TTC/Pregnancy on Prednisolone or similar part 5

[suemays]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

Free I remember the knackered and come thing well, we thought it was hilarious!! If I remember rightly wasn't it ''fish fingers" (someone we knew who was in a birds eye advert) that explained the knackered thing to us? I just remember him telling us we shouldn't use that word! :)

Hope everyone is having a nice weekend. Only one more day of letrezole to take, looking forward to not feeling so knackered and not having night sweats!!

Hello all. Had scan on Friday and the bean is ok. Good heartbeat and a little growth spurt. Very releaved but know theres still a long way to go. Scan again next Friday. Having a NKC test done again on Monday to see if need another round of IVIG. One week at a time...

PQ so pleased for you!! now look after yourself and i will cross everything !

looks like things are well on the way on my side , started heavy spotting on friday while me and lisa spent hours chatting , the people around us learned way more than they prob wanted too!! last night was the worst with craps but it looks likes all progressing naturally, will rebook my scan for the next wed to make sure all ok, in the mean time im going to try and catch a few hrs sleep coz i didnt get much last night .
our flights all booked so i leave for dubai on the 14.4 and back into lond on 27.5. nice long break.

dunnit really pleased to hear scan went well there's been a growth spurt! Was it you that was measuring a little behind last time? Are you measuring around 8 and a bit weeks now? One more week to go till you've passed Mr S's all important 9 week milestone.

PQ I've got my fingers firmly crossed for you that this time will change your stats from 1 in 7 to 1 in 4.

battery how are you feeling today - has the sickness eased?

stogan are you 37 weeks already?!! Huge congratulations for getting to full term!! Baby is officially allowed to come anytime now. What are the plans re: going over due date? You eating pineapple, curries etc going for long walks?

pebbles am feeling hopeful for you with the superov, statistically someone has to hit the jackpot first cycle. When's your follicle checking scan?

free After I got over the pred withdrawal I was mainly fine in second trimester - although I remember getting a bit crampy when overdoing it while we were at CenterParcs. I do get a little tired now in the home-stretch but I think the adrenaline of having a lot to do has kept me going. I'm sure if my to do list wasn't so long I'd be in bed a lot earlier each night. But then everyone's different - some women get so tired in pg they're in bed at 8pm every night from the day they see that second line.

That said I'm taking it v easy today. At my mum's with my feet up being fed and watered while ds is being taken care of and dh is back at home putting the ground floor back together.

Afternoon all, I've pretty much slept this lovely weekend away with this nasty cold/bug thing :(
pico i'm only up the road if you need me for anything
Hope the rest of you enjoy what is left of this beautiful day

Afternoon ladies, reporting in for duty :) Sorry for the silence, been down in sunny Devon for OH's 50th birthday, no wi-fi and mobile network incredibly slow. I have been keeping up with most of the chat, up to about last Thu and have just caught up with the rest. Huge (but whispered) congrats PQ, so pleased that you got your BFP!

sue and choccy interesting to hear what you say that Mr S is considering just using hydroxy in future rather than Pred. I think for myself I'd be very nervous stopping the Pred (although obviously I'd love to) since there have been so many successes on it. But I do understand if Pred messes up your cycles it would be good to avoid it.

duggs I'll be very interested to hear about your experiences on IVF with CGH. I actually wish I could take this route given that egg quality is a huge worry for me, given my age, but unfortunately given the cost it's not an option for us. I'll be really interested to hear how you get on, if you're willing to share?

Personally I'm getting more and more fed up with the whole thing. Taking huge amounts of tablets every day, spending half my cycle waiting to see when OV will turn up, having to make sure of swi on the right days, the spending the rest of the cycle trying not to worry whether we've managed to fertilise that.wretched egg. Never mind then worrying about MC, are my eggs any good, come to that are DP's wrigglies any good since they've never been tested (Mr S didn't think it necessary). I did OV on CD14 last week and we did DTD on the appropriate days but you know, I'm so fed up of the whole thing. You all know, I'm sure. I think were I younger I might be a bit more sanguine about it all but the fact that we don't even know if my eggs are up to the job just makes me think we may be doing all this with no real chance. Ah, well I'll see - I've always said I may well get to the point of being so fed up with the uncertainty of it all that I'll just jack it in. That day may be coming soon.

/waves to everybody, hope you're all enjoying the sunny weather!

Really pleased at your news, PQ. No reason why this shouldn't be the 'lucky' time for you
Pico I'm glad (if you know what I mean) that things have started happening for you, when you've been waiting for a while it can come as a bit of a relief even - no operation required.
Well having tended a sick ds all week it's no surprise I am now completely full of cold, shivery etc. I've had 4 colds during this pg, immune system definitely down! Some things I ordered for the baby are sitting in the corner of the room looking ominously at me. Think I'll throw a blanket over them.
Ari I understand the fed-up-edness, I always think what if I gave up now, and the next time is the one that will work?

PQ - congrats on your bfp.

dunnit - good to hear of another positive scan.

pico - it is good that it is finally starting for you, hope that the distraction of going away helps.

As for me, I am going tomorrow to finally get my prescription for prednisolone and ask for a prescirption for high dose folic acid.. AF is due on thursday and I am going to get the folic acid, vit D and pregnacare started straight away. Can I ask if all of you are on asprin before conception? Anything else I should be taking or getting a prescription for? Thanks.

willitbe yes I'm on aspirin .75mg

lisa thanks for that, feel really good after a couple of hours of deep sleep this afternoon, we'll see how i feel tonight and the cramps, for some reason they are always worse at night.
arian i know how you feel about being fed up , i heard there are tests you can do besides the fsh and lh test to check your eggs, its still a blood test. im thinking of doing it , i think we are similar age ( im already 40) and it wont hurt to check.

pico Have you got some painkillers to help you???

arian have you already done these tests?

