TTC/Pregnancy on Prednisolone or similar part 4

[digitalgirl]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 here

Part 2 here

Part 1 here

PQ thanks for letting me know you know good stories. I know some people who have been through IVF successfully but no one I know has had a Clomid/Letrozole baby.

digi it must be wonderful to hear kicking.

euro I know of a couple of clomid babies. Dh's best friend's wife had 3 mc's was put on Clomid (despite having perfectly regular cycles) and then on her last cycle of Clomid (is it 6 or 4 you're allowed?) got pregnant with her dd who's coming up to 3 this easter. Went on it again and got pregnant with baby #2 first cycle. My work colleague was put on clomid as she wasn't having any periods. Think it took a few cycles but her dd will be 3 this summer, she's also pg with number 2 after one go on clomid this time. I think Letrozole's not given out on the nhs so you're much less likely to come across anyone who's had a baby on that.

Ahh. . . Tried a sneaky, beakie seduction attempt ( err smiley face look at it -time for a quick shag before you go out approach?- which is un heard of in these parts these days due to 2 yr ttc journey). DH immediately cottoned on and refused to oblige. Said we must be sensible as we're almost there waiting for hysteroscopy. God I bore myself. So no swimmers near me so I really should pipe down. Glad I'm on metformin and letrozole. euro pls give another chance. I'm on 5mg as 2.5g didn't work - remember giant egg that I droned on about? I need to learn some patience .

Duggs, your DH is too perceptive even early in the morning. how are you getting on with the metformin. Do you notice any difference on it?

Free - yay - brilliant scan news and low risk too. The relief is fantastic. Wish I got my risk back so quickly too. I had similar thing in that it was measuring 12 weeks 2 days (i thought i was 12 weeks 0 days) but the woman said if i was sure of my dates then just stick with the 12 wks 0 days. She didn't seem bothered which date i went with so i'll just stick with 12 w 0 days.

Comedy - well done on your scan and Stogan - good luck for today.

Coconut - i would always go for as low an offer as you dare at the beginning that way even if you have to increase it later and it then gets accepted you know you got it for as low as you possibly could, and you could get lucky like PQ and get it accepted as your first cheeky offer. Good luck!

Yes mister duggs is more patient than me! Metformin helped me lose a bit of weight at first but xmas seems to have countered that. It's ok I figure I need to be on it generally ! Scan tastic news from the pregnant ladies. Is very encouraging for us all!

Morning all,

Congratulations ladies on all the fantastic scan news x

First time I didn't want to post on here last night feel really down , particularly with talk of pred maybe causing PCOS, and poor egg quality thing - did I read that right? Think had a touch PMT. Slight back ache and tummy ache yesterday too. No bfp for me this morning although 1 more test to do tomorrow, but not holding out any hope. Sorry for your bfn's too euro and cherry.

Anyway feeling better today as good nights sleep.

Dr S has put me on 5mg of Letrozole BTW and at least I will get an internal scan so that might be interesting to make sure there are no other problems.

Also to add to things friends SIL 14 weeks preg on Metformin for PCOS and my sister has a 5 yr old who was a frozen embyro and she took clomid.

Have a good day ladies. Oh and stogan good luck today and we must sort out some little webpage somewhere as I want to see your gorgeous bubba when it comes!! RL proof that this does work!. V Excited for you. x

Really PQ? I was worried about insulting him, but at the same time, having studied what's going on in the area I think his house was quite over-priced, so I think out offer isn't that unrealistic. I don't think he's desperate to sell, to be honest, so I'm not holding out much hope.

Duggs - Gah! Mr Duggs is too sensible.

Does anyone need any pred or omeprazole? I've got a couple of boxes in the cupboard that I don't need. PM me if you do and I can post it on or bring it to the meet up later in the month.

Ahh snoopy no pred doesn't cause PCOS but if you are prone to it or had it the weight gain pred can cause can trigger it off again. This then can mean issues ovulating too late and causing over mature eggs. Am sure you r fine but the super ov picks this up if not as dr s an expert in this area too apparently! it is treated with metformin to lower blood insulin levels and re balance hormones. Nothing to worry about if u don't have the PCOS signs. Digi has it and look at her!!

Morning!!
Lovely scan news!!
Sad for cornflakes
I was a week late for AF euro after my first cycle of pred Going to start using the opk from cd10 as last month didnt get a smiley face at all!
I got a bit emotional on Wednesday evening. I was watching 'one born every minute' - smiling happily at the telly at the lovely emotional moment the baby is born. I suddenly had a horrible feeling 'what if I never experience that lovely moment?' Then burst into tears!! Oh dear!
Hope all goes well for scan today stogan

xxx

Thanks Ari :) Yes it was definitely so worth going to FMC. It cost £180, the blood test was done with result back in half an hour and the scan itself took half an hour. Of course I haven't had a proper nuchal on the NHS to compare it with (last time I got that far I saw a terribly still dead thing and was rushed in and out with some very silent monographers). I fully recommend FMC though, they were so thorough.

