reccurent Buns thread was great for that - it's how I found out about NKC and other testing too. Funny that the threads that were really prominent when i first came on here - the freak out room, recurrent buns etc seem to be very quiet now. I guess we have all moved on to either babies or other threads!

Gosh Battery, can't believe that midwife! Hope you're feeling ok about everything in general. Well, as well as any of us pregnant after recurrent miscarriage feel! And yes well done Sue for being back in the saddle!

Enjoy the countdown to holiday Olives. You going anywhere nice? DH and I are going to Florence for a long weekend, although he doesn't know where he is going yet as it is a bday surprise.

Hello again Carebear, wow so you have had your diagnosis. That's great really as it means that hopefully you can get treated now. I will update the list now but if you can add more details let us know. Just follow the pattern of what we say there. Assume you're starting the Pred as you're about to ovulate? What else will you be on - have intraipids been mentioned?

Big hello to everyone else. I am working tonight doing a couple of radio slots so best get on with planning what I am going to say. List coming up xx

Also waiting with baited breath for news of Cocobaby! Hope all is well Coconut. PQ should be back from hols soon too...? Hope all is well and you have a growing bump to show off.

Tuesday 8th May
The babies are arriving!
Stogan - V high NKC - cycle#2, DC#1, Baby girl born Sunday 11/03/12 7lb13.5. Our First Pred Thread Baby!
Digitalgirl - High NKC - BFP cycle#2, Baby boy (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12 Our Second Pred Thread Baby!

BFP 3rd Trimester
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 40+1 Due date: 07/05/12
Comedy - V High NKC - BFP cycle#2, DC#2 ? 38+1 C-section booked: 14/5/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- 37+0 c-section booked for 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 36+2
Freelance - V High NKC TTC#1 Hydroxychloroquine, Pred, Intralipids, 400 Cyclogest, Thyroid/hashimotos. MC 1st Pred cycle. DC#1 29+0 Next appt with Mr S, 25th May EDD 24/07/12
Cheerfulcharlie - V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 29+0 EDD 24/07/12

2nd Trimester
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 25+4
coleyoz - V High NKC. DC#2, BFP cycle2, 25+1
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 20+6
Mercator - V High NKC, TTC#2. 20+5
Hopefulfor2nd - High NKC - TTC#2. - 19+5
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 19+5
PQ77 - V High NKC TTC #2 (BFP cycle one but mc) 15+1

1st Trimester
To be filling up very shortly!

TTC ? ASSISTANCE - SO/IUI/IVF
duggs1976 - High/V High NKC - TTC #1 - IVF cycle #1 ?pred, intrallipids, metformin, clexane, cylogest
Havingkittens - Upgraded from High to V High NKC TTC #1 -10 pred ? 3rd cycle SO
Abney (44), SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 4, Super Ov & IUI
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, combining IVF with Immunotherapy
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)
Suemays - V High NKC, TTC #2. Superov. (Pred & Hydroxychloroquine)

TTC
London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - RMC, NKC not tested, TTC #4 cycle 2 (after m/c 12) Fertility consultant
prescribed pred.
GreenOlives - High NKC, TTC#2, have decided to only take Pred from BFP
picolina - V High NKC MC on treatment (taking a break on holiday)
Holldoll - High NKC - Pred, Cyclogest & aspirin
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC

Current status?
Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS

Thinking of Snoopy and hoping to see her back here soon in full blooming health.

Ah Free, I think a haddock should have been on standby for all of this pregnancy! Fewer movements today as busier, enough though I think/hope. Midwife tomorrow for pre-section bloods.

Digital was that traumatic today? (Prob more so for you than him!). Will he be more comfortable feeding now?
Welcome Carebear, good luck with first round of pred.

Hi Igggi - I have got my pre op appt for c-section today as well and have smiled reading your post as have done exactly the same as you over the last few days and gone from worrying about lack of movement to deciding 'fetal distress' must be causing too much movement. Not just me going mad!! Have woken with period like pain this morning and have started to wonder whether this little one is going to be prepared to wait until Monday! Wishing you all the very best x

Coco - thinking of you as well and good luck! x

Big hello to everyone else x

Snoopy - just want you to know that you have been, and will remain, in my thoughts a good deal - so so sorry you are going through this x

iggi yes was a little upsetting for me. Especially as I was on my own in making the decision to go ahead with it. F was understandably cranky for most of the day yesterday but slept like a dream last night - to the point where I actually had to wake him up to feed him at 4am having gone down at 11pm.

free feeding is improving already and have managed to break my dependency on lansinoh cream (which I highly recommend goes in your hospital bag). Managed to feed F in the playground yesterday while ds1 burned off his excess energy. Beginning to feel like I might actually be getting the hang of this parenting-more-than-one lark.

Thinking lack of update from coconut is very intriguing...

Morning everyone ... also wondering where coconut has got to; does anyone know if Mr Coconut knows about posting here? :)

snoopy also in my thoughts, sending you huge big good luck wishes for your MRI this week. Please do stay with us and let us know how you're getting on, if you want to.

choccy how are you doing today?

snoopy also wanting to say am thinking of you. Hope the MRI is OK and there are lots of advancements in breast cancer.

coconut hoping to hear some good news soon.

digi am glad baby F is feeding better. Must have been a nerve racking time for you.

free and iggi and comedy time seems to be flowing so fast with your pregnancies. Imagine it must be dragging for you. Seems like only yesterday you were annoying your BFP.

I am having a bit of a rough time at the moment and I don't want to upset anyone so don't read if you are having a bad day. My Aunt got diagnosed with cancer a couple of months back and we have been told she will likely die this week. This is a woman who is only in her 50's. She picked up an infection and is not responding to treatment. Her cancer was quite advanced by the time it was detected. Monday 14th May is also the day I was induced last year having found out our son had died in the womb at 20 weeks. I told myself that I would have a baby or be pregnant by the time his birthday came but I had a BFN today, so that is not working out. Sorry for the self centred post and I do not want to upset anyone. Anyway have till wait till June to see Mr S and will talk about SO then with him. I am sure the board is due for some good news soon.

So sorry Lemon, things coming on their own are bad enough but when they hit you in groups - it's just not fair

lemon big hugs to you, it's dreadful when you have to go through these rough patches. Be gentle with yourself, and don't worry about posting about you - we all understand.