Testing Egg Quality
If you think you may be struggling with fertility issues, it is important to get checked out by a health care professional. In particular, you should probably make sure that your eggs are healthy and of a good quality. Women who are struggling with infertility and are over the age of 37 are usually tested for this.

It is difficult to determine the quality of an egg simply by looking at it. Doctors usually have to implant the egg using in vitro fertilization to see whether it will grow or not. However, there is fertility testing to determine if you may be suffering from poor egg quality. Typical tests that evaluate your egg equality include:
?Day 3 FSH Test: Measures your levels of FSH. Elevated levels may indicate poor egg quality.
?Clomid Challenge Test (CCCT): The clomid challenge test is a blood test that also looks for FSH as Estradiol in your body. However, this test is more accurate and more in-depth.

Willitbe - Omega 3.
Missed Dunnitt's scan news, excellent!

pico Thanks for the info and no, I've not been tested. Whenever I raise the subject with Mr S (he humours me :) ), he always says he's not worried because up until now I get pregnant reasonably quickly. However, I'm still concerned, even though of course I do respect his opinion. Truthfully though I think if I had an FSH test and it came back showing poor egg quality I'd throw in the towel straight away! I'm very interested in the CGH test with IVF as they can actually test for chromosomal issues. Like I said, if I could afford it, I think I would be very tempted to go that route, it seems such a sensible thing to do. Such a pity it's so expensive, even on top of the costs for IVF.

dunnit I also missed your great scan news, excellent to hear! I do like to see success stories :)

I'd be happy to share ari! thanks for moving me on the list free. dunnit hope you didn't feel too depressed after our lunch. Good to meet pebbles . .

So Duggs have you downed the letro tonight?

Good to meet up today ladies! I am now in the 2ww as have OVed today so can someone move me on to the waiting to test when they get a chance. I should be testing on 1st March.

Pico glad the MC is happening narturally for you.

Willitbe I am on 75mg aspirin too before conception and then double it once I get a BFP.

Ari I am nervous to stop the pred but then if I can't get pregnant on it there is not much point in taking it! I guess if I come off of it I could take it from BFP anyway. Watch this space! We all feel the same as you as it's the constant waiting to get a BFP and then the worry when you do, it drives you mad sometimes. There are women who have babies well into their forties but it doesn't help how you feel.

Hey digi yeah 37 weeks now and the twinges are coming thick and fast, actually thought it was the real thing last night at my cousins 18th so we left early only for it to be terrible wind !!
My consultant wants to see me on Friday to check I'm still ok waiting for things to happen naturally after everything we have been thru as he really wants us to be looked after which is great but I really do not want to be induced !!

Sorry for lack of personals, this thread moves soooo quickly. Hope everyone is well as can be I'm off for a hot bath and some ripe fresh pineapple, will keep u all posted !!!

Omg stogan It's imminent and that' a fact!! but maybe sooner than later. I'm so excited for you. Get plodding round the block if you can manage it! That's what I tried to do to bring things on and and ...ok it didn't work I ended up slumped on peoples garden walls puffing but may help.

ari being not far behind you age wise I can sympathise totally. I don't think i'll be progressing to ivf to be honest and same here just can't afford it really and no room on cards after our house build. Also DH wouldn't be keen. Oh well I'll give the Sup O a good go first. Would that help you do you think? I am only on it to help speed things up and take control a bit as time ticking.

Great news dunnit - not long until your next scan too.

stogan - from the sounds of things you're not far off from d-day!

pico - like everyone else has said, glad things have kickstarted naturally

Thanks snoopy .. I did ask Mr S about SuperOV and he said I didn't need it. Again, I have to respect his opinion. shrug

sue I was thinking that too .. if the pred messes up your cycles, you could always take it from BFP if you wanted the reassurance. Won't it be fabulous though if just the hydroxy does the trick, without ever having the horrible side effects of pred? Marvellous!

ari would it be the AMH blood test you might want? Although I think this indicates egg quantity rather than quality. I know Dr.S does this as my friend just had it done with him. (She has now sadly had 3mcs and just starting his treatment plan)

Hi All

Congrats pq on your bfp, you are over the first hurdle.

dunnit glad to hear scan all good.

willitbe I am taking 75mg of aspirin too.

So, I have started nervously on the pred this am on cd13 having had cycle monitoring scan last Thurs. 4 follicles (yikes) but after receiving no helpful advice from Dr S and Cheryl (think because I had scan at St Mary's, which he did know about) DH and I (with some advice from super ov thread girls) decided to give it a go as couldn't bear to waste precious eggs or wait out another month. 2ww for us, should be testing around same time as suemays.

Just posted on super ov thread. Am starting IVF and CGH this month with view to egg collection mid/end march and if a decent embryo replacing 2 mths later mid may- in time for my June deadline will keep folk posted on here if you like?

Yes please duggs, I'd certainly like to know how you get on (although I'm following the SO thread too :) ). Why does it take a month and a half or so before you have the embryo put back, do you know? I know they have to do testing/fertilisation/growing of the egg/embryo etc, but I didn't expect it would take that long?

cheerful I'm not sure - but Mr S has said he doesn't think any testing is necessary shrug

Apparently there is some thinking about waiting a few cycles to concentrate on a lovely uterine lining ?! I will ask more on Wednesday. I think I need to find a CGH thread too but I don't think one exists. .