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Conception

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TTC/Pregnancy on Prednisolone or similar part 5

999 replies

suemays · 25/01/2012 16:48

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

OP posts:
lisacn · 13/02/2012 22:13

kittens This Annabella is from Cyprus, is young and has short blonde hair. She said she is not worried about my fertility as I have been pregant twice, I would just like to know that there is a back up plan, I don't know what will happen after 6 cycles if it doesn't happen..

igggi · 13/02/2012 22:41

Lisa I am sorry a hard time is being made even more difficult for you.
Well I have the option tonight of going to bed or going off to triage to have the wee bit of bleeding I've just had checked out. Is this happening because I actually went as far as buying some baby stuff this weekend?
Small amounts of diluted looking blood, just wiped about 6 times till it was gone. Had been a bit contipated but it definitely came from the front end! Oh bugger bugger.

mercator · 14/02/2012 06:48

Lisa so sorry you're having a rough time, hopefully speaking to someone elsemat the clinic may help. Perhaps you got this lady on an off day. Sounds very insensitive though particularly from someone trained to deal with these situations.

iggi I would get it checked out. hopefully the bleed has stopped now but I had bleeding at a similarvstage with my lo and it was established I had a low lying placenta meaning I needed a c section. Please ask them to scan and check for this as bleeding can be an indication. Nothing to worry about though but better to get it checked out.

picolina123 · 14/02/2012 07:07

its a real worry to think the pred might stop us from getting pregnant, how does that work? do your cycles become unpredictable so you dont know when your ovulating or does it stop you from ovulating ?

lisa i hope your feeling better today , dont worry about complaining if you think shes going to be a bitch about it , to be honest the opp might happen because people will be watching her after that and if she trys anything you can always complain about that! she wont since it will be on record, but fair enough if you dont need the extra stress. shes just a bully.

iggy im sorry your worried , can you get a scan, it looks like thats the only thing that lowers our stress levels at times like this.

nothing more has happened on the spotting front here, just a few pains here and there, anyway got the appt tomm so lets see what they say. booking our flight back home , going to stop off at dubai (hopefully) to spend a few nights with my cousin on the way there and breakup that lovely long flight. looking forward to seeing my family , havint seen my mum in 3 yrs now

igggi · 14/02/2012 08:11

Thank you, I went to hospital and they (to my surprise) have kept me in for observation, so I'm still there. I've had hb checked, cervix checked, been given a bed for the night - but no scan, seems the obvious thing to me but they don't do it!
Better call my work now argh.

duggs1976 · 14/02/2012 08:34

Is usually because the ultrasound dep are closed at night. Will you get a reassurance scan at epu this morning? I expect so- they'll want their bed back and then u can relax. Smile thinking of you iggi.
big fat negative for me this am on first response 11dpo. 5th pred cycle and trying on this programme since September. Big sigh. Is still early I know, many of you didn't get anything until 13 or 14dpo. I know. . . I know. Waves to everyone else. Grin

PQ77 · 14/02/2012 09:15

gah, duggs, like everyone else I had my beady eye on you. Not giving up on you yet. I just booked non refundable flights to Florida using my Mr S scan and appointment savings account. Sure fire way to get pregnant Grin

iggi glad you were admitted, nothing worse than not being taken seriously (even though I am sure everything is OK). No doubt you'll have a scan once a sonographer clocks in this morning. Even in the big hospitals in London it's hard to get a scan at night (I had one done late at night by a registrar who had no clue and he failed to pick up a footlong breech. You're better off waiting for an expert!)

lisa so so sorry to hear about your experience. I would have been in complete floods if someone had spoken to me like that. I would recommend either PALS or independent watchdog Patient Choices. Even if nothing else, talking about it with a sympathetic person might help you feel better and validate what you are feeling - you were treated shabbily. I also meant to mention (unless I have really got everyone's stories mixed up) that I used to live in Auckland too. Being NZ we probably went to the same primary school or somthing...

