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Chronic pain

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Chronic pain Pub Corner - support thread#4 All Welcome

837 replies

Akire · 31/01/2022 14:01

Welcome to our new shiny thread for February. The lattes and expressos were not quite hitting the mark so we have moved to the pub. Whether you need Diet Coke or stiff drink help yourself we have a tab going and hunky staff are very attentive.

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18
ICrunchCrispsNotNumbers · 05/05/2022 10:25

im In agony too. Had a massive flare up this week. I’m still in bed and I feel so useless.

ICrunchCrispsNotNumbers · 05/05/2022 10:25

im In agony too. Had a massive flare up this week. I’m still in bed and I feel so useless.

ICrunchCrispsNotNumbers · 05/05/2022 10:26

im In agony too. Had a massive flare up this week. I’m still in bed and I feel so useless.

ICrunchCrispsNotNumbers · 05/05/2022 10:33

HerRoyalHappiness · 28/04/2022 18:53

Happy belated birthday @ICrunchCrispsNotNumbers sorry you were in so much pain, I hope its eased a bit now.

DD has stopped vomiting now and her tonsils have come down but her skin is still an absolute mess. Luckily she has an appointment with dermatology on the 6th so hopefully they can help.

@HerRoyalHappiness sorry, only just seen this! Am useless at checking threads. How did your DD’s appointment go?

the pain did ease off for a while. Having a massive flare up and the moment though, and I’m still in bed. I feel so useless sometimes 😥

lolaflores · 05/05/2022 14:40

Jas anyone jeard anything about Vitamin D deficiency and inflammation ? Someone suggested a connection and I was wondering if this is a possible area to pursue

HerRoyalHappiness · 05/05/2022 20:09

It's definitely worth looking into. Vitamin D and calcium go hand in hand so check you're getting enough calcium too.

Gilead · 16/05/2022 23:40

Hello all, hope things aren’t too bad for you all.

HerRoyalHappiness · 17/05/2022 17:22

Hi Gilead, how are you doing?

I'm not too bad. Had physio today which went really well except for the older ladies not believing I'm disabled as I'm too young apparently 🙃

ICrunchCrispsNotNumbers · 18/05/2022 18:32

Hope everyone’s doing okay ❤️FlowersBrewCake

ICrunchCrispsNotNumbers · 18/05/2022 18:32

Hope everyone’s doing okay ❤️FlowersBrew

Gilead · 18/05/2022 22:40

Hi!
mum not too bad, rough pain day but it would help if I remembered my meds!

HerRoyalHappiness · 19/05/2022 12:16

Oh no Gilead! That's not good.

Gilead · 20/05/2022 08:26

No idea how I got Mum, can’t stand the woman!

RainbowZebraWarrior · 21/05/2022 08:59

Checking in.

Sorry to hear about your rough pain day Gilead.

Wrt remembering to take meds, I've gotten really strict with myself. So I set Alexa alarms and / phone and watch. I also painstakingly make up my dossete every week (takes ages and I have to just do 10 mins at a time) It's meant I'm not forgetting/ missing doses and wondering why I'm not well. I've properly cleared out my meds cupboard and got the dosette one shell with inhalers, creams, hydration sachets and patches on same shelf (so all daily meds in one place - inhalers used to live on top of microwave, creams in the bathroom etc) Oh, and there's a post it note on the shelf saying "Water!" to remind me to actually drink.

I've also been on script strength Vit D and Folic acid now for 6 weeks. Can feel a difference.

I was getting massively pissed off at myself as we've talked about Magnesium a few times on here. I had tried it, and felt it helped but again kept forgetting. So, added in to my dossete now is Magnesium, B12, Omega 3 & 6 along with the Vit D and Folic Acid mentioned above. I know they always say that a healthy person shouldn't need to take supplements, but as my deficiencies have just shown me, I'm not healthy, my diet is shit due to so many intolerances and my depleting hormones haven't helped either. So it was definitely time to take charge. Have to say, I really feel like this combo is working. I feel more energy and less pain. I'm down from averaging 180mg codeine a day to 60mg. And that's usually in the evenings as I'm knackered and sore by then.

Might not work for everyone, but thought I'd share anyway. I've tried all sorts for years and feel like I've hit on a good combo for now anyway.

lolaflores · 21/05/2022 09:46

It feels like it's going to be a long day. Long boring pain filled day.
Pain does not receed. I ant do a thing today my hands have been getting worse and worse over the last few days it now feel like hot stiff bags of pain.
I don't know who to ask for help. Ther is no help.

lolaflores · 21/05/2022 09:49

And I've started this jerk. My whole body jerks.
My legs feel numb and a bit unreliable but I haven't fallen. I'm gradually slowing to a halt

HerRoyalHappiness · 21/05/2022 17:27

@lolaflores that doesn't sound good at all

I'm not too bad pain wise today, but it could be my excitement over my mum coming home from holiday is overtaking the pain.
My brothers have been caring for me for the last 2 weeks, and although we've managed its not the same as having my mum. Like getting a shower is more difficult as I'm trying to be helped into the shower while saving both myself and my brother some embarrassment, getting dressed just hasn't even happened some days, I've just stayed in my PJs.

lolaflores · 21/05/2022 18:27

It really makes a difference getting dressed. I had a few pj days this week and I didn't feel good about it. So happy your mum is home soon. It sounds like you have a great relationship with her.

HerRoyalHappiness · 23/05/2022 06:17

I do, she's an amazing mum. I didn't appreciate all she did for me when I was a teenager, I was a rebel, tear away teen. But I'm so glad she never gave up on me and she supported me. Even when I came back pregnant at 16, she just hugged me and told me whatever I chose would be OK with her. (Said baby is now 13!)

HerRoyalHappiness · 24/05/2022 23:45

how is everyone coping? the constant change in the weather is not doing my arthritis any good at all. but oh well.

lolaflores · 26/05/2022 11:02

I have my GD baptism this weekend. Right now I feel so u well. Cold symptoms. Nausea. Exhaustion.
DD1 father is coming. We get on fine but i have unresolved resentment that is dormant until i have to see him, which thankfully isnt often.
.
My mother can be a bit of a trial and has already started with some of drama which Ive been ignoring bit it seems to fuel her almost.

DH is wonderful. We have organised what we can and it isn't that huge an occasion.

This is the 1st big event since pandemic, which i sheltered throughput due to suppressed immune system and getting fibro diagnosis.

It's a distance away and it's going to be basically a long day.
I'm not sure what my reserves are like emotionally and physically and I'm ot sure how much these it's and pieces are heightening how I feel. I want my head to stop kicking the shit put of my body and I don't think valium is enough.

Putting it down helps and thanks for listening

HerRoyalHappiness · 27/05/2022 04:41

@lolaflores sending spoons to help you get through, and we're always here should you need to vent.

bettbburg · 10/06/2022 06:29

Hi there..room for one more ?

HerRoyalHappiness · 10/06/2022 07:11

Of course @bettbburg

I've done my ankle in but I'm meant to be meeting a friend for lunch. Luckily she knows I'm slow on my feet due to pain so if I'm a little late she'll understand, although I'm up and ready 5 hours before I need to meet her so I doubt I'll be late 😂

bettbburg · 17/06/2022 09:47

How did it go ?