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Conception

When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

TTC: Pregnancy on Prednisolone or similar part 7

999 replies

ChoccyPud · 17/04/2012 13:58

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

OP posts:
Arianrhod · 27/04/2012 12:45

Ok, ok, I forgot another very important one (and I can't believe I haven't got it on my Mr Shehata spreadsheet, how did I forget that!):

I also take 1000mcg Vitamin B12 (but in the methyldated form Methylcobalamin), also thyroid support.

Honestly, I'll shut up now, sorry!!! Was just in case my regime was of any interest to anyone, that's all Blush

Havingkittens · 27/04/2012 14:26

euro, sorry for the BFN. Grrr! It does seem rather bizarre than there is such lack people in the 1st trimester Hmm

Welcome back scooter! Are you still seeing Mr S on the NHS? I just wondered as the only other person that I've seen mention that he no longer recommends intralipids was also seeing him on the NHS. I was just wondering if that was the line he took with the NHS patients because of budgets? I remember you had them privately in addition to his NHS treatment before.

Interestingly, my cycles seemed to be shorter on pred. I am off the pred this month as probably not going to ovulate (will take it if I miraculously do, of course!) and then having a FSH test at the beginning of next cycle so I wonder if it will have any effect.

snoopygirl · 27/04/2012 16:59

Oh euro that's a nightmare, what with IUI as well. So sorry.

The tide has got to turn for us on here soon, surely...

BellyD · 27/04/2012 17:45

This is my fourth attempt to post in the last three days, accidentally deleted my message twice and mn under maintenance when I had finally finished waffling on last night! Grrrrr!

London so sorry for your recent loss. It is just not fair.

Duggs Welcome home. I can't remember exactly if I have commiserated with you but am very impressed with your strength and powers of research. Full of admiration for you.

Snoopy as if you need anything else to worry about, but glad the NHS have given you an appointment pretty swiftly so that hopefully you can put your mind to rest.

Iggi enjoy your maternity leave, sounds as though you are more than ready for *

Choccy I know Free gave you some great advice re counselling. St Mary's gave me the name of the counsellor they recommend for MC which I can let you have if you like. I haven't used her yet (slightly put off as she is a specialist in Sex Therapy too Wink), but I think once we have exhausted all avenues of hope that may be the time I need to see someone.

euro gutted for your bfn. Bfn at my end today too, although I stupidly started taking the cyclogest too early, so may have even stopped myself ovulating this month, so only have myself to blame. Having FSH test repeated next week and just praying it is a lot lower than last month.

Free if you need to go to A&E to put your mind at rest, then just go. It is totally understandable that you would worry, but glad there has been recent wriggling!

Coconut - ooh, perhaps baby coco will put in an appearance this weekend while you have extra pairs of hands on deck

Ari what a cocktail of drugs you are on - at least you know you are doing everything in your power to achieve your dream.

Congrats on reaching 2nd Trimester PQ and free and cheerful for graduating to the 3rd.

Just to add to some of the hot topics of recent days:

I am not a veggie, but I did go and see a Zita West nutritionist after my last mc as I am allergic to so many foods (mainly healthy ones like nuts, pulses and seeds). She said for conception it was important to have protein at every meal. Most of us probably do at lunch and supper, but I definitely wasn't at breakfast, but am now obv!

Selenium - after MC number 2 we were recommended www.foresight-preconception.org.uk/ by the EPU at Chelsea and Westminster. You basically send them a sample of your hair and they tell you what you are deficient in. DH and I were deficient in Selenium and so started to take the supplements, but at that stage we were being fed the "It's just bad luck" line so didn't take them religiously. We now take Biocare Selenium daily. They like you to take their supplements for 4 months before TTC which is time a lot of us don't have, I know.

Finally, can't stand single magpies - they plague me. It drives DH nuts, but I'm convinced they are a sign!!!

In other news, I was filmed for Antiques Roadshow yesterday, all very entertaining, but fully expect to end up on the cutting room floor, and we are off to see a man about a dog on Sunday (yay!) Grin am gradually wearing DH down Wink.

Here's hoping the rain stops and the tide turns on all the negative news on here. Waves to all and Happy Weekend.

FrozenNorthPole · 27/04/2012 20:15

Hello all. Sorry for absence (although I don't think I've been on here long enough for it to be noticed!) but I've just been hanging around waiting for my 20 week scan.