Stogan · 14/02/2012 09:34

It's not over yet duggs there's still time yet x
iggi so pleased u are being looked after I'm sure u will be fine, big hugs x

Dunnitt · 14/02/2012 11:10

iggi keeping all my fingers and toes crossed for you. Hopefully you've had a scan by now

liscan OMG! You need to know that your specialist is on your side. You can't put yourself though that again. Perhaps write her a letter directly explaining how you feel and that you expect better next time. And if she feels she can't deal with you as a person, then can she please pass your case on to someone else.

mercator · 14/02/2012 12:09

Iggi please insist on a scan. I had exactly the same and was kept in for obs overnight. All was well and they discharged me and wouldn't scan. The only way we found was that I and my dh insisted my GP referred me privately to an obstetrician who scanned me and found what they thought was the problem. We then had to go for a further scan at around 30 week and then it was confirmed. Please INSIST on the scan. But hopefully you've had one by now.

Duggs fingers crossed its not over yet. I tested early and had a negative, so still hope. fc.

duggs1976 · 14/02/2012 18:35

Can all you PG ladies help is TTC lot out. We r supposed to take pred until 10dpo but many of us go onto 12 or some 14 dpo in case we r pregnant. Could you post you dpo you got a bfp as I am not sure who has in fact managed a 10dpo? Many thanks - thinking a reality hit won't hurt here!

suemays · 14/02/2012 18:54

Just a quick post from me as I haven't had time to read everything on here:
Duggs, Snoopy, Pebbles and I are meeting up for lunch this Sunday (19th) at 1pm in Old Amersham (maybe Prezzos as they are doing 25% off at the mo). Dunnit would you still like to join us? How about anyone else?

OP posts:
lisacn · 14/02/2012 19:19

Thank you for your support ladies, i emailed Louise with a question about my short LP and said that I had an appointment yesterday and that I felt it had not gone well, she has asked where and with who, Louise in on leave now so will see happens next week. I just felt so humiliated and that my crying just disgusted her but i'm feeling a little more composed today, work keeps me occupied :)

On the dpo thing, I did ask if I could take the pred 2 days after ovulation and they seemed ok with that. The earliest pos test I have had was 12 days. That might be one way around it.

PQ77 lol we probably did, I went to Epsom Normal Primary, Auckland Normal Intermediate then onto Epsom Girls, feels like a lifetime ago now :-)

batteryhen · 14/02/2012 19:49

duggs I got a faint bfp at 12dpo. I didn't test before that though, and only started my pred about 2 dpo so had taken 10 days worth by 12dpo. Hope that makes sense!
lisa glad you are feeling better today xx
iggi Ihope you are ok and everyting has settled.

wave to all xx

lisacn · 14/02/2012 19:59

I've just a read a post about hoping to conceive a particular sex and man did some of them go to town, turned into a right bun fight, I don't think i'll stray from this friendly board ever again

Coconutfeet · 14/02/2012 20:19

Duggs - I started pred after I was already pregnant, but fwiw I've always got a faint BFP around 9-10 dpo, with a clear line generally around 11. If I haven't got anything by then, I know I'm out. I think I must be an early implanter though, as lots of others on here get their bfp much later.

Iggi - I hope you've managed to get a scan and are happily back home now. Keep us posted when you get a min. x

Pebbles73 · 14/02/2012 20:47

Hi everyone, wow this thread moves fast :) Not had time to post recently but have been lurking here and there.

Lisa I cant believe the way you were treated, what a complete cow! How can she not realise that of course you are going to be emotional for gods sake!! We go through enough without then being treated like that by the people who are meant to help you.

iggi hope everything is ok and they let you home soon.

Hope everyone else who I haven't spoke to on super ov thread is ok, sorry it's a short one have lost track of whatviscgoingbon with everyone.

Just starting my af so will be starting my first super ov cycle!!!

igggi · 14/02/2012 21:15

Hi there, thank you for the messages, it has been a long night/day!
Scared to post this given advice you've all given, didn't get a scan, they did every other test and seemed completely happy with that. I saw the same consultant who gave me two scans before Xmas, so I know she's not adverse to them! I have a growth scan booked for 4 weeks time. I must stress is had about a teaspoon of blood and then no more. When I left hospital, it was to a phonecall telling me ds was sick and I had to get him from nursery and have been looking after a feverish wee boy ever since! Must say this has been a crap Valentines, hope the rest of you had better :)

lisacn · 14/02/2012 21:36

igggi it doesn't matter how much blood you can't help but worry, hope your little boy feels better soon

pebbles thank you I think i'm over the initial shock of it all now, just have to wait for the next cycle and get back to it, i'm going to see my GP about being referred to a fertility specialist regarding super ovulation, think she'll say no for now, I could see Shehata privately, we'll see what happens but good luck for this cycle :)

digitalgirl · 14/02/2012 21:42

Hi ladies - been lurking but too busy to post properly.

