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TTC: Pregnancy on Prednisolone or similar part 7

999 replies

ChoccyPud · 17/04/2012 13:58

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

OP posts:
lemonsherbet · 02/05/2012 21:30

snoopy we are here for you. I am so sorry. Am thinking of you, there are no words to adequately express how sorry I am.

eurochick · 02/05/2012 21:56

snoopy what an awful shock. I'm so sorry that you have this diagnosis. Will they not consider a lumpectomy? My mother had this (alongside radio and chemo therapy) even though she had very aggressive BC.

GreenOlives · 02/05/2012 22:00

Snoopy I don't really know what to say apart from I am so so sorry Sad Words just seem a bit meaningless in this situation but my thoughts are with you and your family at this shitty horrible time. x

Coconutfeet · 02/05/2012 22:06

Oh Snoopy. What a shock. I'm so sorry. Thinking of you and your dh at the moment. You must be reeling. It all sounds so inadequate but I really hope the next appointment will show that it is localised and you need the less agressive treatment. To echo Lemon, we're here for you. Sending you loads of love and positive thoughts, xxx

BellyD · 02/05/2012 22:09

snoopy my heart goes out to you. You, like everyone else on here are a fighter and we'll all be here to help you fight this battle or for whatever you need. Massive hug x

FrozenNorthPole · 02/05/2012 22:20

Snoopy, I am very, very sorry to hear this. You must be shocked and scared. Hoping with all my might that it can be treated successfully and swiftly. My thoughts are with you and your family. xx

freelancegirl · 02/05/2012 22:20

Gosh Snoopy I really don't know what to say. What an awful, awful shock. Your mind must be in turmoil right now.

I hope that, like me, you know some good stories about people coming through this absolutely fine. Thank goodness you have DH, DS and a loving family around you. We will all be thinking of you so please do keep us updated xxx

batteryhen · 02/05/2012 22:23

snoopy - I don't know what to say. What an awful awful shock for you. My mum was diagnosed before Christmas and had surgery in January. If you want to ask me any questions I can try and answer them. I will pray for you, and keep you in my thoughts. Much love xxxx

Pebbles73 · 02/05/2012 22:40

Snoopy I don't what to say other than I am so, so very sorry you are going through this. I am devastated for you and your family having to deal with this. As cocunut said I hope it is localised, please let us know how you get on as we will be thinking of you and are here for you.xxx

Pebbles73 · 02/05/2012 22:47

I meant to say Snoopy both my mother in law and then my mum had breat cancer 6 and 5 years ago. Both had lumpectomys and both have been given the all clear now. xxx

Comedyworks · 02/05/2012 22:58

Snoopy I am so, so sorry to hear this. I can't imagine what you are going through but my thoughts are with you xxx

suemays · 02/05/2012 23:02

Snoopy I can't believe your news and what you must be going through. I know we hardly know each other but if you fancy a trip down this way at any time to get away from things for a chat you know where I am. So much for NK cells stopping us from getting cancer. The good thing is that you are relatively young and so hopefully will be able to make a quick recovery once the full diagnosis is given. If it's any consolation, breast cancer has the greatest survival success rate and I also know quite a few who have beaten it. You are a fighter so you will get through this.

It makes all of our TTC struggle pale into insignificance now.

digitalgirl · 02/05/2012 23:07

snoopy I can't begin to imagine what you're going through. You must be in shock. Just know that we're thinking of you and your family and wishing you the best possible outcome.

igggi · 03/05/2012 08:03

Snoopy I'm sorry about what you're going through, what an awful shock for you. I'm glad you sought help when you did so can get some treatment sorted quickly. Thinking of you x

ChoccyPud · 03/05/2012 08:07

Snoopy I am so so sorry to hear your news, I have no words to adequately say how I feel for you. Know that we are all thinking of you and your family at the moment. X

OP posts:
duggs1976 · 03/05/2012 08:21

Oh snoopy! Echoing the thoughts of the other ladies on here. You were keeping such a close eye on your body (as we all do during this journey) that u were pretty onto the changes you felt so let's hope you were very early. How shocking for you. They seem pretty swift with these things so you r in the best hands now. Did they ask about the treatment plan and how long you'd been on it? Not a great advert for immuno suppressant drugs at all. Am sure your RL friends and family are rally around, but if you ever need anything the cocoon house are here 24/7. We've all built up these intimate connections over the past year to whatever months and don't think we realise how connected we've become. Whether it be PQ, kittens, choccy or you snoopy the biggest things in life have happened and we all feel for you whilst they happen. I did say to DH I can't believe the things that happen in the thread world. He did point out we are about 30ish women between 30 - 45 years old so statistically life and all its shite is happening and because of our openess and our connection we are all witnessing it as it unfolds.