I am now hospital-less as I have cancelled my local one and waiting to hear re the referral to Epsom. Hope that's ok! As far as I can tell there's nothing I am missing out on at the moment if I have had the nuchal.

Good info for all the super ov folk. Good to hear too Digi that there are quite a few Clomid babies out there. Hope that makes you feel a bit better Snoopy although I can understand how it can all get you down.

Duggs am chuckling away at your sneaky seduction attempt and impressed at Mr Duggs? willpower. Maybe you will have to wait until after the procedure after all. If you think about it, in the scheme of things, it is not long to wait. And enjoy the time not TTC and not pregnant! Have a series of cocktails for me please.

Cheerful it sounds like all yours will be fine, being that the baby itself was fine. I wasn?t quite sure what the blood tests were actually testing. I am with you re the house thing for Coconut too. Especially after what PQ told me the other day. I love the house buying/selling thing. I need to get on with it myself soon as we need to make sure we have sold/rented out both flats and moved into one place by July, just in case I am having a baby?. I loved PQ's house btw, am looking forward to going round for tea again very soon :)

Comedy that is great news about the scan! Especially a relief I imagine to check for the same issue that your son had.

Hi Buster! You are very brave watching One Born Every Minute. I can?t face it at the moment. I remember watching it a few times when pregnant last Jan and then I miscarried and haven?t been able to face it ever since. It can indeed be emotional!

Good luck for Stogan and anyone else with scans today! I am just arranging for my next appt with Mr S. The way my holiday is booked I will either have to have the extra intralipids Mr S mentioned at 15 weeks or at 17 weeks. I think I would prefer 15, better earlier rather than later (?), but that will only be three weeks after the last one.

Am down to 15mg of Pred today. By Monday 23rd I will be steroid free! My face is still puffy though and I have dark circles. I might be imagining it but I think it MIGHT just be getting a bit less m

...a bit less 'moony'. But am still looking rather chubby in the cheek department.

Ahh free there is no chubby anything on you! A mere slip of a thing.

Someone was asking about counselling choccy perhaps ? I has some privately ( my company offers it and I called up after the 12 week horror saga in march. They had a slot in about 2014 by which time I figured may well just be a little late). So off i went. I have been before in my twenties when I threw objects at my 10 yr older unsuitable boyfriend and couldn't work out why I was behaving irrationally) anyway the main difference is there is a def cause of the "depression". Cause and effect. Talking to him was good for me as he had to listen. But I kept feeling you aren't going to give me a baby so why am i wasting my money. In retrospect i think it probably did help rationalise my thoughts. It is about coping and dealing with whatever life throws at us i suppose and at the time I didn't feel I was really coping or wanting to cope. I could have continued I guess but then again couldnt we all? Wasn't my priority so after about 5 sessions a few months I stopped. I would say having someone to listen who doesn't try to relate or rationalise ( as we do as humans naturally) was probably better for me than I realised at the time. Not an expert by any stretch but just my limited experience.

Great scan news ladies! So happy for you all. :)

duggs interesting to hear about your counseling experience- I sometimes think that I should look into it after a roller coaster 5 years of ttc, termination and mc but always think I should pull myself together. I have, of course, been blessed with my DD during this time and should be grateful for everything I have, DD, DH, nice house, family, friends etc etc. Of course there's also the fact that I keep thinking I'll be Ok once I'm pregnant with another healthy baby. It's definitely something that I'm considering right now though.

digi loved your post about baby digi kicks! So sweet.

snoopy sorry you're a bit down about the BFN so far, maybe good news for you tomorrow?

AF finally arrived for me last night. Quite relieved actually as was 17dpo and 19 dp trigger injection!
Will be trying the higher dose of Letrozole next cycle and then I guess a break for me as it'll be the 6th round of pred.
Am thinking about where to go on holiday next month to cheer me up :)

Waves to everyone else!

Mostly lurking at the moment, as I've been quite busy at work and also feeling pretty miserable and not able to take in everything that's going on on here. I just wanted to pop in though, and say how thrilled I am to hear that free and comedy's Nuchal and Anomaly scans were good ones. Free, you are now officially 2nd Trimester so you need to move on the list!

Sorry for the BFNs this month. I suspect I will be joining you in a week or so. Not very much effort gone in this month, although I did SWI on 3 relevant days.