It wasn't the all-clear I was hoping for it to be. I've posted details of it elsewhere on MN here

Any good thoughts or prayers would be appreciated as we wait for the next scan. Sorry to be so AAM Blush

BellyD · 27/04/2012 20:53

Frozen huge virtual hug and really hoping you get some positive news when you see your consultant. X

duggs1976 · 27/04/2012 21:09

hi ari many thanks for this info. I'd love any more links to explore..x

duggs1976 · 27/04/2012 21:10

frozen very dissapointing that you have had to have this info thrown at you when it could well all be nothing. It makes me cross the sonographers can be so flippant. Thinking of you, x

Arianrhod · 27/04/2012 22:35

frozen So sorry you've had this scare, and how on earth could the midwife have NOT measured the actual depth of the fluid she thought she saw?? Fingers crossed for a better scan for you with your own consultant on Monday. Virtusl hugs to you.

scooterchaser · 27/04/2012 23:31

frozen so sorry to hear about your worry, it is amazing what they can pick up at these scans to frighten us out of our wits. It's not exactly the same but DS's heart was scanned at a rate of 500bpm in my pregnancy, he terrified everybody. Turned out that it was a freak heart electricity problem in the womb. They managed it with drugs at the time but if they hadn't discovered it, it could have corrected itself. He had a normal heartrate at birth and was given a clean bill of heart health at a few months old. Everything crossed it will be the same for your little one's heart too and the next scan will be good news. Virtual hand holding and prayers, I do remember how scary it is.

euro, belly so sorry for the BFN's. Belly I so want to do the hair analysis thing (prior to pumping myself with selenium) sounds so easy, how do you go about it? Is it expensive?

coconut how are the twinges....? Waiting in eager anticipation for your change of username to cocopops!
Yes, it's good to have a plan, I am not at all confident of my chances tbh, but I am gearing up for a fact-finding mission with the next (here's hoping) pregnancy. I'm going to ask for every test they can do.

kittens hi, yes I'm still NHS. The intralipids thing can't be a budget decision though because you're right, it was only ever a private arrangement for everybody (interestingly my costs for intralipids were higher than at NLC). I think he makes a case by case basis for recommending them and as I got to nine weeks on the treatment, with intralipids at 5 and 8 weeks its clear they were in my system but not working for me. I fully support everyone else planning to do intralipids though, there is good evidence that they help. I still suspect there is something else at play in my case and only next time will tell, but intralipids is not going to be a dealbreaker for me either way.

Sorry to ask, I've been out of the loop so long, are you super-ovving but just not looking promising for this month? I guess it could help to have a little break from the pred, it just seems to cock everything up doesn't it. What will the FSH test tell you?

ari am totally in awe of your supplement regime. You must need a suitcase of a handbag. And I suspect you have glowingly radiant skin :)

batteryhen · 27/04/2012 23:52

frozen it's not exactly the same but when I had my detailed 12 week scan at the FMC they told me baby had a leaky heart valve. This increased my risk of downs etc. Scared me to death . However all was clear on the 20 week scan. It just goes to show that things can resolve themselves pretty quickly . I am sure you will get the all clear but I know what a worry it is xx

Coconutfeet · 28/04/2012 06:25

Frozen - what a horrible worry for you. I hope you manage to somehow keep your mind off it for long enough this weekend to sort your thesis out, and get some sort of rest. Hopefully Monday's appointment will be able to give you some reassurance. Keep posting if you need some support. We're all here for you. X

BellyD · 28/04/2012 08:42

scooter take a look at Foresight website www.foresight-preconception.org.uk/. From memory the hair test costs about 70 quid per person (although we had it done a couple of years ago now) and then you have to pay for the supplements on top. A lady I work with really believes they helped her.

duggs1976 · 28/04/2012 10:53

Morning ladies..

I was looking at the list of 2nd and 3rd trimester ladies and Stogan and Digi.
It does seem quite random what works and what doesn't.

abney (44) is interesting.. SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),

It is so strange that she has had 6 miscarriages and 4 were chromosonally normal. Then had a son with pred and fragmin (herapin).
But then she has gone on to have 4 subsequent miscarriages on that treatment.... it just seems that this proves there isn't one FIXED treatment solution for each of us as things within us change. We just need to keep trying each month.