Lisa echo the others Shock at how badly you were treated at a time when what you really need is compassion. Recurrent miscarriage and the frustrations of ttc is such an emotional rollercoaster - one day you might be coping well, but there will undoubtedly be times where it all feels overwhelming. And if that coincides with an appointment then these 'professionals' should be able to treat us with the correct bedside manner. I must admit that I've always been treated well by Mr S and his team - I wonder how much of that is because I'm a private patient. But I've also been treated well at my local hospital - even when they have been unable to help me they've shown the greatest sympathy. I can't imagine how much more humiliating it would have been to have been spoken to in such a patronising tone when I'm at my lowest. Was your DP with you? Sometimes that can make a difference. Not only in having someone to support you emotionally (so maybe you'll feel stronger), but also someone to stick up for you if you're ever in that situation again.

iggi glad you were admitted and they're taking your bleeding seriously (getting to 24 weeks makes all the difference). Really hope you get that scan. Sorry you're going through this stress again - that's one naughty little baby you've got there!!!

duggs sorry for the bfn - I didn't get my bfp till 12dpo but I didn't test earlier. I have tested positive as early as 11dpo but those tests have been very very faint.

Not much news here. Work is too busy. I have very swollen ankles. Sad And I've lost my Ina May Gaskin 'Guide to Childbirth' book which I was hoping to start reading in preparation. Still, am so bloody lucky to be at this stage. Had a brief moment where I thought my waters went last night - but I think it was some trapped wee or a slight gush of very watery cm. And on that note...

Happy Valentine's Day!!!

snoopygirl · 15/02/2012 08:48

Morning all,

duggs I didn't post yesterday just hanging off a bit as had a positive line again yesterday. BUT it's not coming to anything as had tummy/back ache and starting wiping mucus type blood this morning which is turning more into normal af by the hr. So that's that. But it's my own fault for not listening to Louise and letting body regulate for this month after chem last month. BTW I hate all this early testing we wouldn't know anything about this if it wasn't for early sticks.
so I've stopped pred this morning as desperate to get a few pounds off in the interim. So in answer to your question today is I think 12dpo.

I am thinking that my eggs are of poor quality now (age related) and are not good enough so body keeps chucking them out. that's 3 chems since sept and now totalling 8 pregnancies in last 3 yrs.

On the plus side I kept off the pred for a couple of dpo so HAS IT MADE A DIFFERENCE???!! because I am at least conceiving. Food for thought.....

iggi hope you are ok and things settled down and your 'wee boy' is better this morning.

duggs & PQ any news from you?

PQ77 · 15/02/2012 09:19

morning all

snoopy sounds like not so good news but I don't want to jump in too early to comiserate. What a pain though.

any update duggs? I am assuming you've done another test this morning Smile.

how are you today igggi?

digi sounds like we need to keep our beady eyes on you too - have you got your feet up? Really practical I know when you're trying to hold down a job and wrangle a threenager.

No news from me as I'm not testing until Sunday which will be approx 12 dpo (hahaha, let's see if I don't crack by Friday).

lisa - just one suburb over from you - I went to Remuera Intermediate and was enrolled for EGGs before we had to move again with dad's work! So nearly at the same school, assuming you are about the same age as me (you can guess my age from my nickname).

sue thanks for the invite on Sunday, that would have been really nice (always a pleasure to meet fellow pred threaders (and super ovulators)) but I am tied up with a lunch with friends.

duggs1976 · 15/02/2012 13:20

Oh snoopy a rollercoaster- however you seem to have gained some info - all be it theory. We can discuss on Sunday in detail Smile

duggs1976 · 15/02/2012 13:23

Oh and another BFN for me this morning 12dpo. Not holding out any hope. In fact spoken to IVF and cgh London womens clinic this morning to pick back up where i was last sept 6 mths before this pred journey started!

lisacn · 15/02/2012 13:57

well I'm home with a cough and slight chest infection :(

snoopy I had a bit of bloody mucus at the beginning of my second pregnancy but my hcg levels kept going up

duggs it could be still too early, its not over till AF is in full flow

pq what did your dad do then??? I'm a 73 baby so would have been 6th former when you were a little 'turd former' :)

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