TTC/ pregnancy on Prednisolone or similar part 2

[Arianrhod]

Starting up part 2 of this thread since the old one closed at 1000 posts!

iggi lots of luck for today, hope it's nothing - I know it doesn't help but I know lots of women have spotting and/or bleeding in pregnancy and it still goes ok. Definitely call the EPU, get scanned - it's worth it, honestly, at least you will know one way or another. Virtual hugs coming your way.

free I also started AF properly this morning, so looks like we may be both importuning a friendly witch for a good fertility spell on Hallowe'en? I know exactly what you mean about the scary stuff ... a small part of me was actually sort of relieved when I didn't get a BFP purely because it means I don't have to go through the whole worrying about miscarrying all over again. Bizarre, but there it is.

Just a quickie as am in the pub :)

Re late miscarriages at 20 weeks when I interviewed mr s for the doc he said that high nk cells can indeed cause later losses if they are not treated before the 12 weeks mark. So we are all ok if being treated and as likely as the normal population for anything to go wrong after that but if untreated it can def have an effect.

Lemon, do let us know how it goes.

Great news brownie!! So so pleased for you.

Got to go xx

Dear all - just a quick note

• welcome new people!!
• great news brownie really pleased for you

Only skimmed through a few posts so I hope everyone else ok. Didn't have scan this afternoon - was in bed this morning and had a call from work that OFSTED would be in this afternoon and tomorrow so needed to work - cannot believe the timing, this week is truly not going my way. Am going to be scanned tomorrow evening but really worried, breasts not remotely sore today and after three days of severe sickness not even any heaving today - who would think I would miss it! ... anyway back to data which may take my mind off things fir a while.

Yey brownie that's fab news but can I just say I've seen 7 scans now and am still nervous about my 8th next week. People are nervous for scans in "normal" pregnancies so I think it's more than ok for us to be scared emotional wrecks (well that's my excuse and im sticking to it)

Comedy that really sucks that u had to work but at least you will get piece of mind at your scan tonight, hope all goes well hunni. X

Morning to everyone else, have today developed cravings for porridge after never ever having it before, result....... 3 bowls later I can't move lol !!! Xxx

comedy just read back about your hospital ordeal, poor you! Really hope you are feeling better, rehydrated and managed to make it to your appointment yesterday. How did it go?

brownie great news about your scan! I expect most of us can't do it anymore without a good blub, I just have to think about my first scan and a lump comes to my throat. So glad it went well and DH there to see.

lemonsherbert so sorry to hear what you're going through, the comfort here is knowing that we all know exactly how it is physically and mentally - we have all woken up in that same nightmare again and again. From the NHS perspective, I haven't found the waiting too bad. Referred in April after my 3rd mc, appointment early July, followup and treatment in September (moved forward several times). It has meant I have been able to give my body a 6month break after 3mcs in nine months. I think the enforced break helped a bit, certainly it was a relief to switch off from the emotional rollercoaster. Where are you in the country because if you are anywhere near London or Surrey your GP should be able to do the referral. All the best with your decisions, don't think anyone has any regrets about seeing Mr S on here and like digi says even if it is to rule out NK theory for you it would be worthwhile

ari you go girl with the dancing, hope the smiley face makes an appearance soon!

snoopy I am with you on the selection committee for the cocoon house butler!!

Darn it, posted on an old page again...

Comedy so sorry you didn't get your scan yesterday, Ofsted sucks doesn't it but try not to let them stress you out, you and your health are more important. Hope it can work as a distraction from symptom spotting and make the day pass quickly. Be thinking of you this evening and hope you start to get some of your reassuring symptoms back soon. If it helps, I am constantly punching myself in the boobs and freaking out if I am not wincing, but I do think its probably normal for it these things to come and go.

Gotta hit that refresh button scooter - this thread moves so fast now!

Well I'm well into the mentalling... Did we do it enough? At the right time? Argh!!!

Hope everyone's well this morning... Sorry about the delayed scan Comedy, glad you can get in tonight.