What does dr S say about your experiences abney ?
hope you don't mind being a case study today?
x

Abney · 28/04/2012 11:53

Hi Duggs I have to go out for the day but I will provide the info later and what I think, believe, etc and what Dr S has to say about it all. I don't mind being a case study as my MC's before DS surely evidence that there was no NKC issue and therefore it is that 'elusive' something else. I am not sure if the molar pregnancy can be classed as a chromosome issue but what I would say the chromosome issue re Edwards Syndrome which is worse than Downs was a 1 in 3000 chance of getting it and the Molar was equally the same so I had 2 very rare cases. They said I was really unlucky! Anyway for the 'Edwards Syndrome' I only found out on the 12 week scan so this baby could have gone all of the way like most 'Trisomy' cases (if we did not terminate) so if this had not have been a 'Trisomy' case then perhaps I would have had 2 DC by now and I would never have known about the last 4 MC's as I think I would have stopped at 2 depending on my age. I think you also said that you had a 'trisomy' case. Again would this have gone to full term? If so doesn't this show that if it had not have been a chromosome you may perhaps have a DC by now. The 4 unexplained before MC could have been chromosome issues and the 4 after DS could have been. It is just that I have never got to the 12 week scan with these and nothing was ever analyised due to being on the NHS. In just over half of the cases there has been a heartbeat which has stopped by the 9th week. Anyway more info to be provided later.

Havingkittens · 28/04/2012 16:23

abney I have had two TOPs for Trisomy pregnancies. The only two times I've got to 13 weeks so far.

scooter I'm on my 3rd Cycle of SO. The first one I had one follicle, the second there were 3 at 12mm which could have gone either way. I'll never really know as I didn't have another scan later to see. Mr S told me that at 12mm they can either develop or stop and disintegrate. Anything past 12mm is promising. This month I had one follicle of, I think 8mm, on CD14 which he didn't think would amount to anything. We are hoping that it was a one off, anovulatory cycle but the FSH test is to check whether there is now a problem with my ovarian reserve.

belly, what kind of dog are you getting?

Abney · 28/04/2012 21:16

Havingkittens well that is interesting. It must have been devastating though. My first reaction is how comes the Trisomy babies get to the 12 week scans and then I thought perhaps some of the others are 'trisomy' but don't reach the 12 week scan. I wanted the last one 8.5 analysed but the NHS were not very helpful. Now for some interesting points.

The only thing I did different with DS after 1 Molar, I Edwards, 4 MC's (not sure if chromosone issue or not) was take low dose pred for the first time and fragmin. The time before it was fragmin on it's own and it still failed but could this have been one that due to my age would have failed anyway? After DS I was diagnosed with VHKC did the birth of DS 'trigger' them? Also can you become 'immune' to Pred. Someone has said that they felt like due to all of the various treatments DR S offered that they felt like a guinea pig. A while ago I felt exactly the same. I couldn't understand why he did not recommend fragmim and steriods all of the time. Why not throw everything at it? Only now has he agreed that 'yes' we would throw everything at it. My sister and mum have factor 1V Leidens (or whatever it is called) blood clotting issues but I was tested years ago and it came back negative so I know I haven't got it but I was diagnosed with borderline sticky blood something of which DR S says the asprin should cure. But what if it doesn't what if the blood keeps thickening in early pregancy. A while back I read loads about women having 7 or 8 MC's then taking fragmin and then having a successful PG. I haven't been on fragmin the last 2 times as 'it was not recommended' and it is only the last 2 MC's I have been on higer dose Pred as it was only recently discovered that I had VHNKC. The gap between testing was about 3 years.

Going back to Duggs question what does DR S say? Before I took low dose pred in 2008 he said that there was an 80% success rate if you took it and that's why when I had my DS I thought great we have found a cure only then to have another 4 MC's on the treatment. After my 3rd MC (after DS) he said he had never known anyone to be on treatment having 3 MC's. From reading the posts I don't think that this is necessarily the case. One of the issues was that I was tested for NKC's back in 2008 but not tested again until late 2011. For such a simple test why didn't they do it before? Also I had to remind him that in 2006/2007 he said I had borderline sticky blood and when I reminded him recently he said 'oh good if I do get pg again he will test again'. The only other thing is that before I had DS I was going to the gym every morning before work. Only 30 mins on bike and 30 mins on running machine (fast walking only). I have read that excercise thins the blood. I probably gave up quite quicky when I found out I was PG.

