Pneumococcal meningitis

[Bon1988]

Please does anyone have advice. My child is currently being treated in hospital with Pneumococcal meningitis and I just need someone who has been there to tell me what to expect recovery wise.
The doctors are telling me the infection markers are going down and we have moved from PICU to a ward. I'm just extremely anxious because i would have expected to see him brighter than what he is. He can open his eyes a little butbhis neck is still stiff, still in pain (although seems to be lessening everyday), he can't talk and has limited movement. Prettu much a semi conscious state and I cant bear it!!

QuoteReactAdd postReport
Bookmark
Unwatch
Save
Share

Back to top
Add your message here
Your username

Message

By posting on Mumsnet you agree to our Terms of Use and to follow our Talk Guidelines. Please be respectful.

Add imageAdd GIF
Watch this thread
PreviewPost
Similar threads
Anxiety with illnessParenting
To be worried about DH various health issues?AIBU?
Health anxiety or something seriousChat
Risk of meningitis to others?Chat
Anxiety and toddler illnessChat

If there was a General Election next week, how would you vote?
Labour Party
Conservative Party
Liberal Democrats
Green Party
Scottish National Party (SNP)
Plaid Cymru
Reform UK
Indpendent
Wouldn't vote
Unsure
N/A not eligible to vote
Privacy policy

ActiveWatching

@Bon1988 how did you get on? I'm currently in the same situation.

I've had pneumoccocal meningitis in my 30s (now 60). I was in hospital for about 3 weeks, but made a full recovery. What I would say is that I was really exhausted and tired for about a year afterwards, and my immune system wasn't great.

I hope things go well for your child. 💐

@OrangeYellowCup he is amazing, it was a long 3 months in hospital but he is back at school moving and talking the way he did before. Some slight differences in memory and speech but big picture is he is better. Still doing physio and speech therapy and a follow up MRI is needed. I pray you get the same outcome. Feel free to PM me at any time. It's was probably the scariest time in my life and I remember needing to ask someone all the questions which is why I posted here.

@Hatty65 thank you. I'm glad you got through it 💐

@Bon1988 that's great to hear, I am so so pleased for him and for you. I hope the recovery continues to progress well. I may take you up on that! Right now DS is so agitated and wants to be home but won't take the oral meds 😩

@OrangeYellowCup I do have to warn you in our situation it got worse before it got better!! We were in and out of PICU 3 times but not always because of the meningitis, ironically it cleared within 10 days with the antibiotics. So I hope your situation is that simple. Keep the faith and pray to whoever you pray to. The only advise I would give you is the medical professionals are amazing but your the parent and know him best so go with your gut. Xx

@OrangeYellowCup hope you don't mind me checking in. How is Ur DS doing??

My son had it aged 3 (he’s now 15) Was very scary, he was in hospital for over a week, but once the antibiotics took hold, he started to bounce back very quickly. Please contact the Meningitis Trust- they were a godsend to us in the recovery stage (which can be prolonged) Lots of follow up tests, hearing etc. Handholding as so scary xxxx

https://www.meningitisnow.org/get-support/contact-our-helpline/