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Has anyone else's child had this

210 replies

Cjkd24 · 08/01/2026 19:15

Looking for some advice.
My daughter is 3 in April.
She hardly eats but her weight is rapidly increasing. She doesn't snack she eats minimal at meals. She doesn't like sweet things she will eat fruit if anything.
She currently weights 31.8kg (5 stone) shes put on 14kg (2.2 stone) in a year.
Shes seeing a paediatrician and a paediatric endocrine specialists but yet we still have no answers.
I feel like im at a loose end.
Has anyone got any ideas?

Has anyone else's child had this
Has anyone else's child had this
Has anyone else's child had this
Has anyone else's child had this
OP posts:
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8
lolabo · 16/03/2026 00:58

If it hasn’t been suggested- I would look into ROHHAD syndrome and see if it could fit

ItsSlipperyWhenWet · 16/03/2026 04:39

How’re things going?

Cjkd24 · 16/03/2026 08:03

ItsSlipperyWhenWet · 16/03/2026 04:39

How’re things going?

There's no beds available at the moment so she hasn't been yet

OP posts:
Cjkd24 · 24/03/2026 09:22

They are looking into ROHHAD as a possible diagnosis

OP posts:
Usernamenotfound1 · 24/03/2026 10:02

Cjkd24 · 24/03/2026 09:22

They are looking into ROHHAD as a possible diagnosis

Oh wow. At least a step toward a diagnosis.

the obesity associated with ROHHAD is still a result of increased appetite though so how are the explaining her weight gain and lack of eating?

minipie · 24/03/2026 10:03

Gosh. I’m so sorry that it may be something so serious. It must be a very stressful time for you Flowers. It sounds like early intervention is very helpful if it does turn out to be that, so well done for continuing to push.

Cjkd24 · 24/03/2026 10:25

Hi, they didnt tell me they sent a appointment report and it states it in that. They still haven't admitted her or anything

OP posts:
PoppySaidYesIKnow · 24/03/2026 12:19

I hope you get the right diagnosis soon, you’ve both been let down so much up to now.

Cjkd24 · 24/03/2026 12:27

PoppySaidYesIKnow · 24/03/2026 12:19

I hope you get the right diagnosis soon, you’ve both been let down so much up to now.

Thank you. I no this has been shockin

OP posts:
muggart · 24/03/2026 18:10

Usernamenotfound1 · 24/03/2026 10:02

Oh wow. At least a step toward a diagnosis.

the obesity associated with ROHHAD is still a result of increased appetite though so how are the explaining her weight gain and lack of eating?

I don’t think this is correct based on what I’m reading online. normal intake can make a child obese because the body stores energy abnormally and the metabolism slows right down.

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