I am a meateater and always have been. I sit at my desk all day long and don't move an inch which is quite bad for circulation.

My AF's are so heavy each month and I am Resus Neg (not sure how to spell it). Myself and DH was tested for DNA matching and that was all clear. The last MC I had I was upset because the pattern is mostly the same. Good little heartbeat and then nothing. I actually said to the scanning lady 'it is such an obvious pattern something is killing the baby off'. I don't get why they don't do more research but I guess it is because it is not an illness.

One last thing when I asked DR S if there was anything else on top of what he prescribed he did look at me as if I was going mad. I felt a little silly but what is this about Hydroxy. Why did he not mention it? I am determined to ask at the next visit. Anyway some food for thought. Sorry to rattle on. I do like DR S very smily and friendly and he makes me feel comfortable. He now just needs to increase the success rate as just recently there has been way too much bad news on this thread which makes you think it is not going to happen. I bought my soleniun today. I will prob pop the first one tomorrow. See if that makes a difference.[Grin] By the way intralipids are also on the cards the next time I get PG (cross fingers). Only because I insisted in a round about way.

duggs1976 · 29/04/2012 00:48

Hi abney interesting information! I agree is all a bit to random for me. Especially after 2 chromosonally perfect embryos were "killed". Not sure why dr s is telling choccy she is only person to have had 2 mc on the treatment as is clearly not the case. Blush just been to a kazaksthan wedding great fun. Anyway hate to be negative but also hate to blindly stagger up the garden path ( albeit unintentionally). There are too many strugglers on here right now x

ChoccyPud · 29/04/2012 08:00

Tbf he didn't say I was the only, just that I'm very rare to have had two mc's on treatment... And we know eg Abney has had several mc's on treatment as well as beforehand. Plus those who aren't on this thread (or haven't come out) could completely throw out our stats/expectations.

I just stick with the thinking that the more we talk and share, especially the Bad News, maybe more ladies will find us and feel able to de-lurk because they will know they aren't alone.

Just been glancing through Chat over my breakfast and drugs. Euro someone asked you about needing to take anti malarials whilst in SA as she's ttc. I CBA to reply but it made me smile thinking, hun, you have no idea, but if you make sure you get Hydroxy you'll be fine...!

Finally, and away from ttc/mc's, I can heartily recommend Avengers Assemble. V funny and plenty of eye candy... Robert Downey Jr is mine I tell you - all mine! Grin

OP posts:
Abney · 29/04/2012 09:06

Duggs ChoccyPud Thinking about it I think it is obvious that there is something else going on with me and where I did not have VHKC this may have just added to the problem (perhaps triggered by birth of DS). A girl I know had a little girl and then had a couple of MC's, 2 or more (with a different partner). She then went on to Steriods and had 2 more children in very quick succession. Surely it can't be a coincidence. Duggs I think you said that your eggs were considered almost 80% bad. What if this is the issue with me i.e. what if mine are 'mostly' bad? Could this explain a few things? How do you know that yours was bad? Is it because they did not survive the IVF treatment? Is it common to collect 18 eggs and then only 3 be OK? What are the stats? If you were to transfer last embryo how much would this cost? I think this would be my last resort if it all goes wrong again. I have the money for 1 cycle (money towards extension) but I will give this up in my quest for some siblings for DS. By the way took SO injection a week ago so eagerly waiting test date. You may recall I only had 1 large 24 mm follicle. Left ovary not considered to be functioning properly so I will increase drug taking next time if this time fails. 7.5 I think. Duggs glad you was able to let your hair down for once and I am sorry about all of the questions. I was sitting in Weatherspoons yesterday dreamily looking at all the pitchers of cocktails. I said to my mum I would like to go on a big bender. Something I haven't done for ages. What would be interesting to know is how many people have been successful taking or swapping to Hydroxy first/2nd time, etc. I am definitely going to ask about it next time I see Dr S.

duggs1976 · 29/04/2012 10:18

hi ladies.. well actually my eggs are standard for someone my age..3 out of 4 chromosonally good is acutally ok apparently. 60% of a 30 yr olds eggs are chromosonally bad as part of nature apparently. So one good thing to come from my IVF & CGH cycle is that I know my eggs are not all bad and there is a chance of a normal embryo. Just need some drug combination to work now to keep it alive...