Morning girls ... comedy sorry you didn't get your scan yesterday, it's a real bugger how work gets in the way of real life! Hope all goes well today and remember, not only do pg symptoms come and go, they also pretty much die down towards the end of the first trimester anyway, around week 10 and onwards I was told. Hope all is ok with you, and let us know how you get on.

choccy with you on the mentalling, although tbh I'm double-mentalling since bl**dy smilie face didn't appear, and still showing High on CBFM, although FSH line is now quite strong on that stick too. Aarrgghh. Oh well, looks like DP will be happy for a few days more but for me, all this waiting around for things to happen is completely doing my head in. I seem to have spent the whole of the last year waiting ... waiting for OV, waiting for BFP, waiting for scans, waiting to see if I MC, then waiting for MC to happen, waiting for cycles to sort themselves out, waiting for hospital/consultant appots, etc etc. I know you'll all understand, but all this waiting is quite literally driving me mental!

iggi how you doing this morning? And /waves to everyone else, hope you're all doing great this morning!

I don't know what it is about today - maybe because is mid cycle ish for many so we r somewhere about to ov or have just ov and it is soo Bloody Boring waiting, waiting because like you said that is all we seem to do. Feeling a bit rubbish today too hoping for BFP on Monday but if not then going to have to face fact that am stuck with this "possible septum uterus" thing so might have to put of ttc until feb!!! Ahh really can't be arsed. Was telling DH about cocoon house - he asked what about me - I replied oh for gods sake you'll be fine for a few months - ha as if I was actually moving into it in RL. Would love it. . LOVE it.

So we seem to be waiting or worrying WW!
Roll on time . . bring us the good times please! Love to all xx

I'm worried I haven't done enough too! And tonight I am away from DH so there is no SWI on CD17. I still had all those pre-af feelings last night to and have woken up bloated again. Day 2 on Pred. Gotta run, actual work to do today... xx

thanks for all the info about embryo screening - all makes sense that the process itself might increase change of mc.

I went to a dinner last night and two friends announced they were pregnant. went hope and had an incredibly vivid dream that everyone I knew was pregnant. everyone. Don't have to be Freud to work out the significance of that.

wonderful scan news brownie

went home of course not went hope...

Puree pregnancy announcements so close to MC suck - I still feel a bit funny about hearing pg announcements in RL. Just mourning my own loss of innocence about it all I think. Hope you're bearing up ok today.

Thinking of iggi and comedy with their scans later on.

lemonsherbert They say 'bad luck' because they don't know what else to say. I don't think half of them believe it themselves. I know I don't believe that rmc is bad luck. Let us know how you get on, we're here if you have any more questions.

Good luck to all those languishing in the 2ww.

Oh puree, what awful timing. Well done for keeping it together. Not sure I would've. Like free says, pregnancy announcements are hard enough as they are. Even when there are strangers too. Actually, even if they are fictitious TV characters it still gets me if I'm honest!

lemonsherbert welcome to the thread. So sorry to hear you are going through another miscarriage now. Like you, I attended the RMC at my local hospital and all the results came back clear. They recommended an empirical dose of asprin along with early and regular scans in my next pregnancy and like you, that pregnancy didn't work out. I managed to get my GP to refer me to Dr S on the NHS. Some GPs are more helpful that others in this respect I gather, I am lucky that mine is very keen to help me in whatever way I need when it comes to having a baby. So, the benefit of seeing Dr S on the NHS is that it is a hell of a lot cheaper, but on the down side, there is a lot more waiting. I think it too 3 months from referral to get my appointment. My test results were relayed to me by telephone appointment 5 weeks later and a prescription request sent to my GP. Those seeing him privately are asked to come back if they do not fall pregnant in the first month (is it? or perhaps the second?) whereas I didn't go back for a follow up until it was time for my 2 month break after 6 months on the treatment. They have asked my GP to refer me to their fertility clinic to see if they need to prescribe something to "help me along", whereas those seeing him privately seem to be offered this as a matter of course by him much earlier if they do not conceive. So, hopefully that gives you both sides of the coin.

