TTC/Pregnancy on Prednisolone or similar part 5

[suemays]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

Just marking place as fell off, have self-imposed a laptop ban until unpacked etc. Btw got awful cough and cold too - not sure what that means, if anything, wrt nk cells - havent had one for a good couple of years.

Welcome Home free hope your suntanned, refreshed and fatter

lisa the line was fainter this morning well barely there really. If you could see me squinting in the window light with the sherlock holmes magnifier tilted every which way you would laugh!

snoopy It might be stronger tomorrow :)

hi everyone,
still noting but slight spotting going on with me , with some period like pains. went in to see epau, i asked if it was safe to wait another week for natural and they were ok, she said baby stopped growing at 6 weeks pretty much after my last scan so its already been 2 and half weeks. mentioned acupuncture, was told not to waste my money, she also said re st anthonys that if there were any problems , i would be taken to st heliers and im a little bit more complicated due to steriods, this is for erpc. im worried now. maybe i should stay with st heliers since they know my history? she also said i may need antibiotics since my immune system is prob shot and infection likely. i like this midwife and i dont think she was trying to scare me off st anthonys but im nervous now.
also bough ref leaf tea and drank a gallon of it, ok maybe not a gallon but def 3 pints, will pick up pinapple and try that tomm.

has anyone heard anything about erpc and steriods . im on 30mg at mom and will prob be on 20mg.

regarding coming off pred, right hand been very shaky and had pounding headach yest.

pico They usual give you antibiotics after, I did for both of mine, the main risk with an ERPC is them perforating your uterus or anything else. That happened to me with my second erpc, I lost a litre of blood and they kept me in overnight, they were worried that they had perforated my bowels. Its a 1 in 250 chance. I would expect St Anthonys would be able to deal with that, every operation has a risk and it doesn't stop St Anthonys from doing them. I don't think its for her to dismiss acupuncture, its each to there own really.
Like I have said I found St Heliers were good, the doctors were ok but the nurses were great, just before they took me down for my second erpc I got upset by the thought of them taking my baby away from me, one girl on the ward came to comfort me the nurse held my hand and stroked my hair and the porter found me a tissue. I was informed all the way. The only downside was the nurse trying to put in my canula, not very good at it.
I hope the side affects don't get too bad for you, like I said i'm not far from you big hugs x

Hi Pico, have they offered you medical management if you are becoming nervous of erpc? Sorry if I have missed previous discussion of that.

lisa were you on pred when this happened? and excuse my ignorance but whats a cannula? i think at the moment im leaning toward st helier but my husband said we would sit down this weekend and look at pros and cons but to be honest shes got me scared to go to a smaller hospital now.
iggy i asked the midwife about that and she said i wont be able to try for a baby for mths if i go down that lane as the medication is like chemo! and i def dont want any more crap in my body at the moment.

to be honest this is all getting to me now , doesnt look like natural may happen.

pico that's rubbish about the medication, I've had 3 medical managements and they said I could try as soon as I wanted after having it, they just advised a break for me to get my head around everything afterwards. X

That's interesting, with my first mc I definitely heard that medical meant waiting 3 months, but with subsequent ones I was told it didn't involve any wait. Makes life easier, doesn't it!

pico what stogan said...the midwife is mixing up the treatment for a molar pregnancy (a very very rare type of failed pregnancy) which is like chemotherapy. Not at all the same protocol as medical management for a mmc where you can get back to ttc in one or two cycles if you feel up to it.

Morning thread ladies. Another BFN for me today and some spotting so AF will be here shortly. deep sigh. Even the IUI failed. 6 months since starting the pred now so onto IVF with CGH for me. I will let you know how I get on. PQ the odds are there for you honey so go get that Positive. Someone has to. Waves everyone.

hey duggs . Will you use the NK protocol alongside the IVF programme? I am really keen to follow your journey (particularly as I wonder if I am not far behind you due to my crappy eggs).

I was re-reading Dr Beers book last night (for some relaxed light bed time reading) and have been necking pomegrante juice. I have had no cramps at all this week - whereas last month I was riddled with them and thought that it meant I was pregnant. We'll see.

Yes London womens clinic do allow for and recognise nk cells. New life centre doesn't have it's licence for CGH yet so can't go there. Me too re cramps. I like a bit of pomegranate too x

Hi all,

Am back in London now, unpacked and tidied and ready (at least in principle) to get back to business!