Oh well like you say... the more info sharing the better and I like the pioneering approach dr S seems to take.

It really is so difficult I guess even more so as the immune system isn't a fixed entity and fluctuates depending on so many things.

First trimester list is looking sad and perhaps that is where his treatment separates itself. I think the ability to get a BFP is obviously the biggest factor as if we can't get one, we can't trial and learn about our responses.
grrr...

Anyway, super ovulation queen's has anyone actually had any success on that programme.. a few of us must be hitting the magic "5 and 6" cycle mark where 85% of people conceive... that is a lot of BFP's coming up if we are to belive these stats.. deep sigh.

What is with this weather...? ehrrr ... it's May.
come on.

Just seen photos from wedding and egypt.. my face is a moon and a sun put together.. get me off these damn steriods quickly.. (she says tapering too fast). grrrr...bring me the appetite suppressing hydroxy fast. BTW are they perscription only..? Do I have to wait a whole week for my dr s appointment.
;0)

freelancegirl · 29/04/2012 12:10

Hello all,

Been MIA as am in Brighton packing up the flat with sketchy internet access. Frozen I saw your other post before you came back on here and i wrote a really long reply that then got eaten up by my phone. So very sorry you have this added stress. What I said in the other post was that midwife sonographers are often not as experienced in anything that might be slightly out of the ordinary so I hope you have better luck with the consultant tomorrow. However I also suggest you check out the Fetal Medicine Centre where a few of us have also been for scans. They do in-depth tests there that are not usually done on the NHS as they put a lot of money into research and are always developing new tests (they invented the Nuchal). I know from my cans that they did innovative heart checks, not sure what they are but might be worth you investigating if it turns out the consultant finds anything on Monday? Good luck though and please let us know how it goes. We are here for hand holding and anything else you might need.

Duggs it is indeed depressing having a bit of moon face after the steroids when you've had a miscarriage. It will go down soon though, it took me about 4 weeks I think to get my face back to normal. I imagine that the hydroxycholorquinine is prescription only but am assuming you are talking about it as you think Mr S will try you on it? It will be interesting to see what he says about the next steps for you.

Yes maybe you are right about that gap in the first trimester - that the treatment can only have the chance work if you can get pregnant in the first place. But there have been some BFPs that turned out to be miscarriages on there too so hopefully that means that with a bit of tweaking of treatment, a bit of better chromosonal luck (although I know it wasn't chromosones in your case) AND the damn super ov starting to work for people soon there will be some more BFPs that stick very soon.

Abney your case is indeed fascinating - having had recurrent mc before DS and after. I hope you get some answers re the eggs and also that Mr S considers trying you with hydroxy too. I am one of those people who had a mc on just steroids and intralipids but seem to have been successful so far with these plus hydroxy. He says to me you never know exactly what it is that makes the difference, but obviously a difference has been made.

You are right Choccy - I think the more people we can get on here the better. Not just because it's great for support and swapping information but also so we can have a big a sample as possible to see how things are working. If we had a few more people on here we might well have a few first trimesters to add to the list. Lets drag a few over from Baby Centre :) Glad you are coping well with everything, in the circumstances. Oh and talking of coping Abney go down some of those cocktails and have a blow out!

Ari I too am completely in awe of your supplement regime. Your meds count beats mine hands down. I was laughing at the fact that I am down to 12 tablets a day now (just a low level rattle...) but yours is the top trumps winner of meds. I don't think you're taking pregnacare are you? I guess that does include some of the other bits you are taking separately but you are maybe taking them in better dosages.

I was thinking of investigating with that Foresight testing too Belly just to see if there was anything I was missing. What flavour dog are you getting? Hope it's one of those ones that clean up their own poo and flush the loo behind them Grin Thanks for your comments about A&E. Yes you are right, if I really feel something is wrong I will definitely head down there. Thankfully, just as I am on the brink of heading for a check up every time there is a bit more movement. Let us know about Antiques Roadshow! Do you have something incredibly valuable...?