As far as the "bad luck" theory, when I went to the hematologist at the initial RMC and was told the results had come back clear my OH said to her "So, are you telling us it's just bad luck then?" and she, refreshingly, said "No, having 1 or 2 miscarriages is bad luck. Having 3 or more means there is probably a reason, it's just that we don't know what it is." Although it didn't get us any further it was nice to have that acknowledged.

Hi all - I've come across your thread and hoping I can join. Its exactly what I need. I've been diagnosed with very high NK cells with Dr S and am currently on my first cycle on Prednisolone during the 2WW. So far so good and no side effects but I'm scared about Intralipids and going up to 40mg. There is a wealth of knowledge here and I hope to contribute some too

I forgot to mention that I have a beautiful little girl who is 20 months and have had 4 miscarriages ranging between 5-8 weeks. I was with St Mary's RMC before the birth of my daughter but have subsequently miscarried and went to Dr S. I have a history of autoimmune issues so I was convinced this was my problem and it definitely was! Fingers crossed his treatment works as I can see lots of success stories here:)

Welcome Coley, so sorry for your losses but you're in good company here :)

Hi coley! Yes, do come in! We are in a virtual beach house having found some kindred drug necking, doctor bothering, lethal womb owning team mates and all here to swap stories, tips, random bits of (sometimes wildly speculative) knowledge. It's certainly wonderful to all be speaking the same language.

Sorry to hear of your losses. Interesting that you seem to have had mcs both before your daughter and after. What do you think made the difference?

Don't be worried about the intralipids, it's a bit weird having them (it was my first ever drip) but painless and quite relaxing in a way. The 40mg Pred isn't hideous either although for me it was a pain, to say the least, to have been on the steroids, got fat, grown a Moonface and then miscarried. thankfully mist people seem to be a bit more successful. But I am now eith you on the 2ww yet again. Do add yourself to the list! We have put them in rough date form - just copy and paste, or someone else will prob do it soon (am on iPhone at the mo). We are getting to be quite a gang!

Talking of which I was wondering if those of us who are London/ near London based would be up for a RL meet up sometime soon? I for one am definitely up for a good face to face full on conversation about egging :) anyone else in?

Purée (iPhone insisting on accent!) that's a heart wrenching situation. Hopefully it will be you soon xx

Also lurking for news of scans...?

Mmm Well I'd probably be up for it free, depending on working around DD's extensive social schedule (honestly, she has a better social life than I've ever had!), oh and DP's footy schedule (bah!).

I have to say, everyone someone mentions egging I'm getting a mental picture of a bunch of ladies all pelting hapless GPs with rotten eggs!

I'd be up for a meet up too, if I am not working late or away in France, both of which are slightly unpredictable.

I'd be up for a meet up too, if I am not working late or away in France, both of which are slightly unpredictable.

Welcome to coley, you're in good company here. Like the others say, it's good to be amongst others who can relate to your situation and share gleaned knowledge/compare symptoms or experiences/have a rant etc.

Welcome Coley yet another recruit to the cocoon beach house!

Yep I'm up for that free.

Am on iPhone so just a quickie (be lucky to get even that after days of swi my poor dh!) . Trying to not mental by concentrating on work and not spending too much time on here...

Blimey, that's weird, I don't remember posting that last message halfway through and then starting again .

A warm welcome to the newbies! Everyone's lovely and supportive on here, so you're in good company.
Puree and lemon - so sorry you've both been through it again. It's heartbreaking.
So sad for your friend too Free. She's lucky to have you on hand.
Comedy - you've had a horrendous week. I really Hope ofsted wasn't too painful. We're due s visit some time this year and everyone's really feeling the pressure.
I'm typing on my phone which always takes ages so I'll keep thisbrief and wave to everyone else.
Iggi - how are you?

Woohoo, smilie face, smilie face!! It's ridiculous how relieved I am, I had a really bad feeling I wasn't going to OV this month for some reason. Hope DP's on form tonight

Waiting to hear how iggi and comedy got on today ...

I'd love to meet up. When should we aim for ladies next week or week after - is that enough notice?

Welcome oz to the cocoon world . . You'll know what we mean. It's very comforting here