I had antibiotics after my ERPC too Lisa and Pico, just in case, but no-one seemed bothered about the Pred and I just weaned off it like you are doing. I probably weaned a little bit faster that is recommended but I just wanted to be off it. I look at photos of myself at that time (I went to a festival a couple of days after the ERPC) and I look so bloated in the face. Very frustrating to have been on steroids and miscarried anyway, I know.

Sorry about the BFN Duggs. Are you definitely sure that IVF is your only option now? I know you are having a Super Ov meet up on the weekend so do ask my friend Pebbles about it as she is an expert.

Snoopy, sorry to hear about what seems to have been a chemical. You are right, it is weird knowing so early on considering pre-tests no-one would have known about the pregnancy at all. Maybe you are right and the Pred is making a difference? I too waited a couple of days after ovulation before starting the Pred. It never had chance to muck up my cycles (I only had two ovulation cycles on it and both times I fell pregnant) but I wanted to make sure I had a good 14 days on it before having to stop.

Yes I am indeed refreshed, tanned and fatter! I just weighed myself and I am 10 stone 10lbs. Could be off though as these scales are temperamental. I started the pregnancy on 10.2 so that?s 8lbs weight gain at 17 weeks which isn?t hideous I guess. The only frustrating thing I was heavier than normal at the start of the pregnancy but I guess none of that matters now.

One annoying thing that has happened to me in the last few weeks is I have gone off food! Anyone else had that in the 2nd trimester? I thought it would be the other way round. There?s really little I do fancy. I am not eating too little though as what I do fancy I am ok with. Just a bit frustrating to still be feeling nauseous and picky.

Some days I really can't believe I am still pregnant - so the Doppler has been making a frequent appearance.

Digi did you find out what the watery thing was? Was DS early/on time/late?.? How are the cankles ankles??

Iggi how is everything now ? did the bleeding stop and were the hospital supportive?

Loving the New Zealand connections with PQ and Lisa! PQ I am aware I need to arrange to come and pick up that stuff ? DH needs to be roped into that one with the car ? but also it would be lovely to come round for a cuppa and a catch up anyway ? sometime next week?

So now I am back I need to get on with things. Mainly finding more work and spending less time on here might be a good start! I have my booking in appt at Epsom on Monday so will see where that takes me in terms of follow ups and when I might get a scan.

Iggi glad all is well! Also good to hear you're having a scan may be worth asking them to check where the placenta is at that point.
Snoopy sorry to har about another Chem. Fc for next time.
Duggs sorry to hear about BFN and good luck with the next step in your treatment plan. Do so hope all you ladies get a BFP soon!
Pico I had an ERPC in Sept which was absolutely fine. No problem at all. I wasn't on Steroids so cannot comment and cannot recall anything about antibiotics. But it was over very quickly and all the staff were great. Just wanted it over and done with. Hope you manage to make a decision soon.
Lisa sorry to hear you've got a cold.
Free Welcome back from your hols, although the sound of a healthy tan makes me rather green.
Update from me. Had my scan and all is well at the moment at 8.5. Can't really believe that I have managed to get further than all my mc's but find I can't get excited at all. Not sure if anyone else felt the same. Very strange.

merc We completley understand. If I ever stay pregnant I honestly don't think I 'll be excited till well past 24 or something. It's such a shame we can't enjoy it like normal people! Sounds like it's all going fine with you and well done on a good scan. x

Pico it took a good two weeks for me to m/c once. I kept umming and aarring and it came eventually but i spose theres a point where it needs to be be managed in case of infection. I'm not sure what that timescale is. It's a toughie I know. I have had 3 now.

Yes, can completely emphathise with that Merc

Weirdly, as I was just trawling through my piles of paperwork to (unsuccessfuly so far) try to find the info re booking in appointment, I just found the letter with my NK cell counts on - something I never actually knew I had!

Duggs - in case you are still keeping count - here we go:

Lymphocyte Count: 3.026
Total NK Cell Absolute Count: 321.3
Activation marker total NK CD69 Absolute Count: 3.79.

Who knows what is all means though!

pico just to echo the others its rubbish about the medical management. I had it back in December as my miscarriage had still not completed and had no problems with it. My af came exactly four weeks after I stopped bleeding and I ovulated as well. I was told by Louise to wait one full cycle. Good luck with whatever you decide.