I am finally having another check up this week - my second one at Epsom General. It is the glucose tolerance test so I have to fast and hang around for a few hours drinking sugary crap. But it is good to be being monitored. It's an effort to get there early in the morning though (this time I will be going from Brighton) and I will be starving!

Waves to everyone else and a cute little wave to Baby Digi and Baby Stogan flying their flags at the over side of the finish line! xx

freelancegirl · 29/04/2012 12:13

Sunday 29th April

The babies are arriving!
Stogan - V high NKC - cycle#2, DC#1, Baby girl born Sunday 11/03/12 7lb13.5. Our First Pred Thread Baby!
Digitalgirl - High NKC - BFP cycle#2, Baby boy (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12 Our Second Pred Thread Baby!

BFP 3rd Trimester
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 38+6 Due date: 07/05/12
Comedy - V High NKC - BFP cycle#2, DC#2 ? 36+6 C-section booked: 14/5/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- 35+5 c-section booked for 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 35+0
Freelance - V High NKC TTC#1 Hydroxychloroquine, Pred, Intralipids, 400 Cyclogest, Thyroid/hashimotos. MC 1st Pred cycle. DC#1 27+5 Next appt with Mr S, 25th May EDD 24/07/12 (GTT 1st May at EGH)
Cheerfulcharlie - V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 27+4 EDD 24/07/12

2nd Trimester
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 24+2
coleyoz - V High NKC. DC#2, BFP cycle2, 23+5
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 19+4
Mercator - V High NKC, TTC#2. 19+3
Hopefulfor2nd - High NKC - TTC#2. - 18+3
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 18+3
PQ77 - V High NKC TTC #2 (BFP cycle one but mc) 13+6

1st Trimester
To be filling up very shortly!

TTC ? ASSISTANCE - SO/IUI/IVF
duggs1976 - High/V High NKC - TTC #1 - IVF cycle #1 ?pred, intrallipids, metformin, clexane, cylogest
Havingkittens - Upgraded from High to V High NKC TTC #1 -10 pred ? 3rd cycle SO
Snoopygirl - V High NKC TTC, pred cycle 5, Super Ov Cycle 3
Abney (44), SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 4, Super Ov & IUI
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, combining IVF with Immunotherapy
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)
Suemays - V High NKC, TTC #2. Superov. (Pred & Hydroxychloroquine)

TTC
London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - RMC, NKC not tested, TTC #4 cycle 2 (after m/c 12) Fertility consultant
prescribed pred.
GreenOlives - High NKC, TTC#2, Pred Cycle 2
picolina - V High NKC MC on treatment (taking a break on holiday)
Holldoll - High NKC - Pred, Cyclogest & aspirin
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)

Current status?
Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS

eurochick · 29/04/2012 12:55

choccy what thread was that? I've searched but cannot find it.

bfpseeker · 29/04/2012 15:44

Hi ladies

I introduced myself at the start of December and have been a lurker ever since Blush. Just though Id come out of the woodwork to say that I too have now had a mc on the pred. I got to 6 weeks, had a v small brown bleed then at the scan a few days later there was only an empty sac. I knew exactly when I ovulated as I temp, but I had to wait another week - next scan there was growth and a yolk sac so i was kept waiting another 2 weeks till a mc could be confirmed which meant that I was on the pred the whole time...
I opted for an erpc by Dr S in the hope that he would find something but the genetic tests came back with no answers , I think as there wasn't actually a foetus there.
I was borderline high / v high back in Sep so was put on the 40mg from ov but no intrallipids. Dr S has recommended the intrallipids for me this time, no mention of hydroxy. Bit miffed if he is telling some of you that the intrallipids don't work.
Anyway. DH and I are now following the foresight programme after hair anal showed us low in selenium & zinc, and both of us high in lead , DH also high in aluminium! We got new non aluminium pans and a water filter jug as well! I have also started wobenzyme which i found on the internet - not sure if they do any good or not. Anyway. we started again this month so time will tell.. but TBH i think i have an egg problem or something else as well as the NK cells as I have now had an empty sac 2 out of 4 mc, 1st one i mc before 5 weeks so no scan, so only 1 foetus out of 4, and that's the one I think the NK cells probably got...

wishing you all well, i've been gutted to read all your bad news, hang on in there ladies
xx