Chronic pain Pub Corner - support thread#4 All Welcome

[Akire]

Welcome to our new shiny thread for February. The lattes and expressos were not quite hitting the mark so we have moved to the pub. Whether you need Diet Coke or stiff drink help yourself we have a tab going and hunky staff are very attentive.

[RainbowZebraWarrior]

@Akire I am like a lioness and I will go to great lengths to get people to listen to me. And one of the biggest things for me is 'Do not blame my mind' 'This is absolutely not in my head' I know that, because I've worked with people who did have a lot of stuff that was mostly in their head. Or negative mental state rather.

I did 3 years of anatomy and physiology. And I studied Pain Gate Theory. I've counselled and coached sports people through negative patterns when they've been injured. Those typical negative patterns are usually quite obsessive along the lines of

"I'm never going to recover / get better"
"Why me? Why does everything happen to me / go wrong with me etc"
"I just knew I was going to be in pain today"
"I know for a fact I'm not going to sleep tonight"
And ultimately...
"Nothing works, it's all hopeless / what's the point / I give up"

People at that point often can benefit from CBT and are probably quite deep into depression too.

I think most of is here are pretty positive with occasional down days. Wholly understandable. The very fact we are on a support thread proves we are positive people looking to share experiences. The people who I used to treat (for physical injuries, but always ended up needing more emotional support) would largely never do anything to help themselves. So you would see them thr following week and ask if they had done the exercises you gave them, checked out the link / website you recommended. 9 out of 10 times they never did. They would whinge, but very rarely take advice or do any form of self help.

Bizarre really, as they'd go so far to pay me, but often no further. After saying all that, I also had some fabulous model patients.

Sports Therapist by the way for context. Until I had to retire last Feb

[RainbowZebraWarrior]

@Gilead that sounds so rough. EDS is the gift that keeps on giving.

[Akire]

Great post @RainbowZebraWarrior Id love some support to lose weight. It’s hard when can’t exercise and have days when you can’t cook. Evenings all killer for me for snacks even if I’m good all day. Plus my TFEE to lose a pound a week is really low so feels huge effort for tiny progress. One blip in week it’s all back on plus with my age it’s all belly fat and certainly not as easy as my 20s.

[HerRoyalHappiness]

I need to lose weight too. 😩

[wildthingsinthenight]

@Akire

Great post *@RainbowZebraWarrior* Id love some support to lose weight. It’s hard when can’t exercise and have days when you can’t cook. Evenings all killer for me for snacks even if I’m good all day. Plus my TFEE to lose a pound a week is really low so feels huge effort for tiny progress. One blip in week it’s all back on plus with my age it’s all belly fat and certainly not as easy as my 20s.

Calorie counting seems to "fit" with me much more than Slimming World which I have done A LOT. I made sure I had plenty of calories for evening treats though. I do zero exercise. Well a short walk on good days pain permitting.
I've crashed tonight. Had an ok couple of days so went to the cinema yesterday ( it was freezing in there so that wasn't great for my hands and feet) and today walked to the library and back about 20 minutes each way. I'm so exhausted I can't string a sentence together
I love going to the cinema alone in the day time and used to do it a lot. I felt back to my old self for a few hours.
I predict a morning in bed will be needed tmrw. Or maybe the day.

[OnwardsEverStridingOnwards]

Hope you have a good rest, @wildthingsinthenight ❤️

[wildthingsinthenight]

@OnwardsEverStridingOnwards

Hope you have a good rest, *@wildthingsinthenight* ❤️

Thank you.
Pain woke me early so just waiting for painkillers to kick in and then will try to get more sleep.
Happy Saturday all.
Hope it's a good one for us

[Akire]

Good for you for getting out @wildthingsinthenight I’ve not been cinema for years. Their wheelchair spaces are usually one per screen and then in worst place no one would choose to sit. So front row no thanks! Or right against the wall on bottom layer before steps again no! Luckily most these days you can pay to view at home just as well as time add taxi cost it’s cheaper buy digital or on DVD!

Quite early up on Saturday for me the tumbleweed day looms ahead! Pain not dreadful but it’s jumping up and down with its hand in the air going me me me!

