TTC/Pregnancy on Prednisolone or similar part 4

[digitalgirl]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 here

Part 2 here

Part 1 here

Hello! My scan went well today :-) all seemed to be good from measurements etc taken during the scan. I don't get the bloods back for a probably a week as they get sent to Germany for some reason. The doc wouldn't say for sure but we did have a good look at the nub thing and it was very clearly parallel to the spine so I am pretty convinced it's a girl!

Had a long wait but now in hospital about to have my intralipids.

Iggi- that seems like a rather irrelevant remark to put on your notes. Maybe the doc / nurse is just overly descriptive! I wonder if they put things like that down so if you later come back and claim you weren't told something etc they can say, look you were upset at the time you must not have taken it in properly. Like an arse covering type thing? Really don't know.

PQ - find it very amusing your home country allows you to insert your own dildo cam. How funny is that! I wonder where your home country is? I am guessing that sounds quite scandanavian /dutch..

Pico- glad to hear the pain is subsiding. Let's hope it was a bit of stubborn wind. Anyway a darker line is always a very positive sign.

That's great news cheerful!

Lurking for news from free

That's excellent news charlie.

A holiday sounds like a very good idea cornflakes. Where are you off to?

Picolina - Sorry you're still having pains, but I guess the fact that they've moved is a good sign. If it helps I had all sorts of stabbing pains and aches early on and I think it was just the embryo burrowing in and getting comfortable.

Choccy - Limbo is a horrible place to be isn't it. I've not got experience of counselling personally but do know others who have found it really useful.

Eurochick - Will you be testing over the next couple of days?

We've just put a offer in on a house which is on the market for way over what anything else has sold for on that road or any roads nearby. It's going to seem like a really cheeky offer and I'm worried the vendor's going to be really insulted but I do think it's fairly realistic. I'm just waiting for the estate agent to call me back and say it's been rejected. Gah. There's absolutely nothing else out there at the moment.

You must be on teneterhooks, coconut!

I tested yesterday per Mr S's Protocol sheet - BFN. I feel like my period is coming so I am not going to bother testing again (unless by some miracle it hasn't turned up by the weekend). I prefer not to test as much as possible. I am about to move onto cycle 15 with nothing to show for it. Peeing on expensive sticks before my period is due seems rather pointless.

I know what you mean about too much testing. I deliberately didn't test at all this time round until my period was a few days overdue. BTW for future reference (or anyone else who's interested) I've always found these cheapo early pregnancy tests extremely sensitive, I've had bfps at 9dpo on them.

Hello everyone. Great news Cheerful! Good that you have had the intralipids too.

I have good scan news too. Haven't posted before as DH and I were wandering around town having a late lunch in Soho and a drink in Blackheath on the way home. The baby is still alive! And looking very much like a baby. The FMC was amazing, we spent about half an hour in the scan looking at every tiny bit of it (him/her I guess I should say!). It was bouncing around, standing up, sitting down, turning around. All measurements are normal and I have a 1:3070 risk for Down's which she said is the same as a 15 year old :)

The doctor was lovely and told me to go off and relax and enjoy my pregnancy. Yeah, right! But I will try to keep some of that confidence with me, until the next weird symptom/non-symptom/scan date etc etc. You all know the score...

They measured me 12+4 by Ultrasound (by dates it is 12+2) and gave me an EDD of 22/07/12 (by dates it is 24th - my bday!). So not sure which. Next scan TBA with Mr S. Am about to email them now.measurements to now stick on list? Digi what do you think?

Things move fast around here, it's hard to keep up. Stood out about PQ and the testing though, again good to book the intralipids so you have a plan of action. Were you witness to my frantic finding of a place in California? Let us know how the next few days go!

Sorry about the early BFNs Euro and Cherry but you are not out of the running yet. Must be very frustrating though.

Coconut am excited about your cheeky offer on the house! You can always up it if they say no, but a cheeky offer is a good starting point. Haggle away!

Glad you are looking after yourself Cornflakes and yes, yes, yes to the holiday.

Picolina I can only second, third and fourth what the others say and tell you that dildo cam is absolutely fine. I guess when you are dreading it your body probably tenses up. Just try to relax. It is far better to know what is going on and it will be over within a minute or two. Hope things become a bit clearer. I two had a lot of side twinges. It could be the corpus luteum? Look it up on Dr Google.