Duggs, your DH is very sensible. I guess it's good to have that rationality that isn't driven by hormones. He's right really, you might as well give yourselves the best possible chance. Will you take the month off pred too if you're not TTC this month?

With regards to counseling, I had some after my 2nd termination (3rd loss) and found it very helpful, even if the woman was one of those who finished all my sentences with me in a "by doing this I am showing you just how much I understand exactly what you're going through" sort of way, which was annoying. I had an appointment with a lady at my GPs before i went to France. She wasn't a counselor, she called herself a "mental health worker", and seemed to be offering something akin to CBT (stress management techniques and exercises) but I think now I need counseling rather than that. PQ who have you contacted about bereavement counseling? Are you doing it privately or through somewhere like Cruse? I think there is free bereavement counseling available but I don't think it's offered near where I live so I'm going to have to look into it further. I got a bit annoyed with the woman at the GPs too, she was very sweet and everything, but she asked me about alcohol and I said I had a couple of glasses of wine an evening and she started with the nanny state spiel about how this was a bad idea and that alcohol was a depressant and that it would make me feel worse. No dear, my mum dying makes me feel pretty shit and I don't think alcohol is making that any worse, but I could do with a bloody drink if you don't mind! It's not like I'm a binge drinker. Oh, and she said she was obliged to ask me every time I saw here if I'd had any thoughts about taking my own life. FFS!

Morning ladies. I am 14 dpo today and got another BFN so I have stopped the Pred and am now hoping AF appears asap as I just want to get on with the next cycle at this point. I have to call the clinic where I will be having my NHS IVF round on CD1 and of course erstart the Letrozole (5mg this month) on CD2.

I've never had counselling but I have been depressed before (without ever seeking help for it). I wonder whether it would help. I do feel like a bit of an empty shell at the moment. 14+cycles of the rollercoaster of hope and disappointment have to have some effect on your mental state. I think it is inevitable.

Hi Kittens so glad to see you've popped in. As you well know there is nothing that can make you feel better at the moment other than time, but I think wine is definitely a good helper too. It just takes the edge off life a bit!

Just to jump in about the counselling thing. Mr Free is actually and counsellor and has been for around 20 years. I asked him the other night whether it was a good idea with the whole miscarriage/ttc thing we have all been through to get counselling and he was very enthusiastic about it. I had a six week session once a long time ago on the NHS (after my friends had died that accident) and I found it really helpful. I used to get the occasionally really low period around that time too, but one thing that this year has taught me is I seem to bounce back emotionally quite quickly. I would fully recommend counselling however and it's something that you don;t necessarily need to do for a long period.

Myself and Charlie won't be moving up to the 2nd trimester for a week or so yet, apparently it starts at the end of 13 weeks!

Hi kittens, glad to see you're still around. Completely understandable that you're up and down, and as for the wine, well you're hardly a budding alcoholic having a couple of glasses every now and then, are you?! Neither I suggest is your liver at any risk. I've never gone through counselling myself (although I did train for some time to be a counsellor myself before dropping out at the time my dad died), but I know several people who have, including my best friend, who had to deal with her husband potentially dying - she never knew for sure, as he upped and disappeared with a terminal illness becaue he didn't want her to have to see him going through a possibly slow death. He thought it would save her grief - in fact it caused way, way worse, since she couldn't be there for him and doesn't know to this day what happened. Anyway, off the point, which was that she had counselling for quite some time, and swears by it.

Everybody reacts differently to counselling, and of course there are a myriad different types of counselling - and counsellors - and I guess like anything it comes down to you finding someone with whom you 'gel'. Just a thought - have you thought of acupuncture to help with the grief too? I was very, very miserable after my third MC in July, which is when I started seeing my acupuncturist for MC reasons, and she did 'stuff' to help with the emotional side of things too. I think it helped a good deal, she says she noticed my emotions stabilising well over the weeks I saw her back then, so who knows - if nothing else it may give you a period of time in which to completely focus on relaxing.

I've actually taken St John's Wort myself to help with depression (when I was going though a very bad emotional patch with ex-hub a long time ago) and I think it helped a lot. However, it has contraindications with some medicines/supplements, so I'd do a lot of careful research before taking it with fertility/miscarriage stuff.

Sorry, this has turned into a bit of a longer post than I intended! I mean well, honest :)

Sorry for the BFNs, and so excited at the prospect of free and charlie approaching 2nd trimester. You pregnant ladies are living breathing proof that this treatment does work, and gives hope to the rest of us still waiting!

/waves to everyone

Kittens my DH had counselling with Cruse last year when his brother died suddenly and it has really helped him. He was starting to drink a lot and was constantly down (to be expected) but Cruse helped him to put things into perspective and come to terms with his grief and to talk about the miscarriages. There was around a 3 month waiting list as you have to wait until someone feels they are ready to stop seeing a counsellor to free up a space. I think he saw them once a week for around 10 weeks and it is a free service. I would def recommend it.