[Akire]

I had forgotten six nations started today so has afternoon of that at least

[OnwardsEverStridingOnwards]

@wildthingsinthenight

[wildthingsinthenight]

@Akire

Good for you for getting out *@wildthingsinthenight* I’ve not been cinema for years. Their wheelchair spaces are usually one per screen and then in worst place no one would choose to sit. So front row no thanks! Or right against the wall on bottom layer before steps again no! Luckily most these days you can pay to view at home just as well as time add taxi cost it’s cheaper buy digital or on DVD!

Quite early up on Saturday for me the tumbleweed day looms ahead! Pain not dreadful but it’s jumping up and down with its hand in the air going me me me!

I've resurrected an old DVD player and buy second hand DVDs online of all my favourites
I watch A LOT of tv.

[Gilead]

Managed to stick within calorie allowance today. Added some tinned fruit to my shop to go with porridge. I buy fresh and I always end up letting it go off!

[Akire]

Well done that’s a good idea. I nearly did but managed down packet of jafffa cakes because so fed up of pain. I know I shouldn’t even buy them because it’s only going end up one way!

[Gilead]

I don’t buy them and then end up asking a friend to get them!
Having said that, I had an idea: mini packets like the multi packs of crisps but instead biscuits. You can set iced gems, maryland cookies etc. it seems to work!

[wildthingsinthenight]

@Gilead

I don’t buy them and then end up asking a friend to get them!
Having said that, I had an idea: mini packets like the multi packs of crisps but instead biscuits. You can set iced gems, maryland cookies etc. it seems to work!

Yes I have the mini packets they are good. And the small snickers at 99 calories.
Meringue nests are surprisingly low in cals with tinned fruit and light squirty cream

[Akire]

That’s a good idea will steal that! Pains not been awful today but enough to totally cheese me off. Just don’t want move or do anything. How’s has everyone else got on?

[wildthingsinthenight]

Not too bad physically today apart from exhausted from very little sleep. Mentally not great.
Have my phone call with gp tmw ugh. I feel sick about it. Will make a list as you suggested. Not til the afternoon at least

[Akire]

It’s hard when you have lots going around head and feel anxious and stressed on top of everything. I can never sleep before doctors or hospitals either.

I’ve got nice back and nerve pain coming round to my hips now, seriously body enough of the surprises. There is no reason for you to be hurting!

Fingers crossed for you for tonight

[Gilead]

Meringues have just been added, thank you @wildthingsinthenight.
I managed to stay within my allowance today despite ending up getting a takeaway because I ballsed up dinner!
Pain rough today, I have to come down the last step of the stairs backwards, I twisted. Never mind, stairlift goes in on Tuesday!

[Akire]

Well done on calories, stairlift oh that’s exciting. I went on a neighbours once it was soooo slow. I mean you don’t want whiplash but if someone at the door you need a get a move on button!

[wildthingsinthenight]

@Gilead

Meringues have just been added, thank you *@wildthingsinthenight*.
I managed to stay within my allowance today despite ending up getting a takeaway because I ballsed up dinner!
Pain rough today, I have to come down the last step of the stairs backwards, I twisted. Never mind, stairlift goes in on Tuesday!

Great news about stairlift!

[wildthingsinthenight]

@Akire

It’s hard when you have lots going around head and feel anxious and stressed on top of everything. I can never sleep before doctors or hospitals either.

I’ve got nice back and nerve pain coming round to my hips now, seriously body enough of the surprises. There is no reason for you to be hurting!

Fingers crossed for you for tonight

Everything crossed your nerve pain let's up and you can get some rest

[Gilead]

Hope you all have a decent night! 💐

[MedusasBadHairDay]

Went to the hospital last week for something unrelated to my joint pain, got diagnosed with nail psoriasis, turns out that often goes hand in hand with psoriatic arthritis. So know I'm wondering if I need to be talking to the doctor about that too.

I sat here earlier trying to work out if any parts of my body work as they should, as far as I'm aware my skeletal system does what it should (aside from the broken ankle), but everything else appears to be faulty. And I'm so tired of it.

I feel like I can handle the joint hypermobility on it's own. But when you add in the psoriasis, the asthma, the pcos, etc it's just far too much to even think about.

[HerRoyalHappiness]

Mt fingers are bad today. So is my hip. I wish I could have just one hour where I didn't feel pain.