Choccy nice to see you here. Yes, Ari is right, I was only actually on the Hyroxy for two weeks before conceiving. I know he has asked other people (Ari herself probably) to wait a few more weeks before trying but so far it has done ok by me (not wanting to count any chickens of course).

cluck 1 cluck 2 cluck 3 .. that's me counting your chickens for you free What a fantastic scan, you and DH must be over the moon! Was it worth going to FMC for your nuchal then, would you recommend it? Not that I'm pg to have to worry about it, you understand, but always good to know these things for future reference! Since it's an area that concerns me, I'm thinking it might be better to go to a specialist in the field rather than the local hospital.

So pleased it's working so well for you free :)

Hey. . PQ if u do get bfp then I will officially rename you FQ and mr PQ he must have some swimmers! RR appt ok. He did tell me not to take asprin. Anyway got smiley face today (never used smiley face sticks before) I like it. Am not supposed to ttc before the op thing but am so tempted. Have researched early blood tests on Harley st so I could check before the op?! Naughty me

euro if there was no dominant follicle did u not get a positive opk then? Having the scans will at least let dr s see what is happening in there?

Did someone say that if u on super ov dr s doesn't mind u not having a pred break or have I made that up?

Ohh I missed free post !! amazing pioneer lady. Remember the lesbian fury hug days and look at u now !! X

Free that is great news. how wonderful to see him/her moving around like that. The Downs ratio is excellent too! :) :) :)

Duggs It was just too early to say. He thought there were two or three candidates to become dominant but without another scan, he couldn't tell me when to take the trigger shot. The Letrozole (or perhaps the bucket loads of sugar I ate around Xmas....) seems to have triggered my previously well under control PCOS as he said there were a LOT of follicles. I think that made it difficult for him to see what he needed to.

I haven't used OPKs for almost a year. I just have swi from the end of my period until after I get a temp rise each cycle. I must have had an LH surge at some point as I did ovulate. Next cycle should be easier without Xmas getting in the way of scans. I am anticipating having to have several though!

Oh you have triggered the PCOS too then? The nurse at st marys muttered something about being on pred with a PCOS history/risk saying it doesn't help.

Then the PCOS has a negative effect on ov and egg quality. Vicious circle. Interesting though.

kittens and anyone else having trouble ttc any ideas if PCOS is or could be an issue creeping in due to pred usage? Just a totally unqualified thought?

Thanks for the chickens Ari

Hello Duggs! Interesting theory about the PCOS and the treatment. Does seem to be a rather frustrating vicious circle. I do indeed remember my first scan and our furry lesbian hugs. It seems such a bloody long time ago, time having dragged as it has done. I was very glad to have you there with me though.

I hadn't heard anything before Duggs about pred and PCOS :(

I also didn't know PCOS had a bad effect on egg quality??? I had read that if you ovulated despite PCOS (naturally or assisted) you were as likely to get pg as anyone else? :( I am going to have to go away and do some more frantic googling research now.

I do know that Clomid tends to overstim women with PCOS. There is much less about Letrozole on the internet but I suspected it would be similar as it achieves the same result albeit in a different way. This is why I was nervous about going on it and was going a bit mental around Xmas when I wasn't ovulating because, despite the PCOS, I was having regular ovulatory cycles without any drugs.

I have decided to give the Letrozole one more cycle (with the higher dose Mr S prescribed - eek!) and proper monitoring scans and if I don't like what it is doing to me (too many eggs or whatever) I want to just ttc naturally alongside the pred.

at furry lesbian hugs!

OK, frantic googling suggests that egg quality only seems to be an issue for late ov. As I ov unassisted between days 14 and 16, hopefully this is not my problem! Although the Letrozole made me ov late on day 20...

www.fertilethoughts.com/forums/pcos-diabetes/601609-does-everyone-pcos-also-have-poor-egg-quality.html

Lovely news free and cheerful - congratulations!

My scan all good to - no apparent issues including the condition my son died from so a huge relief. Just need the nausea to stop now!!

Excellent scan news everyone (Cheerful - sorry, cross-posted earlier and missed your message), especially Comedy. I can't imagine how anxious you must have been about that one.

Wonderful news, Comedy!

Great news Free and Comedy - so happy for you both! Must be a relief for you both:)

I posted earlier and it has gone! Just saying what brilliant news on the scans today :)

Am knackered so will be off, can barely keep my eyes open xx

Hi Ladies, what a busy thread. Thank you so much for getting back to me. Thank you duggs/euro for your guidance. It's all very helpful in weighing what i need to do!
Freelance - i have a very bad habit of diagnosing people on MN but on my side i'm always grateful for people's thoughts. We don't have asthma or eczema in our family. My mother has hayfever but that's about it. To be honest I have had feelings about other things and I am terrible at self diagnosing. Did your friend become pregnant after finding out about her nk cells?

thank you once again. You are all very helpful. I do lurk here quite a lot!