Duggs & Snoopy as I said on super ov thread sorry about the bfn and chemical, such a mare. Not feeling very optomistic re the super ov and will probably go running back to ivf the way I am feeling at the mo. Just don't want to waste anymore time.

Free welcome back, was good to text last night as was feeling a bit down. I am also v jealous of the tan, my poor skin is crying out for some sun so am hoping I willget some in Italy.

Merc so pleased your scan went well good to ehar some positive news. :)

Is anyone else having daily Prog injections in the bum, hip or thigh? Todays one is really sore and want to know if normal or not?

Mercator I hear you. I daren't get excited about being pregnant due to the chances of it going wrong. With this 4th one I am much further than number 2 and 3, but not yet as far as the 1st. Perhaps if I get past that stage (8wks) I will start to feel more confident. I'm 8 wks today with a scan tomorrow morning so am gonna know pretty soon!

Suemays See you at Prezzo on Sunday 1pm.

pico no I wasn't on the steroids at the time, only you can make the decision on where to go. Its difficult and scary I know, I'm not sure what the midwife meant about the tablets, I think PQ77 is right that she is thinking about a molar preg. the tablets they use in the ERPC are the same as medical management begins with an M, all they do is soften the cervix. That could be an option for you, they do usually offer it to help natural miscarriages start, I was told to try when I was ready.
merc thanks still feel crap and fed up, i'm feeling tired about hearing of other peoples pregnancies, I was the first one at work to get pregnant and now i'm the only one who won't be having a baby this year :(
free are you from downunder then???

Not having progesterone injections Dunnit so can't help there. But sounds painful! How long do you have to have them for? I went off the Progesterone pessaries at 16 weeks and was so relieved. I know other people are ok with them but I was really sickened by the smell in the end.

Pebbles you will definitely benefit from your break! It's just nice to get away isn't it.

I do have a tan but I also have some rather attractive hyperpigmentation. I've had it before when on the pill so knew I was going to get it when pregnant, even though I had factor 50 on my face all the time. Still, I think the moonface has pretty much gone as have the bags under my eyes. Finally! For those on 40mg worried about developing a moonface my estimation is it goes after 4-6 weeks of coming off them.

Lisa am not from down under although I have visited and my dad is an Indian Fijian. I just like the fact that people might be from very near each other. It's a small world sometimes I find.

Can I ask those 2nd/3rd trimester folk (from previous pregnancies or current one) how they are feeling/felt? I am still waiting for the much-feted return of my pre-preg energy. I am getting tired quite easily when I am out and about, off food and still feeling some nausea and dizziness. Plus when I get the stretching pains they make me feel worse I think. They are not strong, they just make me feel a bit more nauseous. Apart from the fact that it will hopefully result in a baby of course, does anyone actually like the physical feeling of being pregnant?!

free Fiji is beautiful and it is a small world

lisa don't give up. I had 3 mc's last year (total 4). 6 friends of mine have conceived after that and all but one has had their baby the latter one would have been the same age to the day as my last mc. I know how devistating it is. I went into myself and into self preservation mode sadly not being able to speak to them. Bit (lot) of depression to be honest! So I know how awful it it. Hopefully you will get your miracle baby soon! And to be honest even now I am not taking anything for granted.

Dunnitt good luck with your scan tomorrow.

Free nice to hear that the tired look of pred goes eventually. Start to decrease this week.

merc thanks, I am finding it hard right now, two more people have told me they are pregnant. I just feel like its not going to happen, its not that i'm not happy for them ,one I am really pleased for as she has had so many problems but I'm tired of waiting for my time :(

free I was serverly nauseous up till 20 weeks and only then did it get a bit easier but i think had more energy after 20ish weeks. I felt kind of special when pregnant and enjoyed it. So many weird body changes though with pregnancy. Unfortuantley the sickness was pretty unbearable so wasn't exactly glowing. Actually weird thing to say on this thread but dread getting pregnant for that reason. (prob jinxed myself now)!!
Have you felt any butterfly type feelings yet? I think i felt it about 17 weeks which is where you are about now isn't it?

Oh on Fiji I got married on a remote island there on the beach to the most amazing choir, it's a special place for me.