A huge hug for you snoopy. you are a strong woman so u can do this and come out stronger for it x

Arianrhod · 03/05/2012 08:33

Oh snoopy, what a horrible shock, I'm so very sorry to hear your news. But thank all the powers that be that you listened to your body and got it checked out ASAP, hopefully your early reaction will make all the difference. My sister-in-law had breast cancer and beat it (and wrote a book about it, oddly enough), and ended up making major life changes in diet and household chemicals as a result. And one of the women I work with also beat breast cancer a year ago. I know none of this is any real reassurance to you right now, but I hope you realise we are all here for you no matter what you're going through. Please don't think you have to leave the thread just because you may not for now be thinking of another child, please do stay with us if you feel up to it and share your worries/hopes/fears if you want to - we're here for you, no matter what. duggs said it very well I think.

I'm sure you will now be wondering if any of the treatments you've been on have contributed to it, but did you know that Letrozole is used as a drug to fight breast cancer, albeit mostly in post-menopausal women? And as duggs asks, have you told your oncologist/consultant about the treatments you've been on? I'm sure your family and friends will be a great support, but do think about contacting someone like Macmillan (www.macmillan.org.uk/) to help you and your family get your heads around this.

Huge hugs to you and your family, thinking of you and sending you love and support.

eurochick · 03/05/2012 10:36

Oh flipping heck mumsnet, stop going offline 20 days and eating posts! Grrr.

Snoopy I just wanted to add another good news story to the mix. My mum was diagnosed in 1998 is fine. My nan was diagnosed many years before that and is also fine (well, if being a cankerous old biddy who likes to make people's lives difficult can be considered fine!). Hugs to you and your family.

Duggs and Ari I see you have been thinking along similar lines to me. From when I was diagnosed with high NK cells back in November, I did wonder if they were up for a reason, whether reacting to an autoimmune condition or fighting off something undetected. In case they are a signal of some sort, I think I will go for a breast check and general medical soon. It is long overdue anyway.

freelancegirl · 03/05/2012 11:19

I hope all these good news stories are some comfort to Snoopy. Who also mentioned that bang goes our theory about NK cells helping to fight things like cancer? It's an interesting point, I hope a high level of cells helps Snoppy fight this thing quicker.

Am still feeling rough today (nothing compared to Snoop I know) but think I have a bit of a cold as woke up dehydrated and snotty a lot throughout the night. Trying to face getting wrapped up in jeans and waterpoofs to go and vote.

In better news DH and I had an offer accepted on a house yesterday (a house not a flat - in an area we were both willing to try out in compensation of not being able to afford anything more than a small flat in the area we wanted. It's only 20 mins walk away though!) so we have to spring into action and try to get everything sorted. It would be nice to move before my due date.

Hope everyone else is doing ok. Trying to remember what stage everyone is at and whether there are important scans or test dates due.

eurochick · 03/05/2012 11:24

free how exciting. Whereabouts is the house? (PM if you don't want to say on here?) I voted on my way to work this morning. This drizzle is horrid.

freelancegirl · 03/05/2012 11:27

It's in an area we hadn't considered before - St John's?! Conservation area equidistant from Greenwich, Lewisham, Deptford, New Cross. So good bits and bad bits obviously... Good transport links with overland and DLR though and slightly less of a walk to Greenwich Park from where I am at the moment! Will send you a link to house. And anyone else who is interested!

mercator · 03/05/2012 11:29

Snoopy I am so terribly sorry to read your post. Thank you for letting us know. I can fully appreicate you must be absolutely reeling right now. All I can say is that the NHS is superb in these cases and its so positive that you got tested so quickly, let's hope that because you've caught it quickly that perhaps they can do a lumpectomy.

Wishing you every success with the treatment! My thoughts are with you and do let us know how you're doing.

igggi · 03/05/2012 11:34

Had almost forgotten about voting. Getting dressed is too much effort for me! But I will go later when I can bag a lift.

Lying on the couch debating whether to bring the doppler out yet again - to wake the baby up a bit. Don't believe I can keep this LO alive for the remaining 14 days till d day, not without going mad in the process anyway.

Glad you've found a house Free - and very impressed you've done all this whilst pg!

freelancegirl · 03/05/2012 11:43

Iggi you have more or less said exactly the same as what I am thinking. I find it so hard to go anywhere at the moment - so unlike me as I am usually so lively and hopping on and off buses and trains, walking as much as I can. Am not dressed yet either. Running a bath to see if that helps me get in gear and it will delay the getting dressed and going out process a bit longer

Not sure if I should be feeling like this as 28 weeks when you are so much further along than me!

The baby is moving today but I am also tempted to break out the Doppler just to make sure. Tortured myself by reading a thread about stillbirth earlier. It's sort of twisting and shuddering today rather than kicking, which freaks me out.

batteryhen · 03/05/2012 12:49

I am with you on the movement front. I still get the Doppler out now and then to reassure me. I have my 25 week appointment this afternoon so I hope she will listen in then! I have been up and dressed since 8 because I have double glazing being fitted. I am desperate for a wee but there is no window in the bathroom!!

snoopy I hope you are reading your messages of support , like I said my mum was diagnosed before Xmas, and had a lumpectomy and reduction in January. She too is on the trial drug and so far so good xx