YEY free cheerful and comedy things are looking good ladies xxx

I've got my scan to check the fluid tomorrow, apprehensive still at 32 weeks !!!

just had to interrupt my Vampire Diaries viewing marathon to join in the good scan excitement! Great news all, and hopefully you have a good fluid level tomorrow Stogan

ari I think FMC is fantastic but my one tip for anyone booking in is to book in the morning as they tend to run horrendously late by the end of the day.

coconut - good luck with the cheeky offer. I was being a house bore with free the other day and saying how we put in an embarrassingly low offer on our house last year and i tried to stop Mr PQ as I thought he'd offend the vendors - luckily he went ahead and they accepted much to my huge surprise.

euro wish i knew more about PCOS, endometriosis is more my specialty subject. The only positive thing I can share, if you're in need of a boost, is that I know lots of women (seriously heaps - friends, colleagues, relations) with PCOS who have eventually conceived successfully using clomid or letrozole.

duggs you crack me up. I truly thought i was the most impatient person in the world ttc but you really give me a run for my money . Dying to hear if you resist the lure of the smiley face. it's just so...smiley. It says come on, you know i'm a good egg, don't you...

heelllooo to everyone else.

free I do remember tracking your intralipid drama on here when I was more of a lurker. In retrospect I was too down to ever post so I guess it is a good thing that I am now up to boring everyone with my inane wittering.

free hooray for good scan with waving, active bean! So so pleased for you! I've heard that if the 12 week scan dates are less than a week out of LMP dates then hospitals tend to go with LMP. I think it's more likely that bean is growing a little bigger at 12+2 than you actually being 12+4 - especially as you didn't get a BFP till 14dpo. I also think it's quite nice having a due date on your birthday!

comedy amazing news for you too! You must feel so relieved, especially to have ruled out the same issue your DS had. You so so deserve this to go well.

duggs and euro It's possible that taking the pred may affect the time it takes to ovulate the following cycle (I can't see how it would affect the first cycle though as you take it AFTER you've ovulated). I certainly found my cycles were longer on the treatment even though I'd started taking metformin - that could have been any number of reasons: pred, metformin, aspirin or the fact that my last MC had been managed with an ERPC and body was taking longer to reset itself. However, late ovulation doesn't necessarily mean bad eggs. This baby was conceived with an egg that was hatched on day 31 and seems to be doing ok. I think the main problem with eggs that are overripe by the time they hatch is that you can't conceive with them.

coconut good luck with the offer. Moving is nesting on a much grander scale than my mere porch build. I bow down to you!

stogan good luck with your scan tomorrow.

cornflakes a holiday is definitely a very very good idea.

Well baby seems to have turned upside down again and has been merrily kicking away, particularly on anything that's resting against my stomach - like notepads or my hand holding my phone. Much more reassuring, after a few days of only feeling the occasional internal kick against my lower gut and wondering if it was the baby or wind.

Might try and find the list and update it according to everyone's requests.

Right, hope I've managed to include all the new info on there.

Thursday 12th Jan
BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 31+5 Due 10/03/12 next scan 13/01/12

2nd Trimester
Digitalgirl - High NKC - BFP cycle#2 26+3 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 23+1
Comedy - V High NKC - BFP cycle#2 ? 20+5 due 26/5/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 20+2 Next scan March
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 19+5 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 12+2 Next scan?
Cheerfulcharlie - V High NKC, MTHFR/TTC#1/ (metformin, intralipids, no pred). 12+0 Next Scan ?
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 8+5 Scan ?
coleyoz - V High NKC. TTC #2, BFP cycle2, 8+3, Next scan 23/01/12
picolina123 - V High nkc, pred cycle 1

TTC
Waiting to test
Cherrycheeks - V high NKC, TTC#2
Snoopygirl - V High NKC TTC, #3, testing 10/11th ish
eurochick - High NKC, superovulation cycle 1, pred cycle 1, period due 13thish. Maybe.
Havingkittens - Upgraded from High to V High NKC TTC #1
Hopefulfor2nd - High NKC - TTC#2
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)

Waiting to ovulate
buster76 - V High NKC, Factor V Leiden
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2

WTTC
duggs1976 - High/V High NKC - TTC #1 - awaiting hysteroscopy, then superovulation cycle3
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - TTC#1, review w/Dr S 14 Jan.
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC
Suemays - High NKC, TTC #2
Cornflakes30 - V High NKC, underactive thyroid