Forgot to say, can someone put me on the waiting to ovulate list as I am on CD6 today so should be OVing in the next week hopefully.
Has anyone TTC had any FSH testing done recently? Dr S suggested I get it done again at my GP surgery and it has gone up in over a year so I am a bit concerned now. It was 4.9 a year ago and it has now risen to 11.1. Does anyone know if this is reason to be concerned with my egg reserve????

afternoon ladies :)
well I am EVENTUALLY back from the hospital, crikey they are soooo disorganised in my local but hey ho we are fine so thats all the matters.

Baby is fine, HUGE feet like daddy but fine. the fluid is still raised however so, although they are not to concerned they want me to have another scan to check fluid levels and a growth scan in 4 weeks so next scan for me is 10th feb im fine with this though as didnt expect another one. They are also testing me for sugar diabetes as they just want to check that I am OK as this could apparently be a reason for the high fluid??? i am completely clueless to this just know im not allowed anything to eat after midnight on monday so i can have the test at 9am on tues, ill be STARVING!!!!
Finally my consultant said just keep an eye out for things...Like what I said..er like your waters breaking !!!!! WHAT???????? Panic did set in but she said they tell people this at any stage of pregnacy and also to look out for back pains, lack of movemet from baby or bleeding so yeah pretty much the standard stuff that everyone needs to look out for at this stgae of pregnacy I am just an irrational wreck.

so a nice chilled afternoon for me and then off to the bingo with SIL tonight, should be fun given last time we went we won £240 !! keep everything crossed for me ha ha !!

Hope everyone is having a nice dayxx

First time I have ever done this so appologies if I have fluffed anything up !! Todays list :-
Friday 13th jan
BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 31+6 Due 10/03/12 next scan 10/02/2012

2nd Trimester
Digitalgirl - High NKC - BFP cycle#2 26+4 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 23+2
Comedy - V High NKC - BFP cycle#2 ? 20+6 due 26/5/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 20+3 Next scan March
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 19+6 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 12+3 Next scan?
Cheerfulcharlie - V High NKC, MTHFR/TTC#1/ (metformin, intralipids, no pred). 12+1 Next Scan ?
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 8+6 Scan ?
coleyoz - V High NKC. TTC #2, BFP cycle2, 8+4, Next scan 23/01/12
picolina123 - V High nkc, pred cycle 1

TTC
Waiting to test
Cherrycheeks - V high NKC, TTC#2
Snoopygirl - V High NKC TTC, #3, testing 10/11th ish
eurochick - High NKC, superovulation cycle 1, pred cycle 1, period due 13thish. Maybe.
Havingkittens - Upgraded from High to V High NKC TTC #1
Hopefulfor2nd - High NKC - TTC#2
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)

Waiting to ovulate
buster76 - V High NKC, Factor V Leiden
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2

WTTC
duggs1976 - High/V High NKC - TTC #1 - awaiting hysteroscopy, then superovulation cycle3
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - TTC#1, review w/Dr S 14 Jan.
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC
Suemays - High NKC, TTC #2
Cornflakes30 - V High NKC, underactive thyroid

Just realised digi u will be joining me in 3rd tri in 3 days woo hoo, its been lonely here cant wait to have a chum !! x

st heliers just called on my blood test and they are happy the pains arnt someting serious, my levels went from 2k to 6k in 48 hrs. could be right about the wind,mines really bad but i think i pulled something, i felt the exact pain again when i got off the sofa again yesterday and it kept coming back for the rest of the day but it included a bit of my upper inner thigh muscle as wel.
what a relief ! im going to enjoy my weekend , im sick of being stressed out, deep breath , calm..

Come on girls someone's got to get a BFP this month!! feel like doing a fertility dance or something to drum up the God of sticky beans. I feel out of control with all this just waiting some miraculous implantation. I can't wait to see if this whole thing will just work for me.

Who's left in this month?: me (doubtful), kittens, PQ, hopeful Have I missed anyone?

did someone mention something called Fertilman on here the other day? I asked Dr S if DH should be taking anything and he said Selenium and Zinc wouldn't be a bad idea. We were talking about it last night and he said get me some of the vits and he also said that he'll stop drinking for the next few months.....damn, that made me feel really guilty that I'm still having a glass in evening. It's the only bloody vice I have and the lovely Dr did say it was ok. He's so disciplined my husband. He's the sort who puts his fork down when full. Unlike me! No will power whatsoever..

X posts with pico glad your ok. Put your feet up and enjoy your weekend. x